On the cover: Amy Dunaway-Haney of South Padre Island, Texas, was found to have limb-girdle MD at age 8 and began using a wheelchair in her teens. Now married, she teaches high school Spanish and has been nationally honored for her teaching and as the 2003 recipient of the MDA National Personal Achievment Award.Dear Friends
What is Limb-Girdle Muscular Dystrophy?
What are the forms of limb-girdle muscular dystrophy?
How fast does LGMD progress?
What happens along the way?
What's not affected in LGMD?
What tests are used to diagnose LGMD?
Is it important to find out what genetic type of LGMD a person has?
Can special diets help in LGMD?
Are there any special exercises that can help?
Known Forms of Limb-Girdle Muscular Dystrophy
Does it Run in the Family?
MDA's Search for Treatments and Cures
MDA is Here to Help You |
MDA is Here to Help You
The Muscular Dystrophy Association offers a vast array of services to help you and your family deal with limb-girdle muscular dystrophy. Whether you’re an adult who’s just received an LGMD diagnosis, or the parent of a child with LGMD, the staff at your local MDA office is there to assist you in many ways. The Association’s services include:
- a nationwide network of hospital-affiliated clinics staffed by top neuromuscular disease specialists
- MDA summer camps for kids with neuromuscular diseases
- professionally facilitated support groups for those affected, spouses, parents or other caregivers
- assistance with purchase and repair of wheelchairs and leg braces
- evaluations for physical, occupational, speech and respiratory therapy
- flu shots to help protect the respiratory system
- equipment loan closets
MDA’s public health education program helps you stay abreast of research news, medical findings and disability information through educational speakers, seminars, videos, newsletters and more. Be sure to ask your local office for some of MDA’s latest publications, including “Services for the Individual, Family and Community.” Many MDA booklets are available in Spanish.
Everyone registered with MDA also receives Quest, MDA’s award-winning national magazine. Quest publishes detailed articles about research findings; medical and day-to-day care; helpful products and devices; social and family issues; and much more.
If you have any questions about LGMD, someone at MDA will help you find the answer.
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