DMD Parent Chat

momma (Mar 4, 2010 7:48:59 PM)
(This user has entered DMD Parent Chat)

twinglema (Mar 4, 2010 7:49:04 PM)
hi momma

momma (Mar 4, 2010 7:49:33 PM)
hello thier is it spring yet ?

twinglema (Mar 4, 2010 7:49:41 PM)
it's trying lol

twinglema (Mar 4, 2010 7:50:00 PM)
my back yard looks like a herd of cattle used it as their bathroom

momma (Mar 4, 2010 7:50:11 PM)
oh muddy?

twinglema (Mar 4, 2010 7:50:17 PM)
but the north side of house still has tons of snow

twinglema (Mar 4, 2010 7:50:30 PM)
no, dog poo

momma (Mar 4, 2010 7:50:49 PM)
oh thats right you have a big dog

twinglema (Mar 4, 2010 7:51:06 PM)
disgusto!

twinglema (Mar 4, 2010 7:51:16 PM)
sam did half the yard then quit

momma (Mar 4, 2010 7:51:25 PM)
you should she all the poo from the kennel

twinglema (Mar 4, 2010 7:51:33 PM)
but it has been in 30s, low forties

momma (Mar 4, 2010 7:51:35 PM)
see*

twinglema (Mar 4, 2010 7:51:40 PM)
i bet-ack

momma (Mar 4, 2010 7:51:55 PM)
it suppose to 59 this weekend

twinglema (Mar 4, 2010 7:52:13 PM)
i think it is here too

momma (Mar 4, 2010 7:52:15 PM)
oops 50 i mean

twinglema (Mar 4, 2010 7:52:25 PM)
we are going to kansas city tomorrow

momma (Mar 4, 2010 7:52:42 PM)
is it warm thier?

twinglema (Mar 4, 2010 7:52:44 PM)
i uncovered lawn furniture-i will regret but oh well

twinglema (Mar 4, 2010 7:52:48 PM)
warmer

twinglema (Mar 4, 2010 7:52:53 PM)
57 saturday

momma (Mar 4, 2010 7:53:11 PM)
sounds good

twinglema (Mar 4, 2010 7:53:56 PM)
i just want some barbeque

momma (Mar 4, 2010 7:54:25 PM)
we grill in the winter not as much this yr

twinglema (Mar 4, 2010 7:54:44 PM)
my grill was under 2 feet of snow

twinglema (Mar 4, 2010 7:54:55 PM)
kc has the best barbq

momma (Mar 4, 2010 7:54:58 PM)
oh that may be a problem llol

momma (Mar 4, 2010 7:55:19 PM)
yea good ole kc steaks

twinglema (Mar 4, 2010 7:55:50 PM)
my knee has been killing me

twinglema (Mar 4, 2010 7:56:00 PM)
so nice hubby offered to rent me a scooter

twinglema (Mar 4, 2010 7:56:04 PM)
if looks could killed

momma (Mar 4, 2010 7:56:24 PM)
from you or hubby?

twinglema (Mar 4, 2010 7:56:29 PM)
from me1

momma (Mar 4, 2010 7:56:41 PM)
oh lol

twinglema (Mar 4, 2010 7:57:24 PM)
that would be cute, a wc and a scooter

twinglema (Mar 4, 2010 7:57:29 PM)
kids would run amuck

momma (Mar 4, 2010 7:57:37 PM)
lol

Dadof Shelbi (Mar 4, 2010 7:57:48 PM)
(This user has entered DMD Parent Chat)

momma (Mar 4, 2010 7:58:01 PM)
hi dadof

twinglema (Mar 4, 2010 7:58:05 PM)
hi dadof

Dadof Shelbi (Mar 4, 2010 7:58:08 PM)
Hello

Dadof Shelbi (Mar 4, 2010 7:58:19 PM)
This is my 1st time doing this

Dadof Shelbi (Mar 4, 2010 7:58:23 PM)
little nervous

twinglema (Mar 4, 2010 7:58:34 PM)
we wont bite

momma (Mar 4, 2010 7:58:39 PM)
mom of 23 dmder no need to be nervous

twinglema (Mar 4, 2010 7:58:47 PM)
i am mom to a 12 yr old with dmd

Dadof Shelbi (Mar 4, 2010 7:59:17 PM)
My daughter is 17 had has had LGMD 2A for a year now

momma (Mar 4, 2010 7:59:46 PM)
sorry to hear how is she doing?

