Wheelchair Gang

paper (Feb 3, 2010 9:00:17 PM)
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paper (Feb 3, 2010 9:08:01 PM)
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paper (Feb 3, 2010 9:15:27 PM)
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paper (Feb 3, 2010 9:15:44 PM)
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CRIS (Feb 3, 2010 9:15:50 PM)
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paper (Feb 3, 2010 9:16:12 PM)
hi cris

CRIS (Feb 3, 2010 9:16:38 PM)
hi paper

paper (Feb 3, 2010 9:16:53 PM)
didnt think no one was going to show

CRIS (Feb 3, 2010 9:17:14 PM)
roy should be coming along soon

paper (Feb 3, 2010 9:17:23 PM)
how are u

CRIS (Feb 3, 2010 9:18:29 PM)
fine and you?

paper (Feb 3, 2010 9:18:34 PM)
i am ok

CRIS (Feb 3, 2010 9:19:52 PM)
me too...just ok

paper (Feb 3, 2010 9:20:19 PM)
it sounds like we are going to be getting hit by more snow friday

paper (Feb 3, 2010 9:21:11 PM)
they are calling for more than 6 for now my luck we will get a foot or 2 lol

CRIS (Feb 3, 2010 9:21:36 PM)
don't know how you do it, but good luck

paper (Feb 3, 2010 9:22:07 PM)
lol we get in the food and just deal and dont go bk out till it is gone lol

paper (Feb 3, 2010 9:22:35 PM)
and hope like hell that the electric dont get hit

CRIS (Feb 3, 2010 9:23:23 PM)
hope the electric doesn't go out either....do you have a fireplace?

paper (Feb 3, 2010 9:23:58 PM)
nope

paper (Feb 3, 2010 9:25:29 PM)
and if the electric goes we dont have heat cause the blower is electric

sierra (Feb 3, 2010 9:26:16 PM)
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paper (Feb 3, 2010 9:26:22 PM)
hi sierra

CRIS (Feb 3, 2010 9:26:34 PM)
my heat is run by propane, but the blower is electric

CRIS (Feb 3, 2010 9:26:50 PM)
hi sierra

paper (Feb 3, 2010 9:26:56 PM)
ya ours is nat gas

sierra (Feb 3, 2010 9:28:20 PM)
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royla (Feb 3, 2010 9:34:40 PM)
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royla (Feb 3, 2010 9:35:05 PM)
(This user is now known as Roy)

Roy (Feb 3, 2010 9:35:18 PM)
Hi all

paper (Feb 3, 2010 9:35:24 PM)
hi

CRIS (Feb 3, 2010 9:36:24 PM)
hi roy....how was your week?

Roy (Feb 3, 2010 9:36:30 PM)
how are you paper?

paper (Feb 3, 2010 9:36:39 PM)
ok u

Roy (Feb 3, 2010 9:36:41 PM)
pretty good

Roy (Feb 3, 2010 9:37:59 PM)
visited my family, tested sister new finished basement. the ramp was steep but doable

paper (Feb 3, 2010 9:38:42 PM)
(This user has left DigiChat)

CRIS (Feb 3, 2010 9:38:49 PM)
is that gonna be your new home?

Roy (Feb 3, 2010 9:38:56 PM)
no

Roy (Feb 3, 2010 9:39:20 PM)
just they own a split level

paper (Feb 3, 2010 9:40:06 PM)
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paper (Feb 3, 2010 9:40:19 PM)
stupid thing\

CRIS (Feb 3, 2010 9:40:43 PM)
does she live near you?

Roy (Feb 3, 2010 9:40:51 PM)
can get chair up in split level house easy

Roy (Feb 3, 2010 9:41:19 PM)
5 1/2 hour drive across WA

Roy (Feb 3, 2010 9:41:30 PM)
er, cant

CRIS (Feb 3, 2010 9:42:48 PM)
nice that you got to visit her

Roy (Feb 3, 2010 9:43:30 PM)
yea

Roy (Feb 3, 2010 9:46:01 PM)
thats the trip where 2 tires failed

CRIS (Feb 3, 2010 9:46:37 PM)
oh yes, I read that on your Facebook....I am glad you made it home safe

Roy (Feb 3, 2010 9:47:12 PM)
turns out they were made in 1989 and sold as new in 2003!

