Wheelchair Gang

royla (Nov 11, 2009 8:57:17 PM)
(This user is now known as Roy)

paper (Nov 11, 2009 8:58:13 PM)
(This user has entered Wheelchair Gang)

paper (Nov 11, 2009 8:58:20 PM)
hey roy

sweetheaven (Nov 11, 2009 9:00:23 PM)
(This user has entered Wheelchair Gang)

sweetheaven (Nov 11, 2009 9:00:34 PM)
hello

paper (Nov 11, 2009 9:00:34 PM)
hey sweet

sweetheaven (Nov 11, 2009 9:00:52 PM)
that chat room was nuts

paper (Nov 11, 2009 9:00:58 PM)
ya

sweetheaven (Nov 11, 2009 9:01:00 PM)
hello Roy

sweetheaven (Nov 11, 2009 9:01:09 PM)
I didn't know what to say

paper (Nov 11, 2009 9:01:09 PM)
gypsy has been nuts latly

sweetheaven (Nov 11, 2009 9:01:19 PM)
yeah i see

gypsy (Nov 11, 2009 9:01:21 PM)
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Roy (Nov 11, 2009 9:01:31 PM)
hi, sorry stepped away

gypsy (Nov 11, 2009 9:01:39 PM)
hi roy

paper (Nov 11, 2009 9:01:42 PM)
thats ok roy

sweetheaven (Nov 11, 2009 9:01:45 PM)
hello gypsy

sweetheaven (Nov 11, 2009 9:01:54 PM)
we forgive you

Roy (Nov 11, 2009 9:02:03 PM)
hi all

sweetheaven (Nov 11, 2009 9:02:38 PM)
hey gypsy

sweetheaven (Nov 11, 2009 9:02:59 PM)
these chatroom have changed

Roy (Nov 11, 2009 9:03:22 PM)
cant stay long, my day is packed on wed

paper (Nov 11, 2009 9:03:49 PM)
(This user has left DigiChat)

sweetheaven (Nov 11, 2009 9:04:05 PM)
(This user has left DigiChat)

gypsy (Nov 11, 2009 9:04:13 PM)
don't know how you do it roy i get tired doing niothing

gypsy (Nov 11, 2009 9:04:22 PM)
ok everyone is leaving here now

Roy (Nov 11, 2009 9:04:41 PM)
huh

gypsy (Nov 11, 2009 9:05:03 PM)
i was at mmd chat and at the hour they just all left

gypsy (Nov 11, 2009 9:05:09 PM)
no they are leaving here too

Roy (Nov 11, 2009 9:05:38 PM)
i'm getting a touch tired but saturday is recharge day!

gypsy (Nov 11, 2009 9:05:54 PM)
i am glad you have a day to do that

gypsy (Nov 11, 2009 9:06:14 PM)
you are an insparation to us all roy :)

gypsy (Nov 11, 2009 9:06:33 PM)
do you know ryan in austraila ?

Roy (Nov 11, 2009 9:06:44 PM)
no

gypsy (Nov 11, 2009 9:06:44 PM)
he is the son of the mda dirctor here

Roy (Nov 11, 2009 9:06:54 PM)
oh ok

gypsy (Nov 11, 2009 9:07:09 PM)
i haven't even met him he used to have asection on the austrailan mda site

gypsy (Nov 11, 2009 9:07:34 PM)
ryans cafe

Roy (Nov 11, 2009 9:08:29 PM)
what was it about? a chat?

gypsy (Nov 11, 2009 9:09:14 PM)
no i think it's just a forum i haven't looked in a while

gypsy (Nov 11, 2009 9:09:23 PM)
unfortualtey no one uses the site much

Roy (Nov 11, 2009 9:09:37 PM)
oh, thats too bad

Roy (Nov 11, 2009 9:10:23 PM)
our chats traffic is low too, i think mymda has seperate chat

Roy (Nov 11, 2009 9:10:50 PM)
ours is the ugly step-sister i guess

gypsy (Nov 11, 2009 9:11:14 PM)
has it i couldn't find any chat there

gypsy (Nov 11, 2009 9:11:23 PM)
i know it's sad no one comes here anymore

gypsy (Nov 11, 2009 9:12:37 PM)
some one esle told me it's casue everyone uses facebook now i don't have that either

Roy (Nov 11, 2009 9:13:01 PM)
oh do they..

