Myotonic Chat Group

Wes (Oct 8, 2008 7:18:21 PM)
Hello?

PaRay (Oct 8, 2008 7:41:00 PM)
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Wes (Oct 8, 2008 7:41:09 PM)
Hi

PaRay (Oct 8, 2008 7:41:33 PM)
Hi Wes, How are you doing tonight?

Wes (Oct 8, 2008 7:41:55 PM)
I'm doing great. I just got a job interview

PaRay (Oct 8, 2008 7:42:32 PM)
That's great. What type of work?

Wes (Oct 8, 2008 7:42:57 PM)
Guest relations for an Apple Store.

PaRay (Oct 8, 2008 7:43:46 PM)
I didn't realize that Apple had stores.

Wes (Oct 8, 2008 7:44:24 PM)
Yeah they have, like, stores here in the malls that sell the computers direct from the manufacturer.

stephanie-w (Oct 8, 2008 7:44:56 PM)
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PaRay (Oct 8, 2008 7:45:02 PM)
I don't think that we have any in my area.

Wes (Oct 8, 2008 7:45:03 PM)
Hi

PaRay (Oct 8, 2008 7:45:20 PM)
Hey Steph, How goes it?

stephanie-w (Oct 8, 2008 7:45:22 PM)
hi

stephanie-w (Oct 8, 2008 7:45:41 PM)
doin ok

stephanie-w (Oct 8, 2008 7:45:51 PM)
stressed

stephanie-w (Oct 8, 2008 7:46:09 PM)
my step daughter is here for the week

PaRay (Oct 8, 2008 7:46:51 PM)
Wes..I think you are new to this chat,

Wes (Oct 8, 2008 7:47:18 PM)
Yeah, I met people who told me to get on at the Conference.

Wes (Oct 8, 2008 7:47:41 PM)
Just been really busy looking for a job to get on.

stephanie-w (Oct 8, 2008 7:48:08 PM)
I talked to Dr. Groh and Miram today they both really liked the conference

stephanie-w (Oct 8, 2008 7:48:59 PM)
I wished I could;ve gone but money is an issue

Wes (Oct 8, 2008 7:49:21 PM)
Yeah, It was part of my birthday gift.

elliebedelia (Oct 8, 2008 7:49:26 PM)
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Wes (Oct 8, 2008 7:49:35 PM)
Hi El

elliebedelia (Oct 8, 2008 7:49:37 PM)
good evening everyone

elliebedelia (Oct 8, 2008 7:49:57 PM)
How are you Wes have we met?

PaRay (Oct 8, 2008 7:50:04 PM)
Wes...You are welcome to the chat.

Wes (Oct 8, 2008 7:50:11 PM)
I don't know

Wes (Oct 8, 2008 7:50:24 PM)
I was at the conference

Wes (Oct 8, 2008 7:50:49 PM)
I'm still hving trouble remember ing who is who online.

elliebedelia (Oct 8, 2008 7:51:01 PM)
Oh I am from Ct. so I am unable to go but might like to someday

Wes (Oct 8, 2008 7:51:19 PM)
Ah. Well nice to meet you anyways.

Wes (Oct 8, 2008 7:51:45 PM)
I've been reading the transcripts so I knida know what's going on.

Wes (Oct 8, 2008 7:51:54 PM)
kinda

elliebedelia (Oct 8, 2008 7:52:01 PM)
yes and you too I am really from Vt and NH but living temporarely in Ct with family

PaRay (Oct 8, 2008 7:52:02 PM)
Hey Wes this is just one big family. Just jump in when you want.

Wes (Oct 8, 2008 7:52:35 PM)
Ah, I hear Ct is cold but beautiful this time of year.

elliebedelia (Oct 8, 2008 7:52:53 PM)
It has been freezing cold

elliebedelia (Oct 8, 2008 7:53:07 PM)
where are you from Wes?

elliebedelia (Oct 8, 2008 7:53:24 PM)
Pa has been cold too huh Ray?

Wes (Oct 8, 2008 7:53:27 PM)
Phoenix, Arizona. It got as cold as 89 today.

PaRay (Oct 8, 2008 7:53:39 PM)
No frost yet.

elliebedelia (Oct 8, 2008 7:54:04 PM)
It was in low 30`s this morning we have had 2 frosts

stephanie-w (Oct 8, 2008 7:54:08 PM)
Wes poor thing you did not get too cold did upiu>

Wes (Oct 8, 2008 7:54:16 PM)
Gack. Too cold for me.

PaRay (Oct 8, 2008 7:54:43 PM)
Wes …..We email chat reminders each week and also we publish a MMD newsletter, “Reaching Out”. If you would like reminders, send your email address to MDAASGchat@aol.com …If you would like the newsletter, include your name and postal address.

Wes (Oct 8, 2008 7:54:43 PM)
I actually had to wear jeans and a jacket this moring.

fluffy (Oct 8, 2008 7:54:53 PM)
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Wes (Oct 8, 2008 7:55:01 PM)
Already did Pa

stephanie-w (Oct 8, 2008 7:55:06 PM)
hi fluffy

elliebedelia (Oct 8, 2008 7:55:07 PM)
Hello fluffy

Wes (Oct 8, 2008 7:55:12 PM)
Hi fluffy

fluffy (Oct 8, 2008 7:55:27 PM)
hi everybody

PaRay (Oct 8, 2008 7:55:31 PM)
Hi Fluffy

fluffy (Oct 8, 2008 7:55:57 PM)
how is eveyone tonight?

