Myotonic Chat Group

bette (Mar 3, 2010 7:49:27 PM)
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PaRay (Mar 3, 2010 7:49:48 PM)
Hey Bette or is this Mark?

Buddy (Mar 3, 2010 7:50:16 PM)
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PaRay (Mar 3, 2010 7:50:26 PM)
Hi Buddy

Buddy (Mar 3, 2010 7:50:44 PM)
Hi everybody

bette (Mar 3, 2010 7:50:45 PM)
Hi Ray and Buddy. It's Bette Ray

PaRay (Mar 3, 2010 7:51:07 PM)
How are things in Jax?

bette (Mar 3, 2010 7:51:15 PM)
Buddy,k I was just thinking about you today. Glad you are back.

bette (Mar 3, 2010 7:51:37 PM)
What have you been up to?

Buddy (Mar 3, 2010 7:51:47 PM)
It's cold here at night

PaRay (Mar 3, 2010 7:52:02 PM)
Getting any rain?

bette (Mar 3, 2010 7:52:08 PM)
Here too.

Buddy (Mar 3, 2010 7:52:17 PM)
I just got over a cold

bette (Mar 3, 2010 7:52:44 PM)
Sorry to hear that, glad you are feeling better.

Buddy (Mar 3, 2010 7:53:28 PM)
Rick fixed me tea and a lot of chicken soup

PaRay (Mar 3, 2010 7:54:05 PM)
Chicken soup will fix it every time.

bette (Mar 3, 2010 7:54:39 PM)
Rick sounds like a great guy.

Buddy (Mar 3, 2010 7:55:10 PM)
Rick treats me like a princess

Buddy (Mar 3, 2010 7:55:57 PM)
Of course, I am a princess HA! HA!

bette (Mar 3, 2010 7:56:07 PM)
Of course

Wendy2 (Mar 3, 2010 7:56:36 PM)
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PaRay (Mar 3, 2010 7:56:38 PM)
I am a frog. Kiss me and I turn into a prince..

bette (Mar 3, 2010 7:56:44 PM)
Hi Wendy

bette (Mar 3, 2010 7:57:07 PM)
Were you here for the YA weekend?

Buddy (Mar 3, 2010 7:57:34 PM)
Does anyone know the differnce between MMD1 & MMD 2 ? I'm not sure which I have

bette (Mar 3, 2010 7:57:40 PM)
Coe out to the conference Ray and you'll get losts of kissess.

Wendy2 (Mar 3, 2010 7:57:46 PM)
actually Bette I was

bette (Mar 3, 2010 7:57:46 PM)
That was come Ray. Also you are on regarding the difference between mmd1 and 2

bette (Mar 3, 2010 7:58:23 PM)
Wendy, how was it, what did you guys do?

Wendy2 (Mar 3, 2010 7:59:00 PM)
I am actually coming back to CA tomorrow. San francisco this time. My cousin's wedding

PaRay (Mar 3, 2010 7:59:13 PM)
Buddy, I think that I remember that you had a DNA test.

bette (Mar 3, 2010 7:59:24 PM)
Hope it doesn't rain for you.

Buddy (Mar 3, 2010 8:00:10 PM)
I had a biopsy amd called it Stienery's Diease

bette (Mar 3, 2010 8:00:46 PM)
MMD 1 is also called Steinharts disease.

Wendy2 (Mar 3, 2010 8:00:48 PM)
We played a lot of games. Decided how we could make the YA's meeting more enjoyable. Terry, Tiffany, and I made cookies.

Buddy (Mar 3, 2010 8:00:49 PM)
Stienert's Diease

Wendy2 (Mar 3, 2010 8:01:34 PM)
It is supposed to rain but we will be indoors mostly

bette (Mar 3, 2010 8:01:37 PM)
Sounds like fun. We haven't had a meeting since the conference.

Wendy2 (Mar 3, 2010 8:02:40 PM)
I'm treasurer od our MMD group down here

PaRay (Mar 3, 2010 8:03:11 PM)
Someone needs to count the money.

bette (Mar 3, 2010 8:03:15 PM)
That is great Wendy. I don't think we have one here.

