LGMD 1A Dominant
monie (Oct 11, 2008 9:11:50 PM)
CRIS (Oct 11, 2008 9:14:10 PM)
(This user has entered LGMD 1A Dominant)
monie (Oct 11, 2008 9:14:19 PM)
hi
monie (Oct 11, 2008 9:14:32 PM)
how's things?
CRIS (Oct 11, 2008 9:14:45 PM)
hi monie......how are you tonight?
monie (Oct 11, 2008 9:14:59 PM)
fine and you
CRIS (Oct 11, 2008 9:15:44 PM)
pretty good.....hen did say she would be here tonight....lol
monie (Oct 11, 2008 9:15:58 PM)
oh good
CRIS (Oct 11, 2008 9:16:35 PM)
how are your boys?
monie (Oct 11, 2008 9:16:50 PM)
good, thanks
monie (Oct 11, 2008 9:17:06 PM)
anything new with you
CRIS (Oct 11, 2008 9:17:48 PM)
no, I try to live a very simple life....since I live by myself
monie (Oct 11, 2008 9:18:03 PM)
ok
kasiecom (Oct 11, 2008 9:18:15 PM)
(This user has entered LGMD 1A Dominant)
monie (Oct 11, 2008 9:18:32 PM)
hi kasie
CRIS (Oct 11, 2008 9:18:37 PM)
hi kasie
kasiecom (Oct 11, 2008 9:18:50 PM)
nie all
CRIS (Oct 11, 2008 9:19:22 PM)
refresh my memory.....where are you from again, kasie
hen (Oct 11, 2008 9:21:48 PM)
(This user has entered LGMD 1A Dominant)
kasiecom (Oct 11, 2008 9:21:57 PM)
last night I tried to log on but could not rember my passsword, how can I get my passsword if I am unable to rememvber it
monie (Oct 11, 2008 9:22:03 PM)
hi hen
hen (Oct 11, 2008 9:22:39 PM)
hi all, sorry i'm late
hen (Oct 11, 2008 9:22:42 PM)
how's it going?
kasiecom (Oct 11, 2008 9:22:42 PM)
I am vfrom Newfoundland,Canada
monie (Oct 11, 2008 9:22:48 PM)
you probably have to e-mail the site don't you?
hen (Oct 11, 2008 9:22:56 PM)
good to see you kasie
kasiecom (Oct 11, 2008 9:23:03 PM)
ity
hen (Oct 11, 2008 9:23:08 PM)
yw
kasiecom (Oct 11, 2008 9:23:09 PM)
ty
hen (Oct 11, 2008 9:23:41 PM)
whats new
kasiecom (Oct 11, 2008 9:24:22 PM)
not much
hen (Oct 11, 2008 9:24:32 PM)
well guess what kasie?
kasiecom (Oct 11, 2008 9:24:56 PM)
what
hen (Oct 11, 2008 9:25:09 PM)
i have a job
hen (Oct 11, 2008 9:25:12 PM)
whoo hoo
monie (Oct 11, 2008 9:25:30 PM)
way to go hen
hen (Oct 11, 2008 9:25:54 PM)
ty
kasiecom (Oct 11, 2008 9:25:59 PM)
congradulations, at whart
CRIS (Oct 11, 2008 9:26:04 PM)
it paid off, all her hard work
hen (Oct 11, 2008 9:26:05 PM)
had i told you monie?
monie (Oct 11, 2008 9:26:09 PM)
what is it
hen (Oct 11, 2008 9:26:13 PM)
i work at united cerebral palsy
hen (Oct 11, 2008 9:26:19 PM)
i'm a program assistant
monie (Oct 11, 2008 9:26:22 PM)
cool beans
hen (Oct 11, 2008 9:26:24 PM)
i do office work
hen (Oct 11, 2008 9:26:26 PM)
i love it
hen (Oct 11, 2008 9:26:26 PM)
ty
monie (Oct 11, 2008 9:26:31 PM)
do you love it
CRIS (Oct 11, 2008 9:27:05 PM)
how was that first paycheck, hen?
hen (Oct 11, 2008 9:27:28 PM)
wonderful
hen (Oct 11, 2008 9:27:31 PM)
lol
monie (Oct 11, 2008 9:27:57 PM)
i am so happy for you
monie (Oct 11, 2008 9:28:12 PM)
hennie you have such a nice way about you. you'll be great at it
hen (Oct 11, 2008 9:28:35 PM)
i hope so
CRIS (Oct 11, 2008 9:28:40 PM)
they are lucky to have you, hen
hen (Oct 11, 2008 9:28:48 PM)
ev1 so far is very nice
hen (Oct 11, 2008 9:28:57 PM)
ty cris
monie (Oct 11, 2008 9:29:10 PM)
that is just too cool hen, i am so proud of you
hen (Oct 11, 2008 9:29:24 PM)
thanks
hen (Oct 11, 2008 9:31:01 PM)
so u been feeling ok kasie?