Wes (Oct 8, 2008 7:56:04 PM)
Great.

elliebedelia (Oct 8, 2008 7:56:22 PM)
Ray how do I get into the mmd scrapbook I don`t have the address on how to do it now

stephanie-w (Oct 8, 2008 7:56:23 PM)
my step daughter is here

PaRay (Oct 8, 2008 7:57:33 PM)
Ellie I will work on that and get to you tomorrow or you can email Corey.

Wes (Oct 8, 2008 7:57:47 PM)
Could you let me know too?

elliebedelia (Oct 8, 2008 7:58:43 PM)
Ok that will be nice Ray if don`t hear from you I will ask Corey.

Wes (Oct 8, 2008 7:59:56 PM)
Angel overhead

elliebedelia (Oct 8, 2008 8:00:21 PM)
what do you mean Was ans who is Pa?

Wes (Oct 8, 2008 8:01:14 PM)
I mean a silence. When there is a silence over the phone or in a chat an angel just flew overhead.

PaRay (Oct 8, 2008 8:01:31 PM)
Ray from Pa or a pa named Ray Whatever.

elliebedelia (Oct 8, 2008 8:02:00 PM)
OK I guess i gor all confused for a minute

elliebedelia (Oct 8, 2008 8:02:46 PM)
I never heard about the angel

Wes (Oct 8, 2008 8:03:12 PM)
My dad uses it all the time.

fluffy (Oct 8, 2008 8:03:12 PM)
me either

PaRay (Oct 8, 2008 8:03:19 PM)
Call me what you want but remember to call me for dinner.

elliebedelia (Oct 8, 2008 8:03:21 PM)
and I just came back from a church meeting

Wes (Oct 8, 2008 8:03:31 PM)
Ah

elliebedelia (Oct 8, 2008 8:03:41 PM)
OK Pa

fluffy (Oct 8, 2008 8:03:44 PM)
i worked at church today

Wes (Oct 8, 2008 8:04:05 PM)
<--Is Bhuddist

stephanie-w (Oct 8, 2008 8:04:26 PM)
I went to chuch for dinner

elliebedelia (Oct 8, 2008 8:04:50 PM)
I love church dinners the food is always so good

elliebedelia (Oct 8, 2008 8:05:04 PM)
Do you go to a temple Wes?

Wes (Oct 8, 2008 8:05:33 PM)
The backyard is my temple. It's easier to meditate in nature for me.

stephanie-w (Oct 8, 2008 8:05:46 PM)
We do them on Wed we eat then have Bible study but my study was cancellled so I just went to eat

shelly (Oct 8, 2008 8:06:10 PM)
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elliebedelia (Oct 8, 2008 8:06:11 PM)
OIC

Wes (Oct 8, 2008 8:06:17 PM)
Hi Shelly

shelly (Oct 8, 2008 8:06:23 PM)
Man! It took me forecer to log in

shelly (Oct 8, 2008 8:06:29 PM)
Hi Wes

shelly (Oct 8, 2008 8:06:35 PM)
forever

vdoman (Oct 8, 2008 8:06:40 PM)
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elliebedelia (Oct 8, 2008 8:06:50 PM)
yes Shelly sometimes I have given up

vdoman (Oct 8, 2008 8:07:01 PM)
hi gang

Wes (Oct 8, 2008 8:07:06 PM)
Hi

stephanie-w (Oct 8, 2008 8:07:18 PM)
hi vdo

shelly (Oct 8, 2008 8:07:27 PM)
Wes, I'm not sure I remember you situation Can you fill me in?

PaRay (Oct 8, 2008 8:07:40 PM)
Hey Shelly is here.

Wes (Oct 8, 2008 8:07:46 PM)
In what way?

elliebedelia (Oct 8, 2008 8:07:50 PM)
Hi vdo do you happen to have the address for the mmd scrapbook?

shelly (Oct 8, 2008 8:07:50 PM)
I know my password, but something like the caps lock is on. . .

shelly (Oct 8, 2008 8:08:02 PM)
let the party start Ray!

vdoman (Oct 8, 2008 8:08:31 PM)
I will email it to you ellie

PaRay (Oct 8, 2008 8:08:36 PM)
You house or mine. The whole crowd is coming!!!!!!

Wes (Oct 8, 2008 8:08:38 PM)
What do you want to know Shelly?

shelly (Oct 8, 2008 8:08:56 PM)
you have MMd or caregiver or both?

elliebedelia (Oct 8, 2008 8:08:56 PM)
Do you enough company Ray so you have enough social life and all

Wes (Oct 8, 2008 8:10:31 PM)
My brother and I have MMD and my mom is our caregiver.

Snaped (Oct 8, 2008 8:10:49 PM)
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Wes (Oct 8, 2008 8:10:58 PM)
Hi Snaped

Snaped (Oct 8, 2008 8:11:09 PM)
hi wes

fluffy (Oct 8, 2008 8:11:09 PM)
wes how old are you?

