Parents of Young Adults with DMD

anna (Mar 3, 2010 7:50:37 PM)
(This user has entered Parents of Young Adults with DMD)

anna (Mar 3, 2010 7:50:57 PM)
Hi Momma

momma (Mar 3, 2010 7:51:12 PM)
hello

anna (Mar 3, 2010 7:51:23 PM)
What's new with you?

momma (Mar 3, 2010 7:51:43 PM)
nothing new you ?

anna (Mar 3, 2010 7:52:11 PM)
we are going "home" Friday, meeting R's new friend with dmd tomorrow for lunch

momma (Mar 3, 2010 7:52:29 PM)
fun

anna (Mar 3, 2010 7:52:58 PM)
hope R can get comfortable in his bed at home--hard to lug that mattress

momma (Mar 3, 2010 7:53:22 PM)
yea ill bet

anna (Mar 3, 2010 7:53:35 PM)
home will be a mess!

anna (Mar 3, 2010 7:54:05 PM)
we are getting new fridge here tomorrow

momma (Mar 3, 2010 7:54:09 PM)
kents we can let the air out and put it in the bag but still kinda a pain to haul

anna (Mar 3, 2010 7:54:28 PM)
yes, this came with a carry bag, but is still huge

momma (Mar 3, 2010 7:54:38 PM)
new fridge that expensive

anna (Mar 3, 2010 7:54:57 PM)
apartment buying it--this is an old one that sprung a leak

momma (Mar 3, 2010 7:55:16 PM)
oh i see

anna (Mar 3, 2010 7:55:26 PM)
cheaper to get us a new one than have repaired they said

momma (Mar 3, 2010 7:55:42 PM)
well that good you dont have to buy one

anna (Mar 3, 2010 7:55:45 PM)
5 other units are also getting new appliances

momma (Mar 3, 2010 7:55:48 PM)
yea true

anna (Mar 3, 2010 7:56:05 PM)
so of course I had to clean behind this old one

anna (Mar 3, 2010 7:56:37 PM)
dust treasures

momma (Mar 3, 2010 7:56:45 PM)
yea have to cleanh once on while i been trying to do a little spring cleaning

matt-p (Mar 3, 2010 7:56:50 PM)
(This user has entered Parents of Young Adults with DMD)

anna (Mar 3, 2010 7:56:55 PM)
hey Matt

momma (Mar 3, 2010 7:56:55 PM)
hi matt

matt-p (Mar 3, 2010 7:56:57 PM)
hey all

matt-p (Mar 3, 2010 7:57:06 PM)
hope all is well

momma (Mar 3, 2010 7:57:17 PM)
good here how about you

matt-p (Mar 3, 2010 7:57:28 PM)
anna what the darn happen lastweekend

anna (Mar 3, 2010 7:57:34 PM)
hubby getting us an electric Hoyer type lift from throw aways at work--parts from several

matt-p (Mar 3, 2010 7:57:46 PM)
great

anna (Mar 3, 2010 7:57:46 PM)
hmmm-at my age I have forgotton about last week-end!

anna (Mar 3, 2010 7:57:46 PM)
at my age--I forgot Matt

momma (Mar 3, 2010 7:57:46 PM)
good to have a handy man

momma (Mar 3, 2010 7:57:46 PM)
good to have a handy man

momma (Mar 3, 2010 7:57:56 PM)
lol

anna (Mar 3, 2010 7:57:59 PM)
chat stuttered

momma (Mar 3, 2010 7:58:06 PM)
yea

anna (Mar 3, 2010 7:58:27 PM)
what did happen last week-end Matt?

