MDA Programs

New MDA/ALS Center Opens at LSU

The Muscular Dystrophy Association has designated the MDA clinic at Louisiana State University Health Sciences Center School of Medicine in New Orleans as an MDA/ALS center. This brings the total number of these specialized clinics to 44.

FDA Hearing Highlights ALS Drug Development Concerns

Update (Feb. 28, 2013): The daylong FDA ALS webinar has been archived and is now available for viewing on the FDA site.

Federal SMA Project Issues Progress Report

A small-molecule drug candidate for spinal muscular atrophy (SMA) and an effective strategy for advancing therapy development are the primary outcomes being reported by the Spinal Muscular Atrophy (SMA) Project, a program established in 2003 by the National Institute of Neurological Disorders and Stroke (NINDS) to accelerate the development of therapeutic candidates for thi

Conference Provides Updates for MDA Clinic Team Members

The 2012 MDA Clinical Conference, held in Las Vegas March 4 -7, gave more than 500 attendees an opportunity to learn from top experts about the latest advances in diagnosis, medical management and emerging therapies for neuromuscular diseases.

MDA and ALS TDI Extend Partnership Through 2012

MDA has extended its strategic research partnership with the ALS Therapy Development Institute (ALS TDI) through 2012 and awarded a $2 million grant to support the nonprofit biotech's continued efforts to develop treatments forALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease).

MDA 2012 Clinical Conference to Take Place March 4-7

Current trends and practices in the treatment of neuromuscular disease, and exciting new therapeutic developments will be the focus of MDA’s 2012 Clinical Conference March 4-7, at the South Point Hotel in Las Vegas.

Although not open to the general public, the conference agenda and daily blogs about the proceedings will be available on the 2012 Clinical Conference website.

MDA Services for the Individual, Family and Community

Dear Friends,

Our journey with muscle disease began just a few days after we celebrated Reagan’s first birthday. Despite the feelings of loss and uncertainty that came along with hearing that our daughter has spinal muscular atrophy (SMA), we were determined to make sure Reagan has the happiest, brightest and healthiest future possible. And that is when we were so fortunate to become part of the MDA community.

Last Updated: 
Thu, 05/01/2014 - 11:24

ABLE Act Would Help Families Plan for Child's Financial Future

ALS TDI Teams with Two Biotechs to Develop Therapy

The ALS Therapy Development Institute (ALS TDI), an MDA-supported, nonprofit biotechnology organization dedicated to developing effective treatments for amyotrophic lateral sclerosis (ALS), will collaborate with two major biotechnology companies to investigate a potential treatment that modulates the immune system.

Troy Ellis: Keeping the Faith Despite ALS

Saying Marvin “Troy” Ellis used to be an active guy would be an understatement. A brick mason by day, the Madisonville, Ky., resident typically was up before the crack of dawn to do the first of his two-a-day workouts. A former high school star athlete, he spent his work days on construction sites, laying brick and pouring concrete. Then on weekends, he’d clean up and put on the clothes of his other profession, an ordained Baptist minister.