Congenital Muscular Dystrophy


MDA leads the search for treatments and therapies for congenital muscular dystrophy (CMD). The Association also provides comprehensive supports and expert clinical care for those living with CMD.

In this section, you’ll find up-to-date information about congenital muscular dystrophy, as well as many helpful resources. This information has been compiled with input from researchers, physicians and people affected by the disease.

As you learn more about CMD, always remember that you’re not alone. MDA is here for you and your family, standing ready to provide help and hope. There is a place for you in the MDA CMD community.

MDA provides support by:

Once you sign up with your local MDA office, you’ll begin receiving MDA’s quarterly Quest magazine, where you’ll find news about research and health care, helpful products and devices, social and family issues, and more.

In addition, MDA will keep you informed through e-alerts, educational publications and speakers, seminars, videos and newsletters.

Please know that there’s a role for you in the fight against congenital muscular dystrophy. The MDA community is strong and dedicated, with opportunities for involvement at all levels, such as:

  • connecting with others affected by CMD;
  • being an advocate;
  • enrolling in disease registries and clinical trials;
  • participating in community awareness and fundraising events;
  • and much more.

Please know that there’s an important role for every member of the CMD community. We urge you to contact your local MDA office to learn more.

A CMD diagnosis doesn’t mean an end to your hopes and dreams. Changes, challenges and adaptations lay ahead, but also opportunity, fulfillment, joy and hope for a future free of congenital muscular dystrophy. 

Never forget that MDA is here to help.