Quest Magazine

New Forms of Genetic Testing Improve Diagnosis, Raise Questions

“Knowing, if not all, is almost all,” said Matthew Harms, a neurologist and neurophysiologist from Washington University in St. Louis, in his presentation on genetic testing for neuromuscular disorders at the 2014 MDA Clinical Conference, held in Chicago March 16-19.

Blog: Looking Back, Looking Ahead

Blog: See you real soon… Why? Because we like you.

Blog: More Than Just a Diagnosis

Blog: She Stayed Another Hour

Blog: We need to talk …

DMD: Phase 2 Drisapersen Results Encouraging

Update March 27, 2014: Prosensa and United Parent Projects Muscular Dystrophy jointly presented an educational webinar for patients and families affected by Duchenne muscular dystrophy on March 25, 2014.

MTM Natural History Study Seeks Participants

Update (May 20, 2014): This story has been updated to reflect additional information received May 20, 2014, from Michelle Nelken at Valerion Therapeutics, including the joint sponsorship of this study by Valerion and Genethon.


Blog: Quality and Enjoyment of Life A Top Priority

Blog: A Lot of Learning