matt-p (Mar 3, 2010 7:59:11 PM)
lastweekend you and R went to mall and all devil come loose

anna (Mar 3, 2010 7:59:37 PM)
no, just high traffic there--like to go when kids in school

anna (Mar 3, 2010 7:59:46 PM)
screaming kids in Target

matt-p (Mar 3, 2010 8:00:00 PM)
oh wow

momma (Mar 3, 2010 8:00:22 PM)
it the parents most of the time no control

anna (Mar 3, 2010 8:00:30 PM)
But, I have been mother of screaming kids too so have to be patient

anna (Mar 3, 2010 8:01:08 PM)
I would take mine right out and leave my shopping card at counter and come back later--alone

matt-p (Mar 3, 2010 8:01:11 PM)
parents dont care

anna (Mar 3, 2010 8:01:40 PM)
parents want to be "friends" instead of parents

momma (Mar 3, 2010 8:01:46 PM)
no these days it seems parents are clue less

anna (Mar 3, 2010 8:01:50 PM)
set no boundaries

anna (Mar 3, 2010 8:02:08 PM)
want their kids to "like" them

matt-p (Mar 3, 2010 8:02:40 PM)
how is K

momma (Mar 3, 2010 8:03:01 PM)
my daughter works at a shoe store and some people shouldnt have kids

matt-p (Mar 3, 2010 8:03:47 PM)
true momma

momma (Mar 3, 2010 8:03:53 PM)
cant blame kids totally

paper (Mar 3, 2010 8:04:09 PM)
(This user has entered Parents of Young Adults with DMD)

matt-p (Mar 3, 2010 8:04:12 PM)
how is K doin

momma (Mar 3, 2010 8:04:17 PM)
good

matt-p (Mar 3, 2010 8:04:19 PM)
hey paper

anna (Mar 3, 2010 8:04:24 PM)
Hi Paper

matt-p (Mar 3, 2010 8:04:26 PM)
good

momma (Mar 3, 2010 8:04:31 PM)
hi paper

paper (Mar 3, 2010 8:04:45 PM)
hi all

anna (Mar 3, 2010 8:05:06 PM)
we were talking about how parents want to be friends instead of parents to their kids

paper (Mar 3, 2010 8:05:23 PM)
that could be a big problem

anna (Mar 3, 2010 8:05:28 PM)
yes

paper (Mar 3, 2010 8:06:09 PM)
you dont have kids so that they can be your friends you have them to have them

momma (Mar 3, 2010 8:06:31 PM)
i guess thier a fine line

anna (Mar 3, 2010 8:06:32 PM)
this generation of kids just out of school want more than they can usually have--and want to be "rewarded" at work as they were by their parents as bribes to do anything

anna (Mar 3, 2010 8:07:14 PM)
(I read that so not just myopinion)

paper (Mar 3, 2010 8:07:21 PM)
lol

momma (Mar 3, 2010 8:07:45 PM)
i guess i old school jus saying

paper (Mar 3, 2010 8:07:48 PM)
my kids do (work aka chores ) to get a reward

anna (Mar 3, 2010 8:08:17 PM)
this generation is not doing as well as their parents (Think 50's when only the dads worked)

anna (Mar 3, 2010 8:08:43 PM)
takes 2 salaries unless you live very simply

paper (Mar 3, 2010 8:09:32 PM)
reward= going out with friends ,a new cd or game or what ever they are wanting at that time

matt-p (Mar 3, 2010 8:10:12 PM)
this gen is tryin to live bigger than the paycheak allows

momma (Mar 3, 2010 8:10:47 PM)
like the song making dimes spending dollars

anna (Mar 3, 2010 8:10:52 PM)
yes, just watch "Till Debt Do Us Part" on tv

anna (Mar 3, 2010 8:11:46 PM)
and the real estate fiasco when you didn't have to prove you could afford a house or need a down payment

matt-p (Mar 3, 2010 8:11:47 PM)
i like that song to momma

paper (Mar 3, 2010 8:12:10 PM)
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anna (Mar 3, 2010 8:12:13 PM)
country song? I never heard it I don't think

anna (Mar 3, 2010 8:12:27 PM)
another one bites the dust

matt-p (Mar 3, 2010 8:12:32 PM)
his girl friend comes to him with the prego stick and says guess what

anna (Mar 3, 2010 8:12:52 PM)
and?? does he step up?

matt-p (Mar 3, 2010 8:13:08 PM)
he tries to best he can

anna (Mar 3, 2010 8:13:19 PM)
but only has dimes?

