Daily Living

Fighting Fires with Info

Nick Waneka recalls hanging around the fire house in his home town of Lafayette, Colo., from about the time he graduated from diapers. His dad was a volunteer fire fighter; his mom was in the department’s women’s auxiliary.

Now 29, he’s still hanging out at the fire house three days a week, eight hours a day, and he’d spend more time there if he could.

Attention Job Seekers

Attention job seekers with disabilities interested in working in the U.S. Department of Justice: This is a good time to apply.

U.S. Attorney General Eric Holder recently issued a memo calling on the Department of Justice (DOJ) to hire and promote people with disabilities, with the goal of making DOJ “a model employer with a diverse workforce that includes people with disabilities.”

Here She Comes ... Ms. Wheelchair Indiana

People who know Emily Munson aren’t surprised to learn that the savvy 24-year-old just happily added yet another activity to a plate that’s already brimming full.

Denise Thomas: Disabilities Advocate

Right out of high school, Denise Thomas began volunteering to help people with disabilities find employment. Now, nearly two decades later, she’s more involved with helping than ever, and she’s become a familiar face to Washington-area residents and a force for good in the nation's capital.

Adaptive Skier with FSH

Learning that Gregg Kuersteiner snow-skis black diamond (expert) slopes at high speed doesn’t seem unusual until you see the rig he skis on.

Kuersteiner, 47, began skiing at age 2 every weekend of the season in his native upstate New York, under the tutelage of his father, a ski school instructor. He became an expert skier at an early age, and raced on the giant slalom team in high school.

ALS Fatigue Fighter

Study results reported in the March 2009 issue of Muscle & Nerve indicate that modafinil (marketed under the brand name Provigil) "may be a promising intervention for fatigue in ALS (amyotrophic lateral sclerosis) patients." Fatigue and daytime sleepiness often accompany this disease.

Hiroshi Mitsumoto, director of the Eleanor and Lou Gehrig MDA/ALS Research Center at Columbia University Medical Center in New York, where the study was based, received MDA support to conduct it.

Bully Beaters

In the four years since Gabrielle Ford wrote a guest feature for Quest, she and her dog Izabel (Izzy) have become prominent figures on the national speaking circuit. Gabe’s first book will hit the streets in late February 2009.

Moms on Wheels

The challenges of using a wheelchair didn’t deter Shannon Klann, of Garden City, Mich., from becoming a mother of three. But raising kids while in a wheelchair is no small feat, says Klann, who has Friedreich’s ataxia and has wanted to be a mother since childhood.

Sports Mentors for Kids

Disabled Sports USA (DS/USA) will conduct its 2009 National Youth Sports Mentoring Program in 13 states during 2009. The program will match more than 200 youth with disabilities with mentors who will help them develop their sports abilities and skills they can use in everyday life.

Disabled Sports USA

MDA Youth Peer Groups

Teens and young adults with muscle diseases are finding new opportunities to share their world with peers and gain valuable life skills through MDA’s support group program.

MDA already hosts some 240 support groups that provide practical help and emotional support to individuals and families around the country. But in recent years, the special needs of young adults have become more apparent, said Jennifer Lopez, associate director of MDA Health Care Services.