CRIS (Feb 3, 2010 9:47:57 PM)
so you said

Roy (Feb 3, 2010 9:48:23 PM)
they say 6 years old is recommended replacement age

paper (Feb 3, 2010 9:50:15 PM)
gesh roy i hope u ripped them a new one who ever you got them from

paper (Feb 3, 2010 9:51:22 PM)
can u 2 see what i am typing?

CRIS (Feb 3, 2010 9:52:00 PM)
I hardly drive my SUV....plus I live in a small town....yes, I can see what you are typing

Roy (Feb 3, 2010 9:52:09 PM)
we actually cant recall where we got them, the paperwork is at my parents home 2 hours away. will know soon as we look

paper (Feb 3, 2010 9:52:10 PM)
k

Roy (Feb 3, 2010 9:52:14 PM)
yes

CRIS (Feb 3, 2010 9:52:31 PM)
brb

paper (Feb 3, 2010 9:52:36 PM)
k

paper (Feb 3, 2010 9:53:37 PM)
i sat down in my fav chair yesterday and it broke again this time hubby cant fix it

Roy (Feb 3, 2010 9:54:24 PM)
oh sorry

Roy (Feb 3, 2010 9:54:47 PM)
the tires were firestones

Roy (Feb 3, 2010 9:55:37 PM)
21 years old didnt help though

paper (Feb 3, 2010 9:55:38 PM)
it was old lazy boy he had allready fixed it a couple times last time it was the back where the lock thing was it broke causing the back to come off lol this time the base broke

paper (Feb 3, 2010 9:56:30 PM)
time to recycle it and put it out of its pain lol

pete46 (Feb 3, 2010 9:57:30 PM)
(This user has entered Wheelchair Gang)

paper (Feb 3, 2010 9:57:38 PM)
hey pete

pete46 (Feb 3, 2010 9:57:51 PM)
hi paper

Roy (Feb 3, 2010 9:58:04 PM)
hi pete

pete46 (Feb 3, 2010 9:58:09 PM)
hi roy

pete46 (Feb 3, 2010 9:58:19 PM)
hi cris

pete46 (Feb 3, 2010 9:58:31 PM)
hwo is every body

paper (Feb 3, 2010 9:58:39 PM)
ok here

paper (Feb 3, 2010 9:58:42 PM)
u

pete46 (Feb 3, 2010 9:58:57 PM)
ok thanks

Roy (Feb 3, 2010 9:59:13 PM)
great

pete46 (Feb 3, 2010 9:59:20 PM)
how are you roy

pete46 (Feb 3, 2010 9:59:53 PM)
watched the celtics game tonite

paper (Feb 3, 2010 9:59:55 PM)
i need to stop killing small apliances and chairs i have done in one hand mixer and a can opener and a lazyboy all in less than a week

pete46 (Feb 3, 2010 10:00:08 PM)
uh oh

paper (Feb 3, 2010 10:00:19 PM)
ya not been good week

pete46 (Feb 3, 2010 10:00:21 PM)
can they be fixed?

paper (Feb 3, 2010 10:00:49 PM)
nope both the can opener and mixer blew smoke and the chair broke in 3 pieces

pete46 (Feb 3, 2010 10:00:57 PM)
sorry

paper (Feb 3, 2010 10:01:09 PM)
thats ok thats just the life of paper

pete46 (Feb 3, 2010 10:01:15 PM)
lol

Roy (Feb 3, 2010 10:01:28 PM)
the magic touch

paper (Feb 3, 2010 10:01:28 PM)
i kill apliances and chairs lol

pete46 (Feb 3, 2010 10:01:34 PM)
lol

paper (Feb 3, 2010 10:01:51 PM)
yep dont help that all were wedding gifts from 15 years ago lol

