Mitochondrial Chat
Jennifer-S (Mar 17, 2008 8:45:09 PM)
emtdas (Mar 17, 2008 8:45:49 PM)
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Jennifer-S (Mar 17, 2008 8:45:57 PM)
hi emt
scrod (Mar 17, 2008 8:46:13 PM)
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scrod (Mar 17, 2008 8:46:18 PM)
good evening
Jennifer-S (Mar 17, 2008 8:46:20 PM)
hi scrod
Jennifer-S (Mar 17, 2008 8:46:38 PM)
i saw your family article in Quest...good job
scrod (Mar 17, 2008 8:46:40 PM)
Hi Jenn, hi EMT
scrod (Mar 17, 2008 8:46:58 PM)
Oh thanks. My wife was sooo happy they put her age in hehehe
Jennifer-S (Mar 17, 2008 8:47:05 PM)
lol
Jennifer-S (Mar 17, 2008 8:47:11 PM)
i didn't even notice that
scrod (Mar 17, 2008 8:47:18 PM)
oops
emtdas (Mar 17, 2008 8:47:25 PM)
hi al
Jennifer-S (Mar 17, 2008 8:47:27 PM)
you can tell her
melh (Mar 17, 2008 8:47:44 PM)
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Jennifer-S (Mar 17, 2008 8:47:45 PM)
how are the girls emt?
Jennifer-S (Mar 17, 2008 8:47:48 PM)
hi mel
melh (Mar 17, 2008 8:48:07 PM)
When do we start the new time?
scrod (Mar 17, 2008 8:48:09 PM)
hi mel
Jennifer-S (Mar 17, 2008 8:48:24 PM)
what new time? i missed something
emtdas (Mar 17, 2008 8:48:45 PM)
lol jenn
scrod (Mar 17, 2008 8:48:51 PM)
We were going to go to 8 eastern (?)
emtdas (Mar 17, 2008 8:49:00 PM)
i dont think its been set in stone yet
Jennifer-S (Mar 17, 2008 8:49:04 PM)
oh ok thats fine
Jennifer-S (Mar 17, 2008 8:49:10 PM)
how did i miss that lol
melh (Mar 17, 2008 8:49:11 PM)
I thought it started this week...........
scrod (Mar 17, 2008 8:49:21 PM)
if it did we were all late
Jennifer-S (Mar 17, 2008 8:49:28 PM)
i'm glad it didn't...i would have been late
Jennifer-S (Mar 17, 2008 8:50:17 PM)
its probably in my e-mail somewhere...i'm very behind
emtdas (Mar 17, 2008 8:50:20 PM)
i dont think its starting til the summer
emtdas (Mar 17, 2008 8:50:27 PM)
yes jenn its in there likely
emtdas (Mar 17, 2008 8:50:34 PM)
did u all hear the awesome news
Jennifer-S (Mar 17, 2008 8:50:38 PM)
what?
melh (Mar 17, 2008 8:50:42 PM)
okay, this is super silly! but I usually make a chocolate dessert for during our chat, the microwave kind (I almost typed mitowave type....). Funny thing is that I smell chocolate baking and I have not even got it out of the cupboard!!
emtdas (Mar 17, 2008 8:50:43 PM)
mylil finally got zachs bed approved
emtdas (Mar 17, 2008 8:50:59 PM)
i am soo excited for them finally they could sleep soundly knowing hes safe
Jennifer-S (Mar 17, 2008 8:51:02 PM)
lol mel
Jennifer-S (Mar 17, 2008 8:51:07 PM)
thats great emt
scrod (Mar 17, 2008 8:51:08 PM)
oh Mel. this week the FDA came out with an updated list of vaccines with thimerasol. We had a conversation last week about that, was intersting to get the update email.
emtdas (Mar 17, 2008 8:51:27 PM)
it tookk dad taking pictures and showing how he is all hooked up for them to finally approve it
melh (Mar 17, 2008 8:51:28 PM)
interesting........ didn't see the list....
melh (Mar 17, 2008 8:51:43 PM)
this last flu shot hit me super hard though and they told me not to get another
Jennifer-S (Mar 17, 2008 8:51:52 PM)
i'm still on digest from my trip..i need to catch up
Jennifer-S (Mar 17, 2008 8:52:13 PM)
i can't have flu shots either
scrod (Mar 17, 2008 8:52:16 PM)
http://www.fda.gov/cber/vaccine/thimerosal.htm#t2
emtdas (Mar 17, 2008 8:52:25 PM)
ihave always been on digest its too much for me to keep up with it all
melh (Mar 17, 2008 8:52:34 PM)
i was frustrated though because they did not report it as a reaction... I guess they were trying to say it was mito related not shot related - remember I am not dx mito, my kids are...
Jennifer-S (Mar 17, 2008 8:52:39 PM)
a healthy 4 yr old died from the flu here this past week...so sad
emtdas (Mar 17, 2008 8:52:53 PM)
oh no jenn
Jennifer-S (Mar 17, 2008 8:53:13 PM)
it happens i guess
melh (Mar 17, 2008 8:53:30 PM)
the flu has been so bad here! We know two healthy adult men that have been ventilated because of the flu!
scrod (Mar 17, 2008 8:53:48 PM)
mass has had 4 flu deaths in kids
Jennifer-S (Mar 17, 2008 8:53:53 PM)
nobody i know has it thank god
emtdas (Mar 17, 2008 8:54:29 PM)
wow
Jennifer-S (Mar 17, 2008 8:54:29 PM)
i leave for NYC on Sun. have to stay healthy
melh (Mar 17, 2008 8:54:43 PM)
one of our "local" mito girls (i think she is close to four, or maybe just three?) just was admitted for high fever, possible flu
Jennifer-S (Mar 17, 2008 8:55:07 PM)
my monitor is humming...that can't be good
emtdas (Mar 17, 2008 8:55:07 PM)
mine havent got it but we do have a bad sinus infection going around.. it gave me cellulitis of the eye and broke some of my sinuses i have to go have surgery next week
Jennifer-S (Mar 17, 2008 8:55:28 PM)
not good emt
emtdas (Mar 17, 2008 8:55:34 PM)
wow mel it must be a strong strain
melh (Mar 17, 2008 8:55:44 PM)
cellulitis of the eye? never heard of it, but my friend just had cellulitis and it was a monster!
scrod (Mar 17, 2008 8:55:45 PM)
we have had a few things, but no hospitalizations because of flu stuff.
scrod (Mar 17, 2008 8:56:05 PM)
broekn sinuses. that sounds painful.
lfitzger (Mar 17, 2008 8:56:10 PM)
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melh (Mar 17, 2008 8:56:12 PM)
It is the flu strain that is most prevelent that was not in the vaccine this year
scrod (Mar 17, 2008 8:56:15 PM)
hi LF
lfitzger (Mar 17, 2008 8:56:17 PM)
Hi all
Jennifer-S (Mar 17, 2008 8:56:25 PM)
i just have cruise head. i had terrible vertigo and motion sickness on the cruise. still dizzy
Jennifer-S (Mar 17, 2008 8:56:28 PM)
hi lf
emtdas (Mar 17, 2008 8:56:37 PM)
yes the pressure from the sinsus infection caused inflammation in my eye sockets that caused the cellulitis it was awful i lost my vision for 3 completle days i treasure all i see now
melh (Mar 17, 2008 8:56:52 PM)
jenn, i'm sorry you are having lasting effects! how were you during the cruise?
