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MDA’s award-winning bimonthly national magazine goes to everyone registered with MDA, as well as to MDA clinics, researchers and subscribers.
Quest publishes articles on all aspects of living with a neuromuscular disease, and updates on research findings. Quest’s circulation is 125,000.


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Quest Vol. 15, No.5  September to October 2008

Game to Get Away

Online games provide an alternate world in which to play, say gamers with neuromuscular diseases. Here’s a primer of terminology, gaming options, social tips and info on how playing may affect muscles. In addition, Kid Quest, page 69, provides Internet gaming safety tips for kids.
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    Home> Publications > QUEST Extra >Volume 14, Number 5, Sept./Oct. 2007

Team USA

by Bill Norman

The author glides down Crawford’s Blaze run
Omar Solorio

For more on the U.S. power soccer team and the competition in Japan, see “U.S. Power Soccer Team Ready for Premier World Cup,” Quest September-October 2007

The author glides down Crawford’s Blaze run
Jairo Solorio

Team USA players Omar, 22, and Jairo Solorio, 18, from Hollister, Calif., both have SMA. Omar is enrolled in job training at home. “I love to compete, and the tougher the  competition, the more fun it is,” he maintains. Younger brother Jairo just finished high school. He said he loves both the sport’s physical challenge and social networking.

The author glides down Crawford’s Blaze run
Jerry Book

Jerry Book, 18, just out of high school in San Jose, Calif., says power soccer means so much to him that he has played even when broken bones were mending. He too has SMA. He says his life’s goal is to play power soccer for the U.S. in the Paralympics. “I have formed friendships that will last forever with other players in the U.S. and other countries,” he said.

The author glides down Crawford’s Blaze run
Natalie Russo

Natalie Russo, 18, just graduated high school and her brother JC, 17, (they both have SMA), is a high school senior in Carmel, Ind. She said being on the U.S. team gives her a chance to be part of history in the making. “Power soccer has made a huge impact on my life,” JC added. “It’s a combination of teamwork, competition, split-second decisions and an adrenaline rush.”

The author glides down Crawford’s Blaze run
JC Russo

Danny Gorman, 16, of Safety Harbor, Fla., who has Duchenne muscular dystrophy, echoes those sentiments. “Before power soccer, the closest thing to real action was my video games. I never imagined I could be a world-class athlete.”

The author glides down Crawford’s Blaze run
Danny Gorman

“My ultimate goal with the U.S. team is to spread inspiration and hope to as many people as possible,” said Dakotah Smith, 22, of Kennesaw, Ga., who has congenital muscular dystrophy. Dakotah is a senior at Kennesaw State University, majoring in business management and journalism.

The author glides down Crawford’s Blaze run
Dakotah Smith

Jessica Lehman, 29, a community organizer for disability rights from Emeryville, Calif., concurs: “Power soccer allows me to be a role model for other people with disabilities, showing we can succeed in sports or any other arena.” Having SMA has been a driving force for Jessica, fueling her determination to overcome obstacles.

The author glides down Crawford’s Blaze run
Jessica Lehman

Stay tuned to Quest Extra for updates as the team goes into Power Soccer World Cup action in Japan.

The author glides down Crawford’s Blaze run
Team USA is ready for Japan!
The author glides down Crawford’s Blaze run
Power soccer requires expert manuevering skills and a competitive spirit.
 
 
     
     
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