paper (Feb 3, 2010 10:02:09 PM)
it was their time to go to recycling heaven

paper (Feb 3, 2010 10:02:19 PM)
or hell what ever you want to say

pete46 (Feb 3, 2010 10:02:54 PM)
life expectancy ran out

paper (Feb 3, 2010 10:02:55 PM)
time to buy new i guess

paper (Feb 3, 2010 10:02:59 PM)
yep lol

pete46 (Feb 3, 2010 10:03:01 PM)
yup

paper (Feb 3, 2010 10:03:04 PM)
their time was up

Roy (Feb 3, 2010 10:03:12 PM)
my parent have appliances older than me

pete46 (Feb 3, 2010 10:03:19 PM)
how is your son paper

CRIS (Feb 3, 2010 10:03:24 PM)
back....hi pete

pete46 (Feb 3, 2010 10:03:28 PM)
hi cris

paper (Feb 3, 2010 10:03:28 PM)
they dont make one that last no more

pete46 (Feb 3, 2010 10:03:36 PM)
nope

paper (Feb 3, 2010 10:04:05 PM)
he is doing good he went to ent monday and he said after 6 more weeks we will know if he will hear again or not

pete46 (Feb 3, 2010 10:04:27 PM)
glad he is doing good

pete46 (Feb 3, 2010 10:04:44 PM)
how about you, how are u feeling

paper (Feb 3, 2010 10:04:46 PM)
we did find out that he is a manafesting carrier for ccd though

paper (Feb 3, 2010 10:05:10 PM)
i have a bad morning ti had to lay down till the spasms stopped

pete46 (Feb 3, 2010 10:05:14 PM)
whats that mean, he doesnt have it but can pass it

paper (Feb 3, 2010 10:06:00 PM)
he dont have it but yes he will pass it on to his kids and he has symtoms now but they are only small not like me at all

pete46 (Feb 3, 2010 10:06:42 PM)
well that is better than hving it

paper (Feb 3, 2010 10:06:43 PM)
he has pain and joint dislocation like me but that is about it

paper (Feb 3, 2010 10:06:46 PM)
ya

paper (Feb 3, 2010 10:07:13 PM)
kat is different she has it like me only different symptoms

pete46 (Feb 3, 2010 10:07:20 PM)
oh

paper (Feb 3, 2010 10:07:47 PM)
1 out of 2 isnt bad i just wish they both were carriers though

CRIS (Feb 3, 2010 10:07:51 PM)
when did you know you had this, paper?

paper (Feb 3, 2010 10:08:16 PM)
i didnt find out what it was till last june but i have had trouble all my life

paper (Feb 3, 2010 10:08:38 PM)
my dad also has ccdmd

paper (Feb 3, 2010 10:10:13 PM)
my dad dont have as bad as i do though

CRIS (Feb 3, 2010 10:12:12 PM)
so Roy, do you have a van with a ramp?

paper (Feb 3, 2010 10:14:11 PM)
pete do u have spasms that look like there is an allen under your skin?

pete46 (Feb 3, 2010 10:14:46 PM)
yeah i have what they call fasciculations

pete46 (Feb 3, 2010 10:15:01 PM)
some days worse than others

paper (Feb 3, 2010 10:15:22 PM)
last time i was at the dr she said what i was having was like als pt have

CRIS (Feb 3, 2010 10:15:30 PM)
where do you have them

paper (Feb 3, 2010 10:15:54 PM)
all over

pete46 (Feb 3, 2010 10:16:05 PM)
used to have them the most in my legs, but now more in my arms and chest and back

paper (Feb 3, 2010 10:16:07 PM)
most in my hands and legs and chest wall

pete46 (Feb 3, 2010 10:16:21 PM)
i have had them in abs also

pete46 (Feb 3, 2010 10:16:39 PM)
some als pts get them in their tongue

paper (Feb 3, 2010 10:16:57 PM)
when i have them real bad in my arms i cant do nothing

pete46 (Feb 3, 2010 10:17:09 PM)
too weak?

paper (Feb 3, 2010 10:17:25 PM)
ya and i dont have control over my arms then eather

CRIS (Feb 3, 2010 10:17:43 PM)
what if your are driving and you get them?

