There’s no one perfect diet for everyone with a neuromuscular
disease. The right program depends on your health profile,
tastes and lifestyle. But nutritionists and physicians agree
that, in general, the best weight loss plan involves well-balanced
nutrition.
Diet gurus may proclaim the miraculous effects of one kind
of “macronutrient” over another — protein,
fat, carbohydrate, grapefruit, whatever — but the bottom
line for losing weight still comes down to calorie count.
Low-carbohydrate diets that are high in fat (such as Atkins)
can lead to rapid weight loss, but the long-term health effects,
safety and ability to maintain the weight loss are questionable,
many physicians warn.
For adults, limiting calories to 1,500 a day while increasing
activity should result in weight loss over the long run, counsels
nutritionist Megan McCrory. Calories shouldn’t drop
below 1,200 a day for adults, she adds. Despite some recent
criticism, the FDA food pyramid guidelines, combined with
moderate exercise, produced good results over time in people
with neuromuscular diseases, according to UC Davis research.
The main problem dieters face is hunger. Neuromuscular specialist
Mark Tarnopolsky and Sandy Calvin, a clinical dietitian who
consults at the Vicki Appel MDA Neuromuscular Clinic at Baylor
College of Medicine in Houston, suggest these ways of taming
the hunger monster:
Eat small meals more frequently.
Not only does this stave off hunger, but digesting and absorbing
food actually burns calories. In other words, four meals of
250 calories each require more calories to digest and absorb
than a single meal of 1,000 calories.
Review your vitamins.
Taking too much B complex and iron can actually stimulate
your appetite.
Choose carbs wisely.
While carbohydrates aren’t the Great Satan, some are
more evil than others — specifically highly processed
foods such as white bread, cakes and sweets.
Instead, choose carbs that are as close as possible to their
natural state, such as fruits and vegetables, whole-grain
cereals and breads. They won’t cause hunger by briefly
spiking, then dropping, blood sugar and insulin levels.
Talk to your doctor about appetite
suppressants.
Taken under medical supervision, there are several prescription
drugs that can provide a safe assist.
Be careful with over-the-counter appetite suppressants that
contain stimulants such as ephedrine or ma huang. These can
cause anxiety, heart palpitations and fatal heart arrhythmias,
which are especially dangerous if your NMD can lead to cardiomyopathy
(as in Becker or Duchenne muscular dystrophy), or cardiac
conduction disturbances (as in myotonic MD).
By undertaking a long-term, intelligent dieting strategy, you
may not become the slender man or woman of your dreams, but
you’re very likely going to lose some weight and improve
your health.