Wes (Oct 8, 2008 8:11:13 PM)
27

fluffy (Oct 8, 2008 8:11:39 PM)
snaped is my husband

shelly (Oct 8, 2008 8:11:48 PM)
wes- how old were when you were diagnosed?

stephanie-w (Oct 8, 2008 8:11:56 PM)
oh hi snaped

elliebedelia (Oct 8, 2008 8:11:57 PM)
how are you Wes and your brother are far as your syptoms with the mmd

Wes (Oct 8, 2008 8:11:57 PM)
17

shelly (Oct 8, 2008 8:12:03 PM)
I was 25

shelly (Oct 8, 2008 8:12:13 PM)
changed my life

stephanie-w (Oct 8, 2008 8:12:16 PM)
I was 35

Snaped (Oct 8, 2008 8:12:29 PM)
Hi Stephanie

fluffy (Oct 8, 2008 8:12:33 PM)
iwas 28

stephanie-w (Oct 8, 2008 8:12:39 PM)
and a mom of a 3 ear old

shelly (Oct 8, 2008 8:12:41 PM)
I got a darn infectio from my surgery 2 weeks ago

elliebedelia (Oct 8, 2008 8:12:42 PM)
I was around 38

Wes (Oct 8, 2008 8:12:51 PM)
I'm less that he is he just has hip problems. I have jaw, hands, wrists, ankles, tongue, and neck.

PaRay (Oct 8, 2008 8:13:08 PM)
Shelly ... This ain't good.

Wes (Oct 8, 2008 8:13:10 PM)
I was going to be a Police officer.

shelly (Oct 8, 2008 8:13:15 PM)
WES-are you able to walk still?

stephanie-w (Oct 8, 2008 8:13:27 PM)
I was anurse

elliebedelia (Oct 8, 2008 8:13:37 PM)
Sounds like me Wes I have all those things too and cateracs in buth eyes

shelly (Oct 8, 2008 8:13:51 PM)
I went to urgent care on Saturday, during the FSU-Miami game(FSU won!!!!)

Wes (Oct 8, 2008 8:13:57 PM)
For short periods of time yes. I can spend about an hour with an hour of rest between

vdoman (Oct 8, 2008 8:14:08 PM)
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rachael_MMD (Oct 8, 2008 8:14:23 PM)
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Wes (Oct 8, 2008 8:14:30 PM)
Hi rachel

shelly (Oct 8, 2008 8:14:33 PM)
I have topical antibiotics and oral

shelly (Oct 8, 2008 8:14:40 PM)
RACHAEL!!!

elliebedelia (Oct 8, 2008 8:14:42 PM)
My hips are really beginning to bother going up and down stairs

Wes (Oct 8, 2008 8:14:45 PM)
er rachael

shelly (Oct 8, 2008 8:14:46 PM)
long time no talk

shelly (Oct 8, 2008 8:15:09 PM)
wes- I feel wiped out at the end of the day

rachael_MMD (Oct 8, 2008 8:15:14 PM)
Hi all

shelly (Oct 8, 2008 8:15:20 PM)
I'm on my feet all day it seems

PaRay (Oct 8, 2008 8:15:20 PM)
Before I forget. I probably will not be on the chat next week.

rachael_MMD (Oct 8, 2008 8:15:23 PM)
back at ya shelly

shelly (Oct 8, 2008 8:15:30 PM)
why not Ray?

rachael_MMD (Oct 8, 2008 8:15:39 PM)
shelly how you feelin today??

Wes (Oct 8, 2008 8:15:52 PM)
Yeah. I try to take it easy. I tend to stay off my feet and spend time lookin for a new job online.

elliebedelia (Oct 8, 2008 8:15:53 PM)
we will miss you Ray

PaRay (Oct 8, 2008 8:15:55 PM)
Going on another trip.

shelly (Oct 8, 2008 8:16:02 PM)
brochitis-I sound like a man

Wes (Oct 8, 2008 8:16:07 PM)
Where to Ray?

rachael_MMD (Oct 8, 2008 8:16:10 PM)
Oh man so sorry

shelly (Oct 8, 2008 8:16:11 PM)
how about Rachael?

shelly (Oct 8, 2008 8:16:20 PM)
where ya going Ray?

rachael_MMD (Oct 8, 2008 8:16:21 PM)
did you stay home from work??

shelly (Oct 8, 2008 8:16:32 PM)
I did and I have no sick time

PaRay (Oct 8, 2008 8:16:46 PM)
Back to my old home area in applicatia near Punxsutawney, PA

rachael_MMD (Oct 8, 2008 8:16:47 PM)
I had my abdominal ultrasound today

shelly (Oct 8, 2008 8:17:01 PM)
what did the results say?

Snaped (Oct 8, 2008 8:17:10 PM)
Fluffy had hip /stair problems too...she had a stair-lift put in for the basement....I can't escape her now :)

vdoman (Oct 8, 2008 8:17:14 PM)
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rachael_MMD (Oct 8, 2008 8:17:16 PM)
I'm ok, aaron is fighting naps this week so I am exhausted and frustrated

elliebedelia (Oct 8, 2008 8:17:21 PM)
I stay home at work it is nice working from home except I tend to eat too much

stephanie-w (Oct 8, 2008 8:17:25 PM)
lol

shelly (Oct 8, 2008 8:17:27 PM)
did you go to the neurologist

rachael_MMD (Oct 8, 2008 8:17:36 PM)
they didn't give me results today

rachael_MMD (Oct 8, 2008 8:17:46 PM)
that's next week

vdoman (Oct 8, 2008 8:17:53 PM)
I will send it to you wes

Wes (Oct 8, 2008 8:18:01 PM)
Thanks

shelly (Oct 8, 2008 8:18:13 PM)
I want test results the day they are administered

shelly (Oct 8, 2008 8:18:18 PM)
is that too much to ask

rachael_MMD (Oct 8, 2008 8:18:19 PM)
me too

stephanie-w (Oct 8, 2008 8:18:23 PM)
snaped you ad fluffy and your son all need to come to the MMD meetings we ahve