Roy (Nov 11, 2009 9:13:25 PM)
ken just doesnt have internet

gypsy (Nov 11, 2009 9:13:34 PM)
well i don't not sure that was someone explanaion

gypsy (Nov 11, 2009 9:13:53 PM)
i know that's terrible i wish some one could help him with that

gypsy (Nov 11, 2009 9:14:10 PM)
do you have much contact with him i miss our chats

Roy (Nov 11, 2009 9:14:46 PM)
not much, i need to call him and see

gypsy (Nov 11, 2009 9:15:13 PM)
i don't know what is here now this it the link to ryans cafe http://www.ryans-cafe.com/

gypsy (Nov 11, 2009 9:15:53 PM)
my computer doesn't seem ot be able to open it while i have chat open

gypsy (Nov 11, 2009 9:16:48 PM)
it hadn' t been update for a bit last time i looked

Roy (Nov 11, 2009 9:19:22 PM)
looks like 2007

Roy (Nov 11, 2009 9:19:58 PM)
guestbook signed 5x in 08 9x in 09

John-VA (Nov 11, 2009 9:21:01 PM)
(This user has entered Wheelchair Gang)

gypsy (Nov 11, 2009 9:21:01 PM)
looks like a few peolpe still go there then

gypsy (Nov 11, 2009 9:21:09 PM)
hi john

Roy (Nov 11, 2009 9:21:10 PM)
hi john

John-VA (Nov 11, 2009 9:21:46 PM)
hi all

Roy (Nov 11, 2009 9:21:52 PM)
how are you?

Roy (Nov 11, 2009 9:22:08 PM)
in VA or a vet?

John-VA (Nov 11, 2009 9:22:34 PM)
fine thanks

John-VA (Nov 11, 2009 9:23:08 PM)
in va

Roy (Nov 11, 2009 9:24:10 PM)
get any of that bad weather from south?

gypsy (Nov 11, 2009 9:24:40 PM)
i got hot weather you can have if you want

gypsy (Nov 11, 2009 9:25:03 PM)
seems i am one of the few peolpe that don't like it drains me so much

Roy (Nov 11, 2009 9:25:05 PM)
sure, its getting cold here

gypsy (Nov 11, 2009 9:25:20 PM)
how cold does it get roy ?

Roy (Nov 11, 2009 9:25:39 PM)
do you have md john? i have duchenne

John-VA (Nov 11, 2009 9:26:02 PM)
yes alot of rain

Roy (Nov 11, 2009 9:26:18 PM)
40s-50s is probably average temp

gypsy (Nov 11, 2009 9:26:39 PM)
ok not much colder than here

Roy (Nov 11, 2009 9:27:13 PM)
30 a few times and at night

gypsy (Nov 11, 2009 9:28:16 PM)
yes that is about our overnight low in the cold days too

gypsy (Nov 11, 2009 9:28:49 PM)
mostly mor elike a overnight low of 40

John-VA (Nov 11, 2009 9:29:00 PM)
i have ALS

John-VA (Nov 11, 2009 9:30:38 PM)
sorry so slow type by eye

CRIS (Nov 11, 2009 9:31:05 PM)
(This user has entered Wheelchair Gang)

Roy (Nov 11, 2009 9:31:07 PM)
thats ok, good thing for technology

Roy (Nov 11, 2009 9:31:13 PM)
hi cris

CRIS (Nov 11, 2009 9:31:37 PM)
hi roy, gypsy, john

John-VA (Nov 11, 2009 9:31:57 PM)
hi cris

gypsy (Nov 11, 2009 9:32:02 PM)
hi cris

gypsy (Nov 11, 2009 9:32:11 PM)
are you feeling better this week cris

CRIS (Nov 11, 2009 9:32:32 PM)
yes, doing nicely

Roy (Nov 11, 2009 9:33:36 PM)
good

gypsy (Nov 11, 2009 9:33:38 PM)
that's good i hope your mouth is healing

CRIS (Nov 11, 2009 9:33:39 PM)
john, are you new here?

