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Home & Family:
Abbey is the only child of Joel and Wendi Umali of Redlands, Calif. Her dad is a dentist; her mom is a physical therapist.
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Health History:
Abbey has congenital hypomyelinating neuropathy, a form of Charcot-Marie-Tooth disease (CMT) that causes lack of coordination and balance along with muscle weakness. Abbey walks with the help of leg braces.
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School:
Abbey is in fourth grade, and especially fond of reading, math, geography “and recess.”
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Interests:
Abbey is an active and outgoing young lady. She loves to sing, dance, swim, ride her bike, play the piano, act in plays, read (especially Nancy Drew mysteries), and visit the library and bookstores. She also likes to play many different types of games, especially cards and Rubik’s Cube. Her favorite activities include traveling and cuddling with her family. When she grows up, she’d like to be a veterinarian.
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MDA Activities:
The Umali family was profiled and interviewed live on the national broadcasts of the 2006, 2007 and 2008 Jerry Lewis MDA Labor Day Telethons. Abbey and her family participate in many MDA events and fundraisers. Abbey was serving her second term as MDA’s Goodwill Ambassador for California when she was named national ambassador for 2008. Abbey was asked to serve a second term as MDA’s 2009 National Goodwill Ambassador. She’ll continue to attend MDA fundraisers, sponsor gatherings and other events throughout the United States to spread the word about MDA and its mission to find treatments and cures for muscular dystrophy and related diseases.
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