Wes (Oct 8, 2008 8:18:37 PM)
Sometimes thay have to send it to a specialist.

rachael_MMD (Oct 8, 2008 8:18:39 PM)
hopefully next week

stephanie-w (Oct 8, 2008 8:18:41 PM)
we have

Snaped (Oct 8, 2008 8:18:51 PM)
YES SHE SHOULD...I have to work on Sat

beth (Oct 8, 2008 8:19:04 PM)
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rachael_MMD (Oct 8, 2008 8:19:09 PM)
hi beth

shelly (Oct 8, 2008 8:19:10 PM)
hi beth

Wes (Oct 8, 2008 8:19:11 PM)
Hi Beth

stephanie-w (Oct 8, 2008 8:19:17 PM)
we missed her last month

stephanie-w (Oct 8, 2008 8:19:29 PM)
and her son too

shelly (Oct 8, 2008 8:19:31 PM)
beth-you have the same AFO'ss am me?

beth (Oct 8, 2008 8:19:34 PM)
hi everyone

shelly (Oct 8, 2008 8:19:40 PM)
Tru-life Matrix

beth (Oct 8, 2008 8:20:23 PM)
i don't have AFO's

Wes (Oct 8, 2008 8:20:27 PM)
AFK BRB

shelly (Oct 8, 2008 8:20:40 PM)
sorry-I can't remeber who has them on here

fluffy (Oct 8, 2008 8:20:47 PM)
my husband is a jerk last month my son had a chronic cough and the one before that we both did not feel well

PaRay (Oct 8, 2008 8:20:47 PM)
I have UFO's !!!!!!!!!!!!!!

stephanie-w (Oct 8, 2008 8:20:49 PM)
Fluffy if you need a ride let me know I usually ride with my dad but thy have a Denali

shelly (Oct 8, 2008 8:20:59 PM)
LOL ray

rachael_MMD (Oct 8, 2008 8:21:00 PM)
HA Pay

rachael_MMD (Oct 8, 2008 8:21:05 PM)
oops ray

elliebedelia (Oct 8, 2008 8:21:08 PM)
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shelly (Oct 8, 2008 8:21:28 PM)
I think I need to go for a spin in the dryer Ray

Wes (Oct 8, 2008 8:21:36 PM)
Back

beth (Oct 8, 2008 8:21:42 PM)
i don't feel much like chatting

shelly (Oct 8, 2008 8:21:47 PM)
help this cough loosen up

Wes (Oct 8, 2008 8:22:01 PM)
That's okay Beth.

rachael_MMD (Oct 8, 2008 8:22:08 PM)
did the doctor give you something for it shelly?

PaRay (Oct 8, 2008 8:22:10 PM)
I just do the washing machine and keep aggating.

shelly (Oct 8, 2008 8:22:41 PM)
not for the bronchitis. I'm on antibiotics for the skin infection

rachael_MMD (Oct 8, 2008 8:22:47 PM)
Shelly told me some stories about you ray

Wes (Oct 8, 2008 8:22:47 PM)
Doesn't that lead to ulcers Ray?

shelly (Oct 8, 2008 8:23:08 PM)
hopefully they will help the bronchitis

PaRay (Oct 8, 2008 8:23:08 PM)
Other people not me.

Wes (Oct 8, 2008 8:23:19 PM)
lol

shelly (Oct 8, 2008 8:23:47 PM)
Ray you keep me laughing

shelly (Oct 8, 2008 8:24:20 PM)
you feeling bad beth?

rachael_MMD (Oct 8, 2008 8:24:21 PM)
oooooooo I took a great spill at the doctor today

PaRay (Oct 8, 2008 8:24:28 PM)
Shelly..I don't know anything importatnt.

shelly (Oct 8, 2008 8:24:30 PM)
oh no!

vdoman (Oct 8, 2008 8:24:32 PM)
today is yom kipper We are going to Temple and eat dinner. That why mm and bette are not on

beth (Oct 8, 2008 8:24:32 PM)
no just bired

rachael_MMD (Oct 8, 2008 8:24:33 PM)
you sould see my knees

fluffy (Oct 8, 2008 8:24:45 PM)
are you ok?

shelly (Oct 8, 2008 8:24:50 PM)
happy Yom Kipper

vdoman (Oct 8, 2008 8:24:58 PM)
thank you

shelly (Oct 8, 2008 8:25:09 PM)
I'm so I can't remeber-is that the new year or fasting?

rachael_MMD (Oct 8, 2008 8:25:26 PM)
ya, just more sore than usual and need a new pair of pants, the knees are torn up

vdoman (Oct 8, 2008 8:25:29 PM)
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vdoman (Oct 8, 2008 8:25:34 PM)
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beth (Oct 8, 2008 8:25:47 PM)
wc back corey

PaRay (Oct 8, 2008 8:25:59 PM)
Rachael you must have landed hard.

