30 Days of Strength

THROUGHOUT SEPTEMBER, MDA is celebrating strength. People living with neuromuscular disease are pushing the limits and showing the world that nothing can take away their will.

Help champion their dreams by creating your own 30 Days of Strength campaign!

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Logo for the 30 Days of Strength.

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Donate to an existing 30 Days of Strength campaign OR create your own by picking a 30 day challenge that's personal for you—whether it's doing ten push-ups each morning, cooking a new dish each evening, or creating a drawing every day. Then ask your loved ones to sponsor and share your 30 Day journey.

I will stop at nothing to continue to champion the women, men, and children who are fighting neuromuscular disease

Featured Story

My name is Brandon Barash

Actor and MDA Advocate

My strength If I survived a punctured heart at the age 17 during a heart surgery gone horribly wrong, I can be strong and continue to raise my voice for the funding of treatments for neuromuscular diseases

The hardest thing I’ve ever done is burying my father when I was 38. 20 years before that, the hardest thing was laying my best friend, Chad Darvey, to rest at age 18. He suffered with Duchenne Muscular Dystrophy

What made it possible The strength that my mom and dad programmed into my DNA made it possible for me to gracefully navigate such a terrible loss

What I learned That love never dies. It can't. The first law of thermodynamics states that energy can neither be created nor destroyed -- it can only transfer from one to another. The same goes for love

Personal connection to MDA Through the work I do with MDA, they've made Chad immortal. His legacy lives on through every donor, recipient, and anyone who is moved by his story and the work that we're doing. Until his dying day, Chad never gave up fighting. I pledge that I will pick up fighting where he left off, and I too, will not give up until my final day

Your support advances research and programs that improve the lives of people living with neuromuscular diseases.

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Story Archive

Each day we’re spotlighting a member of our community who has a dream and the power of will to achieve it. Click to read their stories and find out how you can support them during 30 Days of Strength.

  1. I will turn the Phillies’ ballpark into a campground for kids with neuromuscular disease

    Meet Rhys

    My name is Rhys Hoskins

    Philadelphia Phillies and MDA Advocate

    The hardest thing I've ever done Dealing with the death of my mother -- I was 16 when she died.

    What made it possible My dad encouraged me to live the way I would if my mom was still there.

    What I learned Something as miserable as losing a parent can have a silver lining: I grew closer to my dad and sister, and  have become more in touch with how people around me are feeling.

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  2. I will program robots to help people like me

    Meet Elaine

    My name is Dr. Elaine Short

    Living with limb-girdle muscular dystrophy

    My strength Nothing motivates me to excel more than someone underestimating me -- and as a disabled woman in computing, that happens to me a lot!

    The hardest thing I've ever done Getting my Ph.D. in Computer Science -- a seven-year journey.

    What made it possible I received my diagnosis of LGMD towards the end of my Ph.D. -- suddenly I had a much more personal motivation to finish my dissertation on socially assistive robotics!

    What I learned There’s no such thing as wasted time! Many things I thought were side-tracks from my main dissertation, like reading up on disability rights and self-advocacy, turned out to be hugely helpful to me later on.

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Elaine. Donate today or start your own 30 Days of Strength fundraising campaign!

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  3. Ed

    I will with my MDA and Night of Hope teams raise millions for ALS research

    Meet Ed

    My name is Ed Tessaro

    Living with ALS

    My strength comes out of my suffering: to quote Hemingway, ‘the world breaks all of us, and we become stronger at the broken places.’

    The hardest thing I've ever done telling my wife we wouldn’t grow old together

    What made it possible gratitude for the life we shared and still do

    What I learned how much good there is in the world, measured by all the acts of kindness offered to us by perfect strangers

    Your support advances research and programs that improve the lives of people living with ALS like Ed. Donate today or start your own 30 Days of Strength fundraising campaign!