twinglema (Mar 4, 2010 8:00:04 PM)
i do not know much about lgmd

momma (Mar 4, 2010 8:00:13 PM)
me either

twinglema (Mar 4, 2010 8:00:14 PM)
but understand having a kid with md

Dadof Shelbi (Mar 4, 2010 8:00:22 PM)
She is awesome ! I feel like I am going to go crazy

twinglema (Mar 4, 2010 8:00:46 PM)
sorry to hear

momma (Mar 4, 2010 8:00:46 PM)
awe we so understand that feeling

Dadof Shelbi (Mar 4, 2010 8:01:31 PM)
She told my wife and I that she needs to move into our bedroom on the main floor of our house because the steps are getting too hard and I just want to cry

matt-p (Mar 4, 2010 8:02:10 PM)
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twinglema (Mar 4, 2010 8:02:10 PM)
we will face that before too long. so sorry you hadt o hear that

twinglema (Mar 4, 2010 8:02:16 PM)
hi matt

matt-p (Mar 4, 2010 8:02:28 PM)
hey all

momma (Mar 4, 2010 8:02:44 PM)
that must be hard i remeber when my son just fell and cried and said i cant walk any more

matt-p (Mar 4, 2010 8:02:46 PM)
how is everybody

momma (Mar 4, 2010 8:02:47 PM)
hi matt

twinglema (Mar 4, 2010 8:02:59 PM)
i am good, my knee is bad

Dadof Shelbi (Mar 4, 2010 8:03:03 PM)
I have been looking at stair lifts and things like that but I don't know if that is the right thing to do

matt-p (Mar 4, 2010 8:03:06 PM)
oh no

momma (Mar 4, 2010 8:03:31 PM)
are you imvoled with mda ?

matt-p (Mar 4, 2010 8:03:53 PM)
what happen to your knee

twinglema (Mar 4, 2010 8:03:59 PM)
we will probably put in something

twinglema (Mar 4, 2010 8:04:05 PM)
arthritis

matt-p (Mar 4, 2010 8:04:15 PM)
yuck

Dadof Shelbi (Mar 4, 2010 8:04:17 PM)
Somewhat, I called them yesterday and they told me that they do not offer any help with stairs and things just wheel chairs

twinglema (Mar 4, 2010 8:04:31 PM)
i want my son to have access to the whole house

Dadof Shelbi (Mar 4, 2010 8:04:47 PM)
thats what i want for my daughter

momma (Mar 4, 2010 8:04:48 PM)
well i know they dont help finacailly but offer what her needs may be?

matt-p (Mar 4, 2010 8:04:59 PM)
i have that auther in my back and shoulders arms hands

twinglema (Mar 4, 2010 8:05:11 PM)
my hubby uses a wc and doesnt care that he cant get to basement

Dadof Shelbi (Mar 4, 2010 8:05:19 PM)
they gave me some numbers of people that do that kind of work

Dadof Shelbi (Mar 4, 2010 8:05:37 PM)
your husband has md ?

momma (Mar 4, 2010 8:05:46 PM)
our bedroom was on first floor and kents use to be upstairs so we added bed rooms on

twinglema (Mar 4, 2010 8:05:58 PM)
no he has spinal cord injury

Dadof Shelbi (Mar 4, 2010 8:06:04 PM)
oh is see

Dadof Shelbi (Mar 4, 2010 8:06:23 PM)
My wife thinks we should look for a ranch style home

twinglema (Mar 4, 2010 8:06:30 PM)
how does you daughter feel about you putting in a lift

Dadof Shelbi (Mar 4, 2010 8:07:10 PM)
we have about 2 years and the house we are in is paid off so i want to see if modifying the house is a better fit ?