paper (Feb 3, 2010 10:17:43 PM)
they just shake real bad

paper (Feb 3, 2010 10:17:51 PM)
i pull over

pete46 (Feb 3, 2010 10:18:10 PM)
mine dont affect me like that

paper (Feb 3, 2010 10:18:26 PM)
but i only go out of the house once or twice every month

paper (Feb 3, 2010 10:18:30 PM)
anymore

pete46 (Feb 3, 2010 10:18:44 PM)
i think with me they are a sign that those nerves are dying

paper (Feb 3, 2010 10:19:11 PM)
thats is what happened this morning i couldnt even cover my self up had to have son do it for me

pete46 (Feb 3, 2010 10:19:25 PM)
the nerves are what make the muscles work. if the spasms stop i dont get any stronger

paper (Feb 3, 2010 10:19:26 PM)
i think mine is muscle dying

CRIS (Feb 3, 2010 10:20:10 PM)
do you feel yourself get stronger?

pete46 (Feb 3, 2010 10:20:11 PM)
you said when you have them you cant use your arms but when they stop u can use arms

pete46 (Feb 3, 2010 10:20:22 PM)
i dont ever get stronger

pete46 (Feb 3, 2010 10:20:31 PM)
just weaker

paper (Feb 3, 2010 10:20:40 PM)
yep but after i am real sore

pete46 (Feb 3, 2010 10:20:59 PM)
brb

CRIS (Feb 3, 2010 10:21:32 PM)
how often do you check your frs?

paper (Feb 3, 2010 10:21:34 PM)
most of the time they are small just a little like hi i am still here and going to anoy you every chance i can kind of thing

paper (Feb 3, 2010 10:21:44 PM)
k pete

paper (Feb 3, 2010 10:22:18 PM)
what is f r s cris

paper (Feb 3, 2010 10:22:56 PM)
brb

CRIS (Feb 3, 2010 10:23:05 PM)
functional rating scale

paper (Feb 3, 2010 10:23:19 PM)
oh ok

Roy (Feb 3, 2010 10:23:37 PM)
i must go. shower time

Roy (Feb 3, 2010 10:23:47 PM)
tc all

CRIS (Feb 3, 2010 10:23:51 PM)
good nite Roy...have a good week

Roy (Feb 3, 2010 10:23:54 PM)
gn

Roy (Feb 3, 2010 10:23:58 PM)
u2

jd-tractor (Feb 3, 2010 10:24:06 PM)
(This user has entered Wheelchair Gang)

CRIS (Feb 3, 2010 10:24:18 PM)
hi jd

Roy (Feb 3, 2010 10:24:32 PM)
(This user has left DigiChat)

jd-tractor (Feb 3, 2010 10:24:34 PM)
hello guys and gals

pete46 (Feb 3, 2010 10:24:40 PM)
back

pete46 (Feb 3, 2010 10:24:43 PM)
hi jd

jd-tractor (Feb 3, 2010 10:25:03 PM)
how are we doin?

pete46 (Feb 3, 2010 10:25:19 PM)
good jd how about you

CRIS (Feb 3, 2010 10:25:34 PM)
pretty good

paper (Feb 3, 2010 10:25:43 PM)
ok bk

pete46 (Feb 3, 2010 10:26:07 PM)
wb

jd-tractor (Feb 3, 2010 10:26:08 PM)
very well .we have 64 more minutes of daylight than we had on Dec. 21

pete46 (Feb 3, 2010 10:26:17 PM)
nice

paper (Feb 3, 2010 10:26:21 PM)
what do u to make them better pete

pete46 (Feb 3, 2010 10:26:33 PM)
what?

