MDA / Quest Stories by Topics - Living With a Disability Stories

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MDA’s award-winning bimonthly national magazine goes to everyone registered with MDA, as well as to MDA clinics, researchers and subscribers.
Quest publishes articles on all aspects of living with a neuromuscular disease, and updates on research findings. Quest’s circulation is 125,000.

Check Out the New Digital Version of Quest!

Quest Vol. 15, No.3

Photography Bursts Fourth

This still-life image, "Carmen Red," was created by Pennsylvania photographer Carl Yeager, who has SMA. Along with a portfolio of his work, this feature illustrates how digital technology has made photography much more accessible for people with disabilities.

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Society & Disability Culture

From Where I Sit – It Could Be Worse (May/June 2008)
Wish Granted (May/June 2008)
InfoQuest - Resources (Jan./Feb. 2008)
Books (Jan./Feb. 2008)
A Fondness for Film (Jan./Feb. 2008)
Stars & Stripes Grab World Cup in Overtime (Jan./Feb. 2008)
To Boldly Go – New York, New York (Nov./Dec. 2007)
Six Familiar Faces – Catching up With Past MDA National Personal Achievement Award Recipients (Nov./Dec. 2007)
Written in the Stars – Former National Goodwill Ambassador Receives Top Award (Nov./Dec. 2007)
From Where I Sit –No, No, No!...Well, OK (Sept./Oct. 2007)
Books (Sept./Oct. 2007)
To Boldly Go – Caribbean Cruise (Sept./Oct. 2007)
Navigating Airline Baggage Restrictions (Sept./Oct. 2007)
U.S. Power Soccer Team Ready for Premier World Cup (Sept./Oct. 2007)
PowerHockey – A League of Their Own (Sept./Oct. 2007)
From Where I Sit – Universal Access (July/August 2007)
Read All About It (July/August 2007)
Dive into ‘Charlie’s Lake’ (July/August 2007)
An ADA World (July/August 2007, Quest Extra)
To Boldly Go – ADA & Hotel Hospitality (July/August 2007)
Balancing the Scales – Americans with Disabilities Act (July/August 2007)
Fishing for Inclusion (May/June 2007)
From Where I Sit — Life as a Clown (May/June 2007)
Darius Keeps Going (May/June 2007)
InfoQuest (Jan./Feb. 2007)
Ms. Wheelchair America Chooses Massachusetts 'Woman of Strength' (Nov./Dec. 2006)
Toughing It Out: The ADA at 16 (July 2006)
Multiple Minorities (July 2006)
All I Want for Christmas (Nov. 2005)
From Where I Sit — In Search of the 'Real Me' (Mar./Apr. 2005)
Rosa Helps Build 'Shared Meaning' Between Two Worlds (Nov./Dec. 2004)
Connections — Denise Weisenborn (Sept./Oct. 2004)
Cast Your Vote (July/Aug. 2004)
From Where I Sit — Dubious Victory Over Medicaid (Mar./Apr. 2004)
An Interview With Janet Reno (Nov./Dec. 2003)
Making the ADA Work for You (June 2002)
To Serve or Not to Serve (running for office) (April 2002)
Maneuvering through Medicare (June 2001)
ADA Reaches 10th Year (June 2000)
A Busy Year in Washington (disability issue update) (Aug. 1999)
The Verdict: Life Isn't Beautiful (under the ADA) (June 1999)
What Our Government Has — And Hasn't—Done for Us This Year (Dec. 1998)
Election 1998: Go Vote (Aug. 1998)
The War of the Words: Who Won? (language and disability survey report) (Feb. 1998)
Disabilities in the Media: The Movies (Aug. 1997)
Changing the World Begins at Home (outstanding leaders) (Summer 1996)

