Parents of Young Adults with DMD

anna (Oct 1, 2008 7:51:45 PM)
(This user has entered Parents of Young Adults with DMD)

momma (Oct 1, 2008 7:52:18 PM)
hi anna

anna (Oct 1, 2008 7:52:42 PM)
hi

momma (Oct 1, 2008 7:52:55 PM)
how are you today?

anna (Oct 1, 2008 7:53:01 PM)
sick

momma (Oct 1, 2008 7:53:09 PM)
awe still

anna (Oct 1, 2008 7:53:30 PM)
vomiting and diarhhea

momma (Oct 1, 2008 7:53:38 PM)
oh no

momma (Oct 1, 2008 7:53:49 PM)
R doing ok

anna (Oct 1, 2008 7:54:03 PM)
couldn't get R to woek, so 84 y/o fil took him

momma (Oct 1, 2008 7:54:27 PM)
i see

anna (Oct 1, 2008 7:54:34 PM)
fil got on phone and told hubby to get his butt up here to care for R

momma (Oct 1, 2008 7:54:45 PM)
yeah !!

anna (Oct 1, 2008 7:55:00 PM)
so, hubby is feeding him now

momma (Oct 1, 2008 7:55:06 PM)
good

anna (Oct 1, 2008 7:55:54 PM)
my eyes and head hurt and still have a cold

momma (Oct 1, 2008 7:56:13 PM)
my have the dr check ya out ?

anna (Oct 1, 2008 7:56:27 PM)
don't need R to get this

momma (Oct 1, 2008 7:56:37 PM)
that for sure

anna (Oct 1, 2008 7:56:43 PM)
I really don't have doc up here

momma (Oct 1, 2008 7:57:02 PM)
mabey time to find one

anna (Oct 1, 2008 7:57:30 PM)
I had one for recent cardiac eval, but don't like her

momma (Oct 1, 2008 7:57:38 PM)
hmm

momma (Oct 1, 2008 7:57:44 PM)
try another

anna (Oct 1, 2008 7:58:13 PM)
well--I would have to be pretty sick to do that. think I just need rest and time

anna (Oct 1, 2008 7:58:46 PM)
hubby's idea of caring for me is to shut me in my room and tell me to sleep

momma (Oct 1, 2008 7:59:05 PM)
yea and remember drink lots of fluid

anna (Oct 1, 2008 7:59:55 PM)
yes, I am trickling it in

anna (Oct 1, 2008 8:00:24 PM)
how is K's infection? did it ever hurt him?

momma (Oct 1, 2008 8:00:46 PM)
well anna it must be a deep infection

momma (Oct 1, 2008 8:01:51 PM)
nurse practictioner kinda scared me today she like we need to stay on top of this he doesnt need phnemonia he doing so well other wise

anna (Oct 1, 2008 8:01:52 PM)
George is coming at 7 to shower R--have showered him with and without bandage==what do you do?

momma (Oct 1, 2008 8:02:18 PM)
no bandage in shower

anna (Oct 1, 2008 8:02:27 PM)
they always threaten us with pneumonia it seems

momma (Oct 1, 2008 8:02:31 PM)
yea

momma (Oct 1, 2008 8:02:53 PM)
have you ever heard of bio patch?

anna (Oct 1, 2008 8:03:00 PM)
no

anna (Oct 1, 2008 8:03:17 PM)
is it a "wafer"?

momma (Oct 1, 2008 8:02:37 PM)
thats what we ordered today the bad thing ins wont pay it 150.00 for a box of 15

momma (Oct 1, 2008 8:02:48 PM)
yes it is a wafer like

anna (Oct 1, 2008 8:03:02 PM)
yikes--need a new one every day I suppose

momma (Oct 1, 2008 8:03:13 PM)
no once a week

momma (Oct 1, 2008 8:03:19 PM)
thankfully

anna (Oct 1, 2008 8:03:22 PM)
that is better

momma (Oct 1, 2008 8:03:36 PM)
and i have found them cheaper online

momma (Oct 1, 2008 8:04:01 PM)
but doc and np is going to work on medicade to pay

anna (Oct 1, 2008 8:04:09 PM)
does it fit under or over the tabs

momma (Oct 1, 2008 8:04:20 PM)
i think under

anna (Oct 1, 2008 8:04:28 PM)
if doc writes letter they will probably pay

momma (Oct 1, 2008 8:04:42 PM)
it like 7 times more absorbant than gauze

momma (Oct 1, 2008 8:04:52 PM)
yea i hope

anna (Oct 1, 2008 8:05:03 PM)
does stomach fluid still ooze out?

momma (Oct 1, 2008 8:05:08 PM)
yea

momma (Oct 1, 2008 8:05:36 PM)
i hope this helps not sure whats next

anna (Oct 1, 2008 8:06:08 PM)
I was thinking I should have just gone ahead and trained to be a nurse--although I never thought i could handle all this I found that I have no choice

momma (Oct 1, 2008 8:06:35 PM)
how true

anna (Oct 1, 2008 8:08:09 PM)
well, I guess I need to lay down a bit, but will check back later. maybe your new friend will join us.

momma (Oct 1, 2008 8:08:23 PM)
ok anna tc get well soon

anna (Oct 1, 2008 8:08:28 PM)
ty

momma (Oct 1, 2008 8:08:38 PM)
she just im me she cant get on

momma (Oct 1, 2008 8:32:06 PM)
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anna (Oct 1, 2008 9:06:08 PM)
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