emtdas (Mar 17, 2008 8:56:56 PM)
wuz it enjoyable jenn ... (not that i want you to brag LOL)
lfitzger (Mar 17, 2008 8:57:10 PM)
That sounds terrible emt
Jennifer-S (Mar 17, 2008 8:57:18 PM)
it was fun but i couldn't stand up[. i looked like a drunken sailor
Jennifer-S (Mar 17, 2008 8:57:40 PM)
wow emt thats terrib;e
emtdas (Mar 17, 2008 8:57:42 PM)
did u all know tht a sinus infection untreated can cause menigitis
melh (Mar 17, 2008 8:57:42 PM)
anyone use EES (small amount eyrithromyicin) for motility?
emtdas (Mar 17, 2008 8:57:56 PM)
yes we do mel on both girls and it works phenominal
scrod (Mar 17, 2008 8:57:59 PM)
we tried with my ds 16, but he had reactoins to it
melh (Mar 17, 2008 8:58:02 PM)
natalie was on reglan, but we just switched last week
lfitzger (Mar 17, 2008 8:58:08 PM)
yep -- not from experience, luckily
scrod (Mar 17, 2008 8:58:13 PM)
he also had seizures on reglan
emtdas (Mar 17, 2008 8:58:19 PM)
my 2 year ols is on 2.8 cc 3 x day and my 4 year old is on 3.8 cc 3 x day
scrod (Mar 17, 2008 8:58:20 PM)
so dom peridone is our last chance
Jennifer-S (Mar 17, 2008 8:58:33 PM)
mel my friend does and it helps...i'm deathly allergic or i would try it
emtdas (Mar 17, 2008 8:58:40 PM)
i took domperidone thats one odd med but it surely works
melh (Mar 17, 2008 8:58:55 PM)
i'm a tad bit nervous on introducing more antibiotics to her system that always has overgrown candida
melh (Mar 17, 2008 8:59:30 PM)
nat is on 3.125 (Try measuring that one!!) three times a day. She is 55 lbs
Jennifer-S (Mar 17, 2008 8:59:51 PM)
where do you get the domperidone?
scrod (Mar 17, 2008 9:00:29 PM)
we will ge tit from compounding pharmacy
emtdas (Mar 17, 2008 9:00:52 PM)
now my 4 year old is on 3.8 and shes 39 lbs
scrod (Mar 17, 2008 9:00:57 PM)
Dr. has to be licensed because it is not FDA approved
emtdas (Mar 17, 2008 9:01:03 PM)
i got mine from the compounding farmacy
melh (Mar 17, 2008 9:01:06 PM)
I went to gym today at school with her today and let her run (some walking, it was up to her, for three mintues) instead of walk and she got so overheated!! The overheated part gets worse after she stops! She was still flushed 45 mins later!
Jennifer-S (Mar 17, 2008 9:01:10 PM)
i know you can get it in canada
emtdas (Mar 17, 2008 9:01:20 PM)
i used it to increase milk supply when i was pumping for the girls
scrod (Mar 17, 2008 9:01:25 PM)
yeah, that is where it coems from in US
emtdas (Mar 17, 2008 9:01:36 PM)
yes i got some there when i went to the falls it was really cheap there
emtdas (Mar 17, 2008 9:01:44 PM)
same with clomid was super cheap there too
Jennifer-S (Mar 17, 2008 9:01:54 PM)
lol i'll walk across the bornder and get it then
emtdas (Mar 17, 2008 9:02:10 PM)
lol jenn watch though in women it causes them to lactate
Jennifer-S (Mar 17, 2008 9:02:22 PM)
lol oh my
emtdas (Mar 17, 2008 9:02:28 PM)
and it works fast lol
melh (Mar 17, 2008 9:02:37 PM)
though, selling milk is great money I've heard!
Jennifer-S (Mar 17, 2008 9:02:39 PM)
that would be hard to explain
mylilangel05 (Mar 17, 2008 9:02:41 PM)
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Jennifer-S (Mar 17, 2008 9:02:47 PM)
hi mylil
emtdas (Mar 17, 2008 9:02:47 PM)
lol yeh mel it is
scrod (Mar 17, 2008 9:02:48 PM)
hi mylil
mylilangel05 (Mar 17, 2008 9:02:49 PM)
hi everyone
melh (Mar 17, 2008 9:02:56 PM)
hey, how did it come out about his bed so quickly?
emtdas (Mar 17, 2008 9:03:02 PM)
they did a 20/20 type show here one woman was getting like $1.25 a oz
lfitzger (Mar 17, 2008 9:03:04 PM)
Hi mel
mylilangel05 (Mar 17, 2008 9:03:21 PM)
we sent pictures
melh (Mar 17, 2008 9:03:47 PM)
to insurance?
mylilangel05 (Mar 17, 2008 9:03:51 PM)
yea
melh (Mar 17, 2008 9:03:54 PM)
how is he now?
Jennifer-S (Mar 17, 2008 9:03:57 PM)
thats a great idea
mylilangel05 (Mar 17, 2008 9:04:30 PM)
is very crabby hes having severe leg cramps and in alot of pain right now
mylilangel05 (Mar 17, 2008 9:04:37 PM)
how is everyone
melh (Mar 17, 2008 9:04:41 PM)
anyone have any thoughts, comments, ideas on my post about 15 ago (scroll up)
Jennifer-S (Mar 17, 2008 9:05:11 PM)
mylil have you tried warm packs on his legs? they really help mine
mylilangel05 (Mar 17, 2008 9:05:21 PM)
yea tried everything
melh (Mar 17, 2008 9:05:49 PM)
my lil - how is his calcium?
hoodlum (Mar 17, 2008 9:05:51 PM)
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emtdas (Mar 17, 2008 9:05:53 PM)
mel u could try a cooling vest
lfitzger (Mar 17, 2008 9:05:58 PM)
Still working alot scrod?
hoodlum (Mar 17, 2008 9:06:01 PM)
Hi every1
mylilangel05 (Mar 17, 2008 9:06:03 PM)
its ok
mylilangel05 (Mar 17, 2008 9:06:06 PM)
hi hood
lfitzger (Mar 17, 2008 9:06:06 PM)
hi hood
Jennifer-S (Mar 17, 2008 9:06:07 PM)
hi hoodie
melh (Mar 17, 2008 9:06:25 PM)
yeah, we have one, I haven't tried it for gym... it seems like it is such an internal heating process going on
hoodlum (Mar 17, 2008 9:06:27 PM)
How was Hell Jenn?
scrod (Mar 17, 2008 9:06:31 PM)
hi hodie
emtdas (Mar 17, 2008 9:06:34 PM)
when starting off just 30 seconds is what pt starts mine off at when shes introducitn a new thing
Jennifer-S (Mar 17, 2008 9:06:48 PM)
hell was very rocky and dry...lots of iguanas
scrod (Mar 17, 2008 9:06:49 PM)
yes I am LF, but down below 60 hours a week now
emtdas (Mar 17, 2008 9:06:55 PM)
likely is mel but i dont think theres anythign else they can do for it
hoodlum (Mar 17, 2008 9:07:05 PM)
did you have a good cruise???
lfitzger (Mar 17, 2008 9:07:10 PM)
sounds like my son's schedule
Jennifer-S (Mar 17, 2008 9:07:28 PM)
now i can really say i've been to hell and back
emtdas (Mar 17, 2008 9:07:31 PM)
my youngest is sititng here singing tinkle tinkle little star
hoodlum (Mar 17, 2008 9:07:38 PM)
that's for sure!!! lol
hoodlum (Mar 17, 2008 9:07:42 PM)
awww
Jennifer-S (Mar 17, 2008 9:07:49 PM)
yes i did hood. terrible motion sickness though. still dizzy
melh (Mar 17, 2008 9:07:51 PM)
luckily the feeding team that is working with Natalie said that they are seeing some of the things I have been explaining to them
emtdas (Mar 17, 2008 9:07:54 PM)
its so cute i couldnt bear to send her back ot her room
hoodlum (Mar 17, 2008 9:08:02 PM)
lf, I haven't read emails yet... did mine make sense?
emtdas (Mar 17, 2008 9:08:21 PM)
mel they coud try uping her fluids with pedialyte esp before a workout therapy etc thats what we do
lfitzger (Mar 17, 2008 9:08:37 PM)
yes, it did hood. I'm trying to be patient until I see my MDA neuro
hoodlum (Mar 17, 2008 9:08:47 PM)
sorry about the motions sickness jenn... that would ruin it prettty fast... did you have anything for it... those bracelets?
hoodlum (Mar 17, 2008 9:09:15 PM)
sometimes patience is hard...especially when not feeling well...
