Donate
 
google

MDA’s award-winning bimonthly national magazine goes to everyone registered with MDA, as well as to MDA clinics, researchers and subscribers.
Quest publishes articles on all aspects of living with a neuromuscular disease, and updates on research findings. Quest’s circulation is 125,000.


Check Out the New Digital Version of Quest!

Quest Vol. 15, No.6  November to December 2008

Get Up, Get Out, Get Going

Check out our selection of holiday gifts to enable and enhance your active lifestyle.
Stories by Topic
  Home> Publications > QUEST > QUEST Vol 9 No 1 February 2002

KID QUEST
Songwriters Win National Contest

Camp Logo

Have you ever sat around a campfire and sung songs?

Maybe someday you'll be singing a song written by four Texas girls at an MDA summer camp last year. It's one of only 10 songs to win a national Girl Scouts songwriting contest, and is being released on a CD this month.

"I Want to Thank You" was written with the help of professional singer-songwriter Jana Stanfield (pictured second from left), a volunteer at Camp John Marc in Meridian, Texas. The authors are (from left) Brittany Spanier (10, dermatomyositis), Rosario Chavarria (9, SMA), Brandee Deibert (12, limb-girdle MD) and Veronica Aviles (11, SMA).

Summer Camp

The four girls were sharing a cabin at camp and wanted to come up >with something good for the camp talent show. "We had never written a song before, but it was kind of easy," says Veronica, who plays a little piano and likes to sing. Jana supplied the tune, and the girls wrote the words in English, Spanish and sign language because, "we wanted to make it a sweet song that everybody could understand," explains Brittany, who hopes to have her own band someday.

Stanfield entered the song in a Girl Scouts contest and the judges picked it over 380 other entries. It's being released on the Girl Scouts 90th anniversary CD called Sisters Hand in Hand: New Songs for Girl Scouts Everywhere (available from your local Girl Scouts council or online at www.girlscouts.org).

"When my mom told me it had won, I just went all over the house screaming, I was so excited," laughs Brandee. Brandee loves to sing and has taught the song to her friends.

music notes

The song's words are:

I want to thank you for great memories.
I want to thank you for being there for me.
I want to thank you, you're my only one.
I want to thank you, I had fun!

Along with the honor came a $1,000 prize, which was split among the four girls.

Thank You Sarah!

Sarah Schwegel, 8 (shown here with her dog, Ashley) has spent the past year traveling and appearing as the MDA 2001 National Goodwill Ambassador. What was it like? Sarah explains:

Thank You Sarah

What was the best part about being MDA's National Goodwill Ambassador?

The best part was getting to meet a lot of new people.

What was the hardest part?

The hardest part, honestly, was having to write all those thank-you notes!

What advice do you have for Mattie Stepanek, the 2002 MDA National Goodwill Ambassador?

I don't think Mattie needs any advice! You just have to be yourself.

 
     
     
Internet Services provided by: DakotaCom.Net. The Human Touch In Technology  
All of contents © copyright 2006 MDA All rights reserved.