shelly (Oct 8, 2008 8:26:04 PM)
good that you wear pants- I busted butt in highs

shelly (Oct 8, 2008 8:26:10 PM)
knee highs

Snaped (Oct 8, 2008 8:26:16 PM)
Steph,I see you're dice icon...Have you tried the new Indiana casinos...Next local meeting there and Fluff will go

vdoman (Oct 8, 2008 8:26:21 PM)
New year is rosh rhosana

rachael_MMD (Oct 8, 2008 8:26:32 PM)
oh man I sure did. I fell up some stairs

shelly (Oct 8, 2008 8:26:42 PM)
I should kno-my husband's father is Jewish

stephanie-w (Oct 8, 2008 8:26:45 PM)
No I just like the red

shelly (Oct 8, 2008 8:26:54 PM)
he was raised a Christian

vdoman (Oct 8, 2008 8:27:06 PM)
bye everyone tc

Snaped (Oct 8, 2008 8:27:10 PM)
fluff has a gambling problem :(

Wes (Oct 8, 2008 8:27:12 PM)
Bye

vdoman (Oct 8, 2008 8:27:16 PM)
(This user has left DigiChat)

beth (Oct 8, 2008 8:27:16 PM)
byw corey

rachael_MMD (Oct 8, 2008 8:27:17 PM)
bye vdoman

fluffy (Oct 8, 2008 8:27:24 PM)
I do not mike does

Snaped (Oct 8, 2008 8:27:40 PM)
no, she loses...I win

PaRay (Oct 8, 2008 8:27:46 PM)
You must not share the winnings..

fluffy (Oct 8, 2008 8:27:46 PM)
true

stephanie-w (Oct 8, 2008 8:27:53 PM)
lol

Wes (Oct 8, 2008 8:27:56 PM)
lol

stephanie-w (Oct 8, 2008 8:28:33 PM)
I went to one the riverboat I brke even James lost

Snaped (Oct 8, 2008 8:28:46 PM)
what she does not know will not hurt me

stephanie-w (Oct 8, 2008 8:29:30 PM)
James gets a limit

shelly (Oct 8, 2008 8:29:49 PM)
Does anyone here wathc Project Runway?

rachael_MMD (Oct 8, 2008 8:29:54 PM)
nope

fluffy (Oct 8, 2008 8:29:57 PM)
is james your husband or your father

Wes (Oct 8, 2008 8:30:01 PM)
Nope

stephanie-w (Oct 8, 2008 8:30:02 PM)
no

shelly (Oct 8, 2008 8:30:05 PM)
my brother loves it

beth (Oct 8, 2008 8:30:15 PM)
the last time i went to a casino i won $7 dollars

rachael_MMD (Oct 8, 2008 8:30:20 PM)
I think your brother is a bit weird

stephanie-w (Oct 8, 2008 8:30:21 PM)
James is ny husband

shelly (Oct 8, 2008 8:30:30 PM)
he's out there Rachael

stephanie-w (Oct 8, 2008 8:30:36 PM)
Don is my dad

shelly (Oct 8, 2008 8:30:56 PM)
His roomate is gay, but my brother is straight

rachael_MMD (Oct 8, 2008 8:31:09 PM)
You told me that, still a bit weird

rachael_MMD (Oct 8, 2008 8:31:18 PM)
lol

shelly (Oct 8, 2008 8:31:23 PM)
he got burned so bad by the two meanest women in Texas

shelly (Oct 8, 2008 8:31:46 PM)
He is such a nice guy I don't understand it

stephanie-w (Oct 8, 2008 8:31:46 PM)
Scott is my brother Norma is my mom Emily is my wonderful daughter And Devon is my evil step daughter

beth (Oct 8, 2008 8:31:48 PM)
i live in texas and i am not mean

rachael_MMD (Oct 8, 2008 8:31:55 PM)
Those Texas chics are tough

rachael_MMD (Oct 8, 2008 8:32:06 PM)
oops sorry beth

shelly (Oct 8, 2008 8:32:11 PM)
these two were and still are out to lunch

shelly (Oct 8, 2008 8:32:36 PM)
My brother and his som have MMD

shelly (Oct 8, 2008 8:32:44 PM)
son

beth (Oct 8, 2008 8:32:46 PM)
that's ok rachel not all texas women are mean

stephanie-w (Oct 8, 2008 8:33:00 PM)
My brother canot have kids

rachael_MMD (Oct 8, 2008 8:33:13 PM)
I'm new to the south, I am feom ohio by nature

shelly (Oct 8, 2008 8:33:19 PM)
me neither- I got my tubes tied

beth (Oct 8, 2008 8:33:19 PM)
i can't have kids either

Snaped (Oct 8, 2008 8:33:26 PM)
OH

rachael_MMD (Oct 8, 2008 8:33:33 PM)
me neither, hystorectomy

Wes (Oct 8, 2008 8:33:36 PM)
I hope to have kids (Adopted though)

stephanie-w (Oct 8, 2008 8:33:40 PM)
It works out real well because his mother in law has mmd

rachael_MMD (Oct 8, 2008 8:33:43 PM)
I adopted Wes

shelly (Oct 8, 2008 8:33:44 PM)
My brother got a vasectomy a few years ago

Wes (Oct 8, 2008 8:34:02 PM)
My dad did later in life.