paper (Feb 3, 2010 10:26:46 PM)
the fasciculations

jd-tractor (Feb 3, 2010 10:26:56 PM)
remember the MDA nightowl chat on Friday at midnight

pete46 (Feb 3, 2010 10:27:00 PM)
nothing you can do that i know

pete46 (Feb 3, 2010 10:27:28 PM)
they dont bother me that much, i usually dont notice them unless i think of them

paper (Feb 3, 2010 10:27:32 PM)
that sucks i was hoping that there was some kind of pill that would make them stop

pete46 (Feb 3, 2010 10:27:50 PM)
not that i know of

pete46 (Feb 3, 2010 10:28:14 PM)
they are very common among als pts

paper (Feb 3, 2010 10:28:29 PM)
ya thats what the dr said

CRIS (Feb 3, 2010 10:28:32 PM)
brb

pete46 (Feb 3, 2010 10:28:35 PM)
k

paper (Feb 3, 2010 10:29:06 PM)
she also said that if they get real bad like now that she might be able to do something about it

pete46 (Feb 3, 2010 10:29:12 PM)
there were times when my legs would be like fireworks there were so many

paper (Feb 3, 2010 10:29:50 PM)
i hate when it is happening real bad like one after another in my legs that they burn

pete46 (Feb 3, 2010 10:30:02 PM)
mine dont burn

pete46 (Feb 3, 2010 10:30:17 PM)
some are stronger than others though

paper (Feb 3, 2010 10:30:38 PM)
mine started in my fingers that was over a year ago

pete46 (Feb 3, 2010 10:31:10 PM)
have you noticed a loss of strength or dexterity in those fingers

paper (Feb 3, 2010 10:31:17 PM)
stuff like dropping a pen or just a bad twitch when typing that how i started noticing them

paper (Feb 3, 2010 10:31:25 PM)
yep

paper (Feb 3, 2010 10:31:46 PM)
harder now to hold pen paint brushes stir stuff

paper (Feb 3, 2010 10:32:11 PM)
thats why my typing sucks lol

pete46 (Feb 3, 2010 10:32:17 PM)
lol

paper (Feb 3, 2010 10:32:24 PM)
they dont do what they are told

jd-tractor (Feb 3, 2010 10:32:43 PM)
my typing sucks just cause it sucks....lol

pete46 (Feb 3, 2010 10:32:53 PM)
haha

paper (Feb 3, 2010 10:32:55 PM)
sometimes they start to twitch and i type all kinds of stuff and have to delete it lol

paper (Feb 3, 2010 10:33:43 PM)
sometimes i dont even notice cause i dont feal it then i read what i am typung and i go god that was bad heheh

paper (Feb 3, 2010 10:33:59 PM)
oops typing

paper (Feb 3, 2010 10:35:29 PM)
the other day when a friend of mine brought over his pc to let me try his dragon program i was happy to see that it worked so good

pete46 (Feb 3, 2010 10:36:35 PM)
what is that where you speak and it types what you say?

pete46 (Feb 3, 2010 10:37:47 PM)
hows the weather up there jd

paper (Feb 3, 2010 10:38:20 PM)
ya it is it also can open your browser and other programs

paper (Feb 3, 2010 10:38:33 PM)
it was real neat

CRIS (Feb 3, 2010 10:38:50 PM)
how much does it cost?

jd-tractor (Feb 3, 2010 10:38:58 PM)
about so - so for this time of year ..a few snown showers but pretty tranquil

paper (Feb 3, 2010 10:39:13 PM)
i played with it for a while then i had to make make my self stop i have seen it for 50 to 800

jd-tractor (Feb 3, 2010 10:39:21 PM)
that's snow

pete46 (Feb 3, 2010 10:39:21 PM)
same here jd

CRIS (Feb 3, 2010 10:39:46 PM)
is it suppose to snow on Friday, pete?

pete46 (Feb 3, 2010 10:39:52 PM)
no

CRIS (Feb 3, 2010 10:39:58 PM)
ok...good

paper (Feb 3, 2010 10:40:24 PM)
you can have my snow pete they are calling for 6 or more starting friday

pete46 (Feb 3, 2010 10:40:27 PM)
tomorrow afternoon the w/c tech is supposed to come and fix my w/c

jd-tractor (Feb 3, 2010 10:40:39 PM)
storm supposed to pass south of us on friday

pete46 (Feb 3, 2010 10:40:43 PM)
i think we are getting snow sunday

CRIS (Feb 3, 2010 10:40:46 PM)
did you hear from the dentist, pete?

