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MDA’s award-winning bimonthly national magazine goes to everyone registered with MDA, as well as to MDA clinics, researchers and subscribers.
Quest publishes articles on all aspects of living with a neuromuscular disease, and updates on research findings. Quest’s circulation is 125,000.
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Stories by Topic
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| by Abby Albrecht |
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Though we tend to think of it as something simple, the foot
actually is a very complex body part, made up of 26 bones, 33
joints, and more than 100 muscles and tendons. By maintaining
the health of this intricate appendage, you can prevent sores,
infections or deformities and even wear stylish shoes.
But why should you care about your feet, which you may not
even be using if you have a neuromuscular disease? Its easy
when you get down to it. Unlike muscle disease, the health of
your feet is something you can control. Whether you pamper them
at a spa (my preference) or force yourself to wear braces and
do foot exercises, keeping your feet healthy holds many benefits. |
| An Uneven Pull |
All neuromuscular diseases share the common symptom of weak
muscles, but each disease has its own quirks. Many foot problems
come from having unequal strength in different muscles, says
Shree Pandya, a physical therapist and assistant professor of
neurology, physical medicine and rehabilitation at the University
of Rochester (N.Y.), who works closely with the MDA clinic.
For example, children with Duchenne muscular dystrophy (DMD)
may develop plantar flexion contractures, in which
their feet point downward due to tightening of the muscles in
the back of the calf. (A contracture is an abnormal
tightening or fixation of a joint.)
Foot deformities are more likely to show up in children than
in adults, says orthopedic surgeon Irwin M. Siegel, MDA clinic
co-director at Rush University Medical Center in Chicago. Those
that start in childhood tend to be more severe because childrens
bones are malleable and designed to grow. When neuromuscular
disease causes an uneven and abnormal muscle pull during growth,
the foot develops abnormally.
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| Brace Yourself |
Sure, its easy to slap a fuzzy pair of socks on your feet
and then ignore them until they become swollen and unable to
bend. The problem is that you open yourself up to foot deformities,
pressure sores, circulatory problems and many other troubles
that crop up when youre busy ignoring your feet.
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AFOs:
the assistive device people love to hate. |
Few people whove worn braces will write poems about how great
they are, yet no one Ive talked to regretted wearing them.
Lower leg braces, also called AFOs (ankle-foot
orthoses), stretch muscles and maintain proper bone structure.
They also help prevent contractures to some extent, says Gene
Bernardoni, an orthotist (brace specialist) and president of
Ballert Orthopedic, who sees patients at the MDA clinic at Rush
University.
Like most experts, Bernardoni recommends stretching to keep
muscles loose and moving. Although some foot deformity may be
inevitable in a neuromuscular disease, bracing and stretching
will enable the foot to fit into a shoe - and thats more than
a fashion statement. Without the protection shoes provide, feet
can be bumped, squished, twisted and fairly beaten up.
Children may wear their AFOs while sleeping, but Bernardoni
cautions that they should be left off if they interfere with
a childs sleep. Pandya adds the warning that when sleeping
in AFOs, children often pull their feet back to relieve the
pull on their calf muscles. Added to sitting down all day, this
often leads to contractures in their knees.
Physical therapist Wendy King, who works with the MDA clinic
at Ohio State University Medical Center in Columbus, points
out that theres still much to be learned about ligament and
soft tissue development in the foot. Some children can stretch
and exercise and wear AFOs all day every day, and still get
contractures, while other children might not get them.
As they get older, people adapt their AFO schedules to what
works for their feet.
Amanda Van Deusen, 28, wore braces every night until she went
to the University of Southern California and met another young
woman with spinal muscular atrophy. Van Deusen was surprised
to learn that not everyone with SMA wears AFOs forever. The
other student agreed that AFOs had kept her feet able to wear
her favorite shoes, but that with her growth spurts past, she
felt safe just doing stretches.
Seek the advice of your doctor about the use of AFOs.
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| If the Shoe Fits... |
Although only 5 percent of the general population has flat
feet, the problem is more common among people with neuromuscular
diseases, Siegel says.
According to the American Academy of Family Physicians, most
flat feet are caused by loose joint connections and baby fat
between the foot bones. The feet may look like they have arches
when the child is sitting or when the big toe is bent backward,
but the arch flattens when the child puts weight on the foot.
As people with neuromuscular diseases age, flat feet can lead
to difficulties finding shoes that fit. Wide and double-wide
shoes, while not uncommon, are rare in some shoe departments.