Dadof Shelbi (Mar 4, 2010 8:07:54 PM)
she worries about the money

Dadof Shelbi (Mar 4, 2010 8:08:01 PM)
I don

twinglema (Mar 4, 2010 8:08:09 PM)
if its paid off i would try to modify

Dadof Shelbi (Mar 4, 2010 8:08:14 PM)
dont know if she worries about how it will look ?

matt-p (Mar 4, 2010 8:09:01 PM)
mods can be made nice where you cant tell them very good

Dadof Shelbi (Mar 4, 2010 8:09:07 PM)
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matt-p (Mar 4, 2010 8:09:53 PM)
and even if you do buy a different home you will have to make mods there to i am shure

twinglema (Mar 4, 2010 8:10:26 PM)
we live in ranch and had to modify

matt-p (Mar 4, 2010 8:11:01 PM)
dont think there will ever be a home that dont need special mods for us

twinglema (Mar 4, 2010 8:11:20 PM)
momma how has kent been?

matt-p (Mar 4, 2010 8:11:20 PM)
inless its custom built

momma (Mar 4, 2010 8:11:58 PM)
kents doing good

twinglema (Mar 4, 2010 8:12:07 PM)
yippee

matt-p (Mar 4, 2010 8:12:11 PM)
it is finally warming up here

momma (Mar 4, 2010 8:12:23 PM)
did i tel he got his new chair?

matt-p (Mar 4, 2010 8:12:28 PM)
is kent eating now

twinglema (Mar 4, 2010 8:12:33 PM)
no! how does he like it

matt-p (Mar 4, 2010 8:12:42 PM)
wooohooo

momma (Mar 4, 2010 8:12:48 PM)
good

matt-p (Mar 4, 2010 8:13:09 PM)
did he get all the extras that you was ayin

matt-p (Mar 4, 2010 8:13:15 PM)
sayin

momma (Mar 4, 2010 8:13:30 PM)
everthing finally going good monday thier comming to put new shower in

matt-p (Mar 4, 2010 8:13:32 PM)
think it was you

matt-p (Mar 4, 2010 8:13:41 PM)
great

twinglema (Mar 4, 2010 8:13:43 PM)
really? a roll in?

momma (Mar 4, 2010 8:14:07 PM)
yes we had it done like 8 yr ago but really need work

twinglema (Mar 4, 2010 8:14:25 PM)
shoot ours was done 15 years ago

twinglema (Mar 4, 2010 8:14:30 PM)
is it tile?

momma (Mar 4, 2010 8:14:55 PM)
yea

matt-p (Mar 4, 2010 8:15:14 PM)
someone was gettin new chair and was tryin for some kind of deal where they had the room by room lights tv and something else all in one controller on thre chair

momma (Mar 4, 2010 8:15:14 PM)
the first time they did a bad job

twinglema (Mar 4, 2010 8:15:29 PM)
our friend has a roll in one taht is about 15 fet long so he goes in and can turn around, and it doesnt need a curtain since it is so deep

twinglema (Mar 4, 2010 8:15:47 PM)
they custom built theirs so there are no halls

matt-p (Mar 4, 2010 8:16:06 PM)
great

twinglema (Mar 4, 2010 8:16:09 PM)
wish we could do thsat

twinglema (Mar 4, 2010 8:16:12 PM)
that

matt-p (Mar 4, 2010 8:16:19 PM)
yes

twinglema (Mar 4, 2010 8:16:26 PM)
how is anna momma?

momma (Mar 4, 2010 8:16:41 PM)
this is gonna be5 ft by 37 inches deep

momma (Mar 4, 2010 8:16:48 PM)
ok i guess

twinglema (Mar 4, 2010 8:16:51 PM)
thats aobut how big ours is

twinglema (Mar 4, 2010 8:16:58 PM)
bathtub sized

twinglema (Mar 4, 2010 8:17:05 PM)
but wider

momma (Mar 4, 2010 8:17:11 PM)
yea

matt-p (Mar 4, 2010 8:17:50 PM)
i like the bath table they want to get for here

twinglema (Mar 4, 2010 8:17:59 PM)
bath table?

twinglema (Mar 4, 2010 8:18:24 PM)
hubby can shower by self, gonna be a tight squeeze qhen luke needs help

twinglema (Mar 4, 2010 8:18:27 PM)
when

matt-p (Mar 4, 2010 8:18:32 PM)
its like a bath tub table

momma (Mar 4, 2010 8:18:59 PM)
well we trnsfere kent he doesnt move around so it works well they way it gonna be

twinglema (Mar 4, 2010 8:19:09 PM)
thats all that matters

matt-p (Mar 4, 2010 8:19:12 PM)
no bending over for aides

twinglema (Mar 4, 2010 8:19:24 PM)
how do you get in it?