pete46 (Feb 3, 2010 10:41:00 PM)
see a dentist next week

CRIS (Feb 3, 2010 10:41:07 PM)
ok...good

jd-tractor (Feb 3, 2010 10:41:13 PM)
whats the matter with your w/c pete?

pete46 (Feb 3, 2010 10:41:35 PM)
been pulling to the left for quite a while now

CRIS (Feb 3, 2010 10:42:45 PM)
I would call him in the morning to make sure he is on your route....

pete46 (Feb 3, 2010 10:42:47 PM)
i would like to get up early and get oil changed in my van tomorrow.

jd-tractor (Feb 3, 2010 10:42:48 PM)
what brand is it?

pete46 (Feb 3, 2010 10:43:07 PM)
they called today and said he would be here between 12 and 4

CRIS (Feb 3, 2010 10:43:19 PM)
ok....good

pete46 (Feb 3, 2010 10:43:48 PM)
of course they have said that a couple times before and havent made it

paper (Feb 3, 2010 10:44:35 PM)
well all i think i will get ready for bed huggles night

pete46 (Feb 3, 2010 10:44:46 PM)
bye paper

paper (Feb 3, 2010 10:44:54 PM)
(This user has left DigiChat)

CRIS (Feb 3, 2010 10:44:56 PM)
I talked to the pulmonary therapist and he told me I had to bring the machine to my doctors office and maybe he can change the pressure or take it to his office and he would change it....oh brother, what trouble

pete46 (Feb 3, 2010 10:45:11 PM)
thats the bipap?

CRIS (Feb 3, 2010 10:45:16 PM)
yes

pete46 (Feb 3, 2010 10:45:31 PM)
and what is actually wrong?

pete46 (Feb 3, 2010 10:45:50 PM)
besides being uncomfortable

CRIS (Feb 3, 2010 10:45:58 PM)
my ears pop when I put it on for only 10 minutes

pete46 (Feb 3, 2010 10:46:21 PM)
oh thats right, and when they pop, what happens?

jd-tractor (Feb 3, 2010 10:46:54 PM)
I am gonna take off, see ya later

CRIS (Feb 3, 2010 10:47:03 PM)
your ears have popped, haven't they? it feels like your head will explode, lots of pressure

jd-tractor (Feb 3, 2010 10:47:06 PM)
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pete46 (Feb 3, 2010 10:47:08 PM)
ok jd, see you later

pete46 (Feb 3, 2010 10:47:16 PM)
oh

pete46 (Feb 3, 2010 10:47:32 PM)
my ears pop when i go up high

CRIS (Feb 3, 2010 10:47:49 PM)
thats what it does, but I am lying down

pete46 (Feb 3, 2010 10:47:55 PM)
like driving to a high spot or going in an airplane

CRIS (Feb 3, 2010 10:48:12 PM)
yes, hard to go to sleep like that

pete46 (Feb 3, 2010 10:48:18 PM)
maybe setting has to be adjusted

pete46 (Feb 3, 2010 10:48:44 PM)
wheres hen tonite?

CRIS (Feb 3, 2010 10:49:00 PM)
yes and only the doctor or pulmonary therapist can do it....he said it was locked

CRIS (Feb 3, 2010 10:49:20 PM)
don't know....have not talked to her today

pete46 (Feb 3, 2010 10:49:35 PM)
oh i am not familiar with bipap but i know a lot of als patients use it

pete46 (Feb 3, 2010 10:50:07 PM)
i'm signingoff here and going on yahoo

CRIS (Feb 3, 2010 10:50:29 PM)
I notice a few people on the Biggest Lose were using a machine...probably a C-pap

pete46 (Feb 3, 2010 10:50:40 PM)
maybe

CRIS (Feb 3, 2010 10:50:46 PM)
ok...see you there

pete46 (Feb 3, 2010 10:50:52 PM)
i know cpap not good for als

pete46 (Feb 3, 2010 10:50:58 PM)
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CRIS (Feb 3, 2010 10:51:06 PM)
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