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MDA’s award-winning bimonthly national magazine goes to everyone registered with MDA, as well as to MDA clinics, researchers and subscribers.
Quest publishes articles on all aspects of living with a neuromuscular disease, and updates on research findings. Quest’s circulation is 125,000.
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Check Out the New Digital Version of Quest! |
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Game to Get Away
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Online games provide an alternate world
in which to play, say gamers with neuromuscular
diseases. Here’s a primer of terminology,
gaming options, social tips and
info on how playing may affect muscles.
In addition, Kid Quest, page 69, provides
Internet gaming safety tips for kids.
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Stories by Topic
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When you turn on the television or settle into a comfy
chair at the movie theater, wouldn’t it be nice to see some kids like you?
Of course, there’s still room for improvement, but TV shows and movies,
especially those created for young children, are developing more
characters with disabilities.
“I feel kind of excited when I see characters with
disabilities because I don’t think it’s anything to hide, and I’m glad
that they do show it on TV,” says MDA National Goodwill Ambassador Luke
Christie, who has spinal muscular atrophy (SMA). “I think it’s really cool
that they do show that kind of stuff on TV because it’s a part of our
everyday life.” |
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| Kids Like Me |
Disability experts say it’s important for children with
disabilities to see themselves reflected in TV and movie characters
because it shows them that they’re not alone in the world. Seeing
youngsters in wheelchairs or with other disabilities gives young viewers
someone special to relate to, and may help them explain their disabilities
to others.
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On CBS's "Joan of
Arcadia," Kevin Girardi continues building the boat that was started
by his sister. Photo courtesy of
CBS |
Luke, 12, of Due West, S.C., a “Joan of Arcadia” fan who
was disappointed when the show was canceled last spring after two seasons,
was drawn to the character Kevin Girardi (played by Jason Ritter). Kevin,
who’s the older brother of the title character, uses a wheelchair as the
result of a car accident.
“When I first saw ‘Joan of Arcadia’ I was flipping through
the channels, and I saw the kid in the wheelchair. That caught my
attention first of all,” Luke says. “I’d make comments about how Kevin
dealt with some of his challenges, and I’d think about how true they are,
and how close they are to some of my challenges — just how you get through
everyday life when you’re in a wheelchair.”
Lauren Carter, 14, of Katy, Texas, says that seeing
characters with disabilities is also helpful to nondisabled kids, who
might not know anyone with a disability. It can show them that kids with
disabilities are just like other kids and even open doors for
communication amongst them. Lauren has SMA and was the MDA National Goodwill
Ambassador in 2000. |
| Something to Strive For |
Kids are impressionable, making it important for kids with
disabilities to see positive representations of people with disabilities
on TV and in movies.
“It gives them models that they can use to think about how
they can live a life that is satisfying and full,” says Rosemarie
Garland-Thomson, an associate professor of English and women’s studies at
Emory University in Atlanta. Garland-Thomson works in the disabilities
studies field investigating the cultural aspects of disability.
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As teammates in a race
against their friends, “Dragon Tales’” Lorca and Enrique modify
Lorca’s wheelchair. Photo courtesy of Sesame
Workshop
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Released in 2000, the Disney Channel’s “Miracle in Lane
2’” is a good example of a movie that positively portrays a character with
a disability. Justin Yoder, 13, (played by Frankie Muniz of “Malcolm in
the Middle”) uses a wheelchair because of spina bifida and dreams of
winning trophies like his older, able-bodied brother.
Because he has faith in himself, Justin talks his parents
into letting him participate in a soapbox derby. His family is skeptical
of the idea, but Justin does whatever it takes to make his dream a reality
and wins the race.
Based on a true story, this movie sends a message that
people with disabilities have the strength to accomplish anything they
want. All it takes is having faith in themselves and finding others who
believe in them.
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| In “Miracle in Lane
2,” Justin Yoder celebrates his victory with his crew members. Photo
courtesy of the Disney
Channel |
Luke respects the way Kevin from “Joan of Arcadia” stands
up for himself and doesn’t let anyone pity him or give him special
treatment. One episode in particular raised the issue of pride and
self-worth.
Kevin’s parents wanted to buy him a car, but he became
angry and reminded them that before his accident, they were going to make
him buy it himself. He informed them that he’s no different from the boy
he was before the accident, and he’ll work to pay for the car. He gets a
job as a writer for a newspaper.
Lauren, a ninth-grader at Morton Ranch High School, says
she gets upset when the TV or movie character with a disability is pitied
by other characters. She likes the character to be strong and not dwell on
his or her disability.
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| A Sense of Normal |
Public Broadcasting Service (PBS) currently airs three
children’s programs with recurring characters who have disabilities: “Maya
& Miguel,” “Clifford’s Puppy Days” and “Dragon Tales.”
An animated series for preschool children premiering in
the late 1990s, “Dragon Tales” follows two children on their adventures to
Dragon Land. One of the friendly dragons, who was introduced in 2001, is
Lorca, who uses a wheelchair.
“We wanted to introduce a character in a wheelchair and
have him blend in with the other characters so that in some stories we
never mention the wheelchair. He just goes along and participates with the
other characters,” says Rita Weisskoff, the Sesame Workshop content
director on “Dragon Tales.”
