Parents of Young Adults with DMD

momma (Feb 3, 2010 8:04:23 PM)
(This user has entered Parents of Young Adults with DMD)

anna (Feb 3, 2010 8:04:49 PM)
Hi Momma--sorry, brb, R needs me a moment

momma (Feb 3, 2010 8:04:57 PM)
hello np

anna (Feb 3, 2010 8:06:43 PM)
Back

momma (Feb 3, 2010 8:06:54 PM)
wb

anna (Feb 3, 2010 8:07:01 PM)
How are things at your house today?

momma (Feb 3, 2010 8:07:20 PM)
good and yours ?

anna (Feb 3, 2010 8:07:24 PM)
We went to Urgent Care with R's blackened fingernail

momma (Feb 3, 2010 8:07:43 PM)
get it all taken care of?

anna (Feb 3, 2010 8:08:03 PM)
He doesn't remember it being hurt, but it was injured and fungus set in just that 1 nail

momma (Feb 3, 2010 8:08:25 PM)
so do they take his nail off?

anna (Feb 3, 2010 8:08:33 PM)
we sent a pic to his doc and he told us to go--got a topical sol'n for it

anna (Feb 3, 2010 8:08:56 PM)
didn't take nail off TG

momma (Feb 3, 2010 8:09:12 PM)
kent has issues with ingrown big toe nail

anna (Feb 3, 2010 8:09:37 PM)
their is an internal anti-fungal but it might cause liver damage

momma (Feb 3, 2010 8:10:01 PM)
they cut it out but he said may have to take his nail off itf it continues

anna (Feb 3, 2010 8:10:05 PM)
R had lots of problems with ingrown toenails until we found the solution was just keeping it long

momma (Feb 3, 2010 8:10:28 PM)
yea i ev herd that about that medicine

anna (Feb 3, 2010 8:10:32 PM)
he almost couldn't have his spinal surg because of ingrowns

momma (Feb 3, 2010 8:10:50 PM)
really wow

anna (Feb 3, 2010 8:11:50 PM)
the docs told us to roll a tiny piece of cotton into a long shape and nudge it right where the nail meets the side of the toe--after that the nail grew away

anna (Feb 3, 2010 8:12:17 PM)
and keeping it long solved the problem from then on out

momma (Feb 3, 2010 8:12:22 PM)
hmmm have to try that

anna (Feb 3, 2010 8:12:56 PM)
did I explain it ok?

momma (Feb 3, 2010 8:13:01 PM)
kent toenails grow like mine they grow down instead of out

momma (Feb 3, 2010 8:13:10 PM)
yea i think so

anna (Feb 3, 2010 8:13:40 PM)
it is all a pain for anyone

momma (Feb 3, 2010 8:13:55 PM)
yea

anna (Feb 3, 2010 8:14:15 PM)
tomorrow night we are going to DMD get-together at UW with research docs giving talks

momma (Feb 3, 2010 8:14:44 PM)
see whats new

anna (Feb 3, 2010 8:15:03 PM)
one is about Viagra experiments that strengthen heart muscles of dmd mice!

momma (Feb 3, 2010 8:15:09 PM)
you have to give us a update

anna (Feb 3, 2010 8:15:17 PM)
ok, will try

momma (Feb 3, 2010 8:15:17 PM)
oh really

anna (Feb 3, 2010 8:15:55 PM)
but now hubby cannot go and I hate driving at night

anna (Feb 3, 2010 8:16:04 PM)
but, we are going anyway

momma (Feb 3, 2010 8:16:12 PM)
me to i dont wee very good at night

anna (Feb 3, 2010 8:16:22 PM)
will meet some PPMD parents too

momma (Feb 3, 2010 8:16:23 PM)
see not wee lol

momma (Feb 3, 2010 8:16:28 PM)
cool

anna (Feb 3, 2010 8:16:28 PM)
haha!!

momma (Feb 3, 2010 8:16:55 PM)
evidentlly i dont type well at night either lol

anna (Feb 3, 2010 8:17:01 PM)
lol

momma (Feb 3, 2010 8:17:34 PM)
kent told me today we should move to sealttle he said at least we d have good dr

momma (Feb 3, 2010 8:17:45 PM)
and it look so pretty thier

anna (Feb 3, 2010 8:18:07 PM)
yes, if you can stand rain it is a great, fun, scenic city

momma (Feb 3, 2010 8:18:24 PM)
dont like rain but i hate snow

anna (Feb 3, 2010 8:18:35 PM)
and best NIV doc west of Bach in NJ

momma (Feb 3, 2010 8:19:05 PM)
so dissapointed with dr here but oh well kinda late now

anna (Feb 3, 2010 8:19:23 PM)
yes, but you got K a sip-vent!!