Jennifer-S (Mar 17, 2008 9:09:22 PM)
i tried bracelots and meclizine...didn't work. i have bad ears
lfitzger (Mar 17, 2008 9:09:29 PM)
hood - my pulmonologist is concerned and has ordered an early blood gas. I guess all my docs got notes
melh (Mar 17, 2008 9:09:33 PM)
please visit her website and see how "Normal" she looks! After jumping 5-10 times she cannot breathe, but she keeps going. At OT (which we have had for three weeks and this week is the last week) he allows her to rest after 10 repetitions and she uses it! But she won't stop unless you tell her too!
Jennifer-S (Mar 17, 2008 9:09:34 PM)
still had fun though
hoodlum (Mar 17, 2008 9:09:53 PM)
yours eyes have to compensate too I bet that played a role in it... glad you still enjoyed yourself.
Jennifer-S (Mar 17, 2008 9:10:13 PM)
what happened lf?
emtdas (Mar 17, 2008 9:10:31 PM)
mel thats the same thing with mine they wont stop but if i put them down for a nap/quiet time they sleep for 2 hours
Jennifer-S (Mar 17, 2008 9:10:36 PM)
i never thought of that hood. might be
lfitzger (Mar 17, 2008 9:10:48 PM)
Two hemotologists totally disagree about need for iron infusions, so I am caught in the middle
hoodlum (Mar 17, 2008 9:11:00 PM)
interesting... wonder what tripped the blood gas??? I have to be purple from head to toe before they order blood gases on me...lol
lfitzger (Mar 17, 2008 9:11:43 PM)
Not enough iron carrying O2. I get them every 6 months as part of pulmo.
Jennifer-S (Mar 17, 2008 9:11:58 PM)
hood and lf, i thought of you guys and merril this weekend. anniversary again
hoodlum (Mar 17, 2008 9:12:18 PM)
that's a different problem... utilization not making...
lfitzger (Mar 17, 2008 9:12:41 PM)
if not there, can't utilze?
hoodlum (Mar 17, 2008 9:12:42 PM)
yep and everyone had to remind me of the Ides of March..
scrod (Mar 17, 2008 9:12:57 PM)
hah, ides are my oldest birthday
lfitzger (Mar 17, 2008 9:13:12 PM)
happy birthday to him
lfitzger (Mar 17, 2008 9:13:34 PM)
happy st. pats to everyone
scrod (Mar 17, 2008 9:13:35 PM)
21 - now he can do everything except rent a car
emtdas (Mar 17, 2008 9:13:36 PM)
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hoodlum (Mar 17, 2008 9:13:39 PM)
you have iron enough... so maybe it is a utlilzation problem... hadne't thought of that...
Jennifer-S (Mar 17, 2008 9:13:56 PM)
they stopped the iron infusions a long time ago on me...they didn't work
hoodlum (Mar 17, 2008 9:14:11 PM)
Happy belated birthday scrod...
emtdas (Mar 17, 2008 9:14:16 PM)
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mylilangel05 (Mar 17, 2008 9:14:22 PM)
wb emt
lfitzger (Mar 17, 2008 9:14:22 PM)
wb
hoodlum (Mar 17, 2008 9:14:24 PM)
wb emt... got th boot?
emtdas (Mar 17, 2008 9:14:36 PM)
yep
emtdas (Mar 17, 2008 9:14:39 PM)
ur next
scrod (Mar 17, 2008 9:14:48 PM)
I had him working with me over spring break, they called him scrod JR. except he is 6' and 250lbs (still smaller than me)
hoodlum (Mar 17, 2008 9:14:49 PM)
hope it doesn't leave too bad a mark...
hoodlum (Mar 17, 2008 9:15:11 PM)
lol scrod...
emtdas (Mar 17, 2008 9:15:22 PM)
lol
lfitzger (Mar 17, 2008 9:15:38 PM)
I've only had one bad one and I won't let her do it again. the lab always gets someone from RT to do it
Jennifer-S (Mar 17, 2008 9:15:46 PM)
my daughter turns 18 next week...i'm old
lfitzger (Mar 17, 2008 9:15:57 PM)
happy birthday em
hoodlum (Mar 17, 2008 9:15:59 PM)
wow... all these birthdays...
hoodlum (Mar 17, 2008 9:16:06 PM)
Happy birthday EM!!!
Jennifer-S (Mar 17, 2008 9:16:22 PM)
i will tell her
Jennifer-S (Mar 17, 2008 9:16:39 PM)
18 and still healthy...looking good
emtdas (Mar 17, 2008 9:16:41 PM)
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Jennifer-S (Mar 17, 2008 9:16:44 PM)
uh oh
scrod (Mar 17, 2008 9:17:06 PM)
emt gets booted again... i haven't had that problem
hoodlum (Mar 17, 2008 9:17:19 PM)
amazing grace jenn!!!
Jennifer-S (Mar 17, 2008 9:17:52 PM)
and em is an expert eye roller. no cpeo there
lfitzger (Mar 17, 2008 9:18:09 PM)
that is great jenn
lkommer (Mar 17, 2008 9:18:30 PM)
(This user has entered Mitochondrial Chat)
Jennifer-S (Mar 17, 2008 9:18:34 PM)
hi lk
lfitzger (Mar 17, 2008 9:18:37 PM)
hi lk
lkommer (Mar 17, 2008 9:18:43 PM)
hello everyone
lfitzger (Mar 17, 2008 9:18:53 PM)
how are you tonight?
hoodlum (Mar 17, 2008 9:18:59 PM)
As a reminder to everyone... One of our own Louann Carnahan has recorded her first CD due out May 15th?? You can see parts of her concert on YouTube just search for Louann Carnahan. Once the CD comes out all proceeds are going to UMDF ...
Jennifer-S (Mar 17, 2008 9:19:15 PM)
very cool
lkommer (Mar 17, 2008 9:19:17 PM)
doing good how are you
hoodlum (Mar 17, 2008 9:19:19 PM)
I have info if anyone wants on where to order it will be $15.99
mylilangel05 (Mar 17, 2008 9:19:24 PM)
hi larrisa
lfitzger (Mar 17, 2008 9:19:29 PM)
Hurry Louann
lfitzger (Mar 17, 2008 9:19:38 PM)
Good lk
Jennifer-S (Mar 17, 2008 9:19:41 PM)
what style music?
hoodlum (Mar 17, 2008 9:19:58 PM)
I didn't know either that she is in medical school and will be moving to Detroit in June for her 3rd year residencies!!! GO LOUANN!!!
hoodlum (Mar 17, 2008 9:20:04 PM)
Classical
lfitzger (Mar 17, 2008 9:20:17 PM)
I'm interested
hoodlum (Mar 17, 2008 9:20:18 PM)
very nice arrangements...
