Congenital Muscular Dystrophy (CMD)

CMD — Madeleine Durbeej-Hjalt, Ph.D.

MDA has awarded a research grant totaling $442,023 over three years to Madeleine Durbeej-Hjalt, a professor in muscle biology at Lund University (Sweden), Department of Experimental Medical Science. The grant will help support Durbeej-Hjalt's study of muscle-protein degradation processes in type 1A congenital muscular dystrophy (CMD1A).

Summertime at Camp Maria


Darren has been painting and drawing since the age of 6.  He attended the Carver Center for Arts and Technology in Towson, MD, where he received several awards at exhibits, and he is currently attending the Zoll Studio of Fine Art in Timonium, MD.  He also enjoys spending time with his family and playing video games and going to movies.  Darren has many memories of attending MDA summer camp and particularly enjoyed the pool, watergun fights, fishing and meeting fellow campers and counselors.

Darren Guest


Reisterstown, MD
Full name: 
Darren Guest
Darren Guest
Congenital Muscular Dystrophy (CMD)

MDA Genetic Counseling Webinar Answers Key Questions

Respondents to MDA’s Transitions Survey — in other words, people with a neuromuscular disease who are in their teens through late 30s — made it clear they had questions about the genetics of their disease, as well as questions about family planning and the value of diagnostic testing.

MDA’s Genetic Counseling Webinar, which occurred Feb. 22, 2012, answers many of those questions.

MDA Commits $12 Million to Neuromuscular Disease Research

The Muscular Dystrophy Association has awarded 38 new grants totaling more than $12 million to fund research projects focused on its continuing mission to uncover the causes of, and develop therapies for, the more than 40 neuromuscular diseases in its program.

MDA's Board of Directors reviewed and approved the new grants based on recommendations from the Association's Scientific and Medical Advisory Committees, and the grants took effect Feb. 1.

CMD - Mahasweta Girgenrath, Ph.D.

MDA awarded a research grant totaling $357,465 over a period of three years to Mahasweta Girgenrath, an assistant professor in the Health Sciences Department at Boston University in Boston. The funds will help support Girgenrath’s work to find a combination therapy to treat type 1A congenital muscular dystrophy (MDC1A).

Cell Therapy - Ilona Skerjanc, Ph.D.

MDA awarded a research grant totaling $280,487 over a period of two years to Ilona Skerjanc, a professor in the department of biochemistry, microbiology & immunology at the University of Ottawa in Ontario, Canada.

CMD/LGMD - Jeffrey Miller, Ph.D.

MDA awarded a research grant totaling $343,860 over a period of three years to Jeffrey Boone Miller, senior scientist at Boston Biomedical Research Institute in Watertown, Mass., and associate professor of neurology at Harvard Medical School in Boston.

Muscle Physiology - Elizabeth Chen, Ph.D.

MDA has awarded a research grant totaling $321,489 over a period of three years to Elizabeth Chen, an associate professor at Johns Hopkins University School of Medicine in Baltimore. The funds will help support Chen's research into a mechanistic understanding of normal muscle physiology, which will inform potential therapeutic strategies aimed at treating various genetic and acquired degenerative muscle diseases.

Man with CMD Died Doing What He Loved

Michael Wogan had been looking forward to the trip to the National Championship Air Races in Reno, Nev.

According to his younger brother James, “Michael liked to get out and travel, and he was so excited about getting on a plane.”

Michael’s older brother Billy, 26 — who, like Michael, 22, and James, 19, has congenital muscular dystrophy (CMD)— was supposed to attend the show with their dad. When he couldn’t, Michael went instead.

He promised to tell his brothers all about it.