MDA RESOURCES by CHAPTER

Chapter 1 - What Is Duchenne Muscular Dystrophy?

Related QUEST Articles

• "The Legacy of Guillaume Duchenne," Vol. 5, No. 5, 1998.
  
• "Special Delivery: Genes for Duchenne," Vol. 1, No. 2, 1994.
  
• "Unraveling Your Genes: What Genetic Testing Can and Can't Tell You," Vol. 2, No. 2, 1995.
  

Chapter 2 - Getting the Diagnosis

Related QUEST Articles

• "Desperate Remedies: Heart Transplants Are Saving Lives in Muscular Dystrophy," Vol. 3, No. 4, 1996.
• "Living With Becker MD: Lack of Understanding Leads to Frustration,"Vol. 3, No. 1, 1996.
• "Rosa Receives National Achievement Award," Vol. 4, No. 5, 1997. Feature on MDA Board member with BMD.

Chapter 4 - Your Child's Physical Needs

Related QUEST Articles

• "Breathe Easy," Vol. 5, No. 5, 1998.
• "Choosing a Wheelchair: It Takes Teamwork," Vol. 4, No. 2, 1997.
• "Fight Against Contractures: An Ongoing Battle," Vol. 3, No. 4, 1996.
• "The Ins and Outs of Patient Care," Vol. 5, No. 3, 1998.
• "Keep Them Wheels Rollin'," Vol. 5, No. 4, 1998. Maintaining modern wheelchairs.
• "Medicine With a Personal Touch," Vol. 2, No. 1, 1995. Non-invasive ventilation.
• "Pain, Pain, Go Away: Neuromuscular Diseases Complicate Choices of Treatment," Vol. 3, No. 3, 1996.
• "Setting the Record Straight on Scoliosis Surgery," Vol. 4, No. 1, 1997.
• "Steroids in Muscular Dystrophy: Buying Time or Borrowing Trouble?," Vol. 3, No. 3, 1996.
• "Taking a Stand," Vol. 5, No. 3, 1998. Standing wheelchairs.
• "Taking the Scare out of Hospital Care for Your Child," Vol. 5, No. 3, 1998.
• "Weight Loss and Nutrition: The Sane Way," Vol. 1, No. 1, 1994.
• "Wheelchair Accessories," Vol. 5, No. 4, 1998.
• "You've Come a Long Way, Baby," Vol. 3, No. 2, 1996. Colorful and fun wheelchair and equipment designs for kids.

Chapter 5 - The Future — Research Points the Way

Related QUEST Articles

• "The Body at War With a Cure," Vol. 4, No. 4, 1997. Gene therapy and muscular dystrophy.
• "Fighting MD - With a French Twist," Vol. 3, No. 2, 1996. MDA's partnership with the Association Française Contre les Myopathies.
• "Gene Therapy for Muscular Dystrophy Hovers on the Horizon," Vol. 4, No. 4, 1997.
• "Human Trials Set for DMD," Vol. 5, No. 1, 1998.
• "MDA Researchers Gear Up for Clinical Trials in Gene Therapy," Vol. 5, No. 5, 1998.
• "New Avenues in Duchenne and Becker Muscular Dystrophies," Vol. 4, No. 2, 1997.
• "Spotlight on Gene Therapy and Muscle: MD Human Trials Will Target Membrane," Vol. 5, No. 4, 1998
• "Utrophin Strategies Excite Duchenne Researchers," Vol. 5, No. 2, 1998.

Chapter 6 - Your Child's Emotional Needs

Related QUEST Articles

• "Creativity Transcends Disability," Vol. 3, No. 1, 1996. The MDA Art Collection.
• "Even if It Rains, It's Special: The Magic of MDA Camp," Vol. 4, No. 2, 1997.
• "Everybody's Doing It: For Scouts With Disabilities, Doing One's Best Is the Key to Success," Vol. 4, No. 6, 1997.
• "Fun and Games: Serious Business," Vol. 5, No. 3, 1998. Toys and games.
• "Fun & Safety: Medical Staff Ensure Two Go Hand in Hand at MDA Summer Camp," Vol. 5, No. 2, 1998.
• "Get Outta Town: Outdoor Recreational Opportunities Are More Abundant Than Ever," Vol. 4, No. 2, 1997.
• "Ghosts, Bugattis and Groucho Glasses," Vol. 5, No. 5, 1998. Halloween costumes.
• "High-Tech Gifts, Gadgets & Gizmos," Vol. 4, No. 5, 1997.
• "The Joy of Toys," Vol. 2, No. 3, 1995.
• "Right Equipment Can Make Recreation Accessible," Vol. 5, No. 2, 1998.
• "Spare the Rules, Spoil the Child," Vol. 1, No. 1, 1994.
• "The Spirit of Summer Camp," Vol. 1, No. 2, 1994.
• "Until the Day I Die," Vol. 3, No. 2, 1996. An MDA camp volunteer's personal story.
• "You've Got to Be Kidding," Vol. 3, No. 4, 1996. Humor and disability.