Jennifer-S (Mar 17, 2008 9:20:18 PM)
we should introduce her to bug
lfitzger (Mar 17, 2008 9:20:31 PM)
and my sister
mylilangel05 (Mar 17, 2008 9:20:35 PM)
anybody in here dealing wiht MNGIE
hoodlum (Mar 17, 2008 9:20:38 PM)
There are 7 of the 15 on the cd on YouTube.
lkommer (Mar 17, 2008 9:20:55 PM)
wendy what is that
Jennifer-S (Mar 17, 2008 9:21:19 PM)
mylil they mentioned it with me but i don't have it
mylilangel05 (Mar 17, 2008 9:21:32 PM)
Mitochondrial Neurogastrointestinal Encephalopathy Disease
mylilangel05 (Mar 17, 2008 9:21:50 PM)
they are saying Zack has this
lkommer (Mar 17, 2008 9:21:51 PM)
oh
hoodlum (Mar 17, 2008 9:21:52 PM)
I have some MNGIE symptoms but not the mutation perse... Riley son I believe does...
mylilangel05 (Mar 17, 2008 9:22:11 PM)
but looking into it further
Jennifer-S (Mar 17, 2008 9:22:19 PM)
my gi doc treats it i know
hoodlum (Mar 17, 2008 9:22:30 PM)
It is not any worse or better than any of the other KNOWN mutations mylil....
lfitzger (Mar 17, 2008 9:22:34 PM)
does he have symptoms or the mutation
mylilangel05 (Mar 17, 2008 9:22:51 PM)
hes got symtpoms
hoodlum (Mar 17, 2008 9:22:56 PM)
everything still gets treated bysymptom
mylilangel05 (Mar 17, 2008 9:23:04 PM)
dont know about the mutation yet
hoodlum (Mar 17, 2008 9:23:23 PM)
that is one they can get from blood
emtdas (Mar 17, 2008 9:23:34 PM)
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emtdas (Mar 17, 2008 9:23:37 PM)
ok thats enuf for me
mylilangel05 (Mar 17, 2008 9:23:40 PM)
wb emt
Jennifer-S (Mar 17, 2008 9:23:42 PM)
poor emt...booted again?
hoodlum (Mar 17, 2008 9:23:54 PM)
wb again emt.... see what happens when you wish badness on others...LOL
emtdas (Mar 17, 2008 9:24:03 PM)
lol
mylilangel05 (Mar 17, 2008 9:24:16 PM)
they are going to do a blood test april 15 when he has his nerve conduction test
lfitzger (Mar 17, 2008 9:24:25 PM)
Lepragans (can't spell) at work
hoodlum (Mar 17, 2008 9:24:35 PM)
make sure they do it BEFORE the nerve conduction test!!!
Jennifer-S (Mar 17, 2008 9:24:42 PM)
oh my lf lol
mylilangel05 (Mar 17, 2008 9:24:46 PM)
ok
hoodlum (Mar 17, 2008 9:24:51 PM)
you bet lf...
hoodlum (Mar 17, 2008 9:25:23 PM)
He is young for nerve conduction study...
melh (Mar 17, 2008 9:25:30 PM)
hood, what kind of classical music, do you know, piano, violin?
hoodlum (Mar 17, 2008 9:25:38 PM)
what are you going to gain by doing that.
mylilangel05 (Mar 17, 2008 9:25:47 PM)
i dont know
mylilangel05 (Mar 17, 2008 9:25:55 PM)
asked they said he really needs it
hoodlum (Mar 17, 2008 9:26:01 PM)
Louann plays the piano beautifully... I'm not sure if the cd will include other instruments or not.
Jennifer-S (Mar 17, 2008 9:26:21 PM)
thats one of the tests i don't allow them to do anymore. i don't see the point for me
hoodlum (Mar 17, 2008 9:26:51 PM)
I would ask further mylil... that was one of the most painful tests I had and in the end they didn't gain anything otherthan the "residents" getting experience...
melh (Mar 17, 2008 9:27:00 PM)
there is a mito mom in Indy who plays the violin (I think she is concertmaster??), actually, I think she stops in here every now and then... anyways, maybe we should get them together
emtdas (Mar 17, 2008 9:27:08 PM)
we had it done once and that wuz it .. he just had it done a few weeks ago now they wanna do it again
lfitzger (Mar 17, 2008 9:27:09 PM)
my neuro doesn't see any reason to do them. I have had them in the past
hoodlum (Mar 17, 2008 9:27:15 PM)
cool
mylilangel05 (Mar 17, 2008 9:27:18 PM)
they said he has neuropathy
hoodlum (Mar 17, 2008 9:27:38 PM)
yeah... we all have neuropathy...
melh (Mar 17, 2008 9:27:41 PM)
this is the same mom whose husband and their daughter's mito are being linked together - paternally inherited - second identified
hoodlum (Mar 17, 2008 9:28:07 PM)
what do you mean second identified melh?
Jennifer-S (Mar 17, 2008 9:28:12 PM)
i know someone who got it from her dad
emtdas (Mar 17, 2008 9:28:13 PM)
yes but if its not going to improve his function theres no point in putting him through it esp since he just had it done and are they willing to tell u yet the results of the last one
hoodlum (Mar 17, 2008 9:28:35 PM)
there are many known cases of paternal inheritence it is just not common
melh (Mar 17, 2008 9:28:52 PM)
I guess it is the second for this type of mito...
scrod (Mar 17, 2008 9:29:18 PM)
given that mitochondrial DNA is only maternal inheritance, not sure how that works?
mylilangel05 (Mar 17, 2008 9:29:26 PM)
i asked childens today and said it wasnt conclusive so they have to do ti again where conly can read it her self
hoodlum (Mar 17, 2008 9:29:33 PM)
mylil at this point you know the beast has a name... time to change focus for zack to what will help him... is it a treatment oriented test, and HOW???
melh (Mar 17, 2008 9:29:34 PM)
Our mito gurus were sharing it with us, of course with no names or identifing markers, but we know the family...
lfitzger (Mar 17, 2008 9:29:41 PM)
if a bit of the sperms tail enters the egg, scrod
Jennifer-S (Mar 17, 2008 9:30:40 PM)
i agree with hood. they will turn him into a guinea if you let them
hoodlum (Mar 17, 2008 9:30:42 PM)
I wouldn't do it mylil... they just want to compare... you will know over time and you don't need those needle stuck in your nerves and electricity put through them to tell you you are numb, tingly, jumpy, etc...
scrod (Mar 17, 2008 9:30:42 PM)
Thanks LF.
Jennifer-S (Mar 17, 2008 9:30:47 PM)
pig i mean
melh (Mar 17, 2008 9:31:12 PM)
Interesting, I got the "education" from Kendall about how they used to think that all mito DNA was from mom but now they know that the mom provides the most, but not all (if I got my info correct) our local doc explained it this way too
hoodlum (Mar 17, 2008 9:31:26 PM)
there are many ways scrod... scientist know that some of the sperm "tail" goes into the egg... this carries the fathers dna
lkommer (Mar 17, 2008 9:31:32 PM)
has anyone had an echocardiogram done or something like that
hoodlum (Mar 17, 2008 9:31:41 PM)
since mito have 2 sets of dna it is possible...