rachael_MMD (Oct 8, 2008 8:34:02 PM)
My son's a cutie, I think

shelly (Oct 8, 2008 8:34:11 PM)
we think my sis has it too

beth (Oct 8, 2008 8:34:14 PM)
i had a hystrorectomy to rachel

fluffy (Oct 8, 2008 8:34:25 PM)
I have one but shouldn't have had any

stephanie-w (Oct 8, 2008 8:34:30 PM)
I had Emily had 3 years later I was diagnosed

shelly (Oct 8, 2008 8:34:31 PM)
Your son is so adorable Rachael

rachael_MMD (Oct 8, 2008 8:34:32 PM)
fun operation huh?? lol

rachael_MMD (Oct 8, 2008 8:34:42 PM)
thanks shelly

shelly (Oct 8, 2008 8:35:03 PM)
I can't think of a better way to spend an afternoon

stephanie-w (Oct 8, 2008 8:35:10 PM)
My hysterectomy was not that bad

rachael_MMD (Oct 8, 2008 8:35:30 PM)
I had a 12 inch insicion

stephanie-w (Oct 8, 2008 8:35:31 PM)
I was in the hosp for 4 days

beth (Oct 8, 2008 8:35:35 PM)
i don't like talking about mine

shelly (Oct 8, 2008 8:35:38 PM)
I watched the procedure (endometriosis) on you tube

rachael_MMD (Oct 8, 2008 8:36:02 PM)
My insurance kicked me out in 2 1/2 days

shelly (Oct 8, 2008 8:36:11 PM)
It was 4 minutes long, but I couldn't watch the whole thing

rachael_MMD (Oct 8, 2008 8:36:37 PM)
I'm glad I did it but man it was awful

rachael_MMD (Oct 8, 2008 8:36:54 PM)
That was just this last february

shelly (Oct 8, 2008 8:36:58 PM)
I can't even imagine what my bills wil lbe like

shelly (Oct 8, 2008 8:37:09 PM)
I am thankful to have good insurance

beth (Oct 8, 2008 8:37:23 PM)
i am on medicade

shelly (Oct 8, 2008 8:37:36 PM)
they cover a lot beth?

stephanie-w (Oct 8, 2008 8:37:45 PM)
I have medicare

beth (Oct 8, 2008 8:37:49 PM)
it pays most of ny dr bills

rachael_MMD (Oct 8, 2008 8:37:53 PM)
Our insurance is good, but only for certain things

shelly (Oct 8, 2008 8:37:56 PM)
that's good beth

rachael_MMD (Oct 8, 2008 8:38:20 PM)
How old were you all for your hyst. I am 33

beth (Oct 8, 2008 8:38:39 PM)
ehry will only cover things tht ar medically necessary

stephanie-w (Oct 8, 2008 8:38:39 PM)
39

shelly (Oct 8, 2008 8:38:56 PM)
I got coverage-life-dental-medical-short term and long term disability while there were no helath questions

beth (Oct 8, 2008 8:39:13 PM)
i was 44

fluffy (Oct 8, 2008 8:39:18 PM)
39 only a partial hystorectomy

shelly (Oct 8, 2008 8:39:20 PM)
it's about $153 a month payroll deduction

rachael_MMD (Oct 8, 2008 8:39:28 PM)
I have 1 ovary left

beth (Oct 8, 2008 8:39:49 PM)
i had A COPLETE ONE

stephanie-w (Oct 8, 2008 8:39:50 PM)
I had them take everything

shelly (Oct 8, 2008 8:39:55 PM)
I hope that this endometriosis does not return-but I heard it's like 40% recuurence rate

rachael_MMD (Oct 8, 2008 8:40:07 PM)
mine did shelly

stephanie-w (Oct 8, 2008 8:40:14 PM)
Don't want have anothersugery

Snaped (Oct 8, 2008 8:40:19 PM)
(quote)I have one but should not have had any(quote) Ummn,Fluffy & I have a son,untested and showing no syptoms-Hystorectomy was after dianosis

shelly (Oct 8, 2008 8:40:33 PM)
I will not have any elective surgery ever

stephanie-w (Oct 8, 2008 8:40:39 PM)
I has an ovary removed when I was 17

shelly (Oct 8, 2008 8:40:53 PM)
necessary-of course, but nothing else

beth (Oct 8, 2008 8:41:17 PM)
i will have to have heart surgery in the future

shelly (Oct 8, 2008 8:41:27 PM)
I don't care if my whole body sags-they have shapewear for that

rachael_MMD (Oct 8, 2008 8:41:32 PM)
LOL

rachael_MMD (Oct 8, 2008 8:41:50 PM)
So far my heart looks ok

shelly (Oct 8, 2008 8:42:00 PM)
I keep L'egg's pantyhose in business

fluffy (Oct 8, 2008 8:42:00 PM)
mine too

Wes (Oct 8, 2008 8:42:14 PM)
I'm thinking I'll probably have a pace-defib put in.

beth (Oct 8, 2008 8:42:16 PM)
my miteral valve is leaking

rachael_MMD (Oct 8, 2008 8:42:27 PM)
oh man shelly

rachael_MMD (Oct 8, 2008 8:42:29 PM)
oops

rachael_MMD (Oct 8, 2008 8:42:32 PM)
beth

shelly (Oct 8, 2008 8:42:33 PM)
that's not a bad idea Wes

stephanie-w (Oct 8, 2008 8:42:37 PM)
50/50 chance kids can get it

shelly (Oct 8, 2008 8:42:53 PM)
I've considered it

stephanie-w (Oct 8, 2008 8:42:56 PM)
emily does not show signs

beth (Oct 8, 2008 8:43:08 PM)
i will have to have a pace maker to

rachael_MMD (Oct 8, 2008 8:43:15 PM)
Considering that's how my mom died, I keep a close eye on it, she had no signs though