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  4. I will do ballet again – this time in pointe shoes

    Meet Neenah

    My name is Neenah Williams

    Living with facioscapulohumeral muscular dystrophy

    My strength If my grandfather could survive pancreatic cancer at 84 years old, I will find a way around every obstacle of my condition

    The hardest thing I've ever done Traveling to Africa alone and summiting Mount Kilimanjaro

    What made it possible I didn’t let myself dwell on the possibility of failure

    What I learned Recognize that what you may think is a small milestone is monumental for someone else

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Neenah. Donate today or start your own 30 Days of Strength fundraising campaign!

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  5. I will find a cure for my disease

    Meet Justin

    My name is Justin Cohen

    Living with facioscapulohumeral muscular dystrophy (FSHD)

    The hardest thing I've ever done Getting my PhD.

    What made it possible Stubbornness, and my family, who made sure I never used my disease as an excuse or way out

    What I learned Never be ashamed to ask for help

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Justin. Donate today or start your own 30 Days of Strength fundraising campaign!

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  6. I will endlessly advocate for my patients to have independence and strength in facing life’s challenges

    Meet Sarah

    My name is Sarah Stoney

    Social Worker at the MDA Care Center at The Children’s Hospital of Philadelphia

    The hardest thing I've ever done Several years ago, I decided to leave my career and return to my passion of social work.  I returned to grad school while working full time and, with a lot of perseverance, graduated in 2014.

    What made it possible My husband (then fiancée) was a huge support for me! Also, I really prioritized taking care of myself. I was able to so much more when prioritizing my emotional and physical wellbeing.

    What I learned I can create the recipe that works for me in tackling huge life challenges, even some that seem impossible! Again – you have to take care of yourself first before tackling anything!

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  7. I will become a Veterinarian

    Meet Ethan

    My name is Ethan LyBrand

    Living with neuromuscular disease

    My strength Comes from my Mom and Dad who have taught me to never say “I can’t” and to always finish strong

    The hardest thing I’ve ever done Go to camp when I was 6 and leave my mom and dad for a week!

    What made it possible The camp volunteers made it so easy to stay, and we had so much fun that I was not homesick at all

    What I learned It was the best week of my life and made me feel more independent

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Ethan. Donate today or start your own 30 Days of Strength fundraising campaign!

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  8. I will get married and have a family

    Meet Tana

    My name is Tana Zwart

    Living With FSHD

    The hardest thing I've ever done Admit I couldn't walk anymore, and start using a scooter. It felt like giving up.

    What made it possible I was born with spit and vinegar in my blood.

    What I learned Change isn't the end of me (even though sometimes it feels like it).

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Tana. Donate today or start your own 30 Days of Strength fundraising campaign!

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  9. I will double down on my strengths

    Meet Peter

    My name is Peter Saleh

    Living with Charcot Marie Tooth (CMT)

    My strength comes from knowing my condition is hereditary allowing me to figure out the physical disadvantage I inherited must have been accompanied by other perhaps less tangible traits - resourcefulness, personality, problem solving, or a degree of patience - that help me compensate and succeed

    Hardest thing I’ve ever done was getting into a severe bike accident that required reconstructive surgery on my right hand. The physical rehabilitation and rebuilding of my music career was hard - I am a drummer/percussionist - it required a lot of faith and determination

    Where I get my support from Sue, my partner of 10 years and my dog Batman were crucial in my ability to persist in trying to build things back up. I also have a talented hand therapist who helped tremendously by being grounded and attentive to my particular situation

    What I learned was that your life and health aren’t guaranteed so make the most of your time

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Peter. Donate today or start your own 30 Days of Strength fundraising campaign!

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  10. I will get up on stage for my school play

    Meet Faith

    My name is Faith Fortenberry

    Living with Spinal Muscular Atrophy (SMA)

    My strength Comes from being a part of a community of support

    The hardest thing I’ve ever done Is be brave enough to be away from my parents and go to MDA Summer Camp by myself for the first time

    What made it possible I have made new friends at MDA Summer Camp and I know I’m not alone in this. Feeling part of a community makes it possible

    What I learned I’ve met so many amazing people who have neuromuscular diseases and the people who help support them. I know the more we work together we can make things better. I loved spending time with friends like me!

