http://www.mda.org/whatsnew/ 11/4/2009 Get the latest news from the Muscular Dystrophy Association (MDA) en-us http://www.mda.org/publications/Quest/extra/nov09/goldsmith.html 11/4/2009 World Series pays tribute to late ALS activist Michael Goldsmith, who urged baseball to fight 'Lou Gehrig's disease.' http://www.mda.org/publications/Quest/extra/nov09/fisherman.html 11/4/2009 With help from his wife and simple-but-ingenious adaptations, angler with BMD still reels 'em in. http://www.mda.org/publications/Quest/extra/Oct09/abbey-gap-kid.html 10/30/2009 MDA's National Goodwill Ambassador, who has CMT, needs votes in Gap's Casting Call. http://www.mda.org/publications/Quest/extra/Oct09/NewMattieBook.html 10/28/2009 Mattie Stepanek's mother offers an inside look at the poet and former MDA National Goodwill Ambassador. http://www.mda.org/news/091026nalc-bowl.html 10/26/2009 Thousands of members of the National Association of Letter Carriers (NALC), a chartered member of the AFL-CIO, will head for their local bowling centers Sunday, Nov. 1 to raise funds for the Muscular Dystrophy Association. http://www.mda.org/news/091022tradition-of-hope.html 10/22/2009 Celebrities and business leaders rallied to raise $740,000 in the fight against ALS (Lou Gehrig's disease) as they united to support Augie's Quest, an initiative with the Muscular Dystrophy Association to combat the disease, at the fourth annual Tradition of Hope Gala in Beverly Hills on Saturday, Oct. 17. http://www.mda.org/publications/Quest/extra/Oct09/millionaire.html 10/9/2009 Man with nemaline myopathy takes his chances on Who Wants To Be A Millionaire. http://www.mda.org/news/091008Federal%20Support.html 10/8/2009 The National Institutes of Health has announced a $117 million expansion of its Rare Diseases Clinical Research Network, adding 14 research consortia, or groups, to the Network’s second phase and will continue funding the five original groups. http://www.mda.org/news/091005obrien.html 10/6/2009 A creation by artist Dorothy M. O'Brien of Corvallis, Ore., has been accepted into the Muscular Dystrophy Association's Art Collection. http://www.mda.org/news/091005nelson.html 10/6/2009 Two computer creations by artist Thomas L. Nelson of Temecula, Calif., have been accepted into the Muscular Dystrophy Association's Art Collection. http://www.mda.org/publications/Quest/extra/Oct09/bigBrotherCMD.html 10/2/2009 "Big Brother" with congenital muscular dystrophy says he uses "what talents I have." http://www.mda.org/news/090923clubcorp.html 9/23/2009 ClubCorp, the preeminent owner and operator of private golf, country, business and sports clubs, will host it's Third Annual ClubCorp Charity Classic, at clubs from California to New York in the world's largest one-day, multi-site charity golf and dining event, Friday, Sept. 25. http://www.mda.org/news/090923ross-paa.html 9/23/2009 Dr. John Quinlan of Lakeside Park, Ky., has been named the recipient of the Muscular Dystrophy Association's 2010 Robert Ross National Personal Achievement Award. http://www.mda.org/news/090918mda-TOA-success.html 9/18/2009 An impressive collection of unique and one-of-a-kind specialty items sparked bidder interest, bringing in almost $350,000 through the Telethon Online Auction to benefit the Muscular Dystrophy Association. http://www.mda.org/news/090918va_benefits.html 9/18/2009 Last September the Secretary of Veterans Affairs designated amyotrophic lateral sclerosis (ALS) a service-connected disability for all Veterans with 90 days or more of continuous active service in the military. As a result, the VA can now pay disability compensation to Veterans with ALS and survivors of Veterans with ALS who have passed away. http://www.mda.org/news/090911mda-telethon-44-TOA.html 9/14/2009 A number of popular celebrity-themed and unique experience specialty items have garnered top bids in the Muscular Dystrophy Association's Telethon Online Auction. http://www.mda.org/H1N1/ 9/10/2009 It's no secret that more than one kind of flu virus will be spreading through our communities in the coming months, including seasonal influenza and the 2009 H1N1 