QUEST
Volume 4, Number 6, 1997
COVER
- A Baby? Maybe
In making the pregnancy decision, women with neuromuscular diseases have many factors to take into account.
Can they handle the physical demands of pregnancy, childbirth and child care? Here, mothers tell their personal
stories. In a related article, doctors advise about potential medical
complications, which vary from disease to disease, and stress the importance of preparing for all contingencies.
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FEATURES |
- Childhood Dream Becomes Life's Work
Leading MDA research grantee Jeffrey Chamberlain tells how his lifelong curiosity about
how the human body develops brought him to the frontier of gene therapy research on
muscular dystrophy.
- Everybody's Doing It!
Scouting gives boys and girls a chance to achieve, learn, cooperate and have fun. Young
people with neuromuscular disorders have found that Scouting organizations are very
well prepared to adapt to their special needs.
- Democracy Takes on Managed Care
In virtually every state, people are influencing new laws and regulations that make
managed care organizations more accountable to consumers. Some states are even
addressing the needs of those with chronic illness and long-term disability.
- Research Updates
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