twinglema (Mar 4, 2010 8:19:32 PM)
i would think shower is easier

momma (Mar 4, 2010 8:19:34 PM)
yea ill have to put pictures on facebook when its done

matt-p (Mar 4, 2010 8:19:37 PM)
lift

twinglema (Mar 4, 2010 8:19:41 PM)
cool momma

momma (Mar 4, 2010 8:21:48 PM)
i think anna was going somewhere tonight

momma (Mar 4, 2010 8:22:02 PM)
meet up with another dmder i think

twinglema (Mar 4, 2010 8:22:02 PM)
isn't she doing a bible study/

matt-p (Mar 4, 2010 8:22:02 PM)
well all i am going to get put down for bed nite all

twinglema (Mar 4, 2010 8:22:09 PM)
ok matt nite

matt-p (Mar 4, 2010 8:22:11 PM)
have a good weekend

momma (Mar 4, 2010 8:22:16 PM)
oh sorry my sometimes my bad

matt-p (Mar 4, 2010 8:22:23 PM)
be safe stay warm

momma (Mar 4, 2010 8:22:24 PM)
night matt

twinglema (Mar 4, 2010 8:22:34 PM)
she did say something about doing that a while back

matt-p (Mar 4, 2010 8:22:49 PM)
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momma (Mar 4, 2010 8:23:23 PM)
do your kids get spring break soon?

twinglema (Mar 4, 2010 8:23:31 PM)
over easter

twinglema (Mar 4, 2010 8:23:47 PM)
the have a three day semi break end of march too

twinglema (Mar 4, 2010 8:24:08 PM)
they got to pick fun learning stuff like drama, fishing etc

momma (Mar 4, 2010 8:24:14 PM)
ah my daughters on spring break from college

twinglema (Mar 4, 2010 8:24:27 PM)
it's still winter!

momma (Mar 4, 2010 8:25:04 PM)
i know but college kids go florida and such

momma (Mar 4, 2010 8:25:15 PM)
she not but did in the past

twinglema (Mar 4, 2010 8:25:18 PM)
not mine-i know what goes on!

momma (Mar 4, 2010 8:25:40 PM)
well she was 20 so what ya gonna do

twinglema (Mar 4, 2010 8:25:45 PM)
true

twinglema (Mar 4, 2010 8:26:19 PM)
what is she going to school for/

momma (Mar 4, 2010 8:26:20 PM)
she drove to maimi crazy kids

twinglema (Mar 4, 2010 8:26:35 PM)
that would take up most of your time

momma (Mar 4, 2010 8:26:44 PM)
human delvopment family studies

momma (Mar 4, 2010 8:26:54 PM)
thay drove strait

twinglema (Mar 4, 2010 8:27:03 PM)
what do you do with that degree?

twinglema (Mar 4, 2010 8:27:07 PM)
social work?

momma (Mar 4, 2010 8:27:10 PM)
yes

twinglema (Mar 4, 2010 8:27:53 PM)
hannah wants to be a cheerleader now

momma (Mar 4, 2010 8:28:03 PM)
oh boy

momma (Mar 4, 2010 8:28:24 PM)
kristen always wanted to but never made the squad

twinglema (Mar 4, 2010 8:28:24 PM)
she like the dallas cheerleaders but i told her they don't wear enough clothes

twinglema (Mar 4, 2010 8:28:41 PM)
she was one until we had boy trouble and pulled her out

momma (Mar 4, 2010 8:28:51 PM)
oh

momma (Mar 4, 2010 8:29:23 PM)
we live in a small community it pretty much a name game but oh well she was a good student

twinglema (Mar 4, 2010 8:29:26 PM)
she will go back next year

twinglema (Mar 4, 2010 8:29:46 PM)
it is small school and if you want to cheer you can

momma (Mar 4, 2010 8:29:53 PM)
thats cool

twinglema (Mar 4, 2010 8:30:11 PM)
yeah, i want her involved in sokmething

momma (Mar 4, 2010 8:30:30 PM)
yes keep them involved

twinglema (Mar 4, 2010 8:30:50 PM)
the boys won their basketball tournament

momma (Mar 4, 2010 8:30:55 PM)
yeah

twinglema (Mar 4, 2010 8:31:22 PM)
sam was disappointed he did not get to play

twinglema (Mar 4, 2010 8:31:28 PM)
it was a very tough win

momma (Mar 4, 2010 8:31:31 PM)
awe

twinglema (Mar 4, 2010 8:31:57 PM)
luke of course did not care

twinglema (Mar 4, 2010 8:33:24 PM)
i think i will be able to convince sam to go out next year as his fav teacher will be coach

momma (Mar 4, 2010 8:33:48 PM)
that helps if the coach is likeable

twinglema (Mar 4, 2010 8:34:06 PM)
this years coach was a yeller but the boys loved him

momma (Mar 4, 2010 8:34:27 PM)
i remeber some of my coaches i dint like so i dint go out after my jr yr

twinglema (Mar 4, 2010 8:34:44 PM)
did you play basketball?

