National Initiative
on Duchenne MD Families
Conducting Survey

The U.S. Centers for Disease Control and Prevention and the American Association of Medical Colleges are sponsoring a study of the impact of Duchenne muscular dystrophy (DMD) on families and on what services families are receiving. The investigators plan to survey 1,500 families in which at least one person has DMD.

Investigators say the survey questions will take two to three hours to answer.

For information, call project coordinator Marie Ritzo at (800) 343-5878, or write to the National Initiative for Families with Duchenne, Children’s National Medical Center, 111 Michigan Ave. NW, Washington, DC 20010.