QUEST NEEDS YOUR HELP!

Please share your experience and wisdom related to the topics listed below. Your contribution will help others living with neuromuscular diseases.

To respond to any of the topics below, send us your name, age, neuromuscular diagnosis, phone number, e-mail address and a short explanation. This information will be kept confidential, and we'll get in touch with you about an interview.

Contact:
E-mail: publications@mdausa.org
Mail: MDA Publications, 3300 E. Sunrise Dr., Tucson, AZ 85718
Phone: 800-344-4863

THANK YOU FOR SHARING YOUR
EXPERIENCES WITH OTHERS!

TOPICS:

• Creating an accessible office or
  workspace – products and set-ups that compensate for muscle weakness
  
  
• Getting a college degree online
  
  
• Using a “take-apart” portable scooter (that can fit in the trunk of a car)
  
  
• Using voice recognition software for writing
  
  
• Using a portable patient lift (i.e., a Hoyer lift)
  
  
• Thanksgiving recipes for people with swallowing difficulties
  
  
• Tricks and tools that make eating easier
  
  
• Service dogs – when is it time to retire?
  
  
• Valuable wheelchair accessories
  
  
• Accessible cell phones
  
  
• Experiences with putting a wheelchair lift on a vehicle
  
  
• Experiences with Medicaid buy-in programs
  
  
• Persuading a commercial business to comply with the ADA
  
  
• Helpful tax deductions for people with disabilities
  
  
• Experience – pro and con – with Medicare Advantage Plans, Medicaid or SCHIP programs, or the Early and Periodic Screening, Diagnostic and Treatment (EPSDT) program
  
  
• Experiences – good and bad – with Individual Education Plans (IEPs) and 504 plans
  
  
• Obtaining home health care – creative ways to find, pay and retain good caregivers
  
  
• Convincing the insurance company to pay for the assistive technology you need
  
  
• Great gifts for people with muscle diseases

We’re ALWAYS Looking For –

FROM WHERE I SIT – This first-person opinion column runs at the back of every issue of Quest. It shines a light on unique aspects of living with a neuromuscular disease. Limit: 1,000-1,200 words. Pays $300.

TO BOLDLY GO – Stories about accessible travel experiences.

TECHNOLOGY CHANGED MY LIFE – Do you have a technological product (software, appliance, equipment, etc.) that you would like to review for the magazine?

THE ADA AND YOU – Examples of inaccessibility you’ve encountered; examples of ways in which you’ve helped create more accessibility

DO-IT-YOURSELF IDEAS - Have you figured out a low-cost, homemade way to do or make something essential at home or at work? Quest readers really want to know

HOW I DO THIS – As a person with a neuromuscular disease, or as that person’s parent or caregiver, you’ve encountered a number of uniquely difficult situations, such as bathing, transferring, using the bathroom on outings, traveling, cooking, eating, etc. What tricks, tips and strategies have you devised that make your life easier?