    How MDA has helped me MDA has helped me get treatments that didn’t even exist when I was born! I was able to go to MDA Summer Camp and swim and make friends

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Faith. Donate today or start your own 30 Days of Strength fundraising campaign!

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  11. Joe

    I will do anything I can to help with MDA including walking across the state of Virginia with March for MDA

    Meet Joe

    My name is Joe Jarman

    IAFF partner

    My strength Comes from my family and friends who give me all the strength I need

    Hardest thing I’ve ever done Walk across the state of Virginia with March for MDA

    What made it possible The support of my wife, children, my MDA coordinator Darcy Warren, my best friend Travis Saunders and everyone at the Suffolk Fire Department

    What I learned I am consistently trying to find something more to increase awareness

    What presence does MDA have in your life? My personal connection to MDA started my very first year in the fire department and has grown every year

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  12. I will find new treatments for DMD and other rare neuromuscular disorders

    Meet Matthew

    My name is Dr. Matthew Alexander

    Doctor specializing in Duchenne Muscular Dystrophy

    My strength Comes from working with and talking to patients and their families affected by DMD and other muscle disorders. I will be overjoyed knowing that each patient will have the chance to reach their unlimited potential through my work

    The hardest thing I’ve ever done Leaving my former lab, friends, colleagues and mentors in Boston to set up my own laboratory in Birmingham, Alabama

    What made it possible My supportive mentors at UAB, Children’s of Alabama, and the MDA Clinic at Children’s. MDA Birmingham has also been a fantastic resource in connecting me with patients and collaborators in the community. I attribute a lot of my early successes to their help

    What I learned Make your research have a personal connection, and don’t be afraid to seek out help and get advice from those you trust

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  13. I will tell our stories

    Meet Lindsey

    My name is Lindsey Baker.

    Living with Charcot-Marie-Tooth disease.

    The hardest thing I've ever done Giving up driving, which felt like I was giving up my independence.

    What made it possible I learned to ask for help -- even when I didn't want to.

    What I learned Having to make the most of time outside my home means living more intentionally. None of my time in the world is wasted.

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Lindsey. Donate today or start your own 30 Days of Strength fundraising campaign!

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  14. Jon

    I will ride from Seattle to NYC

    Meet Jon

    My name is Jon Olson

    Living with Myotonic Dystrophy

    My strength my wife Julia Vosper and the friends who help without condescension

    Hardest thing I’ve ever done caring for my mother as she was dying

    What made it possible a sense I owed her whatever comfort I could give

    What I learned we can’t choose how we die but we can choose what to do while we’re alive

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Jon. Donate today or start your own 30 Days of Strength fundraising campaign!

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  15. I will go to college and live on my own!

    Meet Reagan

    My name is Reagan Imhoff

    Living with Spinal Muscular Atrophy

    My strength comes from my family and friends always encouraging me to follow my own path, be my own person, and do my own thing

    Hardest thing I’ve ever done was having to be without my wheelchair for six weeks after it was destroyed on my way home from vacation

    What I learned was that I am stronger than I thought

    What made it possible is my strength and never wanting to let my physical limitations stop me from living my life

    Personal connection to MDA I was fortunate enough to be the MDA national ambassador and have been attending the MDA Summer Camp since I was six years old. Along the way I have met so many incredible people living with and caring for all different types of muscle diseases. We all face difficulties, and for many of us living with muscle disease it is on a daily basis. Even though my physical abilities are limited, I know how fortunate I am to have such a huge support system of people that want to see me live my best life!

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  16. CJ

    I will support my friend Jack with MDA’s Muscle Walk

    Meet CJ

    My name is C.J. Abrams

    Friend of Jack, who lives with neuromuscular disease and professional baseball player with the San Diego Padres

    My strength Comes from watching others who never give up no matter how hard something is

    Hardest thing I’ve ever done Is consistently be a good baseball player

    What made it possible My parents, my coaches and my friends always encouraging me

    What I learned The hard work pays off and now I’m a member of the San Diego Padres

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like C.J.. Donate today or start your own 30 Days of Strength fundraising campaign!