kasiecom (Oct 11, 2008 9:32:22 PM)
so so
hen (Oct 11, 2008 9:32:46 PM)
ok
monie (Oct 11, 2008 9:33:02 PM)
you ok kasie
CRIS (Oct 11, 2008 9:33:11 PM)
can we help?
hen (Oct 11, 2008 9:34:52 PM)
yep we're here for u kasie
hen (Oct 11, 2008 9:35:44 PM)
so is the game over monie?
monie (Oct 11, 2008 9:35:57 PM)
no, darn it
hen (Oct 11, 2008 9:36:07 PM)
whats the score lol
monie (Oct 11, 2008 9:36:12 PM)
it keeps going back and forth
hen (Oct 11, 2008 9:36:24 PM)
oh man
monie (Oct 11, 2008 9:36:47 PM)
i won't be doing hand modeling after biting off any fingernails i still had
hen (Oct 11, 2008 9:37:07 PM)
ha ha ha
hen (Oct 11, 2008 9:37:10 PM)
ur so funny monie
monie (Oct 11, 2008 9:37:37 PM)
tis is 500 times more nerve racking then when i played, giggle
hen (Oct 11, 2008 9:37:45 PM)
teehee
monie (Oct 11, 2008 9:38:05 PM)
g-ma is over with her 92 year old friend watching it
hen (Oct 11, 2008 9:38:10 PM)
aww
CRIS (Oct 11, 2008 9:38:35 PM)
that is great
hen (Oct 11, 2008 9:38:54 PM)
yes it is
hen (Oct 11, 2008 9:39:09 PM)
i pray i make it to 92 or older
monie (Oct 11, 2008 9:39:19 PM)
yep
CRIS (Oct 11, 2008 9:40:14 PM)
I hope I have some money if I live that long.....lol
hen (Oct 11, 2008 9:40:26 PM)
well that too cris lol
hen (Oct 11, 2008 9:40:30 PM)
with the way things are now
hen (Oct 11, 2008 9:40:31 PM)
oh man
monie (Oct 11, 2008 9:40:32 PM)
yes
CRIS (Oct 11, 2008 9:40:58 PM)
not a good week, last week
kasiecom (Oct 11, 2008 9:41:05 PM)
been having higher than normal seizures lately,not so bad when they are at home but really get depressed when they occur in publlic, as was the case last week in front of 20+ people at local dart league I play in
monie (Oct 11, 2008 9:41:31 PM)
you ok
stephh1 (Oct 11, 2008 9:42:01 PM)
(This user has entered LGMD 1A Dominant)
stephh1 (Oct 11, 2008 9:42:10 PM)
hi all
hen (Oct 11, 2008 9:42:10 PM)
hi steph, welcome
monie (Oct 11, 2008 9:42:10 PM)
hi steph
CRIS (Oct 11, 2008 9:42:28 PM)
hi steph
hen (Oct 11, 2008 9:42:32 PM)
try not to be embarrased kasie or depressed
hen (Oct 11, 2008 9:42:42 PM)
its not your fault, and people should understand
monie (Oct 11, 2008 9:42:44 PM)
you guys i hate to go, but i need to go get g-ma back to her house
hen (Oct 11, 2008 9:42:47 PM)
how u feeling steph?
hen (Oct 11, 2008 9:42:51 PM)
ok monie, tc
hen (Oct 11, 2008 9:42:53 PM)
good seeing you
hen (Oct 11, 2008 9:42:54 PM)
hugs
stephh1 (Oct 11, 2008 9:42:58 PM)
bye monie, tc
CRIS (Oct 11, 2008 9:43:02 PM)
bye monie...tc and love you
monie (Oct 11, 2008 9:43:04 PM)
kasie you'll be in my prayers. take care of yourself
stephh1 (Oct 11, 2008 9:43:09 PM)
not bad hen, little headache but not bad
stephh1 (Oct 11, 2008 9:43:16 PM)
nothing like last night
CRIS (Oct 11, 2008 9:43:36 PM)
kasie....are you on medication?