flu. http://www.mda.org/publications/Quest/extra/sept09/policy.html 9/8/2009 Invitation-only meeting seeks applicants to help shape national disability policy; apply by Oct. 15 http://www.mda.org/news/090907mda-telethon-44-tote.html 9/7/2009 Despite the effects of an uncertain economy, contributions and pledges to the 44th annual Jerry Lewis MDA Telethon over Labor Day nonetheless totaled $60,481,231 million. http://www.mda.org/news/090906telethon-2009.html 9/6/2009 Photos of Jerry Lewis and Wynonna Judd from the opening hours of the 2009 Jerry Lewis MDA Telethon. http://www.mda.org/news/090901mda-walgreens-flu.html 9/1/2009 Continuing a service it has provided for decades, the Muscular Dystrophy Association (MDA) is again offering seasonal flu shots to people who have muscular dystrophy and related diseases. http://www.mda.org/news/090827mda-telethon-44.html 8/27/2009 Fire up the barbies, and the flat screen TVs and join comedy legend Jerry Lewis for his 44th annual Muscular Dystrophy Association Telethon this Labor Day weekend, Sept. 6-7. http://www.mda.org/publications/Quest/extra/aug09/fly-with-me.html 8/26/2009 MDA's new "Fly Out" program brings together the MDA community and legislators home on recess. http://www.mda.org/news/090825barash.html 8/25/2009 Brandon Barash, the popular actor who plays Johnny Zacchara on ABC’s “General Hospital,” has been named a Muscular Dystrophy Association National Celebrity Ambassador. http://www.mda.org/news/090818bettys-battle-als.html 8/18/2009 Nancy O'Dell, longtime co-host of the entertainment newsmagazine "Access Hollywood" and author of the book Full of Life, and the Muscular Dystrophy Association (MDA) have founded Betty's Battle in honor of O'Dell's mother who died of ALS, or Lou Gehrig's disease, last year. http://www.mda.org/publications/Quest/extra/aug09/untangling.html 8/14/2009 World Federation of Neurology teams up with Twitter to untangle unconventional ALS treatments. http://www.mda.org/publications/Quest/extra/aug09/camp.html 8/12/2009 MDA delivers a little fun to youngsters whose MDA summer camp sessions were canceled. Slideshow. http://www.mda.org/news/090806mda-telethon-site.html 8/6/2009 For the first time ever, the Muscular Dystrophy Association will revamp the homepage on its official Web site to be all-Telethon, all the time as the Official Web Site of the Jerry Lewis MDA Telethon during the month leading up to Labor Day weekend. http://www.mda.org/publications/Quest/extra/aug09/parachute.html 8/5/2009 Golden Knights parachuting team reaches new heights with a tandem jumper with CMT. SLIDESHOW http://www.mda.org/news/090805mda-telethon.html 8/5/2009 The South Point Hotel, Casino and Spa in Las Vegas will again host the Jerry Lewis MDA Telethon. http://www.mda.org/publications/Quest/extra/jul09/air-update.html 7/31/2009 Air travelers "hostile" as new required labels for respiratory equipment fail to materialize. http://www.mda.org/news/090730mumper.html 7/30/2009 A handcrafted wooden bowl by artist Thomas "Tom" Mumper of Wilmington, Del., has been accepted into the Muscular Dystrophy Association’s Art Collection. http://www.mda.org/news/090721mda-national-leadership.html 7/21/2009 Three prominent figures in the field of neuromuscular disease research have been re-elected to national leadership positions with the Muscular Dystrophy Association (MDA). http://www.mda.org/news/090716nieves.html 7/16/2009 Artist Yvonne Mary Nieves of Avondale, La., has had a second photograph accepted into the Muscular Dystrophy Association’s Art Collection. http://www.mda.org/news/090713mda-awards.html 7/13/2009 The Muscular Dystrophy Association has awarded its highest philanthropic achievement honor, the MDA Directors' Award, to two entertainment industry celebrities. http://www.mda.org/news/090706mda-twitter.html 7/6/2009 The Muscular Dystrophy Association (MDA) will now post its research, services, advocacy and Jerry Lewis MDA Telethon news on Twitter, the popular social media tool, through its account, @MDAnews. http://www.mda.org/news/090629medicare-benefit-jeopardy.html 6/29/2009 Please help us protect people with neuromuscular diseases from the