Wendy2 (Mar 3, 2010 8:04:12 PM)
The Bades are coiming to OR in june. hopefully they can take a couple extra days and head up to Portland to see us

bette (Mar 3, 2010 8:04:30 PM)
That would be nice.

Wendy2 (Mar 3, 2010 8:04:48 PM)
I've been at their house more then my share of times

bette (Mar 3, 2010 8:05:00 PM)
and they love it.

Buddy (Mar 3, 2010 8:05:20 PM)
Which of you guys have MMD1?

bette (Mar 3, 2010 8:05:32 PM)
I do Buddy

Wendy2 (Mar 3, 2010 8:05:36 PM)
Diane says she adopts me for 7 days every year

Wendy2 (Mar 3, 2010 8:06:05 PM)
I do too

bette (Mar 3, 2010 8:06:51 PM)
Wendy, Buddy do either of you have tinitus? Ray, did Ann have it?

Wendy2 (Mar 3, 2010 8:06:53 PM)
We met at the Conference, buddy

Buddy (Mar 3, 2010 8:07:25 PM)
Yes bette I do.

Wendy2 (Mar 3, 2010 8:07:28 PM)
Not that I know of bette

Wendy2 (Mar 3, 2010 8:07:51 PM)
I heard of it though

PaRay (Mar 3, 2010 8:08:11 PM)
Ann had Type 1

bette (Mar 3, 2010 8:08:16 PM)
I wonder if it has anything to do with MMD. Buddy do you have anything that might help lessen it.

Buddy (Mar 3, 2010 8:08:26 PM)
I have never been to a confernce

Wendy2 (Mar 3, 2010 8:09:02 PM)
Bette do you know if the Confernce in Sept or Oct this year

PaRay (Mar 3, 2010 8:09:37 PM)
Ann had tinitus too.

bette (Mar 3, 2010 8:09:54 PM)
I'm not sure. I know it is affected by the Jewish Holidays again so it might be Oct.

Buddy (Mar 3, 2010 8:10:02 PM)
No It doesn't last long My brother has the ringing sound but doesn't have MMD

PaRay (Mar 3, 2010 8:10:44 PM)
She did not find anything that would help.

bette (Mar 3, 2010 8:10:49 PM)
I'll try to remember to ask Dr. Engle next time I go to the clinic.

Wendy2 (Mar 3, 2010 8:12:21 PM)
La la la

paper (Mar 3, 2010 8:12:24 PM)
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Wendy2 (Mar 3, 2010 8:12:32 PM)
HI paper

bette (Mar 3, 2010 8:12:33 PM)
Hi Paper.

paper (Mar 3, 2010 8:12:59 PM)
hi all

Wendy2 (Mar 3, 2010 8:12:59 PM)
Are you new to the Chat line?

Buddy (Mar 3, 2010 8:13:08 PM)
Hi Paper

paper (Mar 3, 2010 8:13:17 PM)
me nope

Wendy2 (Mar 3, 2010 8:13:50 PM)
Maybe i just haven't benn on when you have before

Wendy2 (Mar 3, 2010 8:13:57 PM)
been

paper (Mar 3, 2010 8:14:00 PM)
probably

paper (Mar 3, 2010 8:15:42 PM)
so whats going on tonight'

Wendy2 (Mar 3, 2010 8:15:49 PM)
lala la again

bette (Mar 3, 2010 8:16:26 PM)
Wendy, are you saying we are all in la, la land?

Wendy2 (Mar 3, 2010 8:16:56 PM)
We were talking about how to help tinitus

paper (Mar 3, 2010 8:16:58 PM)
well i got my stride and ride team all together now

paper (Mar 3, 2010 8:17:14 PM)
60 people strong

bette (Mar 3, 2010 8:17:16 PM)
When is your walk Paper?