Wes (Oct 8, 2008 8:43:19 PM)
I was in a study to check to see if that was neccesary. Iam a good candiddate.

stephanie-w (Oct 8, 2008 8:43:23 PM)
I have a pacemaker

rachael_MMD (Oct 8, 2008 8:43:42 PM)
MMD really sucks

stephanie-w (Oct 8, 2008 8:43:59 PM)
I was in a study too and I am a candidate and now have one

shelly (Oct 8, 2008 8:44:02 PM)
Especially when I told my husband that many people have significant problems later in their 60's

Wes (Oct 8, 2008 8:44:03 PM)
Yeah it does but...

beth (Oct 8, 2008 8:44:05 PM)
my mom had MMD but was never diagnosed

stephanie-w (Oct 8, 2008 8:44:19 PM)
Just saw Dr. Groh today

shelly (Oct 8, 2008 8:44:26 PM)
he was crying and asking if I would be around in another20 years

Wes (Oct 8, 2008 8:44:32 PM)
Yea I was in his study.

shelly (Oct 8, 2008 8:44:42 PM)
gets me choked up to write about it

beth (Oct 8, 2008 8:45:07 PM)
has anyone got their flu shot yet

rachael_MMD (Oct 8, 2008 8:45:08 PM)
My mom was misdiagnosed for about 30 years

shelly (Oct 8, 2008 8:45:14 PM)
not yet

rachael_MMD (Oct 8, 2008 8:45:14 PM)
not yet beth

fluffy (Oct 8, 2008 8:45:15 PM)
my mom and I were in the study also

Wes (Oct 8, 2008 8:45:21 PM)
The MMD is sometimes harder on the people we love.

shelly (Oct 8, 2008 8:45:25 PM)
I guess I need to roll up my sleeve

Snaped (Oct 8, 2008 8:45:37 PM)
surprized they found Fluffys heart....and it was fine

shelly (Oct 8, 2008 8:45:38 PM)
so true WES

rachael_MMD (Oct 8, 2008 8:45:45 PM)
I think so Wes.

stephanie-w (Oct 8, 2008 8:45:56 PM)
My dad has it and is 65 and doing ok

rachael_MMD (Oct 8, 2008 8:45:58 PM)
It was harder to see my mom suffer than myself

fluffy (Oct 8, 2008 8:45:59 PM)
I'm going to get my flu shot the 19th at church

Wes (Oct 8, 2008 8:46:04 PM)
I don't ever get flu shots. The first one I had made me sicker than a dog.

beth (Oct 8, 2008 8:46:11 PM)
i am waiting for MDA to come to the hospital so i do;t have to pay for it

PaRay (Oct 8, 2008 8:46:47 PM)
Wes ... How along ago did you get a shot?

Wes (Oct 8, 2008 8:46:50 PM)
Yeah, my mom cried harder than I did. It broke my heart to see her feeling so bad.

stephanie-w (Oct 8, 2008 8:47:00 PM)
I need to get one I helpsomeone during the flu season she usually gives me a free one

Wes (Oct 8, 2008 8:47:09 PM)
Ray, about 3 years ago.

shelly (Oct 8, 2008 8:47:16 PM)
We need to get some aggressive testing going in Rochester and everywhere else around the world

fluffy (Oct 8, 2008 8:47:22 PM)
I get one every year

rachael_MMD (Oct 8, 2008 8:47:49 PM)
me too fluffy

beth (Oct 8, 2008 8:47:50 PM)
i need to go for now see ya'll next week

rachael_MMD (Oct 8, 2008 8:47:55 PM)
bye beth

beth (Oct 8, 2008 8:47:57 PM)
(This user has left DigiChat)

Wes (Oct 8, 2008 8:47:58 PM)
Bye Beth

shelly (Oct 8, 2008 8:48:18 PM)
There is a section of French-Canadian people that has a large MMD population

stephanie-w (Oct 8, 2008 8:48:41 PM)
interesting

Snaped (Oct 8, 2008 8:48:46 PM)
I think when W gets out of office,Reseach may get a boost

rachael_MMD (Oct 8, 2008 8:48:56 PM)
I hope

stephanie-w (Oct 8, 2008 8:49:04 PM)
mee too

Wes (Oct 8, 2008 8:49:05 PM)
There's also a large population in Scotland too.

fluffy (Oct 8, 2008 8:49:11 PM)
I'm going too talk to youall hopefully next week because the week after that I have beef'n'boards goodnight

shelly (Oct 8, 2008 8:49:20 PM)
My uncle goes to Rochester a few times a year and they do drug trials, muscle biopsies,etc

Wes (Oct 8, 2008 8:49:20 PM)
Bye Fluffy

shelly (Oct 8, 2008 8:49:26 PM)
I am Scottish Wes

rachael_MMD (Oct 8, 2008 8:49:27 PM)
There is a large population in my family too

Wes (Oct 8, 2008 8:49:38 PM)
I'm Scottish descent

stephanie-w (Oct 8, 2008 8:49:43 PM)
bye

shelly (Oct 8, 2008 8:49:45 PM)
Scottish gradpa passed the gene

rachael_MMD (Oct 8, 2008 8:49:45 PM)
ok not a good joke

Wes (Oct 8, 2008 8:50:01 PM)
Dad passed it to me.

shelly (Oct 8, 2008 8:50:10 PM)
joke?