matt-p (Mar 3, 2010 8:13:28 PM)
yep

anna (Mar 3, 2010 8:13:58 PM)
when we got married we had $320 a month to live on

matt-p (Mar 3, 2010 8:14:17 PM)
now days just to have a baby in club med its out ragous

anna (Mar 3, 2010 8:15:04 PM)
R was delivered by a family practice doc--now they cannot afford the insurance to deliver babies so have to go to ob/gyn

anna (Mar 3, 2010 8:15:48 PM)
R was in a hurry so he got delivered by a stranger---I still had to pay main doc so guess this guy got his cut

matt-p (Mar 3, 2010 8:16:17 PM)
seen something on one channel here if all goes plan mom baby good health no nicu needed its like 200,000

anna (Mar 3, 2010 8:16:37 PM)
what?!

momma (Mar 3, 2010 8:17:23 PM)
thats a bit high here at least mabey 20.000

matt-p (Mar 3, 2010 8:17:25 PM)
two hundered thound to have a baby

momma (Mar 3, 2010 8:17:43 PM)
but were small town

matt-p (Mar 3, 2010 8:17:45 PM)
maybe i miss understood then

momma (Mar 3, 2010 8:18:06 PM)
probably depnds on where you are

anna (Mar 3, 2010 8:18:10 PM)
hope it was more like $20,000 Matt for everything

matt-p (Mar 3, 2010 8:18:16 PM)
it still was enough to make me stumble

momma (Mar 3, 2010 8:18:21 PM)
yea

anna (Mar 3, 2010 8:18:49 PM)
watch out people in parking lot--R's aide on the fly!

momma (Mar 3, 2010 8:19:05 PM)
?

anna (Mar 3, 2010 8:19:06 PM)
he almost ran me over to get to phone to call in last week

matt-p (Mar 3, 2010 8:19:08 PM)
you take 20 grand is pretty good drop for a home

matt-p (Mar 3, 2010 8:19:36 PM)
wow

anna (Mar 3, 2010 8:19:38 PM)
I think houses are less in your part of country Matt

momma (Mar 3, 2010 8:20:16 PM)
at least a down payment matt 20.000

anna (Mar 3, 2010 8:20:19 PM)
aide aparently has to prove he works for us 41 hours per month to refi his home

anna (Mar 3, 2010 8:20:31 PM)
refinance

anna (Mar 3, 2010 8:20:57 PM)
Seattle area very expensive

momma (Mar 3, 2010 8:21:11 PM)
i watch hgtv and some of the home like 2 bedroom 1 bath 450.000 is crazy

anna (Mar 3, 2010 8:21:13 PM)
we cannot afford to buy here

anna (Mar 3, 2010 8:21:38 PM)
far out-lying areas are better--but then have high traffic commute

momma (Mar 3, 2010 8:21:54 PM)
that type of home in ohio may go for mabey $50.000

matt-p (Mar 3, 2010 8:21:55 PM)
there is a home here think its a 2 bed 1.5 bath sep 2 car gararge about 2 ac land with it they are wanting 300 grand

matt-p (Mar 3, 2010 8:22:15 PM)
i think

momma (Mar 3, 2010 8:22:31 PM)
well gotta go early kents got a nature call ttyl all

matt-p (Mar 3, 2010 8:22:34 PM)
that is hear say price

anna (Mar 3, 2010 8:22:44 PM)
night Momma--won't be on tomorrow

momma (Mar 3, 2010 8:22:52 PM)
ok anna tc

momma (Mar 3, 2010 8:22:55 PM)
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matt-p (Mar 3, 2010 8:23:00 PM)
how is R doing

anna (Mar 3, 2010 8:23:04 PM)
R has church group Tues, I have one Thursdays

matt-p (Mar 3, 2010 8:23:16 PM)
neat

anna (Mar 3, 2010 8:23:19 PM)
R is busy all the time

anna (Mar 3, 2010 8:23:58 PM)
fixing computers for others, having to go wherever I go, looking at tech gear to buy

matt-p (Mar 3, 2010 8:24:17 PM)
neat

anna (Mar 3, 2010 8:24:26 PM)
might get a page turner, voice amplifier, new computer to run tv and so on

matt-p (Mar 3, 2010 8:24:46 PM)
oh wow

anna (Mar 3, 2010 8:24:57 PM)
nothing is cheap is it?

