Spinal Muscular Atrophy (SMA)

Destiny Sanchez


Pineville, LA
Full name: 
Destiny Sanchez
Destiny Sanchez
Spinal Muscular Atrophy (SMA)

Sunset at Camp Marie

Mathew’s artwork depicts a sunset at Camp Marie in Leonardtown, Maryland, home of the local MDA summer camp.  Mathew’s hobbies included music and writing poetry.  He collaborated over the Internet with a writer from Wisconsin and together they published a work of poetry called “The Move.”


Russell created his painting at age 15 at an MDA-sponsored children's art workshop.  While a student at Lackland Air Force Base High School, he enjoyed playing junior varsity basketball.


Kenneth created artwork for more than 25 years.  He taped his paintbrush to his fingers and developed a unique method of painting.  Kenneth used Velcro and clamps to hold his paper or canvas onto a lazy Susan which then turned as he painted.

Entrepreneur with SMA Starts Accessible Car Company

Stacy Zoern has entered yet a new phase in her already eventful life — this time at 25 miles per hour.

SMA Gene Associated with Sporadic ALS

Duplications (extra copies) of the SMN1 gene are a "major" risk factor for developing sporadic (noninherited) ALS (amyotrophic lateral sclerosis), a team of scientists based in the Netherlands and United Kingdom has reported.

MDA Commits $12 Million to Neuromuscular Disease Research

The Muscular Dystrophy Association has awarded 38 new grants totaling more than $12 million to fund research projects focused on its continuing mission to uncover the causes of, and develop therapies for, the more than 40 neuromuscular diseases in its program.

MDA's Board of Directors reviewed and approved the new grants based on recommendations from the Association's Scientific and Medical Advisory Committees, and the grants took effect Feb. 1.

SMA - Christian Lorson, Ph.D.

MDA awarded a research grant totaling $381,582 over a period of three years to Christian Lorson, a professor in the departments of veterinary pathobiology, and molecular microbiology & immunology, at the University of Missouri in Columbia. The funds will help support Lorson’s research into targeting skeletal muscle as a therapeutic strategy in spinal muscular atrophy (SMA).

SMA - Kentaro Sahashi, M.D., Ph.D.

Kentaro Sahashi, a postdoctoral research scientist at the Cold Spring Harbor Laboratory in Cold Spring Harbor, N.Y., was awarded an MDA development grant (DG) totaling $180,000 over a period of three years to study the roles of the SMN protein in spinal muscular atrophy (SMA).

SMA - Tomoyuki Awano, Ph.D.

Tomoyuki Awano, a postdoctoral research scientist in the department of pathology and cell biology at Columbia University Medical Center in New York, was awarded an MDA development grant (DG) totaling $180,000 over a period of three years to search for genes that modify the onset and disease course of spinal muscular atrophy (SMA).