rachael_MMD (Oct 8, 2008 8:50:24 PM)
the population in my family comment

Snaped (Oct 8, 2008 8:50:24 PM)
direct descendant of Mary Stuart here!

stephanie-w (Oct 8, 2008 8:50:33 PM)
My dad is a scottish desent

shelly (Oct 8, 2008 8:50:47 PM)
who said it?

stephanie-w (Oct 8, 2008 8:50:51 PM)
My brtoher is Scott

stephanie-w (Oct 8, 2008 8:50:55 PM)
lol

Wes (Oct 8, 2008 8:50:55 PM)
Descendant of Arcibald MacKinlay here

rachael_MMD (Oct 8, 2008 8:51:00 PM)
Like I said bad joke (I said it)

Wes (Oct 8, 2008 8:51:02 PM)
lol

fluffy (Oct 8, 2008 8:51:12 PM)
(This user has left DigiChat)

shelly (Oct 8, 2008 8:51:18 PM)
oh-ok-one of my slow days

shelly (Oct 8, 2008 8:51:37 PM)
I need to do my Nintendo DS Brain-Age game

rachael_MMD (Oct 8, 2008 8:51:45 PM)
lol

shelly (Oct 8, 2008 8:52:01 PM)
I think I'm 75

Snaped (Oct 8, 2008 8:52:01 PM)
is that fun shelly?

Wes (Oct 8, 2008 8:52:03 PM)
lol

stephanie-w (Oct 8, 2008 8:52:13 PM)
Somone told me dad can not pass it on to thier chilren

Wes (Oct 8, 2008 8:52:15 PM)
I have it too. I like it for the Sudoku.

rachael_MMD (Oct 8, 2008 8:52:19 PM)
I feel like I'm about 90 today

shelly (Oct 8, 2008 8:52:33 PM)
yes it is because no matter what people say about adults with MMD, our minds don't stay sharp

rachael_MMD (Oct 8, 2008 8:52:33 PM)
No nap for the 2 year old means no nap for the mommy

Snaped (Oct 8, 2008 8:52:35 PM)
looking for something for Fluff

stephanie-w (Oct 8, 2008 8:52:35 PM)
my dad did to both of his children

Wes (Oct 8, 2008 8:52:44 PM)
Stephanie-congenital only

shelly (Oct 8, 2008 8:53:02 PM)
at least I think so

rachael_MMD (Oct 8, 2008 8:53:10 PM)
My brother refuses to get tested

shelly (Oct 8, 2008 8:53:21 PM)
I got to get to bed

rachael_MMD (Oct 8, 2008 8:53:31 PM)
ok we'll talk soon shelly

Wes (Oct 8, 2008 8:53:35 PM)
Well, dinnertime laters everyone.

rachael_MMD (Oct 8, 2008 8:53:40 PM)
take care

Wes (Oct 8, 2008 8:53:47 PM)
(This user has left DigiChat)

shelly (Oct 8, 2008 8:53:49 PM)
I'll see you all on the chat nest week-rachael sooner:)

shelly (Oct 8, 2008 8:53:56 PM)
nite

Snaped (Oct 8, 2008 8:53:57 PM)
I bought her a Wii and she will use that.

rachael_MMD (Oct 8, 2008 8:54:05 PM)
night

shelly (Oct 8, 2008 8:54:13 PM)
a wii is sooooo fun!

stephanie-w (Oct 8, 2008 8:54:13 PM)
Tha tis fun

shelly (Oct 8, 2008 8:54:19 PM)
sleep wel leveryone!!!!

shelly (Oct 8, 2008 8:54:22 PM)
(This user has left DigiChat)

Snaped (Oct 8, 2008 8:54:28 PM)
NEW SOUTHPARK!!!!!

stephanie-w (Oct 8, 2008 8:54:40 PM)
We bought Emily one

Snaped (Oct 8, 2008 8:54:46 PM)
Im out,GN everyone

rachael_MMD (Oct 8, 2008 8:54:53 PM)
ok my hubby is wanting to talk so I gotta go!

rachael_MMD (Oct 8, 2008 8:55:04 PM)
Good night everyone

Snaped (Oct 8, 2008 8:55:05 PM)
(This user has left DigiChat)

stephanie-w (Oct 8, 2008 8:55:08 PM)
bye snaped nice meeting you

rachael_MMD (Oct 8, 2008 8:55:29 PM)
(This user has left DigiChat)

PaRay (Oct 8, 2008 8:56:23 PM)
I guess everyone else gave up.

stephanie-w (Oct 8, 2008 8:56:36 PM)
I guess so

PaRay (Oct 8, 2008 8:57:07 PM)
Was interesting while it lasted. LOL

stephanie-w (Oct 8, 2008 8:57:27 PM)
yeah it was it was busy

stephanie-w (Oct 8, 2008 8:58:04 PM)
everyone talking about thir own thing

PaRay (Oct 8, 2008 8:58:04 PM)
I guess I will give up too. Have a good week.

stephanie-w (Oct 8, 2008 8:58:13 PM)
you too

PaRay (Oct 8, 2008 8:58:17 PM)
(This user has left DigiChat)

stephanie-w (Oct 8, 2008 8:58:19 PM)
(This user has left DigiChat)

iris1 (Oct 8, 2008 9:05:59 PM)
(This user has entered Myotonic Chat Group)

iris1 (Oct 8, 2008 9:09:47 PM)
(This user has left DigiChat)