Mitochondrial Chat

sweetheaven (Nov 9, 2009 7:03:59 PM)
Hello Everyone

sweetheaven (Nov 9, 2009 7:04:06 PM)
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sweetheaven (Nov 9, 2009 7:06:41 PM)
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sweetheaven (Nov 9, 2009 7:07:31 PM)
hello

sweetheaven (Nov 9, 2009 7:08:30 PM)
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sweetheaven (Nov 9, 2009 7:11:38 PM)
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sweetheaven (Nov 9, 2009 7:11:43 PM)
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sweetheaven (Nov 9, 2009 7:12:10 PM)
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sweetheaven (Nov 9, 2009 7:12:21 PM)
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sweetheaven (Nov 9, 2009 7:12:32 PM)
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sweetheaven (Nov 9, 2009 7:12:34 PM)
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sweetheaven (Nov 9, 2009 7:18:05 PM)
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sweetheaven (Nov 9, 2009 7:18:17 PM)
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sweetheaven (Nov 9, 2009 7:26:30 PM)
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sweetheaven (Nov 9, 2009 7:26:44 PM)
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paper (Nov 9, 2009 7:40:24 PM)
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sweetheaven (Nov 9, 2009 7:45:46 PM)
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paper (Nov 9, 2009 7:45:54 PM)
hi

sweetheaven (Nov 9, 2009 7:45:54 PM)
hello

paper (Nov 9, 2009 7:46:05 PM)
how are u

sweetheaven (Nov 9, 2009 7:46:24 PM)
I am good

sweetheaven (Nov 9, 2009 7:46:28 PM)
and you

paper (Nov 9, 2009 7:46:34 PM)
is this your first time

paper (Nov 9, 2009 7:46:38 PM)
i am good

sweetheaven (Nov 9, 2009 7:46:57 PM)
yeah in this chat I have not been on in a couple of years

paper (Nov 9, 2009 7:47:08 PM)
well welcome bk\

paper (Nov 9, 2009 7:47:35 PM)
i have central core md how about u

sweetheaven (Nov 9, 2009 7:48:33 PM)
i have Myotonia Md

paper (Nov 9, 2009 7:48:46 PM)
nice to know u

sweetheaven (Nov 9, 2009 7:48:53 PM)
nice to know you too

paper (Nov 9, 2009 7:49:32 PM)
what would you like to chat about

sweetheaven (Nov 9, 2009 7:50:35 PM)
don't really know it has been awhile sence i been in the MD chat rooms

sweetheaven (Nov 9, 2009 7:50:48 PM)
why don't you start lol

paper (Nov 9, 2009 7:50:50 PM)
thats ok

paper (Nov 9, 2009 7:50:59 PM)
i am a mom of 2 i am 35

sweetheaven (Nov 9, 2009 7:51:27 PM)
I am a mom of 3 kids and I am a grandma at the age of 38

paper (Nov 9, 2009 7:51:42 PM)
wow that must be hard on you

sweetheaven (Nov 9, 2009 7:52:44 PM)
yeah it is sometimes but i try my hardest not to show how much i hurt with the MMD but my husband see the bad see of the Md

paper (Nov 9, 2009 7:52:44 PM)
i think iwould kill my son if he had a kid anytime soon

sweetheaven (Nov 9, 2009 7:53:12 PM)
lol my son is 17 and the daddie belive me i wanted too

paper (Nov 9, 2009 7:53:25 PM)
how long have you had md

sweetheaven (Nov 9, 2009 7:54:16 PM)
I was diagnosed in 2004 but i had it ever sence i was born but never knew it

sweetheaven (Nov 9, 2009 7:54:31 PM)
and how about your self how long

paper (Nov 9, 2009 7:54:47 PM)
that sound like me i was born with it but didnt find out till this past summer

