Disease-Specific Materials

• Facts About Spinal Muscular Atrophy
• 'How the MDA Clinic Can Make a Difference'11/15/02
• "The Spinal Muscular Atrophies," by Dr. Munsat
  (N.B.: Although a good overview, this resource predates major genetic discoveries. See "Facts About Spinal Muscular Atrophy" [above].)

Quest Research-Medical Articles

• Fatigue: Where Has Your Get-Up-and-Go Gone? 1/05
• Government Funds Quality-of-Life Studies in Neuromuscular Diseases 10/04
• New Hope in SMA 5/04
• The Great Trach Escape 9/03
• When Cells Kill Themselves 7/03
• Leaving on a Jet Plane ... 3/03
• All Fall Down 12/02
• Staying Ahead of the Curve: Scoliosis Surgery 8/02
• Sticks and Stone Break Fragile Bones 12/01
• Unlocking Independence 10/01
• Living With and Without Pain 8/01
• Saddle Up! 8/01
• Fast-Track Pharmacy 8/01
• Time for a New Wheelchair 8/01
• Maneuvering Through Medicare 6/01
• Growing Up and Taking Charge 6/01
• Getting to the Point of Acupuncture 4/01
• Sorting Out Speech Services 2/01
• When You've Gotta Go... 2/01
• Home Is Where the Help Is 2/01
• Marvelous Massage 12/00
• Better Nights for Better Days 10/00
• Getting a Grip on Vitamins 10/00
• Gut Reactions: Correcting Constipation 8/00
• Coping with Anesthesia 6/00
• Physical & Aquatic Therapy 6/00
• Renewing Muscles & Nerves 4/00
• Genetic Counselors Do It All 4/00
• The Birth of a Family: Adoption Within Reach for Those With Neuromuscular Diseases 12/99
• Hard to Swallow (dysphagia) 8/99
• Bracing Experiences 4/99
• A Breath of Fresh Air 12/98
• Breathe Easy 10/98
• What Worries Doctors Most About Pregnancy 12/97

Quest Research Updates and News Releases

• Indoprofen Increases SMN 3/05
• Drug Screen Under Way 3/05
• Lentivirus Vector Delivers Genes to SMA Mice 3/05
• Clues About SMN Protein Promising for Spinal Muscular Atrophy 1/05
• Two Drugs Being Tested in Youngsters With SMA 9/04
• Designer Compound Could Fix SMA Gene (3/03)
• Gene Delivery Tested in Spinal Muscular Atrophy (3/03)
• New Function Attributed to SMN Protein 2/03
• Vigilance With Feeding, Respiratory Care Urged 2/03
• Vent Users Report Good Quality of Life 12/02
• Statins Can Cause Nerve and Muscle Problems 10/02
• Albuterol May Increase Muscle Strength, Mass in Children With SMA 10/02
• SMA Tests Refined, Precautions Noted 4/02
• Children Over 12 With SMA Excel at Applying Intelligence 4/02
• Newly Found Genes for Muscle Atrophy May Be Clues in ALS, SMA, CMT 12/01
• SMA Drug Search Gains Ground 12/01
• Vitamin Deficiencies May Worsen SMA 8/01
• New Tool for Developing SMA Treatments 12/00
• Stem Cells 'Switch' May Be Key to Stem Cell Therapy in MD 10/00
• Conference Spotlights SMA, MMD, DMD, BMD 8/00
• Stem Cells, Gene Therapy, BAMs, IGF-1 6/00
• SMA Mouse Developed 4/00
• SMN Revisited 2/98
• Unraveling SMA 10/97
• New SMA Tests Developed 8/97
  
  

People with ...

• 007, by Jerry Ferro 5/05
• Dealing With Disability...Day by Day 3/05
• Pretty in Pink - Morgan Fritz 1/05
• From Where I Sit: The Night I Became Independent 11/04
• Jerry Ferro
• From Where I Sit... Keeping Hope Alive: Parenting a Child with NMD 2/03
• Building Our Dream Home 12/02
• KidQuest... 2/02
• Parenting - Normal is What You Make It 12/01
• Art for Art's Sake 12/01
• Saddle Up! 8/01
• Time for a New Wheelchair 8/01
• How Can I Help? 6/01
• Ready for Action: Sarah Schwegel 12/00
• They Shoot, They Score! 10/00
• Making Art Any Way You Can 4/00
• Military Family Enlisted to Serve as MDA's 2000 Goodwill Ambassadors 2/00
• Jenni Gold, Filmmaker 6/98
• Bill Altaffer; member, MDA National Task Force on Public Awareness
• Matthew Schuman; member, MDA National Task Force on Public Awareness
• Marybeth Waltman; member, MDA National Task Force on Public Awareness
• Angela Wrigglesworth: member, MDA National Task Force on Public Awareness

FAQ's and Simply Stated Articles

• FAQ: About Creatine
• Creatine Update: MDA Experts Say, 'Take Supplements Only Under Doctor's Care' 2/01
• Simply Stated - Genetics Myths 12/01
• Simply Stated - Clinical Trials 10/01
• Simply Stated - Neuromuscular Terminology 8/01
• Simply Stated - Elevated Enzymes 4/01
• Simply Stated - Germ Line Mosaicism 2/01
• Simply Stated - Genetic Testing 12/00
• Simply Stated.. EMGs and NCVs 10/00
• Simply Stated - Muscle Biopsies 8/00
• Simply Stated - Stiffness & Cramps 6/00

• SMA type 1 (Infantile onset, or Werdnig-Hoffmann disease)
• SMA type 3 (Juvenile onset, or Kugelberg-Welander disease)
• SMA (Adult onset)
• SBMA (Spinal-bulbar muscular atrophy, or Kennedy's disease)