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December 9 , 2004

CMT Database Project
Seeks Participants

Researchers at Wayne State University in Detroit and at Indiana University are compiling a database about Charcot-Marie-Tooth disease (CMT) and are asking people with this disorder to fill out questionnaires about their medical and family histories.

The North American CMT Database, funded in part by MDA, is designed to collect information about CMT that will help investigators to better understand the condition and develop treatments for it.

Data that can’t be traced back to participants will be available to researchers. Identifying information will be released only with participants’ separate, written consent.

Forms are available online at www.med.wayne.edu/neurology/clin_programs/Labs/CMT/.

You can also contact Carly Siskind at (313) 577-5273 or csiskind@med.wayne.edu.


 
 
 
 
     
     
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