paper (Nov 9, 2009 7:55:08 PM)
my dad also has ccdmd

sweetheaven (Nov 9, 2009 7:55:23 PM)
is yours fast progressing or slow

sweetheaven (Nov 9, 2009 7:55:31 PM)
my dad has MS and MMD

paper (Nov 9, 2009 7:55:33 PM)
fast for now

sweetheaven (Nov 9, 2009 7:55:51 PM)
mine is slow until it gets cold out

paper (Nov 9, 2009 7:55:59 PM)
wow that must be hard on him

paper (Nov 9, 2009 7:56:32 PM)
they think my kids have it too

sweetheaven (Nov 9, 2009 7:56:35 PM)
yeah he can't walk no more and he can't hold his great granddaughter

sweetheaven (Nov 9, 2009 7:56:43 PM)
they told me that too

paper (Nov 9, 2009 7:57:13 PM)
we havent tested them yet but they are showing signs

sweetheaven (Nov 9, 2009 7:57:19 PM)
but the way i see it let them be kids until they start having the same problems I did

paper (Nov 9, 2009 7:57:38 PM)
ya

sweetheaven (Nov 9, 2009 7:57:40 PM)
my daughter might have MS or MD in her eyes I am scared for her

paper (Nov 9, 2009 7:58:16 PM)
have you signed up for mdaonline community yet

sweetheaven (Nov 9, 2009 7:58:37 PM)
the eye dr's are doing so many test now that it is making me stressed out

sweetheaven (Nov 9, 2009 7:58:49 PM)
i don't know

sweetheaven (Nov 9, 2009 7:59:08 PM)
i don't think so

paper (Nov 9, 2009 7:59:27 PM)
ya i bet i have had so much done to me this year i pd my out of pocket and reg deductible bk in march

paper (Nov 9, 2009 7:59:40 PM)
let me give you the web addy

sweetheaven (Nov 9, 2009 8:00:01 PM)
ok and that is the Number one thing that progress MD

sweetheaven (Nov 9, 2009 8:00:11 PM)
Stress

paper (Nov 9, 2009 8:00:11 PM)
http://mymda.mda.org/service/displayHomePageExperience.kickAction?page=Homepage&as=84464

paper (Nov 9, 2009 8:00:25 PM)
yep it is in a lot of the md's

sweetheaven (Nov 9, 2009 8:00:26 PM)
i have it mymda i got it

paper (Nov 9, 2009 8:00:46 PM)
ok great how do you like mymda

sweetheaven (Nov 9, 2009 8:01:26 PM)
i can't figure out how to use it lol I am used to the old way with the chatroom

sweetheaven (Nov 9, 2009 8:01:37 PM)
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paper (Nov 9, 2009 8:01:58 PM)
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sweetheaven (Nov 9, 2009 8:02:08 PM)
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paper (Nov 9, 2009 8:02:08 PM)
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paper (Nov 9, 2009 8:02:16 PM)
wb

sweetheaven (Nov 9, 2009 8:02:18 PM)
sorry

sweetheaven (Nov 9, 2009 8:02:25 PM)
i got booted

paper (Nov 9, 2009 8:02:25 PM)
thats ok it happens

paper (Nov 9, 2009 8:02:44 PM)
mymda is kind of like face book

sweetheaven (Nov 9, 2009 8:02:58 PM)
well i have facebook

paper (Nov 9, 2009 8:02:59 PM)
you set up your profile

sweetheaven (Nov 9, 2009 8:03:06 PM)
started too

paper (Nov 9, 2009 8:03:07 PM)
and blog and

paper (Nov 9, 2009 8:03:09 PM)
stuff

sweetheaven (Nov 9, 2009 8:03:15 PM)
kinda

paper (Nov 9, 2009 8:03:17 PM)
join groups

sweetheaven (Nov 9, 2009 8:03:36 PM)
not really

paper (Nov 9, 2009 8:03:37 PM)
it is nice you can make friends

paper (Nov 9, 2009 8:03:54 PM)
or just read post

sweetheaven (Nov 9, 2009 8:04:02 PM)
i did that today

paper (Nov 9, 2009 8:04:16 PM)
my name on there is papermom

sweetheaven (Nov 9, 2009 8:04:46 PM)
mine is sweetheaven97

paper (Nov 9, 2009 8:04:50 PM)
you can add me to your friends list if you want

sweetheaven (Nov 9, 2009 8:05:07 PM)
how do i do that

sweetheaven (Nov 9, 2009 8:05:24 PM)
even tho ever time i go to my profile i get booted out of the chat

