Amyotrophic Lateral Sclerosis (ALS)

Monty Topche

Location

Lauderhill, FL

Monty had been drawing since childhood and began painting in 1990 after retiring from the textile industry. He specialized in painting people, especially children, and loved to paint clowns and other happy characters. Monty won many awards, and his paintings have been exhibited throughout Florida.

Full name: 
Monty Topche
Artist: 
Monty Topche
Disease: 
Amyotrophic Lateral Sclerosis (ALS)
Medium: 
Watercolor

Thomas Nelson

Location

Temecula, CA

Tom retired from teaching at a community college in 2000 and was looking forward to playing and performing music. Months later, he received a diagnosis of ALS. As he has lost his mobility, beginning with his feet and moving upward, Tom has made adaptations every step of the way. Now a quadriplegic, Tom blinks his eyes to communicate and draw on a computer. “Orphan” is a drawing of a child with AIDS from southern Uganda.

Full name: 
Thomas Nelson
Artist: 
Thomas Nelson
Disease: 
Amyotrophic Lateral Sclerosis (ALS)
Medium: 
Digital Media

BrainStorm Hopes to Bring ALS Stem Cell Trial to US

Biotechnology company BrainStorm Cell Therapeutics has announced plans to collaborate with two American institutions to test its experimental stem cell technology in people with amyotrophic lateral sclerosis (ALS) in the United States. The institutions are Massachusetts General Hospital in Boston and the University of Massachusetts Medical School in Worcester, Mass.

MDA ALS Fact Sheet

Last Updated: 
Thu, 04/24/2014 - 10:24

Amyotrophic Lateral Sclerosis Care Guidelines

 

The American Academy of Neurology (AAN) released its new guidelines on patient care in amyotrophic lateral sclerosis (ALS) on Oct. 13, 2009. Several MDA-affiliated physicians were involved in their development.

Last Updated: 
Thu, 10/01/2009 - 13:17

MDA ALS Caregiver's Guide

Download a printable PDF of the entire guidebook PDF Document


The Journey

If you’re reading this guide, it’s probably because someone you care about deeply has ALS.

Last Updated: 
Fri, 03/01/2013 - 16:21

ALS Registry Touts Revamped Website, New Surveys

In hopes of collecting as much information as possible, the National ALS Registry, which opened in October 2010, already is expanding its reach.

Registry officials have made the enrollment process easier and are adding surveys about potential risk factors to the registry’s website.

Everyday Life with ALS: A Practical Guide

Download a printable PDF of the entire guidebook PDF Document


Introduction

Receiving a diagnosis of amyotrophic lateral sclerosis (ALS) will unquestionably alter your life in almost every aspect.

Last Updated: 
Sat, 03/13/2010 - 13:34

Research Briefs: FA, MG, MM, MMD1, gene therapy

Edison drugs target FA, mitochondrial diseases

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