Daily Living

Man With NM on 'Millionaire'

Sargon de Jesus has always been a trivia buff and a fan of game shows that test trivia smarts. So when he earned an appearance on the popular TV game show Who Wants To Be A Millionaire, de Jesus was "totally psyched" and ready to take his shot at some big money.

Busy man

As someone who has cultivated a vast array of interests and talents, de Jesus possesses a broad and varied base of experience upon which to draw.

Mentoring with Love

Steve Smith isn’t a big guy, except where it counts the most: in his heart.

No one knows that better than 12-year-old Jesse, Smith’s Little Brother through Big Brothers Big Sisters of Northeastern Wisconsin, which operates in and around De Pere where they live.

The two have been best buddies for more than four years, and Smith obviously is doing something right, because his Big Brothers Big Sister chapter recently named him its Big Brother of the Year.

2010 National Disability Summit

People with disabilities have an opportunity in 2010 to help develop recommendations that will shape national disability policy and programs for the next decade.

The National Summit on Disability Policy, sponsored by the National Council on Disability (NCD), will be held in Washington, D.C., from July 25-27. It’s a by-invitation-only meeting, and people who hope to participate must submit an application to attend no later than Oct. 15, 2009.

ALS Profile: Hawaiian Still Smiling


Untangling ALS

A new forum for easily accessible scientific information on alternative and off-label (not approved by the Food and Drug Administration) treatments for ALS is now being offered by the World Federation of Neurology (WFN) on its WFN ALS Web site. The forum, ALS Untangled (ALSU), uses Twitter for its communications.

Here's how it works:

Congenital MD Meeting

A conference for families affected by congenital muscular dystrophy (CMD) is taking place Saturday and Sunday, Aug. 15-16, 2009, at Children's Hospital of Philadelphia, under the sponsorship of Cure CMD.

The conference begins at 8:30 a.m. Eastern time and will be available through the Internet.

Skydiver with CMT

“You take one look out that door … and it’s a long way down.”

In fact it was 14,000 feet down, give or take a foot or two, for Mike Crowe and members of the U.S. Army’s elite Golden Knights precision parachuting team -– a record high for the team in tandem jumping.

Crowe, 59, of Louisville, Ky., dropped from the plane and into the sky linked to Sgt. First Class Mike Elliott, otherwise known as the tandem master.

New Look for Disability.gov

The U.S. Department of Labor (DOL) has reorganized and renamed its Web site that provides information to assist people with disabilities.

Target audiences for the site, www.disability.gov, include not only people with disabilities, but also their families, employers, caregivers, veterans, educators and anyone else seeking disability-related information.

The site is broken down into 10 subject areas:

ALS: Riding for Augie

Many fundraising events for Augie’s Quest (MDA’s aggressive ALS research initiative) tend to be glamorous galas attracting high-profile socialites to genteel settings.

There was nothing genteel about the fundraiser that began June 20 as part of Race Across America (RAAM). It’s one of the toughest endurance events in the world. Cyclists – usually 250 or so, solo or in teams – race 3,000 miles from Oceanside, Calif., to Annapolis, Md. Four-person teams typically cover that distance in five to eight days of nightmarish physical challenge.

Air Travelers Update: Label Issue Drags On

Vent, CPAP and BiPAP users can expect to encounter ongoing obstacles if they plan to fly on commercial airlines in the near future.

Interviews with government and industry representatives show that the special labeling required for such equipment still has not been created, and no one – except the frustrated and angry travelers affected by the ruling – seems to consider it an urgent matter.

The problem