lfitzger (Mar 17, 2008 9:31:49 PM)
every year lk
emtdas (Mar 17, 2008 9:31:53 PM)
yes lk mine get them annually
melh (Mar 17, 2008 9:31:55 PM)
we do echos yearly
lkommer (Mar 17, 2008 9:31:55 PM)
what is this
hoodlum (Mar 17, 2008 9:31:57 PM)
every 3 months here
lkommer (Mar 17, 2008 9:32:07 PM)
blake is having one tomorrow
Jennifer-S (Mar 17, 2008 9:32:08 PM)
every year lk
lkommer (Mar 17, 2008 9:32:11 PM)
and whats it for
melh (Mar 17, 2008 9:32:15 PM)
easiest test I think Natalie has
Jennifer-S (Mar 17, 2008 9:32:16 PM)
they are easy and painfree
mylilangel05 (Mar 17, 2008 9:32:19 PM)
i asked them if they were goign to be his primary nuero and they said no they are just doing diagnostic for his reg neuro
lfitzger (Mar 17, 2008 9:32:19 PM)
it is an ultrasound of the heart
hoodlum (Mar 17, 2008 9:32:20 PM)
is blake your child?
lkommer (Mar 17, 2008 9:32:40 PM)
yes my son
melh (Mar 17, 2008 9:32:44 PM)
mylil did you tell them that you are not going back to your neuro?
hoodlum (Mar 17, 2008 9:33:05 PM)
and you don't know what the test is he is having tomorrow? How old is he?
lkommer (Mar 17, 2008 9:33:13 PM)
what are they looking for
lkommer (Mar 17, 2008 9:33:17 PM)
hes 2
melh (Mar 17, 2008 9:33:25 PM)
he is a lot like Natalie at that age
hoodlum (Mar 17, 2008 9:33:26 PM)
size of the heart, function of the valves
melh (Mar 17, 2008 9:33:31 PM)
blake, I mean
Jennifer-S (Mar 17, 2008 9:33:37 PM)
lk they are just looking at his heart like a regular ultrasound. its common
hoodlum (Mar 17, 2008 9:33:46 PM)
how do you prepare him for these tests if you don't know??
lfitzger (Mar 17, 2008 9:33:51 PM)
it is recommended for mito patients
melh (Mar 17, 2008 9:34:02 PM)
we get to watch a video during ours
hoodlum (Mar 17, 2008 9:34:21 PM)
they are going to put cold gooey jelly all over his chest and stomach and then take a wand and look inside
melh (Mar 17, 2008 9:34:22 PM)
Anyone made the big purchase yet???!!!
melh (Mar 17, 2008 9:34:30 PM)
A Webkinz??
lkommer (Mar 17, 2008 9:34:30 PM)
we went to a new pediatrician today and he ordered one just to make sure everything is ok
hoodlum (Mar 17, 2008 9:34:33 PM)
????
Jennifer-S (Mar 17, 2008 9:34:39 PM)
when i was little the cardio dept would give me a crown to wear during my tests and make me queen. i loved going lol
scrod (Mar 17, 2008 9:34:44 PM)
we have 3 in the house mel
hoodlum (Mar 17, 2008 9:34:58 PM)
good to have... did the pediatrician say he had any concerns about his heart?
lfitzger (Mar 17, 2008 9:34:59 PM)
so, what is it?
hoodlum (Mar 17, 2008 9:35:27 PM)
he will have to be very still...
melh (Mar 17, 2008 9:35:27 PM)
yeah, i'd be embarassed to share how many we have... just let me say that it makes medical testing more "rewarding"
Jennifer-S (Mar 17, 2008 9:35:38 PM)
no webkinz but i tried guitar hero and dance revolution last. i sstink at it lol
emtdas (Mar 17, 2008 9:35:53 PM)
we had a colleciton of ty beanies from the hospital
hoodlum (Mar 17, 2008 9:36:03 PM)
lol ... now that is something they should have at the next convention.
mylilangel05 (Mar 17, 2008 9:36:04 PM)
we have that
emtdas (Mar 17, 2008 9:36:05 PM)
the after hours game them one every time
melh (Mar 17, 2008 9:36:07 PM)
I have two webkinz myself now!
emtdas (Mar 17, 2008 9:36:20 PM)
is anyone goign to the conference
hoodlum (Mar 17, 2008 9:36:20 PM)
awww
melh (Mar 17, 2008 9:36:31 PM)
Great idea Hood!! We are looking for ideas at the Indiana chapter!!
lfitzger (Mar 17, 2008 9:36:32 PM)
I am going for all 4 days
hoodlum (Mar 17, 2008 9:36:33 PM)
to far for me to travel...
scrod (Mar 17, 2008 9:36:47 PM)
I wish we could
hoodlum (Mar 17, 2008 9:36:57 PM)
Need to get WII there as well... tat would be cool!
lkommer (Mar 17, 2008 9:37:08 PM)
no ive been trying to find a doctor that will research mito and listen to me when he is sick and i think i finally found one and he just wants to do a few test and just make sure there isn't a problem with the heart and few other things
melh (Mar 17, 2008 9:37:11 PM)
lf, do you have to have a medical something to get into the medical end of it?
lkommer (Mar 17, 2008 9:37:24 PM)
im going to try dont know if i can find sitter
Jennifer-S (Mar 17, 2008 9:37:43 PM)
guitar hero is hard with a numb hand lol. the five year old was better than me
scrod (Mar 17, 2008 9:37:50 PM)
I miss indyu. Somebody go to Shapiro's and have a sandwich and a stuffed egg for me
lfitzger (Mar 17, 2008 9:37:54 PM)
you can register, and pay more, but it is very technical at times
hoodlum (Mar 17, 2008 9:38:09 PM)
that is good lkommer...but don't forget in the heat of things to ask what stuff is and what is going to happen... can be scary for kids...especially little kids
lfitzger (Mar 17, 2008 9:38:48 PM)
Make sure the gel is warm - not hot - not that they say it is
lkommer (Mar 17, 2008 9:39:11 PM)
well i missed the call from doc and called hosp which left mes and they told me what test was and wont talk to doc office till it opens in morning or i would have known
Jennifer-S (Mar 17, 2008 9:39:28 PM)
tell him they are taking really cool pictures and that he can see if he stays really still
hoodlum (Mar 17, 2008 9:39:29 PM)
gotcha..
lkommer (Mar 17, 2008 9:39:46 PM)
they tried to get it in this week cause we are going on vacation next week
melh (Mar 17, 2008 9:39:48 PM)
scrod, how old are the users of webkinz in your home?
lkommer (Mar 17, 2008 9:40:07 PM)
he wont understand anything about the pics of it
mylilangel05 (Mar 17, 2008 9:40:07 PM)
got a question what happens if his iron is high for a long period of time
hoodlum (Mar 17, 2008 9:40:10 PM)
use the magic wand to look inside his body... he should be able to get that...
scrod (Mar 17, 2008 9:40:46 PM)
Mel - 41, 10 , 6
lfitzger (Mar 17, 2008 9:40:48 PM)
he will probably hear a whooshing sound
hoodlum (Mar 17, 2008 9:40:49 PM)
if iron is high for a long period depending on how high first needs to be removed from formula/ tpn etc.. may need to be chelated out of his system.
melh (Mar 17, 2008 9:40:53 PM)
lk- often they do an ekg when they do an echo, at least for ours they do. that is the 20 stickers all over his chest for a minute or two. Natalie does not like stickers so we do this first and get it over with
scrod (Mar 17, 2008 9:41:09 PM)
my wife's age was published in MDA mag, soooo I can share it.
lkommer (Mar 17, 2008 9:41:19 PM)
hes had that done before
hoodlum (Mar 17, 2008 9:41:21 PM)
you can ask the tech to turn the volume down if it scares him... they have headphones they can wear
melh (Mar 17, 2008 9:41:25 PM)
yeah 33, 11, 6 here scrod!
hoodlum (Mar 17, 2008 9:41:34 PM)
lol scrod...
mylilangel05 (Mar 17, 2008 9:41:42 PM)
his iron has been removed from tpn since nov but hte levels arent coming dowm
emtdas (Mar 17, 2008 9:41:57 PM)
take lots of stickers and when hes good no matter if u have to use 30 stickers give him them decorate him and u make it fun the better the pictures the better the results
mylilangel05 (Mar 17, 2008 9:42:02 PM)
its still really high
hoodlum (Mar 17, 2008 9:42:07 PM)
is he getting any other sources... multivit???
hoodlum (Mar 17, 2008 9:42:12 PM)
what is really high?
melh (Mar 17, 2008 9:42:19 PM)
transfusions?
mylilangel05 (Mar 17, 2008 9:42:21 PM)
his iron level
hoodlum (Mar 17, 2008 9:42:30 PM)
what is the Number?