anna (Mar 3, 2010 8:25:22 PM)
talking to recruiter today but cannot go back to work until early April

matt-p (Mar 3, 2010 8:25:27 PM)
momma said something about K's next chair may have all that stuff on it

anna (Mar 3, 2010 8:26:00 PM)
most of the new chairs let you use as remote for tv these days--his new one does I guess

anna (Mar 3, 2010 8:26:28 PM)
hubby says you can get back-up lights and turn signals now

matt-p (Mar 3, 2010 8:26:32 PM)
i cant deal with compy drivein all that stuff to tech for me guess i am to old fashion

matt-p (Mar 3, 2010 8:26:56 PM)
it dont suprize me

anna (Mar 3, 2010 8:27:53 PM)
R made a new friend with dmd and we are going with them for lunch tomorrow

anna (Mar 3, 2010 8:28:28 PM)
this is good for both of them to see another coping with all the stuff

matt-p (Mar 3, 2010 8:28:29 PM)
my guess is in next ten years they will have w/c do over 30 miles with protective cage like car with heat ac and no need for dr lic and do 25 to 30 mph

anna (Mar 3, 2010 8:29:10 PM)
ok, R loves all that stuff and has lots of websites about them.

matt-p (Mar 3, 2010 8:29:24 PM)
basicly be like a 4 wheel moped

anna (Mar 3, 2010 8:29:39 PM)
he was fascinated by the "Flip" research vessel---Google that

anna (Mar 3, 2010 8:30:20 PM)
man in our town made a trail wc with tank treads

matt-p (Mar 3, 2010 8:30:37 PM)
i dont know what wa is like but here you dont need a dr lic for moped with 49 cc or less

anna (Mar 3, 2010 8:31:24 PM)
don't know about here Matt and hubby not home to ask--he is on other side of state doing wc repairs

matt-p (Mar 3, 2010 8:32:03 PM)
wow

anna (Mar 3, 2010 8:33:00 PM)
oh--R just reminded me that aide comes at 8 tonight--I was just about to go out to parking lot to see who he had run over too

matt-p (Mar 3, 2010 8:33:07 PM)
we are to see 60's next week

matt-p (Mar 3, 2010 8:33:22 PM)
lol

anna (Mar 3, 2010 8:33:51 PM)
t

anna (Mar 3, 2010 8:33:58 PM)
that will be a nice change

anna (Mar 3, 2010 8:34:18 PM)
sunny here today--everything is blooming early

matt-p (Mar 3, 2010 8:34:34 PM)
i cant wait for it to get 60 will be breakin out the spring stuff soon

anna (Mar 3, 2010 8:34:58 PM)
I still have to put 3 layers on R unless it is over 75

matt-p (Mar 3, 2010 8:35:05 PM)
aide said she seen some mapples around here tryin to bud

matt-p (Mar 3, 2010 8:35:18 PM)
wow

anna (Mar 3, 2010 8:35:41 PM)
cherry trees full bloom

anna (Mar 3, 2010 8:36:20 PM)
not enough snow so farmers will face summer drought

matt-p (Mar 3, 2010 8:37:26 PM)
hope not

anna (Mar 3, 2010 8:37:36 PM)
ok Matt-gotta go--R will be on his chat in a few and you can talk with him about guy stuff

anna (Mar 3, 2010 8:37:47 PM)
whatever that is lol

matt-p (Mar 3, 2010 8:37:56 PM)
i love them vidilla onions

matt-p (Mar 3, 2010 8:38:08 PM)
be safe

anna (Mar 3, 2010 8:38:18 PM)
Goodnight Matt--we have WallaWalla sweets

anna (Mar 3, 2010 8:38:23 PM)
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matt-p (Mar 3, 2010 8:38:31 PM)
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jmn1108 (Mar 3, 2010 8:49:53 PM)
(This user has entered Parents of Young Adults with DMD)

jmn1108 (Mar 3, 2010 8:50:18 PM)
hello

jmn1108 (Mar 3, 2010 8:50:44 PM)
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