Independence

Dog Day Afternoons are Just Fine by Him (March/April 2008)
Moving Out: Operation Get a Life (May/June 2008)
Cows, Horses and Dance: This Lady Wastes no Time (March/April 2008)
Quest Tech – Use It & Pass It Along (Jan./Feb. 2008)
Stars & Stripes Grab World Cup in Overtime (Jan./Feb. 2008)
Quest Tech – Write On! (Nov./Dec. 2007)
Six Familiar Faces – Catching up With Past MDA National Personal Achievement Award Recipients (Nov./Dec. 2007)
Written in the Stars – Former National Goodwill Ambassador Receives Top Award (Nov./Dec. 2007)
From Where I Sit – No, No, No!...Well, OK (Sept./Oct. 2007)
U.S. Power Soccer Team Ready for Premier World Cup (Sept./Oct. 2007)
PowerHockey – A League of Their Own (Sept./Oct. 2007)
An ADA World (July/August 2007, Quest Extra)
Into the Internet Future (July/August 2007)
Easy Ways to Wheel — Manual Wheelchairs (July/August 2007)
Balancing the Scales – Americans with Disabilities Act (July/August 2007)
Dignified Dining — Tools & Techniques for Mealtimes (May/June 2007)
Is Your PCA Driving You Crazy? (March/April 2007)
Where Are All the PCAs? (March/April 2007)
Sex and the City, Disability Style (March/April 2007)
Quest Insider (Jan./Feb. 2007)
Connections: Not Just Another Day at the Movies (Nov./Dec. 2006)
To Share & Share Alike: Blogs (Nov./Dec. 2006)
Teacher Finds His Calling (Nov./Dec. 2006)
Keeping Your Home Safe & Accessible Without Spending a Fortune (Sept. 2006)
Connections: Original T-Shirt Design (Sept. 2006)
A View of the World From Down Under (July 2006)
Toughing It Out: The ADA at 16 (July 2006)
What Would Rover Say? Dogs Aren't the Only Service Animals (July 2006, Quest Extra)
Connections: Knowledge Is Power (July 2006)
Doing It Yourself (May 2006, Quest Extra)
Connections: Healing Time (May 2006)
Wheels of Steel (March 2006, Quest Extra)
Exploring Inner Space (Jan. 2006)
Supervillians and Heroes, On My! (Jan. 2006)
Connections: Meet Gary Letourneau (Jan. 2006)
Doing It Yourself (Nov. 2005, Quest Extra)
Hip to Be... Trach Chic (Nov. 2005, Quest Extra)
Kent Kreiger: The Storyteller (Nov. 2005)
Dealing With Disability...Day by Day (Mar./Apr. 2005)
Journey to Independence (Nov./Dec. 2004)
From Where I Sit - The Night I Became Independent (Nov./Dec. 2004)
Getting There From Here (local transportation) (Dec. 2001)
Unlocking Independence (Oct. 2001)
Growing Up and Taking Charge (June 2001)
When You've Gotta Go... (solving bathroom problems) (Feb. 2001)
Teens Thinking About Tomorrow (Spring 1996)

