Daily Living


Amyotrophic Lateral Sclerosis Care Guidelines

The guidelines, released by the American Academy of Neurology, are based on evidence that they’re effective in caring for people with ALS.


October 2009

Congenital Muscular Dystrophy Care Guidelines

The first-ever care guidelines focus on the latest developments in diagnosis, treatment and medical management of these rare diseases.

March 2011

DMD Guidelines — Anesthesia Care

Recommendations from MDA and the American College of Chest Physicians on the management of patients undergoing anesthesia or sedation.

January 2008

DMD Guidelines — Corticosteroids

Information about the use of corticosteroids, such as prednisone, from the American Academy of Neurology (AAN).

January 2005

DMD Guidelines — Respiratory Care

Guidelines about respiratory care from the American Thoracic Society (ATS).



August 2004

DMD/BMD Guidelines — Cardiovascular Care

American Academy of Pediatrics' recommendations for cardiac care in Duchenne and Becker muscular dystrophies, and carriers of those diseases.

March 2006

Duchenne Muscular Dystrophy Care Guidelines

From the DMD Care Considerations Working Group, a comprehensive set of clinical care recommendations for the diagnosis and management of DMD.

December 2009

Everybody’s Different, Nobody’s Perfect

A colorful, easy-to-read booklet in English and Spanish helps young children understand muscular dystrophy.

November 2006

Everyday Life with ALS: A Practical Guide

In large type and with many illustrations, this manual contains extensive advice and support for those living with ALS and their caregivers. Step-by-step instructions, checklists and additional resources are included.

March 2010

Exercising with a Muscle Disease

Insights from research, medicine, exercise experts and people with muscle diseases. Includes information on recommended exercises for those with a muscle disease, as well as their caregivers.

April 2009