John-VA (Nov 11, 2009 9:33:45 PM)
my first time here

CRIS (Nov 11, 2009 9:34:04 PM)
welcome....are you from Virginia

CRIS (Nov 11, 2009 9:34:37 PM)
I still have a bruise on my face, but it is healing

gypsy (Nov 11, 2009 9:34:39 PM)
welcome john i didn't realsize had you mixed up with some one else

John-VA (Nov 11, 2009 9:35:05 PM)
thanks,yes

CRIS (Nov 11, 2009 9:35:23 PM)
what form of MD do you have?

John-VA (Nov 11, 2009 9:36:35 PM)
ALS cris

John-VA (Nov 11, 2009 9:36:55 PM)
you?

CRIS (Nov 11, 2009 9:37:15 PM)
LGMD

CRIS (Nov 11, 2009 9:37:45 PM)
when were you diagnosed?

John-VA (Nov 11, 2009 9:38:50 PM)
91 im 48

CRIS (Nov 11, 2009 9:39:40 PM)
I am older than you are....lol What did you do for a living?

John-VA (Nov 11, 2009 9:41:38 PM)
contruction

Roy (Nov 11, 2009 9:42:16 PM)
thats a good industry

John-VA (Nov 11, 2009 9:44:05 PM)
had als 19 years, im lucky

Roy (Nov 11, 2009 9:44:27 PM)
yes thats a long time

CRIS (Nov 11, 2009 9:45:54 PM)
yes, you are very lucky....you must have a loving family to support you

gypsy (Nov 11, 2009 9:46:26 PM)
long time john you are doing well

John-VA (Nov 11, 2009 9:46:27 PM)
it was nice to meet u all, take care

gypsy (Nov 11, 2009 9:46:34 PM)
night john tc

Roy (Nov 11, 2009 9:46:56 PM)
night

Roy (Nov 11, 2009 9:46:59 PM)
tc

CRIS (Nov 11, 2009 9:47:00 PM)
good nite John, tc

John-VA (Nov 11, 2009 9:47:20 PM)
ty

John-VA (Nov 11, 2009 9:47:38 PM)
(This user has left DigiChat)

gypsy (Nov 11, 2009 9:48:03 PM)
does it get cold where you are cris ?

CRIS (Nov 11, 2009 9:48:25 PM)
no, it has been beautiful lately

gypsy (Nov 11, 2009 9:51:01 PM)
that's good it's been hot here hate that

Roy (Nov 11, 2009 9:51:11 PM)
not too bad here, wet

gypsy (Nov 11, 2009 9:51:17 PM)
and summer has only just started

Roy (Nov 11, 2009 9:52:40 PM)
i should get a summer house there

gypsy (Nov 11, 2009 9:53:26 PM)
i got one i could sell you roy just not real accable still we could build a ramp

CRIS (Nov 11, 2009 9:53:37 PM)
roy...still not getting use to the bipap machine

Roy (Nov 11, 2009 9:54:49 PM)
how long you lasting?

CRIS (Nov 11, 2009 9:55:35 PM)
about 10 min....my ears start popping and it bugs me

Roy (Nov 11, 2009 9:56:07 PM)
what your setting?

CRIS (Nov 11, 2009 9:56:38 PM)
he set it at 5/10....whatever that means

CRIS (Nov 11, 2009 9:57:47 PM)
I am going to call them tomorrow and see what I should do

Roy (Nov 11, 2009 9:57:51 PM)
5 is low pressure then it does 10 on inhale

Roy (Nov 11, 2009 9:58:04 PM)
thats pretty low

Roy (Nov 11, 2009 9:58:17 PM)
tried ear plugs?

CRIS (Nov 11, 2009 9:58:38 PM)
no, I haven't

Roy (Nov 11, 2009 10:00:30 PM)
mine ears use to pop

Roy (Nov 11, 2009 10:01:21 PM)
maybe you need 2/5 and once you do a whole night boost it

CRIS (Nov 11, 2009 10:01:22 PM)
now they don't?

Roy (Nov 11, 2009 10:02:20 PM)
one will maybe once a month

CRIS (Nov 11, 2009 10:04:02 PM)
can I change the settings?