paper (Nov 9, 2009 8:05:50 PM)
when you get to my profile you go under my pic on the left hand side and you will see add as a friend

sweetheaven (Nov 9, 2009 8:06:05 PM)
ok let me try

paper (Nov 9, 2009 8:06:10 PM)
you have to open another pg

sweetheaven (Nov 9, 2009 8:06:24 PM)
oh

paper (Nov 9, 2009 8:06:40 PM)
you have to keep chat main pg open

paper (Nov 9, 2009 8:06:47 PM)
to stay in chat

sweetheaven (Nov 9, 2009 8:06:57 PM)
oh ok i am doing it lol

paper (Nov 9, 2009 8:07:16 PM)
lol

sweetheaven (Nov 9, 2009 8:08:04 PM)
ok is your pic of cats

paper (Nov 9, 2009 8:08:44 PM)
yep

sweetheaven (Nov 9, 2009 8:08:52 PM)
ok

sweetheaven (Nov 9, 2009 8:08:54 PM)
i found you

paper (Nov 9, 2009 8:09:08 PM)
aww sweet baby

sweetheaven (Nov 9, 2009 8:09:40 PM)
thank you

paper (Nov 9, 2009 8:09:40 PM)
i added u

sweetheaven (Nov 9, 2009 8:09:49 PM)
i did you too

paper (Nov 9, 2009 8:09:56 PM)
is that your grandbaby

paper (Nov 9, 2009 8:10:01 PM)
great

paper (Nov 9, 2009 8:10:23 PM)
i got more pics and videos on there too

sweetheaven (Nov 9, 2009 8:10:44 PM)
kool i will look at them later

paper (Nov 9, 2009 8:10:57 PM)
cool ill have to look at your to later

sweetheaven (Nov 9, 2009 8:11:00 PM)
paper question for you

paper (Nov 9, 2009 8:11:04 PM)
k

sweetheaven (Nov 9, 2009 8:11:38 PM)
do you have yahoo or aol this way if we both are not in the chat room we can stay in touch threw one of those lol

paper (Nov 9, 2009 8:11:48 PM)
sure

paper (Nov 9, 2009 8:12:00 PM)
it is laustin316@yahoo.com

paper (Nov 9, 2009 8:12:42 PM)
i might be hosting the lgmd chat and the lgmd a1 chats

paper (Nov 9, 2009 8:12:53 PM)
i am in most of them all week

sweetheaven (Nov 9, 2009 8:13:05 PM)
mine is bratoldme702@aol.com

paper (Nov 9, 2009 8:13:08 PM)
all but the als chats

sweetheaven (Nov 9, 2009 8:13:08 PM)
kool

paper (Nov 9, 2009 8:14:09 PM)
i dont go in the als chats

sweetheaven (Nov 9, 2009 8:14:19 PM)
me either

sweetheaven (Nov 9, 2009 8:14:30 PM)
i add you to yahoo did you get mine

paper (Nov 9, 2009 8:14:33 PM)
but i go in the others most every night

paper (Nov 9, 2009 8:14:38 PM)
yep i got it

paper (Nov 9, 2009 8:14:43 PM)
ty

sweetheaven (Nov 9, 2009 8:14:52 PM)
ty and welcome

sweetheaven (Nov 9, 2009 8:15:09 PM)
are you in hiding lol

paper (Nov 9, 2009 8:15:15 PM)
so what do you like to do beside smooch on the cute little baby

paper (Nov 9, 2009 8:15:20 PM)
ya i am

paper (Nov 9, 2009 8:15:23 PM)
heheh

sweetheaven (Nov 9, 2009 8:15:25 PM)
me too

sweetheaven (Nov 9, 2009 8:15:35 PM)
lol shhh i won't tell

paper (Nov 9, 2009 8:16:37 PM)
heheh]

sweetheaven (Nov 9, 2009 8:16:42 PM)
lol

sweetheaven (Nov 9, 2009 8:18:09 PM)
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paper (Nov 9, 2009 9:02:03 PM)
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