Jennifer-S (Mar 17, 2008 9:42:40 PM)
the webkinz would end up dead with my firby and cosmo the electronic dog
lkommer (Mar 17, 2008 9:42:52 PM)
what is a webkinz
hoodlum (Mar 17, 2008 9:42:56 PM)
no... doesn not need transfusion for high iron... need chelation to take iron out.
mylilangel05 (Mar 17, 2008 9:43:00 PM)
i dont know just the dr said its high and needs to be looked at
hoodlum (Mar 17, 2008 9:43:22 PM)
do you get copies of the labs mylil?
scrod (Mar 17, 2008 9:43:22 PM)
EMT - good idea. We actually had our son cover a full page wiht stickers before he got a bigger prize at age 4/5. he did not win until he had no paper showing.
melh (Mar 17, 2008 9:43:32 PM)
Now, we talked about this last week... they do not runaway, get kidnapped, or die!! The best part!! And sometimes they do get sick, but you click the button to take them to the doctors and voila!
mylilangel05 (Mar 17, 2008 9:43:40 PM)
no
Jennifer-S (Mar 17, 2008 9:43:46 PM)
lf i think its some kind of computer character that you can interact with
lkommer (Mar 17, 2008 9:44:09 PM)
ok
lfitzger (Mar 17, 2008 9:44:10 PM)
thanks jenn
melh (Mar 17, 2008 9:44:21 PM)
sorry, i was wondering if he had a transfusion lateley that they didn't take the iron out, or whatever they do with that
hoodlum (Mar 17, 2008 9:44:22 PM)
I would ask primary to start sending you copies of all labs... that way you can follow his hi's and low's ebbs and flows.
mylilangel05 (Mar 17, 2008 9:45:09 PM)
but his hemaglobins are low
melh (Mar 17, 2008 9:45:16 PM)
there are a few mito moms I meet on webkinz world and we can play games together and we send each other flowers and such
lkommer (Mar 17, 2008 9:45:43 PM)
do you buy them???
melh (Mar 17, 2008 9:46:06 PM)
yeah, about $10-15 and they are suscribed for a year
hoodlum (Mar 17, 2008 9:46:08 PM)
if h/h is low... need to know number.... then it could be an issue of utilization of iron... ie his body stores it and doesn't utilize it.
lkommer (Mar 17, 2008 9:46:17 PM)
oh ok
Jennifer-S (Mar 17, 2008 9:46:31 PM)
see mine wouldn't die, it would get unsubscribed lol
melh (Mar 17, 2008 9:46:33 PM)
hood, it sounds like you might be on to something...
hoodlum (Mar 17, 2008 9:46:51 PM)
lf didn't you have that problem when you were younger? storing iron in your marrow and not utilizing it?
lfitzger (Mar 17, 2008 9:46:54 PM)
jenn, lol
melh (Mar 17, 2008 9:47:05 PM)
okay, jenn, I surrender, after a year it might get.... (crying) unsubscribed
hoodlum (Mar 17, 2008 9:47:06 PM)
lol jenn
lfitzger (Mar 17, 2008 9:47:19 PM)
As an adult - only younger, hood
hoodlum (Mar 17, 2008 9:47:34 PM)
how did they treat you for that lf?
scrod (Mar 17, 2008 9:47:36 PM)
whoa Mel, I didn't realize we are locked into re-upping. if I don't do that they will die without care. crud!
lfitzger (Mar 17, 2008 9:48:03 PM)
no iron for years and years and monitored with iron studies
hoodlum (Mar 17, 2008 9:48:17 PM)
believe me by that time guys your kids will have moved onto other things... the new fad coming around the bend...lol they won't care... LOL
Jennifer-S (Mar 17, 2008 9:48:25 PM)
if my cat didn't bug me i would forget to feed her and my bamboo is only alove bc it can survive without water for a week. no more pets for me lol
melh (Mar 17, 2008 9:48:33 PM)
If you all need help, I will babysit for webkinz while you are out... A mito mom in GA feeds ours and cares for the garden when we are in the hospital
scrod (Mar 17, 2008 9:48:42 PM)
hmm, hoodie, have you met my kids?
hoodlum (Mar 17, 2008 9:48:43 PM)
lol jenn...
hoodlum (Mar 17, 2008 9:48:53 PM)
not in person...
lkommer (Mar 17, 2008 9:49:10 PM)
do you have to keep up with them everyday
scrod (Mar 17, 2008 9:49:15 PM)
they kinda latch onto things. and dont let go
scrod (Mar 17, 2008 9:49:35 PM)
yeah, they measure health hunger and happiness (?)
lkommer (Mar 17, 2008 9:49:42 PM)
oh
melh (Mar 17, 2008 9:49:45 PM)
scrod, all you have to do is buy another one and it keeps your account open....... that's all...... they are not so great about telling you that though, becasue you are so interested in all the other stuff going on
hoodlum (Mar 17, 2008 9:49:55 PM)
I had a pet rock when I was little.... didn't cost a thing... I painted new outfits on it all the time... took it everywhere...
emtdas (Mar 17, 2008 9:50:10 PM)
lol hoodie
Jennifer-S (Mar 17, 2008 9:50:15 PM)
barbies and matchbox were easier
lfitzger (Mar 17, 2008 9:50:17 PM)
sounds familar hood
melh (Mar 17, 2008 9:50:34 PM)
yeah, pet rocks... that is when my OCD first started!
Jennifer-S (Mar 17, 2008 9:50:55 PM)
cosmo the electronic dog got fleas and died. thats how good i am at it
hoodlum (Mar 17, 2008 9:51:15 PM)
ROFLMAO...jenn... LOL
melh (Mar 17, 2008 9:51:21 PM)
my mom came home and told me that all the rocks in our 1/4 mile gravel driveway could not be my pets! I felt sorry that I had chose one over the other.... mind you I was about 7
lfitzger (Mar 17, 2008 9:51:32 PM)
my kids had legos - bad mom?
