WASHINGTON, Feb. 25, 2014 — At a Congressional hearing today in Washington, the Muscular Dystrophy Association’s (MDA) chief executive briefed legislators on the enormous impact of the MD-CARE Act passed in 2001 and implored lawmakers to reauthorize this crucial legislation on behalf of the 100,000 Americans with muscular dystrophies.
MDA co-hosted the briefing with Parent Project Muscular Dystrophy (PPMD) and the Foundation to Eradicate Duchenne (FED), nonprofit groups that fight certain muscular dystrophies. Each group also spoke in support of the reauthorization at the briefing today.
"The passage of the MD-CARE Act in 2001 was a game-changer for the nation's muscular dystrophy community," said Steven M. Derks, MDA president and chief executive officer. "A premier example of private/public partnership, this landmark legislation leveraged the passion of our heroic Congressional champions behind our well-organized and long-established national clinical and research infrastructures and has yielded life-altering research breakthroughs.”