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  17. I will cure my own disease

    Meet Justin

    My name is Justin Moy

    Living with Congenital Muscular Dystrophy (CMD)

    My strength Comes from my family who I consider to be my greatest support team. Without them and the lessons they taught me, I wouldn’t be able to take on and accomplish my goals

    Hardest thing I’ve ever done Navigate the Massachusetts public healthcare system in order to hire PCAs

    What made it possible Necessity made it possible to overcome the challenges, I knew this was possible to complete, and that failing is not an option

    What I learned As long as you are persistent and don’t lose sight of your goal, it is always worth it to take on a task

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Justin. Donate today or start your own 30 Days of Strength fundraising campaign!

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  18. I will continue to ride for life, to raise money for MDA patients and researchers who need it most

    Meet Mike

    My name is Mike Dimov

    Top MDA ride for life fundraiser with Harley-Davidson and MDA Summer Camp counselor for 20 years

    My strength Comes from being part of the MDA Harley-Davidson

    Hardest thing I’ve ever done Spent a week as an MDA Summer Camp counselor for the past 20 years, but also the most gratifying

    What made it possible The enthusiasm of MDA and Harley-Davidson communities as we come together to raise money and awareness for muscular dystrophy and fulfill dream bike rides

    What I learned I have learned a lot from my interactions with MDA campers and how they never give up on their dreams

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  19. I will stop at nothing to continue to champion the women, men, and children who are fighting neuromuscular disease

    Meet Brandon

    My name is Brandon Barash

    Actor and MDA Advocate

    My strength If I survived a punctured heart at the age 17 during a heart surgery gone horribly wrong, I can be strong and continue to raise my voice for the funding of treatments for neuromuscular diseases

    The hardest thing I’ve ever done is burying my father when I was 38. 20 years before that, the hardest thing was laying my best friend, Chad Darvey, to rest at age 18. He suffered with Duchenne Muscular Dystrophy

    What made it possible The strength that my mom and dad programmed into my DNA made it possible for me to gracefully navigate such a terrible loss

    What I learned That love never dies. It can't. The first law of thermodynamics states that energy can neither be created nor destroyed -- it can only transfer from one to another. The same goes for love

    Personal connection to MDA Through the work I do with MDA, they've made Chad immortal. His legacy lives on through every donor, recipient, and anyone who is moved by his story and the work that we're doing. Until his dying day, Chad never gave up fighting. I pledge that I will pick up fighting where he left off, and I too, will not give up until my final day

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  20. I will continue to work to save lives and improve health outcomes by working to develop newborn screening policies...

    Meet Rodney

    My name is Dr. Rodney Howell

    MDA Board Chairman and Doctor

    My strength comes from the many research scientists who are working to find treatments for neuromuscular disease and from the patients and families who overcome great odds daily to live the best lives possible

    Hardest thing I’ve ever done It is particularly difficult to live with knowing how many lives could be saved if only newborn screening were adopted worldwide. And at the same time to understand that in many countries having access to clean water is balanced against newborn screening

    What I learned The remarkable cures we see today were started, in many instances, many decades ago, and continuing the very hard work to find new ones will eventually pay off with lives altered and saved

    What made it possible Seeing the new remarkable treatments actually administered is one of the most exciting things one can imagine

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  21. I will be able to walk across the stage at graduation and receive my diploma

    Meet Devin

    My name is Devin Argall

    Living with Duchenne

    The hardest thing I've ever done show my friends I’m more like them than they think, and that even if I can’t do things with them exactly the way they do it, I can find another way to be a part of the experience.

    What made it possible Getting my driver’s license and a job helped them see I’m not so different.

    What I learned All friendships take work -- but each one is worth the effort.

    Will you support new breakthroughs that make it possible for people with neuromuscular disease to pursue their dreams?

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Devin. Donate today or start your own 30 Days of Strength fundraising campaign!