Jennifer-S (Mar 17, 2008 9:51:34 PM)
i'm not kiddint. thats what it said..and i actually felt guilty
scrod (Mar 17, 2008 9:51:55 PM)
my 6 year old has my legos, plus accumulated legos of his 3 brothers
hoodlum (Mar 17, 2008 9:51:59 PM)
omg jenn... too funny
Jennifer-S (Mar 17, 2008 9:52:18 PM)
legos are still cool
melh (Mar 17, 2008 9:52:24 PM)
that is terrible that they would make a toy like that jenn!
lfitzger (Mar 17, 2008 9:52:37 PM)
my one son has all of their legos and he still plays with them at times - at 33
hoodlum (Mar 17, 2008 9:52:40 PM)
very... I want Jake to bring his bricks down stairs so I can build while he is at school.
melh (Mar 17, 2008 9:52:57 PM)
anyone's kids into the littlest petshop or the fisher price small loving family towns?
lfitzger (Mar 17, 2008 9:52:57 PM)
I still enjoy them
lkommer (Mar 17, 2008 9:53:24 PM)
jacqueline likes the littlest petshop
lfitzger (Mar 17, 2008 9:53:29 PM)
I'm still finding little pieces in boxes and places that I can't imagine them being
Jennifer-S (Mar 17, 2008 9:53:57 PM)
i had the old fisher price city...every piece. my mom bought it for us to shut us up lol
melh (Mar 17, 2008 9:54:24 PM)
lk- you can email me if you'd like a potential deal on some petshop toys. It is mostly dogs though, because Natalie Does Not like cats so she gave those away - lol!!
melh (Mar 17, 2008 9:55:00 PM)
I asked her if she wanted to keep a cat for the dogs to chase, and she said not in my house!
melh (Mar 17, 2008 9:55:13 PM)
This was over a year ago too
Jennifer-S (Mar 17, 2008 9:55:19 PM)
my dad and uncle had pet tea bags when they were. one day they were fighting in the car and my grandpa threw the bags out the window to punish them. my dad still has issues about it today lol
hoodlum (Mar 17, 2008 9:55:25 PM)
funny melh
lkommer (Mar 17, 2008 9:55:36 PM)
lol we have a whole bunch of them she got lots of them the last 2 years for christmas
hoodlum (Mar 17, 2008 9:55:39 PM)
lol jenn
lfitzger (Mar 17, 2008 9:55:40 PM)
lol jenn
Jennifer-S (Mar 17, 2008 9:56:21 PM)
funny how some toys stay the same and are still loved
melh (Mar 17, 2008 9:56:26 PM)
well, i'm checking in for the night, thanks for chatting!
lkommer (Mar 17, 2008 9:56:29 PM)
i hate them they hurt when you get up and step on them in middle of the nite
lfitzger (Mar 17, 2008 9:56:36 PM)
nite mel
lkommer (Mar 17, 2008 9:56:40 PM)
nite mel
mylilangel05 (Mar 17, 2008 9:56:42 PM)
talk to you later mel have a good nite
Jennifer-S (Mar 17, 2008 9:56:42 PM)
nite mel
hoodlum (Mar 17, 2008 9:56:45 PM)
15 mins left... well... 17
melh (Mar 17, 2008 9:56:54 PM)
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hoodlum (Mar 17, 2008 9:56:57 PM)
take care mel... have a great week
lfitzger (Mar 17, 2008 9:57:18 PM)
I remember those days (nights) lk
lkommer (Mar 17, 2008 9:58:21 PM)
if i could see it would help im as blind as a bat without my glasses or contacts
Keuka (Mar 17, 2008 9:58:22 PM)
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hoodlum (Mar 17, 2008 9:58:34 PM)
keuka... better late than never...lol
Jennifer-S (Mar 17, 2008 9:58:42 PM)
hi keuka
mylilangel05 (Mar 17, 2008 9:58:43 PM)
hi keu
Keuka (Mar 17, 2008 9:58:44 PM)
Hello all. Just a quick check in.
lkommer (Mar 17, 2008 9:58:45 PM)
hi keuka
scrod (Mar 17, 2008 9:58:47 PM)
good evening
lfitzger (Mar 17, 2008 9:58:53 PM)
Boy, you just made it in.
Keuka (Mar 17, 2008 9:59:07 PM)
How is everyone?
Keuka (Mar 17, 2008 9:59:19 PM)
Jenn, how are you doing?
lfitzger (Mar 17, 2008 9:59:22 PM)
good keuka, how about you?
mylilangel05 (Mar 17, 2008 9:59:29 PM)
could the high iron be making his urine smell like bms
Keuka (Mar 17, 2008 9:59:43 PM)
trying PT. Not going to work on a daily basis
hoodlum (Mar 17, 2008 9:59:58 PM)
hmmm??? not sure about that one mylil... More than likely it is the Carnitor
lfitzger (Mar 17, 2008 10:00:00 PM)
PT is work
hoodlum (Mar 17, 2008 10:00:16 PM)
some kids have that fishy urine smell once started on Carnitor
mylilangel05 (Mar 17, 2008 10:00:26 PM)
he get his carinte through his tpn
lfitzger (Mar 17, 2008 10:00:27 PM)
and adults
hoodlum (Mar 17, 2008 10:00:34 PM)
PT can take a lot out of you
Keuka (Mar 17, 2008 10:00:38 PM)
just stretching. Trying to get the hip flexors to not ache so
hoodlum (Mar 17, 2008 10:01:07 PM)
doesn't matter how he gets it.. if his body can't utilize it he will get that smell...
lfitzger (Mar 17, 2008 10:01:10 PM)
it is still something for the body to do that is different
Jennifer-S (Mar 17, 2008 10:01:15 PM)
i'm doing ok keuka. i can sub for you by the way. i'm way behind on e-mailing
hoodlum (Mar 17, 2008 10:01:29 PM)
the Carnitor packaging says upward of 40% of people will have that side effect
Keuka (Mar 17, 2008 10:01:31 PM)
thanks, I will take your week
lkommer (Mar 17, 2008 10:01:45 PM)
does anyone know of anything to help with blakes ears next week he has bad ears and we are going to the mountains someone told me to be careful will it do somthing to them
emtdas (Mar 17, 2008 10:01:46 PM)
well i am going to call it a nite ...
scrod (Mar 17, 2008 10:01:57 PM)
goodnite emt
lkommer (Mar 17, 2008 10:02:02 PM)
nite emt
emtdas (Mar 17, 2008 10:02:03 PM)
have a nice easter everyone
mylilangel05 (Mar 17, 2008 10:02:07 PM)
have a good one emt
Keuka (Mar 17, 2008 10:02:08 PM)
nite, emt
lfitzger (Mar 17, 2008 10:02:09 PM)
nite emt
hoodlum (Mar 17, 2008 10:02:17 PM)
How high are you going?
lkommer (Mar 17, 2008 10:02:24 PM)
dont know
emtdas (Mar 17, 2008 10:02:27 PM)
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scrod (Mar 17, 2008 10:02:27 PM)
lk - if he has congestion it coudl be hard or painful to adjust to altitude
Jennifer-S (Mar 17, 2008 10:02:27 PM)
nite emt
hoodlum (Mar 17, 2008 10:02:28 PM)
nite emt... tc
hoodlum (Mar 17, 2008 10:02:51 PM)
I might be more concerned about O2 consumption and use
scrod (Mar 17, 2008 10:03:00 PM)
even a thousand feet or so altitude make a difference. I notice it in New Hampshire
Jennifer-S (Mar 17, 2008 10:03:01 PM)
they will most likely pop like mine do. its annoying
lkommer (Mar 17, 2008 10:03:06 PM)
he doesnt really bad at time but gets that way alot
hoodlum (Mar 17, 2008 10:03:20 PM)
if ears are a problem... I know one thing that helped when I was a kid
scrod (Mar 17, 2008 10:03:27 PM)
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Jennifer-S (Mar 17, 2008 10:03:33 PM)
keuka i see your favorite doc next week
lfitzger (Mar 17, 2008 10:03:36 PM)
I can feel the pressure going up and down large hills
Keuka (Mar 17, 2008 10:03:53 PM)
hope he helps. Keep me posted.
lkommer (Mar 17, 2008 10:03:54 PM)
i know we are staying in mountains but dont know how far and i remember my ears popping when i went before
Keuka (Mar 17, 2008 10:04:12 PM)
When do you go Jenn
Jennifer-S (Mar 17, 2008 10:04:17 PM)
sunday
hoodlum (Mar 17, 2008 10:04:22 PM)
we flew a lot and the stewardess would always put papertowels that had been soaked in HOT water in the bottom of a styrofoam cut... I'd hold them over my ears on take off and landing and it made a HUGE difference
Jennifer-S (Mar 17, 2008 10:04:30 PM)
hirano first and then lots of eye tests
lfitzger (Mar 17, 2008 10:04:43 PM)
neat trick hood
Jennifer-S (Mar 17, 2008 10:04:46 PM)
that does help hood
Keuka (Mar 17, 2008 10:05:05 PM)
Be sure to let me know what they say about the eyes
Jennifer-S (Mar 17, 2008 10:05:05 PM)
hanna is going with me
lkommer (Mar 17, 2008 10:05:08 PM)
thanks thats a neat idea
hoodlum (Mar 17, 2008 10:05:17 PM)
the other thing would be to keep him on decongestants during the trip... the drier he is the less popping
lkommer (Mar 17, 2008 10:05:39 PM)
we are starting him on singular
lkommer (Mar 17, 2008 10:05:44 PM)
will that help
Keuka (Mar 17, 2008 10:05:51 PM)
Gang I am going to head out.
