Daily Living

Everybody’s Different, Nobody’s Perfect

Adapted for young children from “Everybody’s Different, Nobody’s Perfect,” by Irwin M. Siegel, M.D., MDA national vice president, and MDA clinic co-director, this colorful, easy-to-read booklet in English and Spanish helps young children understand muscular dystrophy.

Click the image at left to start reading or download a printable copy. PDF Document

Last Updated: 
Wed, 11/01/2006 - 15:56

Tabi Estrellado: Writing Code, Writing Songs, Winning Awards

Tabitha Estrellado is living her dream. She’s a 27-year-old career woman with a nice apartment in Manhattan. She loves her job, has a sweet commute, and writes music and performs locally in her spare time.

Spinal Muscular Atrophy Care Guidelines

The Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy was prepared by SMA Advocates for families affected by SMA. The full, 22-page text of the Consensus Statement was published in the August 2007 issue of the Journal of Child Neurology. Both are available as PDFs by following the links above.

Last Updated: 
Sat, 11/03/2007 - 14:34

Hey! I'm Here Too!

It's not easy when your brother has muscular dystrophy. His illness might bring up thoughts and feelings that upset you. There may be questions you don't know the answers to. You might be shy about asking those questions and about asking for help because your brother needs so much attention.

This brochure was written especially for you. It will help you let people know, "Hey! I'm here, too!"

Last Updated: 
Fri, 04/02/1999 - 09:00

Periodic Paralysis Conference Connects Experts, Families

The 2011 Periodic Paralysis Association Conference will be held Nov. 4-6 in Orlando, Fla., and is geared toward people with periodic paralysis (PP), their families, physicians and friends.

This is not an MDA meeting, but several current and former MDA research grantees will be speaking. Among them are:

MDA Wants Your Photos

This summer, MDA is inviting everyone to participate in its new "Make a Muscle, Make a Difference" public awareness campaign by submitting photos of friends and family flexing their muscles for MDA.

MDA also is seeking photos for its "Accessible Spaces Gallery" debuting in August on the MDA Transitions Resource Center, a website designed to help young people with muscle diseases make the transition to adulthood and independence.

DMD Guidelines — Corticosteroids

In January 2005, the American Academy of Neurology (AAN) released its long-awaited report on the use of corticosteroids (prednisone or deflazacort) in Duchenne muscular dystrophy (DMD). The report is also published in the Jan. 11 issue of Neurology. It finds that corticosteroids are beneficial in DMD, but that some drawbacks to their use must be considered.

Last Updated: 
Sat, 01/01/2005 - 11:46

DMD/BMD Guidelines — Cardiovascular Care

In December, the Section on Cardiology and Cardiac Surgery of the American Academy of Pediatrics published its recommendations for cardiac care in Duchenne muscular dystrophy (DMD) and Becker muscular dystrophy (BMD) and carriers of those dystrophies in its journal, Pediatrics.

Summary of the recommendations from the American Academy of Pediatrics:

Last Updated: 
Wed, 03/01/2006 - 13:40