monie (Oct 11, 2008 9:43:37 PM)
i'm proud of all of you.....love you all
hen (Oct 11, 2008 9:43:39 PM)
oh thats good steph
monie (Oct 11, 2008 9:43:41 PM)
(This user has left DigiChat)
hen (Oct 11, 2008 9:43:41 PM)
love u 2 monie
kasiecom (Oct 11, 2008 9:43:53 PM)
it is just part of of my life, no physical injuries, just emotional ones
hen (Oct 11, 2008 9:44:04 PM)
i know kasie
hen (Oct 11, 2008 9:44:10 PM)
i get depressed too at times
hen (Oct 11, 2008 9:44:26 PM)
how's ur family kasie?
hen (Oct 11, 2008 9:44:31 PM)
do u talk much with them
stephh1 (Oct 11, 2008 9:46:31 PM)
it's ok kasie, no judgement here
CRIS (Oct 11, 2008 9:46:31 PM)
I would keep going back to the dart league because they know what can happen to you and will be there to help.....they care about you
stephh1 (Oct 11, 2008 9:46:48 PM)
dart league?
hen (Oct 11, 2008 9:47:08 PM)
whats that cris?
kasiecom (Oct 11, 2008 9:47:16 PM)
they ll know about them, they just feel after I yhave them they treat me like a child m, do not want or neeed
hen (Oct 11, 2008 9:47:36 PM)
i hear u kasie
kasiecom (Oct 11, 2008 9:47:40 PM)
uit
hen (Oct 11, 2008 9:47:42 PM)
they're just concerned
CRIS (Oct 11, 2008 9:47:42 PM)
that is where the seizure occured
kasiecom (Oct 11, 2008 9:47:45 PM)
it
stephh1 (Oct 11, 2008 9:47:55 PM)
my mom does that to me kasie, causes alot of tension at times
hen (Oct 11, 2008 9:47:56 PM)
oh ok cris
CRIS (Oct 11, 2008 9:49:15 PM)
sometimes you just have to let it go and take the help and caring
hen (Oct 11, 2008 9:49:55 PM)
yeah
CRIS (Oct 11, 2008 9:50:00 PM)
kasie....we all need each other, no matter if we have a disability or not
hen (Oct 11, 2008 9:50:07 PM)
true
stephh1 (Oct 11, 2008 9:50:27 PM)
i agree to a point, but when someone makes you feel like you are 10, it's very irritating and can get to the point where they completely try to take over your life
kasiecom (Oct 11, 2008 9:50:31 PM)
I have no inrtentipons of quitting
CRIS (Oct 11, 2008 9:51:04 PM)
good to hear that
hen (Oct 11, 2008 9:51:18 PM)
glad to hear it kasie
hen (Oct 11, 2008 9:51:29 PM)
i know what u mean steph
stephh1 (Oct 11, 2008 9:51:37 PM)
yes don't stop coming kasie
kasiecom (Oct 11, 2008 9:52:27 PM)
want to finish in last place again LOL
hen (Oct 11, 2008 9:52:35 PM)
lol
stephh1 (Oct 11, 2008 9:53:03 PM)
what do you mean kasie? what are you competing in?
stephh1 (Oct 11, 2008 9:53:07 PM)
sorry came late
hen (Oct 11, 2008 9:53:53 PM)
ur ok steph
stephh1 (Oct 11, 2008 9:54:12 PM)
k cool
hen (Oct 11, 2008 9:54:42 PM)
darts right?
kasiecom (Oct 11, 2008 9:55:09 PM)
dart league 14 teams ,same playr on sanm teams each year and e allwayy have fewest wins at the end
stephh1 (Oct 11, 2008 9:55:14 PM)
could you use a blow dart? rather than having to throw them.