Costs & Financial Resources

InfoQuest: Help with Funding (May/June 2008)
Playing the Money Game: Funding Challenges and Options (May/June 2008)
Moving Out: Operation Get a Life (May/June 2008)
IEP Resources for Assistive Technology and Learning Disorders (March/April 2008, Quest Extra)
Selling Prints for Dog Prints (March/April 2008)
As the Wheel Turns: From Chariots to Computer Chips (March/April 2008)
How to get Your Child’s School to Provide Assistive Technology or Help with Learning Disabilities (March/April 2008)
The SCHIP Football (March/April 2008)
InfoQuest - Resources (Jan./Feb. 2008)
Quest Tech – Use It & Pass It Along (Jan./Feb. 2008)
The Tax Man Cometh: Pointers for Filers with Disabilities (Jan./Feb. 2008)
InfoQuest – Health Care, Insurance & Government Programs (Nov./Dec. 2007)
The Gift of Giving (Nov./Dec. 2007)
MDA Task Force Sends Letters About Medicare DME Restrictions (Sept./Oct. 2007)
InfoQuest – Accessible Housing (July/August 2007)
Fair Housing – Accessible Apartments (July/August 2007)
AT Funding Challenge (Jan./Feb. 2007)
Tax Breaks (Jan./Feb. 2007)
Fear, Dread and Loathing: Special Needs Trusts (Nov. - Dec. 2006)
Show Me the Money: Van Financing Options (July 2006)
Funding Freedom (May 2006)
Get Yours! Don't Overlook Disability Tax Breaks (Jan. 2006)
Take It All Off — Take 2 (tax tips) (Jan./Feb. 2005)
Take It All Off! (tax tips) (Mar./Apr. 2004)
New Medicaid Program Offers Cash & Counseling (Jan./Feb. 2004)
Shopping for Your Health (prescription drug costs) (Sept./Oct. 2003)
From Where I Sit — The Middle-Class Trap (July/Aug. 2003)
The Money Trail (July/Aug. 2003)
Maneuvering Through Medicare (June 2001)
Used, But Not Used Up (secondhand equipment) (June 1999)
You Can Take it With You (disability benefits) (Dec. 1998)
Finding Tax Breaks So Your Taxes Won't Break You (Jan. 1997)

Psychological Factors

From Where I Sit – It Could Be Worse (May/June 2008)
The Artist Inside (May/June 2008, Quest Extra)
Crimes Against People with Disabilities: It’s Common, Offenders Often Close to Home (May/June 2008)
Moving Out: Parents Seek New Options for Their Adult Children (May/June 2008)
From Where I Sit – No, No, No!...Well, OK (Sept./Oct. 2007)
Books (Sept./Oct. 2007)
The Wheelchair Lucy Show (March/April 2007)
From Where I Sit (Jan./Feb. 2007)
Jumping Turkeys and Funny Hats (Nov. - Dec. 2006)
Rolling With Laughter: My Wild and Wonderful Wife (Nov. - Dec. 2006)
Life Satisfaction Study Yields Some Surprises (Sept. 2006)
As I Sit Aging (Sept. 2006)
Are You Looking at Me? Let Stares Be Dares to Conversation (Sept. 2006)
A View of the World From Down Under (July 2006)
Multiple Minorities (July 2006)
Rolling With Laughter: Grandparenting From a Wheelchair (July 2006)
Helping Kids Understand (July 2006)
Seeing Is Believing: Kids With Disabilities on the Screen (May 2006)
Happy Unbelievable Birthday (March 2006)
Rolling With Laughter: So You Think I'm Lucky? (March 2006)
Exploring Inner Space (Jan. 2006)
Rolling With Laughter: The Accidental Transfer (Jan. 2006)
Rolling With Laughter: My 15 Fizzazzled Minutes of Fame (Sept. 2005)
Rolling With Laughter: Nightmare on Elm Street (May/June 2005)
Self-Image (May/June 2005)
Self-Image: Who Do I Think I Am? (May/June 2005, Quest Extra)
Substance Abuse (July/Aug. 2004)
Therapy Is Where You Find It (mental health counselors) (Mar./Apr. 2004)
From Where I Sit — Grieving Disability (Sept./Oct. 2003)
Laughter: The Prescription for Life (July/ Aug.2003)
From Where I Sit...Who's the Dummy? (public reaction to disability) (Mar./Apr. 2003)
Someone Like Me (public speaking) (Feb. 2003)
From Where I Sit — Aloneness (Dec. 2002)
Connecting the MDA Way (Dec. 2000)
Aging with NMD (Aug. 2000)
Where There's Loss, There's Grief (June 2000)
Rein in Holiday Stress (Dec. 1999)
Steppin' Out in Style (personal appearance) (Oct. 1999)
The War of the Words: Who Won? (language and disability survey report) (Feb. 1998)
Disabilities in the Media: The Movies (Aug. 1997)
Life Without a Smile (FSHD) (June 1997)
Living With Becker MD: Lack of Understanding Leads to Frustration (Winter 1996)
Is Laughter the Best Medicine? (Fall 1996)