Wendy2 (Mar 3, 2010 8:17:17 PM)
I'm humming to pass the time

paper (Mar 3, 2010 8:17:26 PM)
april 24th

Wendy2 (Mar 3, 2010 8:17:40 PM)
Ours was a couple weeks ago.

bette (Mar 3, 2010 8:17:48 PM)
60 people, I'm impressed.

paper (Mar 3, 2010 8:17:50 PM)
my local firemen union is on my team

paper (Mar 3, 2010 8:18:07 PM)
54 hunky firemen lol

bette (Mar 3, 2010 8:18:19 PM)
Oh, that helps

paper (Mar 3, 2010 8:18:34 PM)
oh ya they are going to do a boot drive for it

paper (Mar 3, 2010 8:18:38 PM)
goooo firemen

Wendy2 (Mar 3, 2010 8:18:47 PM)
I didn't do this one. i did the one before. Our Team "The Walk -n - Rollers"

paper (Mar 3, 2010 8:19:26 PM)
i am hopping for a good team fund

bette (Mar 3, 2010 8:19:32 PM)
We don't have a team, all our friends and relatives give to the MMD fundraiser.

Wendy2 (Mar 3, 2010 8:20:02 PM)
We do fill the boot during the Rose Festival in June. It is "FUN" to help out. (Eye Candy)

bette (Mar 3, 2010 8:20:05 PM)
I won't ask for money more that once a year.

Wendy2 (Mar 3, 2010 8:20:30 PM)
Do have a name for your team paper

paper (Mar 3, 2010 8:20:35 PM)
i went yeasterday to their union meeting

paper (Mar 3, 2010 8:20:42 PM)
ya it is team core

paper (Mar 3, 2010 8:21:18 PM)
since my md is central core diease i thought it was a good name

Wendy2 (Mar 3, 2010 8:22:01 PM)
Gotta go Dinner

Wendy2 (Mar 3, 2010 8:22:03 PM)
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bette (Mar 3, 2010 8:22:54 PM)
My eyes are closing so I'm going to go too. Hope to see all of you next week.

paper (Mar 3, 2010 8:23:02 PM)
by bette

bette (Mar 3, 2010 8:23:04 PM)
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beth (Mar 3, 2010 8:23:50 PM)
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paper (Mar 3, 2010 8:23:59 PM)
hi beth

PaRay (Mar 3, 2010 8:24:01 PM)
Hi Beth

beth (Mar 3, 2010 8:24:29 PM)
hi

beth (Mar 3, 2010 8:25:09 PM)
a small group

paper (Mar 3, 2010 8:25:15 PM)
yep

paper (Mar 3, 2010 8:25:22 PM)
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PaRay (Mar 3, 2010 8:25:49 PM)
You get any snow this go around?

beth (Mar 3, 2010 8:26:09 PM)
no

Buddy (Mar 3, 2010 8:26:24 PM)
We got a few flurries

beth (Mar 3, 2010 8:26:54 PM)
i was in houston from wed to sun last week

PaRay (Mar 3, 2010 8:26:59 PM)
We still have some from the last go around.

beth (Mar 3, 2010 8:27:36 PM)
we are having sunny dats right now

PaRay (Mar 3, 2010 8:27:44 PM)
I spent a month or so in the Houston area a long time ago.

beth (Mar 3, 2010 8:27:48 PM)
gays

Buddy (Mar 3, 2010 8:28:00 PM)
Ray throw a snow ball for me.

beth (Mar 3, 2010 8:28:14 PM)
for give my typing

PaRay (Mar 3, 2010 8:28:20 PM)
Could do that I guess.

beth (Mar 3, 2010 8:29:04 PM)
ny dad lives down there

PaRay (Mar 3, 2010 8:29:37 PM)
I got into a hurricane. Not nice.

beth (Mar 3, 2010 8:30:12 PM)
we went for a model train synposim

PaRay (Mar 3, 2010 8:31:04 PM)
You into trains?

Buddy (Mar 3, 2010 8:31:31 PM)
I love eletric trains

beth (Mar 3, 2010 8:31:31 PM)
hurricanes aren't bad if you have no dammage

PaRay (Mar 3, 2010 8:31:52 PM)
Too much water for me.

beth (Mar 3, 2010 8:31:59 PM)
my husband's new hobby

elliebedelia (Mar 3, 2010 8:32:20 PM)
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Buddy (Mar 3, 2010 8:32:21 PM)
Hurricanes aren'y quite as asbad as earthquakes

beth (Mar 3, 2010 8:32:37 PM)
hi ellie

Buddy (Mar 3, 2010 8:32:44 PM)
Hi ellie

PaRay (Mar 3, 2010 8:32:52 PM)
Hey Ellie

elliebedelia (Mar 3, 2010 8:33:06 PM)
Hello and good evening to you all

Buddy (Mar 3, 2010 8:33:28 PM)
Ellie do you have MMD1 or2?