Yet buying a too-large shoe to fit the width can inadvertently
cause injuries because the foot isnt properly protected.
Pressure sores from ill-fitting shoes also are a problem, King
says. See your neurologist or podiatrist right away if you notice
sores or skin problems on your feet or ankles.
Its best to be properly fitted for shoes each time you go
shopping for a new pair, the American Academy of Orthopaedic
Surgeons recommends. The academy also advises trying on shoes
later in the afternoon because feet swell as the day goes on.
Some department stores sell a large selection of wide and double-wide
shoes to meet every style. Brands such as New Balance, with
its broad range of affordable sneakers, and Mephisto, with its
selection of rather expensive yet comfortable shoes for all
occasions, are known for carrying wide sizes. |
| Exercise Helps |
Bones become stronger with use. People weakened by neuromuscular
diseases are at risk of developing osteoporosis (in
which the bones become extremely porous, are subject to fracture
and heal slowly) or osteopenia (bones have decreased
calcification and density). Problems stemming from falls, twists,
sprains and fractures are common.
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Wearing
braces is no guarantee against foot deformities
(above), but they help keep things in line.
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Pandya, King and Siegel all agree that exercise can be beneficial.
King and Siegel recommend picking objects up with your toes.
Other recommendations include massages, hot and cold baths for
circulation, ankle circles and isometric flexing (contracting
muscles against resistance such as a wall or another persons
hand). Bernardoni also suggests stretching by pushing down on
your heel so your toes go up a bit. |
| Bundle Up |
One foot problem doesnt become evident until winter. Poor
circulation in people who use wheelchairs can lead to sores
and chilblains (an inflammation followed by itchy irritation
caused by moist cold).
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Landon
Moore, 20, of Alpine, Texas, says she despised
her braces throughout high school but in college
came to appreciate them as useful tools. Moore,
who has Charcot-Marie-Tooth disease (CMT),
chose colorful braces to fit her style. |
The key is to keep your feet warm. Siegel says to wear silk
hose and/or multiple layers of socks. Avoid heated socks because
they can burn your skin. The fashionistas out there can wear
UGG boots big sheepskin-lined boots from Australia secure
that theyll keep their feet warm.
If you notice sores or chilblains, King advises an immediate
medical consultation.
A Little Pampering Goes a Long Way
Often it isnt until feet are injured that they get much attention.
Pandya recommends inspecting your feet regularly and seeing
a podiatrist if you have any concerns. Dry skin, King says,
can lead to skin breakdown.
Herbs and oils in the bathwater can help. For an added level
of luxury, soak in a paraffin bath, in which a special wax is
melted into a liquid that can soothe cold, stiff feet. Keep
toenails trimmed in a straight line not just to prevent snags
in your socks; trimming in a curve can cause ingrown toenails.
Although pampering wont cure major sores, regular foot care
will head off smaller sores and rashes before they start. Every
eight weeks or so, set aside a day to pamper yourself and your
feet. Start with Kings recommendations of massaging in some
oils, then trim your nails, and paint them if you feel like
it. (Guys can use the colors of their favorite football teams.)
I have to admit that in the past Ive treated my feet as little
more than decoration. As I researched this article, it became
apparent that Id indeed been doing some things the hard way
(such as buying ill-fitting shoes) that led to rashes. I also
recognized that Id found some obvious solutions on my own
for instance, I keep a space heater in my room to increase circulation
in my legs.
Dont put aside the things youve found that work with your
style as long as they keep your feet healthy. Youre far more
likely to keep up a daily pattern if it doesnt throw off your
whole life.
Of course, an afternoon pedicure wont throw your life off
too badly, and you can always say its for medical reasons.
Abby Albrecht is a freelance writer, Web designer, and
lover of sassy shoes and spas, who lives near San Francisco.
She has SMA type 2. |
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Tips for Good
Foot Care |
Keep your toenails
trimmed. Straight-trimmed nails
will prevent ingrown toenails and scratches that could become
infected.
Don't force your foot into a shoe. If your
foot is squeezed or pushed into uncomfortable positions you
risk creating sores.
Keep your feet warm and dry. Athletes
foot can happen to you even if you never enter a gym.
When you hear a good song, tap your feet.
It may not look as if your toes are even moving, but it encourages
circulation and burns off extra energy.
Don't be afraid to show off your feet.
Youre more likely to pay attention to potential problems
if you wear shoes that feature your feet. |
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