Spinal Muscular Atrophy (SMA)

House by the River

Sebastian is an internationally-known artist whose work has been exhibited in Argentina, Germany, Venezuela and across the United States.  Influenced by literature, mythology and classical music, his works are included in private, public and corporate collections worldwide. Sebastian is also a writer and received the Florida MDA State Personal Achievement Award in 1995.

Greystone Castle


Carl has been taking photos since 1972.  His technique has evolved from traditional film photography processes to using software for cropping, tonal control, color mixing and other effects with scanned images.  Although he uses a tracheostomy tube, Carl spends 95 percent of his field time by himself and uses a tripod to keep the camera steady.

Good Birds


Rod was an avid bird watcher and was involved in a number of environmental and political activities.  He also wrote and performed music and comedy.

God with Us

Elisabeth excelled in music and digital media authoring.  She won awards for Web site design while in high school.  This artwork was featured in the 2003 MDA Holiday Wishes card collection.

Giraffes at Sunset

Elsha created this artwork at age 15.  She graduated first in her class from Northridge High School in Layton.  Elsha is no longer able to paint due to weakness in her arms. Previously, she would lie on her side, using her left arm to support her right arm and hand as she painted.

Frightening Lightning


Blanche began drawing and painting as a child.  This artwork received a People’s Choice award in a local juried exhibit before she donated it to the MDA Art Collection.  Blanche’s hobbies include reading, needlework and music.

Forgotten Phoenix

Jackie created artwork using computer graphics for several years.  He graduated from Kimball High School in Royal Oak, Michigan, and had his own Web site design business.



Shawna created this artwork at age six at an MDA-sponsored children's art workshop held at the Dallas Museum of Art in Dallas.  She is a former MDA Goodwill Ambassador for the Dallas area.

Engraved Tile


Kevin created this artwork at age 14 at an MDA-sponsored art workshop held on May 3, 1992 at the Chicago Art Institute.  He liked singing, composing music and acting, and was very active in several music and drama organizations.

End of the Trail


David began painting as a teenager.  He was self-employed as an entertainment booking agent for local fairs and festivals.  David was also active with MDA fundraisers and the local broadcast of the Jerry Lewis Telethon for many years.  He was the recipient of MDA’s 1992 Personal Achievement Award for Michigan.