QUEST NEEDS YOUR HELP!

Quest readers like reading about real people facing the same challenges they face. So, if you’re a real person (and you are!), please share your experience and wisdom related to the topics listed below. Only you can help others living with neuromuscular diseases in this way.

Just send an e-mail to publications@mdausa.org with your name, age, neuromuscular diagnosis, phone number, e-mail address and a short explanation. This information will be kept confidential, and we'll get in touch with you about an interview.

TOPICS:

• Tips on writing your child’s IEP
• Experiences – good or bad – with the Family Medical Leave Act
• Coping with prednisone
• Utensils for eating – what works best?
• Humorous experiences with service dogs
• Have you recently gotten a service dog for your child?
• Prenatal screening
• Brain-computer interfaces – Have you tried one?
• Renting vans on vacation – Smooth sailing or nightmare?
• Using feeding tubes
• How have you persuaded commercial businesses to comply with the ADA?
• Any conflict between your ADA rights and your homeowner association regulations?
• Planning for college
• Best fields for people with disabilities to study in college
• Your volunteer activities
• Revamping a rental apartment for accessibility
• Changing careers with diagnosis or progression of disease
  

We’re ALWAYS Looking For –

TECHNOLOGY CHANGED MY LIFE – What’s your story?

THE ADA AND YOU – Examples of inaccessibility you’ve encountered

MY BEST PERSONAL ASSISTANT - Pay tribute to your hard-working, caring assistant. Please send a photo of the two of you together, along with a story of 100 words or less about why your assistant is the greatest.

DO-IT-YOURSELF IDEAS - Have you figured out a low-cost, homemade way to do or make something essential at home or at work? Quest readers really want to know!