Roy (Nov 11, 2009 10:06:37 PM)
maybe, if you know how

Roy (Nov 11, 2009 10:06:47 PM)
my doc lets me

CRIS (Nov 11, 2009 10:08:10 PM)
I will let you know what they say next week when we chat....I guess, I should be using it, but I just can't

CRIS (Nov 11, 2009 10:10:06 PM)
gypsy....so how are you coming along on those cards you are making?

Roy (Nov 11, 2009 10:10:08 PM)
yea

Roy (Nov 11, 2009 10:10:57 PM)
which bipap model? i may know if its like mine

Roy (Nov 11, 2009 10:11:11 PM)
or ask them how

gypsy (Nov 11, 2009 10:11:18 PM)
getting a few done cris got to send the off to my sister soon

CRIS (Nov 11, 2009 10:11:30 PM)
thats great, gypsy

CRIS (Nov 11, 2009 10:11:44 PM)
brb...let me go check which model

gypsy (Nov 11, 2009 10:11:49 PM)
worked out some padding for my arm with an old sock and face washer that has helped

Roy (Nov 11, 2009 10:12:18 PM)
thats good

gypsy (Nov 11, 2009 10:12:32 PM)
asked all the profesion peolpe and they were no help at all i get so frustrated

gypsy (Nov 11, 2009 10:13:12 PM)
do you get pushed around i get told not my problem talk to you counsellor not my porblem talk ot you case manager not my problem talk ot OT

Roy (Nov 11, 2009 10:14:12 PM)
not really, thats not good

gypsy (Nov 11, 2009 10:15:42 PM)
yes i am getting really confused about it

CRIS (Nov 11, 2009 10:16:44 PM)
it is called a Respironics...BipapPlus, M series

Roy (Nov 11, 2009 10:16:50 PM)
just need to firm i guess

Roy (Nov 11, 2009 10:17:08 PM)
get firm with them

gypsy (Nov 11, 2009 10:17:40 PM)
they just say what do i want i don't know i need them to help me

gypsy (Nov 11, 2009 10:18:23 PM)
i may have it wrong but i get the feeling they think i should just give up go live in a nusring home and read books and stop bothering them

Roy (Nov 11, 2009 10:19:14 PM)
not sure

Roy (Nov 11, 2009 10:19:32 PM)
guess you better wait cris

gypsy (Nov 11, 2009 10:19:49 PM)
can you call who ever set it up for you cris ?

Roy (Nov 11, 2009 10:19:54 PM)
ok, i must go shower, tc you two

gypsy (Nov 11, 2009 10:20:00 PM)
night roy tc

Roy (Nov 11, 2009 10:20:05 PM)
God bless

jd-tractor (Nov 11, 2009 10:20:33 PM)
(This user has entered Wheelchair Gang)

gypsy (Nov 11, 2009 10:20:38 PM)
it's a shame there is no where here to put up pictures cris or i could show you a few of the cards

gypsy (Nov 11, 2009 10:20:42 PM)
hi jd

Roy (Nov 11, 2009 10:20:49 PM)
hi jd

gypsy (Nov 11, 2009 10:20:58 PM)
they arn't very good i wish i was more creative

jd-tractor (Nov 11, 2009 10:21:00 PM)
Hello folks

Roy (Nov 11, 2009 10:21:04 PM)
bye jd hehe

Roy (Nov 11, 2009 10:21:05 PM)
(This user has left DigiChat)

jd-tractor (Nov 11, 2009 10:21:34 PM)
wow I guess I chased roy off

gypsy (Nov 11, 2009 10:21:35 PM)
how are you jd

jd-tractor (Nov 11, 2009 10:21:50 PM)
very good ,and you?

gypsy (Nov 11, 2009 10:22:08 PM)
thinking about maybe buying myself a cuttle bug for xmas it's a machine to cut and emboss card

gypsy (Nov 11, 2009 10:22:32 PM)
struggling that is all i ever seem to do now days everthing seems to hard not sure if it is or i just make it that way

jd-tractor (Nov 11, 2009 10:22:39 PM)
I think I saw those somewhere

CRIS (Nov 11, 2009 10:23:02 PM)
I need to go too.....great chatting with you gypsy, sorry I missed you JD, take care both of you

jd-tractor (Nov 11, 2009 10:23:15 PM)
Well ,lately I have more and more trouble getting around

gypsy (Nov 11, 2009 10:23:17 PM)
night cris tc hope you get things sorted out

jd-tractor (Nov 11, 2009 10:23:26 PM)
ok g'nite gypsy

CRIS (Nov 11, 2009 10:23:34 PM)
thanks....good nite

gypsy (Nov 11, 2009 10:23:37 PM)
i barely get around at all in the heat but my arms are the bigest problem

gypsy (Nov 11, 2009 10:23:42 PM)
you going too jd ?

