Online News

Between issues of Quest, readers can stay informed of the latest research news through Quest Extra stories on the MDA Web site (www.mda.org/QuestMagazineOnline).

For those who missed them, below is a list of Quest Extra online stories (as of May 29)  that were not included in this issue of Quest. If you would like to read any of these articles and don’t have Internet access, call your local MDA office at (800) 572-1717 and ask that a printout be mailed to you.

May 2009

Idebenone Not Effective
Idebenone failed to show a significant difference when compared to a placebo in Friedreich’s ataxia

Fighting the Fire
Blocking a protein associated with inflammation and scarring helped mice with a DMD-like disease.

Survival Gene
A new study shows a small change in the KIFAP3 gene lengthens ALS survival time.

Searching for Signs
Possible ALS “biomarkers” are discussed at American Academy of Neurology meeting.

Adding Insult to Injury
When ALS-affected nerve cells lose function, their closest neighbors can’t protect them.

A Force for Good
Longtime disabilities advocate will serve on the Maryland State Independent Living Council (VIDEO).

April 2009

Master Woodworker
Dale Taylor brings wood to life.

Doubts About EKGs
The widely used test may not screen reliably for heart problems in DMD.

Here She Comes …
Ms. Wheelchair Indiana, who has SMA, is a veritable Superwoman. (VIDEO)

March 2009

A Streak on the Slopes
A former expert skier with FSHD now schusses the slopes on a bi-ski (VIDEO).

ALS Fatigue Fighter
Modafinil (aka Provigil) may reduce common fatigue and daytime sleepiness in ALS.