potentially harmful impact of the recently released House Tri-Committee healthcare reform proposal. The package eliminates the first month purchase option for all power wheelchairs. http://www.mda.org/news/090626sma_treatment_act_grassroots.html 6/26/2009 Thanks to our grassroots efforts, 17 Members of the House of Representatives and four Senators have now signed on to the SMA legislation. http://www.mda.org/publications/Quest/extra/jun09/home-wrecker.html 6/24/2009 Six or seven days a week, eight or nine hours a day, Steve Thomas is a home wrecker. Far from being a destroyer, Thomas, 62, of Cedar Rapids, Iowa, is part of an important restoration process that he calls "gutting and mucking." http://www.mda.org/publications/Quest/extra/jun09/vacations.html 6/24/2009 A May 13 ruling from the U.S. Department of Transportation (DOT) is proving a headache for manufacturers of respiratory equipment and a frustration for commercial air travelers who rely on ventilators, respirators, positive airway pressure devices such as CPAP and BiPAP, or personal oxygen concentrators. http://www.mda.org/news/090623mcmahon.html 6/23/2009 Ed McMahon, one of America's best known television personalities and longtime anchor of the Muscular Dystrophy Association’s Jerry Lewis Telethon, died today at age 86 in Los Angeles. http://www.mda.org/news/090619summer-camp.html 6/19/2009 Due to overriding concern for the health and safety of Jerry’s Kids, the Muscular Dystrophy Association (MDA) announced today that it is immediately canceling the remainder of its annual summer camp program because of the H1N1 virus. http://www.mda.org/news/090618taylor.html 6/19/2009 L. Vance Taylor of Oxon Hill, Md., has been selected to join the Muscular Dystrophy Association's National Task Force on Public Awareness for 2009. http://www.mda.org/news/090618mda-fly-out.html 6/19/2009 Many special interest groups often sponsor events known as 'Fly-Ins': members of organizations head to Washington D.C. and meet with their elected representatives on Capitol Hill. http://www.mda.org/news/090611smith.html 6/11/2009 An acrylic painting by artist L. Dwain Smith of Paducah, Ky., has been accepted into the Muscular Dystrophy Association’s Art Collection. Now in its 17th year, the Collection features artwork by people from across the country with muscular dystrophy and related diseases. http://www.mda.org/news/090611peck.html 6/11/2009 An oil painting by Jason Peck of Memphis, Tenn., has been accepted into the Muscular Dystrophy Association’s Art Collection. http://www.mda.org/publications/Quest/extra/jun09/air_travel.html 6/4/2009 Travelers with respiratory difficulties who use commercial airlines need to be aware of a new labeling requirement for ventilators, respirators, positive airway pressure devices (i.e., CPAP, BiPAP) and personal oxygen concentrators. http://www.mda.org/publications/Quest/extra/jun09/fires.html 6/4/2009 Nick Waneka recalls hanging around the fire house in his home town of Lafayette, Colo., from about the time he graduated from diapers. His dad was a volunteer fire fighter; his mom was in the department's women's auxiliary. http://www.mda.org/publications/Quest/extra/jun09/spread_the_word.html 6/2/2009 Attention job seekers with disabilities interested in working in the U.S. Department of Justice: This is a good time to apply. http://www.mda.org/news/090522sma-act.html 5/26/2009 Legislation that dedicates federal funds to find treatments, and possibly a cure, for spinal muscular atrophy has been reintroduced in Congress. The SMA Treatment Acceleration Act (H.R. 2149, S. 1158) has bipartisan support, but we again need your help to move this bill forward. http://www.mda.org/news/090525bk-fundraising.html 5/25/2009 The HAVE IT YOUR WAY® Foundation and more than 2,300 BURGER KING® restaurants in the U.S. teamed up with the Muscular Dystrophy Association (MDA) for the 2009 "Crowns For a Cure" promotion which raised over $1.2 million to benefit MDA. http://www.mda.org/news/090514more_mda_supported_acts.html 5/14/2009 MDA is supporting legislation that expands rights, resources and research infrastructure for members