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MDA’s award-winning bimonthly national magazine goes to everyone registered with MDA, as well as to MDA clinics, researchers and subscribers.
Quest publishes articles on all aspects of living with a neuromuscular disease, and updates on research findings. Quest’s circulation is 125,000.
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Check Out the New Digital Version of Quest! |
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Game to Get Away
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Online games provide an alternate world
in which to play, say gamers with neuromuscular
diseases. Here’s a primer of terminology,
gaming options, social tips and
info on how playing may affect muscles.
In addition, Kid Quest, page 69, provides
Internet gaming safety tips for kids.
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Stories by Topic
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BUYING
& ORDERING FROM CANADA
General Information
Brand name, U.S.-made, FDA-approved
medications are sold abroad for far less than in the United States,
meaning consumers can save a lot of money by buying back U.S. drugs
from foreign sources over the Internet. There are two big concerns
safety and legality and no clear-cut answers on either score.
Safety standards vary widely when youre
roaming the world drug market. By the time a U.S.-made medication
ends up on a Thai Web site, for instance, it could be just fine
or expired, mislabeled, contaminated or counterfeit. In addition,
export versions of some U.S.-manufactured drugs are made to different
standards or in different dosages than the requirements for domestic
consumption.
Canada, with a prescription regulatory
system similar to this countrys, has become the drugstore of choice
for many Yanks over a million last year. Due to Canadian price regulations
and the strong buying power of the U.S. dollar, consumers save from
30 percent to 90 percent on brand name drugs. (Generic drugs usually
are cheaper to buy in the United States, however. A generic here averages
about 74 percent less than the brand name drug, versus only 38 percent
less in Canada, according to a report by Forbes magazine.)
Theres no safety reason not to buy
from accredited Canadian pharmacies, says Greg Carter, director of
MDAs clinic at the University of Washington in Seattle. "Theyre
the same damn drugs!" Canada has a rigorous review system for
both imported and exported drugs, "and one of the best safety
records in the world," says a spokesperson for the Canadian health
ministry, Health Canada.
Buying from Canada is cheap and safe
but is it legal? Well no.
Prescription drugs even those originally
made here — may not be carried or mailed into this country.
But the FDA has "enforcement discretion" and is willing
to turn a blind eye in some circumstances.
On a practical level, this means that
licensed Canadian pharmacies following good practices (see "Warnings
and Guidelines," below) currently are shipping to U.S. buyers
with impunity and buyers arent being targeted by authorities.
So far, FDA crackdown measures have
been aimed at questionable online pharmacies and storefront operations
that place Internet orders for customers wanting to buy from Canada.
Recent congressional support for consumer
access to Canadian drugs is unlikely to make importation "legal,"
due to difficulties with certifying that the imported drugs are safe
but it may help keep the border guards looking the other way.
Warnings and Guidelines
- Look for the name, street address,
telephone number and license number of the foreign pharmacy that fills
orders for the Web site.
- Foreign pharmacies should require
a U.S. prescription and a health history questionnaire.
- You shouldnt be charged for confiscated
shipments.
- For safety and peace of mind, look
for prescriptions shipped in the original, unopened, sealed, manufacturers
packages, advises Discount Drugs Depot (www.discountdrugsdepot.com).
They add that if you still feel unsure, ask to have the pharmacist
call your doctor.
Canadian
Resources
- For more information about the U.S.
position on imported drugs, go to www.fda.gov or call 1-888-INFO-FDA [(888) 463-6332].
- An easy-to-read explanation of Canadas
drug regulatory laws can be found at: "Guidance Document on Commercial
Importation and Exportation of Drugs in Dosage Form under the Food
and Drugs Act," www.hc-sc.gc.ca/hpfb-dgpsa/inspectorate/new_e.html.
Call (613) 952-8175 to request a copy from Health Canada.
| SPOTLIGHT
Thomas S. French was a practicing
U.S. plastic surgeon before being sidelined by amyotrophic
lateral sclerosis in 1996. He and his wife, Jacqueline, of
Barnard, Vt., started Two Nations Rx (www.twonationsrx.com)
to bring price relief to American consumers.
Outside of an occasional border
delay, French says none of his customers have had any legal
problems with their Canadian orders.
Not all drugs are available
in Canadian pharmacies. Narcotics and controlled substances
cant be shipped across the border. (For example, Provigil,
a drug used by people with myotonic dystrophy to combat daytime
sleepiness, isnt available.) Two Nations Rx wont ship fragile
medications, ones requiring refrigeration, or ones "we
consider habit-forming or detrimental to a patients health
when purchased from a pharmacy rather than in their place
of residence."
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BRAND
NAME PRICES IN CANADA, ONLINE & WITH DISCOUNT CARD |
| Drug |
Usage |
DISCOUNT DRUGS DEPOT(Canada)
$15 shipping per order |
TWO
NATIONS
Rx(Canada)
$15 shipping per order |
DRUGSTORE
.com(USA)
$1.49 shipping per order |
COSTCO
(online)
(USA)free shipping |
NONPROFIT WAREHOUSE
(U.S. discount card mail order site, ScripPharmacy.com)
free shipping |
CELEBREX
200 mg
90-100 capsules |
Arthritis; in testing
as an ALS treatment |
$126.93
(100) |
$136.11
(100) |
$211.99
(90) |
$244.27
(100) |
$241.45
(100) |
FOSAMAX
10 mg
90-100 tablets |
Osteoporosis(an
effect of neuromuscular disease and steroid use) |
$153.97
(90) |
$126.69
(90) |
$191.98
(90) |
$221.19
(100) |
$185.00
(90) |
| Total Includes
shipping |
|
$295.90
(190 pills) |
$277.80
(190 pills) |
$405.46
(180 pills) |
$465.46
(200 pills) |
$426.45
(190 pills) |
GENERIC
PRICES IN CANADA, ONLINE & WITH DISCOUNT CARD |
| Drug |
Usage |
DISCOUNT DRUGS
DEPOT(Canada)
$15 shipping per order |
TWO NATIONS Rx(Canada)
$15 shipping per order |
DRUGSTORE .com(USA)
$1.49 shipping per order |
COSTCO (online) (USA)
free shipping |
NONPROFIT WAREHOUSE
(U.S. discount card mail order site, ScripPharmacy.com)
free shipping |
Prozac
10 mg
90-100 capsules |
Depression |
$115.32(100) |
$106.59(100) |
$84.99(90) |
$18.09(100) |
$132.52(90) |
PREDNISONE
5 mg
90-100 tablets |
Autoimmune diseases;
Duchenne
MD |
$15.98(100) |
Doesnt carry; site says "cheaper in
U.S." |
$8.10(90) |
$8.30(100)(only
has 10 mg) |
$4.59(90) |
| Total Includes shipping |
|
$146.30
(200 pills) |
No comparison possible due to missing drug |
$94.58
(180 pills) |
$26.39(200 pills)
(larger dose Prednisone) |
$137.11
(180 pills) |
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