stephh1 (Oct 11, 2008 9:55:27 PM)
blow the dart out of a tube instead
hen (Oct 11, 2008 9:55:29 PM)
but at least u compete, thats the main thing
CRIS (Oct 11, 2008 9:56:40 PM)
I use to be in a bowling league, but cannot do that anymore
kasiecom (Oct 11, 2008 9:56:50 PM)
I do not play to win I play for fun
CRIS (Oct 11, 2008 9:57:22 PM)
it is nice to go every week and see the same people who cheer you on....puts a smile on your face
hen (Oct 11, 2008 9:57:44 PM)
awesome kasie
stephh1 (Oct 11, 2008 9:57:50 PM)
that's cool kris, at least you are having fun
hen (Oct 11, 2008 9:57:54 PM)
yes
stephh1 (Oct 11, 2008 9:58:37 PM)
i always wanted to bowl using one of those ramps that you just put the ball on then point it and let go
kasiecom (Oct 11, 2008 9:58:45 PM)
everyone get same thing at the end , whethrer you finish first or worst
stephh1 (Oct 11, 2008 9:58:47 PM)
but doubt i could get the ball on the ramp now. lol
CRIS (Oct 11, 2008 9:58:49 PM)
no, I use to be able to bowl....not any more
stephh1 (Oct 11, 2008 9:59:37 PM)
i was on the bowling team in high school, senior year, had a high score of a whopping 90. lol
hen (Oct 11, 2008 9:59:48 PM)
i never learned to bowl
hen (Oct 11, 2008 9:59:51 PM)
:(
CRIS (Oct 11, 2008 9:59:56 PM)
my average was about 140
stephh1 (Oct 11, 2008 10:00:50 PM)
i joined the team because my mom had a hysterectomy and went into full menopause overnight, before she went on hormones her temper was huge, so i wanted to be out of the house as much as possible. lol
stephh1 (Oct 11, 2008 10:01:03 PM)
never physical, just climb your case for breathing wrong. lol
hen (Oct 11, 2008 10:01:11 PM)
wow steph
stephh1 (Oct 11, 2008 10:01:12 PM)
but that went away when she went on hormones
hen (Oct 11, 2008 10:01:19 PM)
oh good
kasiecom (Oct 11, 2008 10:01:57 PM)
finding it harder to play now s arms are weaking and it is harder to g the darts to the board
stephh1 (Oct 11, 2008 10:02:04 PM)
even my stepdad was trying to get away from her as much as possible, which wasn't easy because his mother had come for a visit and he was retired. lol
hen (Oct 11, 2008 10:02:16 PM)
do u do any kind of weight lifting kasie
hen (Oct 11, 2008 10:02:22 PM)
or arm exercises?
stephh1 (Oct 11, 2008 10:02:25 PM)
that's why i wondered about a blow dart kasie, would be lighter
kasiecom (Oct 11, 2008 10:02:31 PM)
no
hen (Oct 11, 2008 10:02:40 PM)
i lift 2 lb weights
hen (Oct 11, 2008 10:02:57 PM)
not much
hen (Oct 11, 2008 10:03:02 PM)
but just to do something
stephh1 (Oct 11, 2008 10:03:10 PM)
if i did that now my head would blow up
hen (Oct 11, 2008 10:03:19 PM)
oh i bet steph
CRIS (Oct 11, 2008 10:03:51 PM)
head blow up...lol
hen (Oct 11, 2008 10:04:00 PM)
ouch
stephh1 (Oct 11, 2008 10:05:41 PM)
i had a migraine that almost sent me to the er last night cris, any little thing is bringing on headaches now
kasiecom (Oct 11, 2008 10:05:47 PM)
sholders are very weak and have problem keeping arms up and tnhrowinng dartts
stephh1 (Oct 11, 2008 10:05:56 PM)
soon as we get the van done i have to go for an eye exam and cat scan
hen (Oct 11, 2008 10:05:59 PM)
ic kasie
CRIS (Oct 11, 2008 10:06:53 PM)
I know you had to leave chat last night.....I am sorry you are have such migranes
hen (Oct 11, 2008 10:07:18 PM)
are u taking anything steph?
stephh1 (Oct 11, 2008 10:07:36 PM)
thx, i just want to find the problem and fix it. if it is sinuses let's do the surgery, if it's eyestrain give me glasses, don't care anymore
hen (Oct 11, 2008 10:07:47 PM)
i hear u
stephh1 (Oct 11, 2008 10:07:59 PM)
yes i have fioricet, and lortab, but last night was one of those days that it didn't help much
CRIS (Oct 11, 2008 10:08:00 PM)
me too.....
hen (Oct 11, 2008 10:08:11 PM)
oh wow
stephh1 (Oct 11, 2008 10:08:31 PM)
i have immitrex but haven't gotten the nerve to try it yet, wasn't sure if last night's headache was a migraine, cluster headache, or tension
stephh1 (Oct 11, 2008 10:08:44 PM)
cause i had TONS of tension yesterday
hen (Oct 11, 2008 10:08:54 PM)
oh and that doesn't help
stephh1 (Oct 11, 2008 10:09:26 PM)
no it didn't
CRIS (Oct 11, 2008 10:09:51 PM)
was the tension about the van?
