Pregnancy, Delivery in FSHD Subject of New Study

Investigators at the University of Rochester (N.Y.) Medical Center are seeking 200 women with facioscapulohumeral muscular dystrophy (FSHD) who are at least 18 years old to participate in a questionnaire-based study to better understand pregnancy and delivery in this disorder. The questionnaire, which takes about 30 minutes to complete, asks about pregnancy, genetic counseling, fertility, FSHD and other medical issues. Participants are also asked to release obstetrical/gynecological and neurological medical records to the investigators.

URMC is the site of a Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, co-funded by MDA and the National Institutes of Health.

For more information, see http://www.mda.org/research/view_ctrial.aspx?id=137, or contact Alexis Smirnow in Rochester at (585) 275-4715 or alexis_smirnow@urmc.rochester.edu.