momma (Mar 4, 2010 8:35:09 PM)
if its constutive yelling thier a diffence

momma (Mar 4, 2010 8:35:27 PM)
yes i did 9& 10 grade

momma (Mar 4, 2010 8:36:18 PM)
i could of been a lot better but had a boy friend lost interest lol

momma (Mar 4, 2010 8:37:11 PM)
not what a mother of a teenage daughter wanted to hear im sure oops lol

twinglema (Mar 4, 2010 8:37:19 PM)
i bet

momma (Mar 4, 2010 8:38:44 PM)
well twingle im gonna check out have a great weekend ttyl

twinglema (Mar 4, 2010 8:38:51 PM)
ok momma you too

momma (Mar 4, 2010 8:38:56 PM)
night

twinglema (Mar 4, 2010 8:38:57 PM)
enjoy the heat wave!

twinglema (Mar 4, 2010 8:39:00 PM)
night

momma (Mar 4, 2010 8:39:03 PM)
yea lol

momma (Mar 4, 2010 8:39:05 PM)
(This user has left DigiChat)

paper (Mar 4, 2010 8:43:33 PM)
(This user has entered DMD Parent Chat)

paper (Mar 4, 2010 8:43:40 PM)
hi twing

twinglema (Mar 4, 2010 8:43:41 PM)
hi paper

twinglema (Mar 4, 2010 8:43:57 PM)
i was all alone, momma and matt left

paper (Mar 4, 2010 8:44:10 PM)
lol

paper (Mar 4, 2010 8:44:22 PM)
how are things

twinglema (Mar 4, 2010 8:44:34 PM)
prety good

twinglema (Mar 4, 2010 8:44:41 PM)
warming up but my knee hurts

paper (Mar 4, 2010 8:44:42 PM)
good here also

twinglema (Mar 4, 2010 8:44:46 PM)
how r u?

paper (Mar 4, 2010 8:44:51 PM)
i am ok

paper (Mar 4, 2010 8:45:15 PM)
i got my stride and ride team all wrapped up

twinglema (Mar 4, 2010 8:45:21 PM)
awesome

paper (Mar 4, 2010 8:45:28 PM)
now just have to work our buts off

twinglema (Mar 4, 2010 8:45:43 PM)
did you name your team?

paper (Mar 4, 2010 8:46:01 PM)
i think we will do grat 60 people should be able to raise some serrious cash ,team core

twinglema (Mar 4, 2010 8:46:25 PM)
that is really cool

paper (Mar 4, 2010 8:46:55 PM)
my local firemen union is on the team

twinglema (Mar 4, 2010 8:47:03 PM)
cool

paper (Mar 4, 2010 8:47:25 PM)
yep

twinglema (Mar 4, 2010 8:47:51 PM)
we are going to kansas city tomorrow

paper (Mar 4, 2010 8:48:04 PM)
oh ya dr trip or fun

twinglema (Mar 4, 2010 8:48:18 PM)
hubby has meeting but mostly fun

paper (Mar 4, 2010 8:48:37 PM)
good for u u need a bit of fun in your life

twinglema (Mar 4, 2010 8:48:42 PM)
quick trip

twinglema (Mar 4, 2010 8:48:51 PM)
yes, and some bar-b-q

paper (Mar 4, 2010 8:49:07 PM)
those are the best kind of trips fast but fun

paper (Mar 4, 2010 8:49:21 PM)
oh ya u know a good place there

twinglema (Mar 4, 2010 8:49:33 PM)
except they cahnged the madified van we rent-not very comfortable anymore

twinglema (Mar 4, 2010 8:49:44 PM)
lots of good palces there lol

paper (Mar 4, 2010 8:49:50 PM)
that suck

paper (Mar 4, 2010 8:49:55 PM)
oh ya

twinglema (Mar 4, 2010 8:50:18 PM)
bruce rides in bumpy back and there is not legroom as its al taken up for chari

paper (Mar 4, 2010 8:50:22 PM)
there is a place in southern indiana that is awsome it is called wolfs