Keuka (Mar 17, 2008 10:05:59 PM)
Singluar was great for my daughter
Jennifer-S (Mar 17, 2008 10:06:00 PM)
nice to see you keuka
hoodlum (Mar 17, 2008 10:06:05 PM)
nite keuka...
Keuka (Mar 17, 2008 10:06:06 PM)
nite all
lfitzger (Mar 17, 2008 10:06:10 PM)
nit keuka, good to see you
Keuka (Mar 17, 2008 10:06:11 PM)
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mylilangel05 (Mar 17, 2008 10:06:13 PM)
nite keuka
hoodlum (Mar 17, 2008 10:06:16 PM)
singular is not a decongestant...
hoodlum (Mar 17, 2008 10:06:29 PM)
may help with his breathing but not the congestion
lkommer (Mar 17, 2008 10:06:45 PM)
oh they said it would dry him up
lkommer (Mar 17, 2008 10:07:05 PM)
hes on steroids and antibiotics right now
hoodlum (Mar 17, 2008 10:07:10 PM)
dry him up in terms of his chest congestion?
hoodlum (Mar 17, 2008 10:07:20 PM)
what about head congestion?
Jennifer-S (Mar 17, 2008 10:07:35 PM)
5 more min guys
lkommer (Mar 17, 2008 10:07:45 PM)
i guess thats for the head cong and the steroids for the chest
hoodlum (Mar 17, 2008 10:07:48 PM)
fast chat tonight...
lkommer (Mar 17, 2008 10:07:57 PM)
what kind of a dec should i give him
hoodlum (Mar 17, 2008 10:08:11 PM)
check with his doc lkommer...
Jennifer-S (Mar 17, 2008 10:08:13 PM)
talk to his doc about that lk
lkommer (Mar 17, 2008 10:08:31 PM)
ok
Jennifer-S (Mar 17, 2008 10:09:45 PM)
well guys. i hope everyone has a nice easter. i will be back in 2 weeks
mylilangel05 (Mar 17, 2008 10:09:48 PM)
well everyone have a good easter zacks crying so have to go
Jennifer-S (Mar 17, 2008 10:09:58 PM)
by mylil
lkommer (Mar 17, 2008 10:10:02 PM)
by wendy
lfitzger (Mar 17, 2008 10:10:02 PM)
have a good trip to NYC jenn
lkommer (Mar 17, 2008 10:10:16 PM)
i 2 wont be on next week
mylilangel05 (Mar 17, 2008 10:10:19 PM)
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hoodlum (Mar 17, 2008 10:10:20 PM)
take good care everyone!!!!
lfitzger (Mar 17, 2008 10:10:20 PM)
nite mylil
Jennifer-S (Mar 17, 2008 10:10:29 PM)
hopefully. i found a great hotel
hoodlum (Mar 17, 2008 10:10:31 PM)
Jenn have a safe trip...
Jennifer-S (Mar 17, 2008 10:10:36 PM)
bye hood
hoodlum (Mar 17, 2008 10:10:44 PM)
nite all!!!
lfitzger (Mar 17, 2008 10:10:44 PM)
nite hood
lfitzger (Mar 17, 2008 10:10:51 PM)
nite everyone
lfitzger (Mar 17, 2008 10:10:58 PM)
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lkommer (Mar 17, 2008 10:11:03 PM)
nite
Jennifer-S (Mar 17, 2008 10:11:07 PM)
wait lk
lkommer (Mar 17, 2008 10:11:13 PM)
i am
hoodlum (Mar 17, 2008 10:11:18 PM)
go ahead jenn/lk
lkommer (Mar 17, 2008 10:11:20 PM)
what do i need do
Jennifer-S (Mar 17, 2008 10:11:23 PM)
hood i'm teaching her how to close
hoodlum (Mar 17, 2008 10:11:31 PM)
we'll all just go to Qtest
hoodlum (Mar 17, 2008 10:11:36 PM)
np
Jennifer-S (Mar 17, 2008 10:11:37 PM)
see the digichat about
Jennifer-S (Mar 17, 2008 10:11:50 PM)
above i mean
Jennifer-S (Mar 17, 2008 10:12:05 PM)
click on it
Jennifer-S (Mar 17, 2008 10:12:18 PM)
then click on set site options
Jennifer-S (Mar 17, 2008 10:12:39 PM)
then click on 1000 categories on left
lkommer (Mar 17, 2008 10:12:40 PM)
k
Jennifer-S (Mar 17, 2008 10:12:55 PM)
then find mito chat on right and click
Jennifer-S (Mar 17, 2008 10:13:09 PM)
then click remove and save
lkommer (Mar 17, 2008 10:13:16 PM)
1000 cat isnt there
Jennifer-S (Mar 17, 2008 10:13:30 PM)
1000 digichat categories
Jennifer-S (Mar 17, 2008 10:13:35 PM)
on left in box
lkommer (Mar 17, 2008 10:13:58 PM)
it just says help cancel or save
Jennifer-S (Mar 17, 2008 10:14:20 PM)
do you have 2 boxes?
lkommer (Mar 17, 2008 10:14:33 PM)
one box
hoodlum (Mar 17, 2008 10:14:42 PM)
lkommer when you click on digichat what do you see?
Jennifer-S (Mar 17, 2008 10:15:01 PM)
there isn't one with 1000 digichat
hoodlum (Mar 17, 2008 10:15:11 PM)
I've not had confirmation from Penny yet that Moderator status has been given to you...
lkommer (Mar 17, 2008 10:15:23 PM)
set site options change password settings and logout
Jennifer-S (Mar 17, 2008 10:15:30 PM)
that would explain it
hoodlum (Mar 17, 2008 10:15:42 PM)
that may be the difference... you may not see 1000digichat categories
lkommer (Mar 17, 2008 10:15:52 PM)
ok
hoodlum (Mar 17, 2008 10:16:00 PM)
I will email Penny again
Jennifer-S (Mar 17, 2008 10:16:10 PM)
ok i'll close tonight and teach you next time...2 weeks
hoodlum (Mar 17, 2008 10:16:11 PM)
why I wanted to hang around... :-)
Jennifer-S (Mar 17, 2008 10:16:22 PM)
we love you hoodie
hoodlum (Mar 17, 2008 10:16:25 PM)
nite gang... thanks!
lkommer (Mar 17, 2008 10:16:26 PM)
ok
Jennifer-S (Mar 17, 2008 10:16:29 PM)
nite nite
hoodlum (Mar 17, 2008 10:16:30 PM)
love you guys too!!!!!!
lkommer (Mar 17, 2008 10:16:33 PM)
goodnite
hoodlum (Mar 17, 2008 10:16:37 PM)
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