elliebedelia (Mar 3, 2010 8:33:37 PM)
I got your message Beth I just haven`t had a chance to get back to you

elliebedelia (Mar 3, 2010 8:34:04 PM)
We have lots of birthdays this month and I am away alot

PaRay (Mar 3, 2010 8:34:52 PM)
Maybe I should have one this month too!!!!!

elliebedelia (Mar 3, 2010 8:35:03 PM)
Buddy I just have MMD and never been diagnosed as to 1 or 2 but I did look up the info and they are so closely the same

elliebedelia (Mar 3, 2010 8:35:35 PM)
do you ray?

PaRay (Mar 3, 2010 8:36:40 PM)
I have to look it up too. Getting too old to remember. There are some differances but not much.

elliebedelia (Mar 3, 2010 8:36:42 PM)
ray is there a test fir mmd1 or mmd2? The characteristics are the close I don`t know how it could be determined

PaRay (Mar 3, 2010 8:37:15 PM)
DNA picks it up. Two different chromosomes.

elliebedelia (Mar 3, 2010 8:37:30 PM)
on good answer ray

PaRay (Mar 3, 2010 8:37:31 PM)
Have to be tested for both.

PaRay (Mar 3, 2010 8:38:01 PM)
Buddy ... I will send you some info.

elliebedelia (Mar 3, 2010 8:38:09 PM)
buddy which one are you? I have many of the problems that relate to both

Buddy (Mar 3, 2010 8:38:16 PM)
thanks Ray

Buddy (Mar 3, 2010 8:38:59 PM)
I have MMD 1 It's called Stienert's Diease

elliebedelia (Mar 3, 2010 8:39:03 PM)
I have the mutated 19th chromosome with 334 repeats

PaRay (Mar 3, 2010 8:39:17 PM)
That is type one.

PaRay (Mar 3, 2010 8:39:34 PM)
Chromosome 3 is type 2

elliebedelia (Mar 3, 2010 8:39:36 PM)
I do think that is the same as me yes I remember the stienerts disease

PaRay (Mar 3, 2010 8:39:55 PM)
Stienerts is type 1

elliebedelia (Mar 3, 2010 8:40:08 PM)
Thanks Ray that ansmered the question well

PaRay (Mar 3, 2010 8:40:42 PM)
I need a review anyway Buddy.

elliebedelia (Mar 3, 2010 8:41:03 PM)
what would we do without you Ray , you really know your stuff

Buddy (Mar 3, 2010 8:41:33 PM)
Ray is great with the answers

PaRay (Mar 3, 2010 8:41:35 PM)
Just have trouble remembering.

beth (Mar 3, 2010 8:42:13 PM)
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elliebedelia (Mar 3, 2010 8:42:28 PM)
memory effects all of us I`m sure

Buddy (Mar 3, 2010 8:42:29 PM)
Can't remember, Ray? Join the club

PaRay (Mar 3, 2010 8:42:32 PM)
I remember the good ole days when there wasn't any DNA testing.

beth (Mar 3, 2010 8:42:46 PM)
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beth (Mar 3, 2010 8:43:03 PM)
ok i'm back

elliebedelia (Mar 3, 2010 8:43:22 PM)
me too Ray with my dad it took yrs to diagnose him

PaRay (Mar 3, 2010 8:43:41 PM)
Just a good guess back then.

elliebedelia (Mar 3, 2010 8:43:58 PM)
I have to drive to Vt in the morning a 6 hr drive so I need my sleep tonight

PaRay (Mar 3, 2010 8:44:17 PM)
Don't get lost.