twinglema (Mar 4, 2010 8:50:22 PM)
chair

twinglema (Mar 4, 2010 8:50:37 PM)
kc is known for awesome bar b q

paper (Mar 4, 2010 8:51:04 PM)
yep

twinglema (Mar 4, 2010 8:51:35 PM)
and work is paying for alot of it so we are gonna eat at the restaurant on the 40th floor that rotaotes

paper (Mar 4, 2010 8:51:53 PM)
nice

twinglema (Mar 4, 2010 8:52:21 PM)
i'd rather not dress up but its once in lifetime chance

paper (Mar 4, 2010 8:52:42 PM)
hubby hit a trash can the other day on way to work i had to take it to the repair shop today

twinglema (Mar 4, 2010 8:52:48 PM)
ack

paper (Mar 4, 2010 8:52:55 PM)
i dont like to dress up eather

twinglema (Mar 4, 2010 8:53:03 PM)
i have hit so many potholes my engine rattles

paper (Mar 4, 2010 8:53:09 PM)
lol

paper (Mar 4, 2010 8:53:12 PM)
not good

twinglema (Mar 4, 2010 8:53:29 PM)
it is some cap to some fan so sounds bad but not hurting anything

paper (Mar 4, 2010 8:53:46 PM)
this can was one them big plastic ones that the trsh truck grabs and emptys

twinglema (Mar 4, 2010 8:53:55 PM)
much damage/

twinglema (Mar 4, 2010 8:53:57 PM)
?

paper (Mar 4, 2010 8:54:12 PM)
not really a couple dents and a few scratches

twinglema (Mar 4, 2010 8:54:20 PM)
thats good

paper (Mar 4, 2010 8:54:26 PM)
and the air bag sensor is on

paper (Mar 4, 2010 8:54:49 PM)
it is just the fact it is a new car that ticks me off

twinglema (Mar 4, 2010 8:54:54 PM)
oh rats

paper (Mar 4, 2010 8:55:08 PM)
it is only a couple years old

paper (Mar 4, 2010 8:55:51 PM)
they are putting it on our comp so we wont have to pay anything

twinglema (Mar 4, 2010 8:55:59 PM)
oh good

paper (Mar 4, 2010 8:56:21 PM)
yep so may as well get it fixed

twinglema (Mar 4, 2010 8:56:23 PM)
i had 2 more friends get laid off

paper (Mar 4, 2010 8:56:29 PM)
eeek

paper (Mar 4, 2010 8:56:33 PM)
not good

twinglema (Mar 4, 2010 8:56:49 PM)
nope

paper (Mar 4, 2010 8:57:27 PM)
i meet with the scooter sales guy the other day looks like i am getting a pride celeberity

twinglema (Mar 4, 2010 8:57:33 PM)
awesome

twinglema (Mar 4, 2010 8:57:43 PM)
that will help with the stride and ride

paper (Mar 4, 2010 8:57:51 PM)
yep cant wait till they actually get it here

paper (Mar 4, 2010 8:58:01 PM)
oh ya and everything else also

twinglema (Mar 4, 2010 8:58:03 PM)
how long?

paper (Mar 4, 2010 8:58:16 PM)
they havent said yet

twinglema (Mar 4, 2010 8:58:32 PM)
waitng game

paper (Mar 4, 2010 8:58:49 PM)
yep paper work takes time i guess

paper (Mar 4, 2010 8:59:36 PM)
they better not take to long or put me off for some reason cause i wont take it well

paper (Mar 4, 2010 8:59:47 PM)
they wont want me on their butts

twinglema (Mar 4, 2010 9:00:23 PM)
true

paper (Mar 4, 2010 9:00:41 PM)
i got my half of the money waiting and they got the other half promised to them from the mda so they better get it here in a timly manor

twinglema (Mar 4, 2010 9:00:50 PM)
amen

paper (Mar 4, 2010 9:01:14 PM)
i hate waiting for stuff that i know dont take months to nail down

twinglema (Mar 4, 2010 9:01:31 PM)
yep me too

paper (Mar 4, 2010 9:02:07 PM)
my dad is finnally getting off his but and has put in for ssi

twinglema (Mar 4, 2010 9:02:29 PM)
well good

paper (Mar 4, 2010 9:03:06 PM)
thank god he reg with the mda bk in the 70s my mda rep said that should help him

twinglema (Mar 4, 2010 9:03:17 PM)
he has md too

paper (Mar 4, 2010 9:03:27 PM)
yep same as me and kids\

twinglema (Mar 4, 2010 9:03:33 PM)
oh. sorry

paper (Mar 4, 2010 9:03:52 PM)
thats ok he is much milder than me almost like lee

twinglema (Mar 4, 2010 9:04:00 PM)
i thoiught they had a hard time figuring out what you had?