Safety

Crimes Against People with Disabilities: It’s Common, Offenders Often Close to Home (May/June 2008)
As the Wheel Turns – Wheelchair Disasters Offer Simple Safety Lessons (Jan./Feb. 2008)
Balancing the Scales – Americans with Disabilities Act (July/August 2007)
What Will You Do in a Disaster? — Emergency Prep (May/June 2007)
Keeping Your Home Safe & Accessible Without Spending a Fortune (Sept. 2006)
Life Turned Upside Down (Nov. 2005)
The Ten Commandments of Wheelchair Safety (Sept. 2005)
Plan Ahead for Emergencies (Sept. 2005)
The Great Escape (safety planning) (Feb.2002)
Virginia Woman Pioneers Adapted Fire Extinguisher (Dec. 1999)
Surprise Attack! The Gentle Art of Fighting Back (Feb. 1999)
A Call for Safety — Emergency Preparations (Fall 1996)

Personal Assistants & Attendant Care

Moving Out: Operation Get a Life (May/June 2008)
Is Your PCA Driving You Crazy? (March/April 2007)
Where Are All the PCAs? (March/April 2007)
My Favorite PCA (March/April 2007, Quest Extra)
Despite Challenges, People Love Their Live-Ins (Nov. 2005)
Bringing Home the Possibilities (Nov./Dec. 2004)
From Where I Sit - The Night I Became Independent (Nov./Dec. 2004)
From Where I Sit — Dubious Victory Over Medicaid (Mar./Apr. 2004)
From Where I Sit — A Day in the Life (Nov./Dec. 2003)
Unlocking Independence (Oct. 2001)
Home Is Where the Help Is (Feb. 2001)
What Our Government Has — And Hasn't—Done for Us This Year (Dec. 1998)
Teens Thinking About Tomorrow (Spring 1996)

Government Programs

InfoQuest: Help with Funding (May/June 2008)
Playing the Money Game: Funding Challenges and Options (May/June 2008)
Moving Out: Operation Get a Life (May/June 2008)
IEP Resources for Assistive Technology and Learning Disorders (March/April 2008, Quest Extra)
Volunteering to Assist the Military: How to Help (March/April 2008)
As the Wheel Turns: From Chariots to Computer Chips (March/April 2008)
How to get Your Child’s School to Provide Assistive Technology or Help with Learning Disabilities (March/April 2008)
The SCHIP Football (March/April 2008)
InfoQuest - Resources (Jan./Feb. 2008)
Quest Tech – Use It & Pass It Along (Jan./Feb. 2008)
The Tax Man Cometh: Pointers for Filers with Disabilities (Jan./Feb. 2008)
InfoQuest – Health Care, Insurance & Government Programs (Nov./Dec. 2007)
MDA Task Force Sends Letters About Medicare DME Restrictions (Sept./Oct. 2007)
InfoQuest – Accessible Housing (July/August 2007)
An ADA World (July/August 2007, Quest Extra)
Fair Housing – Accessible Apartments (July/August 2007)
Balancing the Scales – Americans with Disabilities Act (July/August 2007)
MDA Protest Alters Medicare Policy (Jan./Feb. 2007)
From Where I Sit: Medicaid Reform Needed Now (Sept. 2005)
Medicare Drug Policy Concerns (Nov./Dec. 2004)
From Where I Sit — Dubious Victory Over Medicaid (Mar./Apr. 2004)
New Medicaid Program Offers Cash & Counseling (Jan./Feb. 2004)
A Boost In Medicaid Money? (Nov./Dec. 2003)
Maneuvering Through Medicare (June 2001)

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