In addition to funding research grants, MDA also works on other efforts that support our research programs. In 2013, MDA completed the first cost of illness study for neuromuscular diseases in the U.S. MDA also has been a leader in advocating for newborn screening for diseases that we cover, along with many other advocacy issues such as supporting the reauthorization of the MD CARE Act, the Prescription Drug User Fee Act and more.
Muscular Dystrophy Association — USA
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The Muscular Dystrophy Association (MDA) is a qualified 501(c)(3) tax-exempt organization.
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