of our MDA community. http://www.mda.org/news/090513preble.html 5/13/2009 A creation by artist Elisabeth Joy Preble of Minneapolis has been accepted into the Muscular Dystrophy Association's Art Collection. Now in its 17th year, the Collection features artwork by people from across the country with muscular dystrophy and related diseases. http://www.mda.org/news/090513maccoleman.html 5/13/2009 An acrylic painting by artist Jack "Mac" MacColeman of Troy, Mich., has been accepted into the Muscular Dystrophy Association’s Art Collection. Now in its 17th year, the Collection features artwork by people from across the country with muscular dystrophy and related diseases. http://www.mda.org/news/090430national-als-ambassador-odell.html 4/30/2009 Nancy O'Dell, longtime host of the entertainment-news show "Access Hollywood" and author of the book "Full of Life," has accepted a new role as MDA National ALS Ambassador, the Muscular Dystrophy Association announced today. http://www.mda.org/news/090429sma-act.html 4/29/2009 The SMA Treatment Acceleration Act has been introduced in the House of Representatives, and it is it is expected to be introduced in the Senate later this week. H.R. 2149 greatly enhances and expedites the fight against spinal muscular atrophy. http://www.mda.org/news/090421als-month.html 4/21/2009 For the 18th year, the Muscular Dystrophy Association will host activities across the country throughout the month of May to raise awareness of the devastating disease amyotrophic lateral sclerosis — ALS, or Lou Gehrig's disease. http://www.mda.org/news/090401mvp.html 4/1/2009 The Muscular Dystrophy Association (MDA) today announced the launch of a new initiative, MDA Venture Philanthropy (MVP), which will be a wholly owned subsidiary of MDA. http://www.mda.org/news/090327artwork.html 3/27/2009 Artist Norma J. Margeson of Marietta, Ga., has had a second oil painting accepted into the Muscular Dystrophy Association’s Art Collection. Now in its 17th year, the Collection features artwork by people from across the country with muscular dystrophy and related disorders. http://www.mda.org/news/090327mda_directors_award.html 3/27/2009 The Muscular Dystrophy Association Thursday awarded its highest philanthropic achievement honor, the MDA Directors' Award, to two individuals who have made outstanding contributions to the quest to conquer muscle-wasting diseases. http://www.mda.org/news/090227roberts.html 2/27/2009 Two creations by artist Tommy Roberts of Baltimore have been accepted into the Muscular Dystrophy Association’s Art Collection. Now in its 17th year, the Collection features artwork by people from across the country with muscular dystrophy and related diseases. http://www.mda.org/news/090225jablonski.html 2/25/2009 Two watercolor creations by Pamela Jablonski of Bonita Springs, Fla., have been accepted into the Muscular Dystrophy Association’s Art Collection. http://www.mda.org/news/090225kleiman.html 2/25/2009 Two oil paintings by Sybil Ross Kleiman of Coconut Creek, Fla., have been accepted into the Muscular Dystrophy Association’s Art Collection. http://www.mda.org/news/090224AQ_18million.html 2/24/2009 The Muscular Dystrophy Association’s Augie’s Quest initiative has reached an important goal in funding research efforts that target a devastating disease. http://www.mda.org/news/090223telethon2008_DVD.html 2/23/2009 Every year, some of the top entertainers in the world appear on the Jerry Lewis MDA Labor Day Telethon, helping raise funds for the Muscular Dystrophy Association. By popular demand, select performances from last year's Telethon are now available on a new compilation DVD, "The Best of 2008 Jerry Lewis MDA Telethon." http://www.mda.org/news/090210sean_scott_als-tdi.html 2/10/2009 Sean Scott, president of the ALS Therapy Development Institute (ALS TDI) in Cambridge, Mass., died of ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease) on Feb. 9 http://www.mda.org/news/090210jlewis_humanitarian_award.html 2/10/2009 The Academy of Motion Picture Arts and Sciences has recognized Jerry Lewis with one of its greatest honors, the Jean Hersholt Humanitarian Award.