stephh1 (Oct 11, 2008 10:11:09 PM)
yes that's been the main source of tension this week, and my mom and seem to be at odds over everything, if i say black she says white, etc
stephh1 (Oct 11, 2008 10:11:18 PM)
we just really had to have it out
stephh1 (Oct 11, 2008 10:11:32 PM)
better for now, but we seem to go in cycles
hen (Oct 11, 2008 10:11:33 PM)
wow
hen (Oct 11, 2008 10:11:46 PM)
and u being in pain doesn't help i'm sure
stephh1 (Oct 11, 2008 10:12:02 PM)
suprisingly enough we have a good relationship most of the time. lol
stephh1 (Oct 11, 2008 10:12:12 PM)
no it doesn't and she has her health problems
CRIS (Oct 11, 2008 10:12:41 PM)
you both do
hen (Oct 11, 2008 10:12:45 PM)
right
stephh1 (Oct 11, 2008 10:13:06 PM)
but i see the case worker on wed i think and am going to talk more about an aide, heard that they can help with masage for when i get headaches and that seemed to help when the physical therapist did it, so that would be a huge help for me
hen (Oct 11, 2008 10:13:24 PM)
oh thats a good idea
CRIS (Oct 11, 2008 10:13:37 PM)
oh yes, that would help
stephh1 (Oct 11, 2008 10:13:38 PM)
might make a little bit of tension between my mom and i till we find someone that meshes with us and she gets used to it, but she knows nothing about massage
stephh1 (Oct 11, 2008 10:14:07 PM)
but we have to find an agency that lets their aides do that
stephh1 (Oct 11, 2008 10:14:39 PM)
i'm putting that in the hands of the agency though. lol
stephh1 (Oct 11, 2008 10:14:43 PM)
it's her job. lol
kasiecom (Oct 11, 2008 10:14:45 PM)
only reason I stilll play is one of my team mates is totally blind and I have to be behind him and help him when he shoots , telling him if he hits the board, If he does noyt, I telll him RIGHT,LEFTT,, HIGHR OR LOWER tfor next shot. If he does not play after Christmas neighter willl I
CRIS (Oct 11, 2008 10:14:47 PM)
are there many where you kuve
CRIS (Oct 11, 2008 10:14:51 PM)
live
stephh1 (Oct 11, 2008 10:15:18 PM)
yes but they all have different programs and you have to deal with medicare and their requirments and restrictions as well
stephh1 (Oct 11, 2008 10:15:25 PM)
they decide how many hours of help you get
hen (Oct 11, 2008 10:15:28 PM)
oic kasie
stephh1 (Oct 11, 2008 10:15:37 PM)
medicaid sorry
stephh1 (Oct 11, 2008 10:15:41 PM)
state program
hen (Oct 11, 2008 10:15:46 PM)
right
CRIS (Oct 11, 2008 10:15:59 PM)
kasie....just keep going and let people make you laugh
hen (Oct 11, 2008 10:16:08 PM)
yes please do kasie
hen (Oct 11, 2008 10:16:14 PM)
well gang chat is over
hen (Oct 11, 2008 10:16:18 PM)
guess i'll say goodnight
hen (Oct 11, 2008 10:16:21 PM)
tc ev1
hen (Oct 11, 2008 10:16:26 PM)
love u guys, hugs
stephh1 (Oct 11, 2008 10:16:39 PM)
yeah kasie if it makes you happy that's the most important thing, sometimes i go to things even if i can't participate, just because it's fun to watch
stephh1 (Oct 11, 2008 10:16:45 PM)
ok hen, have a good nite, tc :D
hen (Oct 11, 2008 10:16:51 PM)
ok
hen (Oct 11, 2008 10:16:53 PM)
'nite
CRIS (Oct 11, 2008 10:16:53 PM)
ok....tc everyone and love you
hen (Oct 11, 2008 10:16:56 PM)
bye kasie
hen (Oct 11, 2008 10:17:01 PM)
please come again k
CRIS (Oct 11, 2008 10:17:22 PM)
get that bullseye, kasie
stephh1 (Oct 11, 2008 10:17:26 PM)
night all, tc :)
hen (Oct 11, 2008 10:17:27 PM)
yep
hen (Oct 11, 2008 10:17:29 PM)
;)
hen (Oct 11, 2008 10:17:34 PM)
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CRIS (Oct 11, 2008 10:18:50 PM)
good nite all
kasiecom (Oct 11, 2008 10:19:02 PM)
good night steph and chris
CRIS (Oct 11, 2008 10:19:08 PM)
(This user has left DigiChat)
stephh1 (Oct 11, 2008 10:19:15 PM)
nite cris and kasie, tc and have a good week. :)
stephh1 (Oct 11, 2008 10:19:18 PM)
(This user has left DigiChat)
kasiecom (Oct 11, 2008 10:19:20 PM)
(This user has left DigiChat)