twinglema (Mar 4, 2010 9:04:19 PM)
they could not tell based on faimly history?

paper (Mar 4, 2010 9:04:28 PM)
they did they thought dad had polymisitius sp?

twinglema (Mar 4, 2010 9:04:41 PM)
they thought i had that too

twinglema (Mar 4, 2010 9:04:43 PM)
or fibro

paper (Mar 4, 2010 9:04:49 PM)
but after i got my dx there is no way he can have that

paper (Mar 4, 2010 9:05:10 PM)
ccd is inherited

twinglema (Mar 4, 2010 9:05:18 PM)
how did he register with the mda if he was diagnosed with poly?

paper (Mar 4, 2010 9:05:21 PM)
and my mom dont show any signs of md

paper (Mar 4, 2010 9:05:28 PM)
it is a md

twinglema (Mar 4, 2010 9:05:35 PM)
oh ok

paper (Mar 4, 2010 9:06:01 PM)
but bk when they did his biospys they didnt know about ccd

twinglema (Mar 4, 2010 9:06:10 PM)
i see

paper (Mar 4, 2010 9:06:24 PM)
so it could be that he actually has ccd not poly

paper (Mar 4, 2010 9:07:09 PM)
if they didnt bio the right spot then it could be a positive bio and they just said poly not knowing what they were looking at

twinglema (Mar 4, 2010 9:07:42 PM)
i have symptome of that and fibro

paper (Mar 4, 2010 9:08:00 PM)
me and the kids all 3 have mda clinic on monday

paper (Mar 4, 2010 9:08:04 PM)
really wow

twinglema (Mar 4, 2010 9:08:10 PM)
weird biopsy but nothing that told them exactly what was going on

twinglema (Mar 4, 2010 9:08:20 PM)
that will be a busy day

paper (Mar 4, 2010 9:08:31 PM)
that allways sucks not really knowing

twinglema (Mar 4, 2010 9:08:35 PM)
i think it is all actually due to being dmd carrier

paper (Mar 4, 2010 9:09:07 PM)
ya it will be it is a 2 1/2 hr drive to indy then a few long hrs in 2 different hospitals

twinglema (Mar 4, 2010 9:09:23 PM)
gonna spend the night?

paper (Mar 4, 2010 9:09:28 PM)
nope

twinglema (Mar 4, 2010 9:09:35 PM)
long day

paper (Mar 4, 2010 9:09:38 PM)
long day though

paper (Mar 4, 2010 9:09:51 PM)
have to leave the house at 530

twinglema (Mar 4, 2010 9:09:56 PM)
ick

paper (Mar 4, 2010 9:10:02 PM)
my apt is first at 8

paper (Mar 4, 2010 9:10:20 PM)
ya i will so pay for a lond day

paper (Mar 4, 2010 9:10:22 PM)
long

twinglema (Mar 4, 2010 9:10:23 PM)
well at least first one tends to be on time

paper (Mar 4, 2010 9:10:32 PM)
ya i hope

twinglema (Mar 4, 2010 9:10:45 PM)
i will pay for k city too

paper (Mar 4, 2010 9:10:47 PM)
the kids apt is at 11

twinglema (Mar 4, 2010 9:10:57 PM)
hubby offered to rent me a scooter to which i said NO

twinglema (Mar 4, 2010 9:11:03 PM)
one wc right now is enough

paper (Mar 4, 2010 9:11:07 PM)
lol

twinglema (Mar 4, 2010 9:11:27 PM)
sometimes his helfulness almost gets him slapped

paper (Mar 4, 2010 9:11:33 PM)
lol

twinglema (Mar 4, 2010 9:12:06 PM)
like i wear alot of rings to hide my bumpy fingers and he asks if i like how it looks!