“We picture [Lorca] as very competent, and there isn’t in
the show any real description of why he’s in a chair or what happened to
him. It’s just simply the kids accept him.”
Weisskoff, who has consulted experts to ensure that kids
with disabilities are portrayed accurately, says the show makes an effort
to portray all kinds of characters and show that their differences don’t
change the way they relate to each other.
“I think it’s really interesting and a good goal to have
more characters with disabilities, leading lives that are productive and
whose personalities shine through, so the disability is not the focus of
the show, it’s not the challenge to get over,” she says.
A new animated preschool program that has a character with
a disability premiered in April on Noggin. In “Pinky Dinky Doo,” Bobby
Boom uses a wheelchair and is one of the title character’s
friends.
Luke, who’s in seventh grade at Cherokee Trail Elementary
in Donalds, S.C., brings up the animated movie, “Finding Nemo,” which was
released in 2003. Nemo is a young clownfish, who was the only survivor
when a barracuda attacked him, his mother and his siblings, and he was
left with a “funny fin.”
“It’s a good example because there are a lot of us like
that who are pretty much equal except maybe a crooked foot or something
that keeps you back from all the others,” Luke says. “I think it’s a very
good example of a person with a disability who just wants to be normal and
kind of overlooks it and goes on with life. “When I go to do something I don’t even think about [my
disability]. If I can do it, it’s never an issue, but if I can’t do it
then I remember I’m in a wheelchair. Sometimes we overlook those kinds of
things.” |
| Are You Out There? |
When asked to identify the names of some TV shows that
have characters with disabilities, the popular response is, “I know
they’re out there, but I can’t think of any names.”
In past years there just haven’t been many shows and
movies representing those with disabilities or presenting them in positive
ways, says Garland-Thomson.
When images of people with disabilities do occur, they
might be harder to recognize, she says.
“If every television show a kid saw had a disabled person
in it and that disabled person were doing something that was positive, it
would probably be easier cumulatively for kids to identify with that,” she
says. “But when the numbers are very small and some of the images aren’t
so positive, then it becomes harder.”
Another thing children seldom see is a main character with
a disability. Garland-Thomson says that it becomes risky for TV and movie
producers to introduce the unexpected image of a character with a
disability because it might not sell advertising or be a hit at the box
office.
“Often the role of a disabled character has been to make
the able-bodied character look better. So to suddenly have a disabled
character as a central part of the plot is very bold,” she says. “You want
to give people what they are used to but you also want to give them
something that might be a little novel.”
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A new Muppet character
on the French “Sesame Street” is an energetic girl who uses a
wheelchair. Photo courtesy of Sesame
Workshop
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The new French version of “Sesame Street” dares to venture
outside the box with one of the six main Muppet characters being a girl
who uses a wheelchair. Griotte, who always joins in on the fun, provides
positive images of children with disabilities.
Some Suggestions
John Ryan, 17, of Howell, N.J., wishes TV shows and movies
would show the difficulty of living with a disability.
“I think that a lot of people aren’t aware of what a
person with a disability goes through,” says John, who has Friedreich’s
ataxia and uses a walker.
There needs to be a variety of disabilities, says John,
who graduates from Howell High School in June.
Movies are better about presenting people with different
types of disabilities, but TV shows still need to diversify. When you see
TV characters with disabilities, they’re almost always in wheelchairs.
These characters are always able-bodied, other than the fact that they sit
in wheelchairs, he says.
“If I see a movie or a TV show with a person with a
disability in it, I may judge that character more because I myself am in a
wheelchair,” Lauren says. “I might be like, ‘He’s doing that wrong or that
doesn’t seem real,’ or maybe they could have done something to make that
seem a little bit more real.”
Lauren says that because there aren’t many TV and movie
characters with disabilities, she’s surprised when she does see them.
After the shock wears off, it’s “Wow, there’s a person with a disability
on that show. That’s kinda cool.”
If your favorite TV show does or doesn’t do a great job of
representing people with disabilities, write the TV network and voice your
opinion. Most shows have their own Web sites and tell you how to e-mail
your comments. |
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| Recent Movies With Characters With Disabilities* |
Child/Teen TV Programs With Characters
With Disabilities* |
| The Ringer (PG-13) |
2005 |
| Miracle Run (G) |
2004 |
| It Runs in the Family (PG-13) |
2003 |
| Finding Nemo (G) |
2003 |
| Artificial Intelligence: AI (PG-13) |
2001 |
| I Am Sam (PG-13) |
2001 |
| Moulin Rouge! (PG-13) |
2001 |
| Unbreakable (PG-13) |
2000 |
| X-Men (PG-13) |
2000 |
| Miracle in Lane 2 (G) |
2000 |
| How to Kill Your Neighbor’s Dog (PG-13) |
2000 |
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| Clifford Puppy Days |
PBS |
| Degrassi: The Next Generation |
Noggin |
| Dragon Tails |
PBS |
| Joan of Arcadia |
on DVD |
| Little Bill |
Nick Jr. |
| Malcolm in the Middle |
FOX |
| Maya & Miguel |
PBS |
| 7th Heaven |
WB |
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| *MDA isn’t recommending these movies or shows;
parents should use their judgment about what’s appropriate for their
children. |
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