Guide to Other Chapters:  
Table of Contents
Introduction
1: What Is Duchenne MD?
2: Getting the Diagnosis
3: Sorting Out The White Coats
4: Your Child's Physical Needs
5: The Future—Research Points the Way
6: Your Child's Emotional Needs
7: Your Child's Education and Future
8: The Family
9: When You Need Help
10: Saying Good-Bye

General MDA Resources >
 
Chapter 10: Saying Good-Bye
In Chapter 10:
photo: wheeling down the road
Preface to Chapter 10 | Medical Decisions | Last Wishes | Hospice  
Legal and Financial Issues | Saying Good-Bye | The Grief Process 
Siblings | Memorials | General MDA Resources 

MEMORIALS

"They lived happily in a loving family, undaunted by their physical limitations. . .. When I do reminisce, I recall two simple messages that always sustained me in difficult times: You are not alone, and there is always hope through MDA."

--Man who lost twin sons to DMD

At some point, you may want to do something special to honor your son's life. Some parents devote their energy to MDA programs as a way of helping to create a future in which other parents won't have to go through what they did.

Placing a personal memorial at a place that was special to your child can be comforting to you and keep his memory alive for others. Look into dedicating a library book, planting a tree, having a special part of a park or school or museum named for him -- or something else he'd particularly enjoy.

You may also want to have a less formal memorial event, perhaps to be observed each year on his birthday, in which friends and family come together and talk about good memories. With time this will prove to be a comforting way to continue loving your son.

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