jd-tractor (Nov 11, 2009 10:23:46 PM)
oh I mean cris....lol

CRIS (Nov 11, 2009 10:23:52 PM)
(This user has left DigiChat)

jd-tractor (Nov 11, 2009 10:24:01 PM)
no,I thought you were...lol

jd-tractor (Nov 11, 2009 10:24:33 PM)
remember "a mind is a terrible thing to waste"...lol

gypsy (Nov 11, 2009 10:24:58 PM)
i don't have a mind nothing to lose there

gypsy (Nov 11, 2009 10:25:02 PM)
i need to do things

gypsy (Nov 11, 2009 10:25:22 PM)
i am dumb academcailly

gypsy (Nov 11, 2009 10:26:07 PM)
you still manage you gadren and have all your famliy around

jd-tractor (Nov 11, 2009 10:26:12 PM)
me too sometimes

gypsy (Nov 11, 2009 10:26:14 PM)
i feel so alone now

gypsy (Nov 11, 2009 10:26:46 PM)
i was just saying how everyone i ask tells me it's some one esle problem to help me

jd-tractor (Nov 11, 2009 10:27:24 PM)
yes in fact just had my grandson plow the garden under to be ready in the spring ,just finished digging carrots yesterday..it does keep getting harder to do things tho

gypsy (Nov 11, 2009 10:28:11 PM)
wow that great is been so dry here the last week the ground has truned to rock it was mud the week before that

gypsy (Nov 11, 2009 10:28:23 PM)
i have no garden at all this year

jd-tractor (Nov 11, 2009 10:28:30 PM)
I do have to say anyone around here is very helpful but my stubborness sometimes gets in the way

gypsy (Nov 11, 2009 10:28:47 PM)
have to clean up or i will get a fire hazzard notice from council

gypsy (Nov 11, 2009 10:29:11 PM)
you are lucky peolpe are like that no one seems to care here

jd-tractor (Nov 11, 2009 10:29:16 PM)
was that way here this summer first too dry and then totally wet

gypsy (Nov 11, 2009 10:29:25 PM)
i never even have any offers of help

jd-tractor (Nov 11, 2009 10:30:39 PM)
no civic groups there?

gypsy (Nov 11, 2009 10:31:42 PM)
nope

gypsy (Nov 11, 2009 10:31:58 PM)
they all disapeared not enough support

gypsy (Nov 11, 2009 10:32:10 PM)
pretty much nothing here at all now

gypsy (Nov 11, 2009 10:32:31 PM)
i do have some funding to get the lawns mowed that's about it

jd-tractor (Nov 11, 2009 10:33:04 PM)
IC..if this economy dosen't get straightened out that could happen here

gypsy (Nov 11, 2009 10:33:45 PM)
i hope not things just seem to be getting worse more and more peolpe still lossing thier jobs

jd-tractor (Nov 11, 2009 10:35:57 PM)
sad part is that the real problem is greed by those that already have more than they deserve

gypsy (Nov 11, 2009 10:40:09 PM)
i think thatis always the case

gypsy (Nov 11, 2009 10:40:32 PM)
i an rich now on the pension that is a bit sad

gypsy (Nov 11, 2009 10:41:51 PM)
i have to make a phone call so i best go night tc

jd-tractor (Nov 11, 2009 10:42:28 PM)
unfortunately here things will probably get a lot worse before getting better

jd-tractor (Nov 11, 2009 10:42:36 PM)
g'nite

jd-tractor (Nov 11, 2009 10:42:41 PM)
(This user has left DigiChat)

gypsy (Nov 11, 2009 10:42:48 PM)
(This user has left DigiChat)