Spinal Muscular Atrophy (SMA)

Ken Jasch

Location

Chicago, IL

Ken experienced the STS-63 Discovery space shuttle night launch on February 3, 1995. This artwork began as a photograph that was digitally enhanced to express the stages of space flights as they move heavenward. Ken received the 1994 Personal Achievement Award for Illinois and is a former member of MDA’s National Task Force on Public Awareness.

Full name: 
Ken Jasch
Artist: 
Ken Jasch
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Graphic Art Photo

Mark Plocharczyk

Location

Crestwood, IL

Mark has an associate’s degree in liberal arts from the Moraine Valley Community College in Palos Hills, Ill., and is certified in computer programming. His hobbies include computer design and public speaking. Mark volunteers for MDA in the Chicago suburbs.

Full name: 
Mark Plocharczyk
Artist: 
Mark Plocharczyk
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Digital Media

Kevin Kage

Location

Berkeley, IL

Kevin created this artwork at age 14 at an MDA-sponsored art workshop held on May 3, 1992, at the Chicago Art Institute. He likes singing, composing music and acting, and has been very active in several music and drama organizations.

Full name: 
Kevin Kage
Artist: 
Kevin Kage
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Tile

Rob Myers

Location

Rockford, IL

Rod was an avid bird watcher, and was involved in a number of environmental and political activities. He also wrote and performed music and comedy.

Full name: 
Rob Myers
Artist: 
Rob Myers
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Colored Pencil

Morris Nakamura

Location

Ewa Beach, HI

Morris is a former professional carpenter. A self-taught artist, he prefers painting in oils and uses his love of nature to create landscapes and seascapes. Morris is a member of a citizen advisory committee for metropolitan planning in Oahu.

Full name: 
Morris Nakamura
Artist: 
Morris Nakamura
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Oil

Brent Gauthier

Location

Harwinton, CT

Brent specialized in portraits of animals and had his own business called Pastels by Brent for several years. Unfortunately, in recent years he was unable to paint due to diminished abilities. After earning an associate’s degree in CAD Engineering, he was employed as a tool designer for more than 10 years.

Full name: 
Brent Gauthier
Artist: 
Brent Gauthier
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Pastels

Alexis Villa

Location

Pico Rivera, CA

Alexis enjoys art and math in school. Her other hobbies are dancing and singing. Alexis also enjoys attending MDA-sponsored summer camp every year and has appeared in national print ad campaigns for the Association.

Full name: 
Alexis Villa
Artist: 
Alexis Villa
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Marker

Barbara Danielson

Barbara has been painting and teaching art classes for many years. Her works have been exhibited in numerous art fairs and expositions in California. While a resident of the state, Barbara served on the San Diego Art Council for six years and was a member of several art organizations.

Location

Lakewood, CO
Full name: 
Barbara Danielson
Artist: 
Barbara Danielson
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Colored Pencil

Sebastian Spreng

Location

Miami, FL

Sebastian is an internationally known artist whose work has been exhibited in Argentina, Germany, Venezuela and across the United States. Influenced by literature, mythology and classical music, his works are included in private, public and corporate collections worldwide. Sebastian is also a writer and received the MDA Personal Achievement Award for Florida in 1995.

Full name: 
Sebastian Spreng
Artist: 
Sebastian Spreng
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Oil

Gerald Jean-Pierre

Location

Miami, FL

Gerald donated this painting at age 19. He won several awards for his artwork, including the Dade County Silver Knight Award.

Full name: 
Gerald Jean-Pierre
Artist: 
Gerald Jean-Pierre
Disease: 
Spinal Muscular Atrophy (SMA)
Medium: 
Mixed Media

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