Related QUEST Articles: ADOLESCENCE, INDEPENDENCE, RELATIONSHIPS

• "Dearly Beloved," Vol. 4, No. 2, 1997. Marriage for people with neuromuscular diseases.
• "The Rocky Road to Romance," Vol. 4, No. 1, 1997. Young adults and dating.
• "Service Dogs Have Their Day," Vol. 1, No. 2, 1994.
• "Speaking of Sex: Common Myths About Sex and Neuromuscular Disorders," Vol. 4, No. 3, 1997.
• "Thinking About Tomorrow: Independence for Teens and Parents," Vol. 3, No. 2, 1996.

Chapter 7 - Your Child's Education and Future

Related QUEST Articles

• "The ABCs of an IEP," Vol. 3, No. 3, 1996.
• "The Brain in Duchenne Dystrophy: Are Learning Disabilities Part of the Picture?" Vol. 4, No. 1, 1997.
• "First Day of School: Starting the School Year on the Right Foot Can Turn Fears into Fun and Friendship," Vol. 4, No. 4, 1997.
• "Get the Most Out of College: A Step-by-Step Guide," Vol. 2, No. 1, 1995.
• "I Don't Need a Nurse," Vol. 2, No. 1, 1995. College services for students with disabilities.
• "Magic Wands & Dragons: Technology Transforms the Workplace," Vol. 2, No. 3, 1995.
• "Make the Most of School," Vol. 2, No. 2, 1995.
• "School Days: Learning New Ways to Learn," Vol. 5, No. 4, 1998.
• "Task for Teens," Vol. 3, No. 4, 1996. Looking for financial aid for college.
• "Window to the World," Vol. 5, No. 1, 1998. MDA's World Wide Web site.

Chapter 8 - The Family

Related QUEST Articles: FAMILY

• "A Bounty of Books," Vol. 5, No. 5, 1998.
• "Broken Bonds: Can a Child's Muscular Dystrophy Destroy a Marriage?," Vol. 5, No. 2, 1998.
• "Hey, I'm Here, Too!," Vol. 3, No. 2, 1996. Siblings of children with neuromuscular disease.
• "The McCoys Come Out Fighting: Parents, Sons Learn and Teach About Living With DMD," Vol. 5, No. 3, 1998.
• "The War of the Words: Who Won?" Vol. 5, No. 1, 1998

Related QUEST Articles: TRAVEL

• "Need a Vacation? Go for It!," Vol. 2, No. 2, 1995.
• "Overcoming Barriers: Accessibility at Home and Abroad," Vol. 3, No. 3, 1996.
• "Plan, Pack and Go," Vol. 2, No. 2, 1995. Airline travel with a ventilator.

Related QUEST Articles: HOME & DAILY LIVING NEEDS

• "Adaptive Vehicles: Paving the Road for Independence," Vol. 4, No. 1, 1997.
• "A Call for Safety: Being Prepared and Getting Help When Emergencies Strike," Vol. 3, No. 4, 1996.
• "Crime and People With Disabilities," Vol. 3, No. 4, 1996.
• "Doable, Do-It-Yourself Devices," Vol. 3, No. 4, 1996.
• "Home Sweet Accessible Home," Vol. 2, No. 3, 1995.
• "The Hunt for the Elusive Accessible Apartment," Vol. 3, No. 3, 1996.
• "Let's Talk Bathrooms," Vol. 5, No. 5, 1998.
• "Lifts, Keys to Independent Driving," Vol. 5, No. 1, 1998.
• "Ramp It!" Vol. 5, No. 2, 1998.

Chapter 9 - When You Need Help

Related QUEST Articles

• "All Together Now: Find Inclusive Child Care," Vol. 3, No. 2, 1996.
• "Democracy Takes on Managed Care," Vol. 4, No. 6, 1997.
• "Finding Tax Breaks So Your Taxes Won't Break You," Vol. 4, No. 1, 1997.
• "Getting By With a Little Help From Your Personal Assistant," Vol. 1, No. 1, 1994.
• "In Trusts We Trust: Securing the Financial Future for Your Child With a Disability," Vol. 5, No. 2, 1998.
• "Managing Managed Care," Vol. 4, No. 3, 1997.
• "When Getting Care Is Hard to Do: Access to Health Care Can Be Tricky for Those With Disabilities," Vol. 5, No. 2, 1998.