twinglema (Mar 4, 2010 9:12:12 PM)
no, i hate it! duh

paper (Mar 4, 2010 9:12:28 PM)
i took hubbys car to the repair shop then to get oil changed and then to the insurance office time i got home i needed a pain pill and a nap

paper (Mar 4, 2010 9:12:42 PM)
lol

twinglema (Mar 4, 2010 9:12:57 PM)
i took one at 3 am then remebered i would not be able to take kids to school so hubby diod it

twinglema (Mar 4, 2010 9:13:28 PM)
most of the time i can mange ok, my arthritis in my knee is flairing

paper (Mar 4, 2010 9:13:37 PM)
i get up at 6 am all week to get kat on bus by 719

twinglema (Mar 4, 2010 9:13:45 PM)
me too

twinglema (Mar 4, 2010 9:13:57 PM)
we leave house at 7:20

paper (Mar 4, 2010 9:14:22 PM)
she could do it her self she is a good kid but i allways like to make sure she is actually on the bus

twinglema (Mar 4, 2010 9:14:38 PM)
i dont blame you too many crazies out there

paper (Mar 4, 2010 9:14:46 PM)
we dont live in the best hood

paper (Mar 4, 2010 9:15:13 PM)
ya but 7 am is a little early for the drug deals to be up lol

twinglema (Mar 4, 2010 9:15:28 PM)
doesnt seem to matter any more where you live

paper (Mar 4, 2010 9:15:33 PM)
just the other crazys are out lol

paper (Mar 4, 2010 9:15:46 PM)
nope this used to be a good hood

twinglema (Mar 4, 2010 9:15:56 PM)
ours is in transition

paper (Mar 4, 2010 9:16:02 PM)
we have been here for 14 years

twinglema (Mar 4, 2010 9:16:24 PM)
house is paid for so it would take alot for me to move

paper (Mar 4, 2010 9:16:31 PM)
when we first moved here there was 89% owner occ

twinglema (Mar 4, 2010 9:16:41 PM)
'occ?

paper (Mar 4, 2010 9:16:43 PM)
now it is other way around

paper (Mar 4, 2010 9:16:48 PM)
occupied

twinglema (Mar 4, 2010 9:16:54 PM)
ahhhh

paper (Mar 4, 2010 9:17:12 PM)
sorry i am lazy my arms are killing me from driving his car today

twinglema (Mar 4, 2010 9:17:20 PM)
i bet

twinglema (Mar 4, 2010 9:17:23 PM)
sorry

paper (Mar 4, 2010 9:17:26 PM)
i hate that little car lol

twinglema (Mar 4, 2010 9:17:59 PM)
i have the rental drivers seat all the way back and brake is still too close and i am only 5' tall!

twinglema (Mar 4, 2010 9:18:11 PM)
not comfortable to drive for 3 hours tomorrow

paper (Mar 4, 2010 9:18:17 PM)
there is no arm rest in his car and i so need somewhere for my arms to rest

twinglema (Mar 4, 2010 9:18:28 PM)
my arms are too short to use em lol

paper (Mar 4, 2010 9:18:29 PM)
lol

twinglema (Mar 4, 2010 9:18:44 PM)
i will get to hotel and hit the hot tub

paper (Mar 4, 2010 9:18:49 PM)
my santafee is just right

twinglema (Mar 4, 2010 9:19:03 PM)
my van is all broke in and comfy

paper (Mar 4, 2010 9:19:09 PM)
i am trying to get my mom to give me their hottub

paper (Mar 4, 2010 9:19:36 PM)
i would so be in it everyday maybe a few times a day lol

twinglema (Mar 4, 2010 9:19:46 PM)
luke would never get out!

paper (Mar 4, 2010 9:20:04 PM)
it just make your body feal so gooood

twinglema (Mar 4, 2010 9:20:26 PM)
when he is med well i make him get out

paper (Mar 4, 2010 9:20:40 PM)
lol

paper (Mar 4, 2010 9:20:59 PM)
well twing i think i am going to go to bed early

twinglema (Mar 4, 2010 9:21:11 PM)
ok paper have a good weekend and good luck monday

paper (Mar 4, 2010 9:21:23 PM)
good chat ya you too have fun and stay safe

paper (Mar 4, 2010 9:21:27 PM)
huggles

twinglema (Mar 4, 2010 9:21:27 PM)
ty

paper (Mar 4, 2010 9:21:30 PM)
night

twinglema (Mar 4, 2010 9:21:30 PM)
u 2

paper (Mar 4, 2010 9:21:33 PM)
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twinglema (Mar 4, 2010 9:21:36 PM)
(This user has left DigiChat)