Buddy (Mar 3, 2010 8:44:22 PM)
bye eillie

beth (Mar 3, 2010 8:44:33 PM)
bye ellie

elliebedelia (Mar 3, 2010 8:44:37 PM)
no I know my way well but I still use my gps

Buddy (Mar 3, 2010 8:44:52 PM)
Have a safe trip

elliebedelia (Mar 3, 2010 8:44:56 PM)
I love my GPS

PaRay (Mar 3, 2010 8:45:00 PM)
Gypsy???

elliebedelia (Mar 3, 2010 8:45:26 PM)
Garmin

PaRay (Mar 3, 2010 8:45:57 PM)
GyPSy !!!!

beth (Mar 3, 2010 8:46:16 PM)
ellie can you call ne later thid week

elliebedelia (Mar 3, 2010 8:46:26 PM)
I am like a gypsy I keep living with my kids and when they get sick of me I just move on the a different one Trouble is they all fight over me

elliebedelia (Mar 3, 2010 8:47:56 PM)
I`ll try over the weekend Beth

beth (Mar 3, 2010 8:48:03 PM)
ok

PaRay (Mar 3, 2010 8:48:10 PM)
No one is knocking on my door wanting me.

Buddy (Mar 3, 2010 8:48:30 PM)
My back is hurting so I need to laydown Til next weekbye

elliebedelia (Mar 3, 2010 8:48:44 PM)
well Ray if they all get tired of me I might just come knocking on your door

PaRay (Mar 3, 2010 8:48:53 PM)
Have a good one. Get better.

beth (Mar 3, 2010 8:48:54 PM)
byr buddy

Buddy (Mar 3, 2010 8:49:09 PM)
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elliebedelia (Mar 3, 2010 8:49:12 PM)
night buddy

elliebedelia (Mar 3, 2010 8:49:33 PM)
but wouldn`t want to cause a scandle

PaRay (Mar 3, 2010 8:49:48 PM)
I am listed on the GPS satalite.

elliebedelia (Mar 3, 2010 8:50:00 PM)
oh I can find you

elliebedelia (Mar 3, 2010 8:50:36 PM)
good night everyone have a good week

PaRay (Mar 3, 2010 8:50:38 PM)
You can just float in like all of the rest of the free loaders.

elliebedelia (Mar 3, 2010 8:51:06 PM)
hey I will bring you some good donots to go with the coffee

elliebedelia (Mar 3, 2010 8:51:22 PM)
i can make really good donots

PaRay (Mar 3, 2010 8:51:44 PM)
Donut will get you a ticket.

elliebedelia (Mar 3, 2010 8:52:29 PM)
good I used to make 3 dozen every Sat. morning but not as often now

beth (Mar 3, 2010 8:52:46 PM)
dohuts are easy to make

elliebedelia (Mar 3, 2010 8:53:07 PM)
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PaRay (Mar 3, 2010 8:53:38 PM)
Hey Beth, Maybe we should give up.

beth (Mar 3, 2010 8:53:50 PM)
guess it's just mr and you ray

beth (Mar 3, 2010 8:54:18 PM)
do you want to

PaRay (Mar 3, 2010 8:54:25 PM)
Last of the moheakins however that is spelled.

beth (Mar 3, 2010 8:55:22 PM)
well we could go for this week abd reconnect nrxt week

PaRay (Mar 3, 2010 8:55:36 PM)
Last time I was in Texas I was at San Angalo.

PaRay (Mar 3, 2010 8:55:58 PM)
Not much there.

beth (Mar 3, 2010 8:56:19 PM)
i am not real close to there

PaRay (Mar 3, 2010 8:56:32 PM)
Was at the Goodyear tire testing center.

beth (Mar 3, 2010 8:56:53 PM)
ok

PaRay (Mar 3, 2010 8:57:03 PM)
I though it was further west.

beth (Mar 3, 2010 8:57:34 PM)
i don'f really know

PaRay (Mar 3, 2010 8:57:48 PM)
Did catch the plane at Dallas FW I think.

PaRay (Mar 3, 2010 8:58:09 PM)
That was 20 years ago.

beth (Mar 3, 2010 8:58:40 PM)
that;s the biggest air port clode by

beth (Mar 3, 2010 8:59:10 PM)
i need to go getting tired

PaRay (Mar 3, 2010 8:59:32 PM)
Catch you next week.

beth (Mar 3, 2010 8:59:37 PM)
ok

PaRay (Mar 3, 2010 8:59:40 PM)
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beth (Mar 3, 2010 8:59:42 PM)
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