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  22. I will be on the forefront of delivering novel therapeutics to adults with neuromuscular disease

    Meet Lauren

    My name is Dr. Lauren Elman

    MDA Care Center Director at the University of Pennsylvania

    My strength comes from the longitudinal relationships that I develop with my patients and participating in translational research, with the hope of having more therapeutic options in the future

    Hardest thing I’ve ever done is explaining to patients with certain diseases that we have no disease modifying therapies to offer them and must focus exclusively on symptom management

    What I learned from this experience is that I find working with patients with neuromuscular disease to be a very positive and hopeful experience. Many patients and families demonstrate boundless courage and fortitude that is admirable and humbling

    Personal connection to MDA working with MDA has given structure and focus to my career and has provided a framework within which I can care for my patients effectively, participate in community outreach and remain academically rigorous with respect to clinical trial work

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  23. I will fight to enable strength through science

    Meet Wolfgang

    My name is Wolfgang Pernice

    Researcher living with Charcot Marie Tooth (CMT)

    My strength Comes from the resilience and persistence of neuromuscular disease patients who refuse to be limited. I find inspiration in stories of parents who fight with every fiber of their being for their children's futures

    The hardest thing I’ve ever done Becoming personally familiar with the gradual yet relentless way in which neuromuscular disease attempts to limit us, for all my life

    What made it possible My muscle team, consisting of my incredible friends and family as well as my clinical and scientific colleagues. Special shout-out to my 2016 MDA Team Wolfpack New York City Ttriathlon partners Arda Bozyigit and Nick DeVeaux. And my father, who refuses to this day to be limited by his disease. Through him, I have never seen our condition as anything but a challenge to be taken on

    What I learned Through my scientific and medical colleagues with whom I have the privilege to work, I have learned to find confidence that we truly can change the course of our diseases in the near future. As a scientist, I can say that there has never been a better time to hope for breakthroughs in the field of neuromuscular disease research

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Wolfgang. Donate today or start your own 30 Days of Strength fundraising campaign!

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  24. I will fight to see my son achieve his dreams

    Meet Crystal

    My name is Crystal Somers

    Mother of child with SMA

    My strength comes from my never give up attitude and having seen Cooper fight for his life during illness, if he can be that strong, I can be just as strong and never give up the fight for a cure.

    The hardest thing I've ever done bury my husband and step up as a single mother to never give up on anything for my sons.

    What made it possible Cooper gave me the strength to step up and realize I can do anything I put my mind to and keep fighting.

    What I learned the continuous love, trust and encouragement my parents give me has made me the person I am. I would not be this strong without them.

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  25. I will continue to build the LGMD2L Foundation and participate in research around the world

    Meet Ralph

    My name is Ralph Yaniz

    Living with Limb-Girdle Muscular Dystrophy (LGMD)

    My strength Comes from always looking forward and constantly searching for solutions for future generations

    Hardest thing I’ve ever done The hardest thing I’ve done physically is the trip I took to Belgium in January to participate in a clinical study. It was difficult traveling with the cold and wet weather. I also had lots of clinical testing, including a full body MRI and three needle biopsies

    What I learned I’ve learned that in life you need to keep looking forward. You have to strive and live and learn so you can thrive. It’s about creative living each step of the way

    What made it possible The entire MD community I work with - leaders and members of other foundations and organizations, and members of all of the Facebook sites

    Personal connection to MDA I have had five (biopsies) and have muscle cells in Chicago, Denver, Atlanta and the country of Belgium. I will continue to participate to help find cures and treatments

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Ralph. Donate today or start your own 30 Days of Strength fundraising campaign!