anna (Feb 3, 2010 8:19:34 PM)
and dr will have to deal with it now

momma (Feb 3, 2010 8:19:38 PM)
yes thanks to you and angela

anna (Feb 3, 2010 8:20:09 PM)
I have been on My MDA site recently trying to tell about NIV

anna (Feb 3, 2010 8:20:41 PM)
and going nuts on FB as a woman's son is in hospital there that seems clueless

anna (Feb 3, 2010 8:21:09 PM)
drs were talking about a trach for him

momma (Feb 3, 2010 8:21:33 PM)
keep at if ya get some to listen it would be great to save as many as possible not to be trached

anna (Feb 3, 2010 8:22:13 PM)
yes, but so many don't want to hear about it since their docs didn't mention NIV option

momma (Feb 3, 2010 8:22:29 PM)
at least the ones that would be candidates

anna (Feb 3, 2010 8:22:59 PM)
yes, too many parents are uneducated with choices until it is too late and vent or die

momma (Feb 3, 2010 8:23:07 PM)
yes

matt-p (Feb 3, 2010 8:23:20 PM)
(This user has entered Parents of Young Adults with DMD)

anna (Feb 3, 2010 8:23:27 PM)
Hey Matt

momma (Feb 3, 2010 8:23:30 PM)
hi matt

matt-p (Feb 3, 2010 8:23:30 PM)
hey all

matt-p (Feb 3, 2010 8:23:40 PM)
momma how is K

momma (Feb 3, 2010 8:23:45 PM)
good

matt-p (Feb 3, 2010 8:23:59 PM)
still home

momma (Feb 3, 2010 8:24:07 PM)
yep

anna (Feb 3, 2010 8:24:11 PM)
we want you all to come visit us in Seattle(during the "summer")

anna (Feb 3, 2010 8:24:24 PM)
6 hours in August

momma (Feb 3, 2010 8:24:36 PM)
i so wish anna

matt-p (Feb 3, 2010 8:24:48 PM)
wa is so neat

anna (Feb 3, 2010 8:25:13 PM)
Winter Olympics about 100 miles north of here

anna (Feb 3, 2010 8:25:44 PM)
it is so expensive to go so we won't be there. it is fine to watch on TV

anna (Feb 3, 2010 8:26:41 PM)
anyone have a Toyota?

momma (Feb 3, 2010 8:27:02 PM)
nope

matt-p (Feb 3, 2010 8:27:20 PM)
when i was little before my big goof up dad took me on the truck was up there after onions

momma (Feb 3, 2010 8:27:25 PM)
to expensive and to many recalls

anna (Feb 3, 2010 8:27:25 PM)
enough trouble with our tires coming apart

anna (Feb 3, 2010 8:28:05 PM)
yes, we have lots of onions/apples/potatoes/ and alfalfa

matt-p (Feb 3, 2010 8:28:13 PM)
seen a trailer of onions goin down the road blow up

anna (Feb 3, 2010 8:28:25 PM)
fried onions?

matt-p (Feb 3, 2010 8:28:39 PM)
no fire

anna (Feb 3, 2010 8:28:49 PM)
fire-roasted onions then

matt-p (Feb 3, 2010 8:29:00 PM)
methaine gas build up

matt-p (Feb 3, 2010 8:29:09 PM)
no fire

matt-p (Feb 3, 2010 8:30:03 PM)
trailer was sealed up to tight and went off like a ballon over inflated

anna (Feb 3, 2010 8:30:07 PM)
well, having 2 tires disintegrate within 100 miles is also disconcerting

matt-p (Feb 3, 2010 8:30:27 PM)
thats just plum scarey

anna (Feb 3, 2010 8:31:26 PM)
and Momma, we found out our tires were made in 1987 and we bought them in 2002---gov is trying to make it so tires cannot be over 6 years old when sold, but tire companies against it of course

matt-p (Feb 3, 2010 8:31:28 PM)
who had the tires come apart

anna (Feb 3, 2010 8:31:37 PM)
we did on our trip

matt-p (Feb 3, 2010 8:31:53 PM)
hope all is ok

anna (Feb 3, 2010 8:32:08 PM)
yes, we made it home

momma (Feb 3, 2010 8:32:21 PM)
safe and sound yeah!!

matt-p (Feb 3, 2010 8:32:24 PM)
tires need an exp date just like food

anna (Feb 3, 2010 8:32:43 PM)
for sure

matt-p (Feb 3, 2010 8:33:26 PM)
even tho they are on shelf in the shop they still dry out

matt-p (Feb 3, 2010 8:33:39 PM)
aka weather cheak

anna (Feb 3, 2010 8:34:31 PM)
well, sorry but as usual I have to go cook before aide gets here

matt-p (Feb 3, 2010 8:34:43 PM)
what you havein

momma (Feb 3, 2010 8:34:53 PM)
ok anna

anna (Feb 3, 2010 8:34:54 PM)
won't be on chat Thursday as going to research talks about dmd

momma (Feb 3, 2010 8:35:02 PM)
have fun

matt-p (Feb 3, 2010 8:35:07 PM)
ok be safe

anna (Feb 3, 2010 8:35:09 PM)
shrimp stir-fry Matt

anna (Feb 3, 2010 8:35:13 PM)
Goodnight

matt-p (Feb 3, 2010 8:35:16 PM)
neat

matt-p (Feb 3, 2010 8:35:21 PM)
nite

momma (Feb 3, 2010 8:35:23 PM)
goodnight

momma (Feb 3, 2010 8:35:25 PM)
(This user has left DigiChat)

anna (Feb 3, 2010 8:35:39 PM)
(This user has left DigiChat)

matt-p (Feb 3, 2010 8:36:33 PM)
(This user has left DigiChat)