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  26. I will be on Ladylike and be a star

    Meet Morgan

    My name is Morgan Swaney

    Living with Friedreich’s Ataxia (FA)

    My strength has been built from the experiences I have encountered and conquering them with determination

    Hardest thing I’ve ever done is coming to terms with my diagnosis and learning to cope with my emotions and make decisions to move forward as best I can

    What made it possible is the will to continue and achieve a lot of goals in my future

    What I learned is to overcome difficulties and not let them overcome me. My disease will not get in the way of what I want to achieve in life

    Personal connection to MDA The MDA gives me a platform to advocate for myself and others like me. I spread awareness about muscular dystrophy and disease. I want to spread the idea that everyone is different and not to judge based on one’s physical abilities

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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  27. I will be positive through every hardship, because negativity makes things worse

    Meet Jordan

    My name is Jordan Reidenberg

    Living with neuromusclar disease

    My strength comes from support I have received at MDA Summer Camp and MDA Care Center staff. Family and friends help me stay positive throughout my own journey

    Hardest thing I’ve ever done is see all my other classmates lead pretty typical teenage lives, getting their license, etc

    What I learned is to be patient and think about what I have and not what I don’t. It has taught me not to compare my life to others

    What made it possible MDA has shown me that everyone, whatever their ability, can overcome anything. No matter the situation, the kids are happy and still have fun doing what they can

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Jordan. Donate today or start your own 30 Days of Strength fundraising campaign!

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  28. I will always work to make sure that the portrayal of disabled people in the media is positive and something anyone can relate to

    Meet Steve

    My name is Steve Way

    Actor and advocate, currently starring in Hulu’s Ramy

    Living with neuromuscular disease

    My strength comes from the people that believe in me. Their support gives me the motivation to keep setting goals and working to achieve them

    Hardest thing I’ve ever done is having to accept that I live in a world that was not designed for people like me

    I get my support knowing that I have the ability to adapt to my surroundings and change people’s minds about accessibility

    What I learned is that my mind is stronger than my body and is my best tool to use when navigating through life

    Personal connection to MDA The MDA has helped me by giving me the opportunity to speak at such an early age. This allowed me to find my voice that would help me in every part of my life. One of my most prideful accomplishments is being able to raise money and awareness for MDA to help make sure that people with muscular dystrophy are able to have the same chances to achieve their goals as I did

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Steve. Donate today or start your own 30 Days of Strength fundraising campaign!

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  29. I will be a World Champion

    Meet Nathan

    My name is Nathan Mayer

    Living with neuromuscular disease

    My strength comes FROM showing the people that are doubting my abilities that I belong on the US National Power Soccer Team

    Hardest thing I’ve ever done losing the strength in my arm so much so that I could barely drive my soccer chair at a competitive level. I have been playing soccer since I was 6 years old and I have always dreamed of being on Team USA, and now I don’t know if I will even be able to compete locally; all because of my disability. It was very hard and I didn’t know what to do

    What made it possible My family was supportive through the entire process and helping me find my game again. I wouldn’t have been able to get back to where I needed to be without them

    What I learned is that no matter who doubts you and how hard the hard road may seem, hard work and determination will always get you further along. I have applied that mentality to not only soccer, but to work, school, and life as a whole

    Personal connection to MDA has been a sign of strength and community. It’s been really helpful having the MDA fight for treatments to become a reality

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases like Nathan. Donate today or start your own 30 Days of Strength fundraising campaign!

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  30. I will continue to inspire children & adults living with neuromuscular disease to not allow their diagnosis to stop them from...

    Meet Paul

    My name is Paul Robertson

    Living with Limb Girdle

    Founder of Fishing for Muscular Dystrophy, a foundation raising money and awareness for Muscular Dystrophy

    My strength Maintaining a positive outlook and realizing things could be worse

    Hardest thing I’ve ever done Admitting to others and myself I had a diagnosis of LGMD

    What made it possible Starting the FFMD was like therapy for me. To be able to combine my passion of boating and fishing and align with MDA allowed me to freely speak and get out of denial of the diagnoses that had been given to me

    What I learned You realize that your current situation could be worse and learn to live positively through each day and if you keep a good spirit, a positive outlook and surround yourself with good people, you realize that a lot of people will help you through the challenges of living with MD

    Your support advances research and programs that improve the lives of people living with neuromuscular diseases. Donate today or start your own 30 Days of Strength fundraising campaign!

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