DMD Parent Chat

anna (Nov 10, 2009 7:59:39 PM)
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anna (Nov 10, 2009 7:59:49 PM)
Hi Momma

anna (Nov 10, 2009 8:00:07 PM)
How are you and your family?

momma (Nov 10, 2009 8:00:08 PM)
hey anna whats new

momma (Nov 10, 2009 8:00:22 PM)
good how about you and yours

anna (Nov 10, 2009 8:00:23 PM)
just got home--dinner in oven

anna (Nov 10, 2009 8:00:30 PM)
frustrating day

momma (Nov 10, 2009 8:00:40 PM)
oh no sorry to hear

anna (Nov 10, 2009 8:01:05 PM)
Mom has suddenly gone completely deaf and cannot hold a conversation

anna (Nov 10, 2009 8:01:22 PM)
bank made us wait 1/2 hour--at least Mom could fall asleep

momma (Nov 10, 2009 8:01:22 PM)
awe sorry to hear that

anna (Nov 10, 2009 8:01:46 PM)
nurse wants us to get her on anti-depressants too

anna (Nov 10, 2009 8:01:59 PM)
and R's aide called in sick at last minute

momma (Nov 10, 2009 8:02:08 PM)
at her gae is that appropreate?

momma (Nov 10, 2009 8:02:16 PM)
age*

anna (Nov 10, 2009 8:02:38 PM)
usually she gives a bit of notice as I have told her I want to know before 10 am if at all possible

momma (Nov 10, 2009 8:02:42 PM)
grr i hate that when last min call off

anna (Nov 10, 2009 8:03:11 PM)
but I had already gone home and had to turn around to feed R because had to take Mom to PT

momma (Nov 10, 2009 8:03:48 PM)
geeze gives glad to be home a new meaning!

anna (Nov 10, 2009 8:03:55 PM)
I called her home and asked them to get her coat on and footrests on chair and of course when I got there they hadn't done it. and aide was watching a soap opera!!

momma (Nov 10, 2009 8:04:19 PM)
oh boy id been a lttle mad

anna (Nov 10, 2009 8:04:26 PM)
I know there are many others with worse problems--as in anyone with MD

anna (Nov 10, 2009 8:04:50 PM)
but, I get to complain a bit now and again

momma (Nov 10, 2009 8:05:03 PM)
i totally understand completly!

anna (Nov 10, 2009 8:05:30 PM)
and couldn't finish her bank business because I had wrong documents

momma (Nov 10, 2009 8:05:38 PM)
we actaully had a gather with a 38 yr old and 28 yr old dmder4 on sunday

momma (Nov 10, 2009 8:05:50 PM)
*gathering

anna (Nov 10, 2009 8:06:05 PM)
wow--from your area?

anna (Nov 10, 2009 8:06:29 PM)
38 is good!!

momma (Nov 10, 2009 8:06:32 PM)
well it was in mich just over ohio border like hour away

momma (Nov 10, 2009 8:06:43 PM)
yes he is amazing

anna (Nov 10, 2009 8:06:59 PM)
our nearest gathering is during working hours

anna (Nov 10, 2009 8:07:12 PM)
what does he do?

anna (Nov 10, 2009 8:07:21 PM)
an inspiration for K

momma (Nov 10, 2009 8:07:48 PM)
sadly nothing but his out look is so great

momma (Nov 10, 2009 8:08:08 PM)
he cant even move he can control his chair

anna (Nov 10, 2009 8:08:18 PM)
attitude is everything

anna (Nov 10, 2009 8:08:34 PM)
can"t control chair? trach?

momma (Nov 10, 2009 8:09:20 PM)
he lost a 16 yr old brother from dnd and his mother (car accident)while he was inhospital for emegency trach

anna (Nov 10, 2009 8:09:42 PM)
oh no--poor guy

anna (Nov 10, 2009 8:10:03 PM)
does he live with dad?

momma (Nov 10, 2009 8:10:34 PM)
he dad has passed to but has 6 or 7 sibling and a great nursing team

anna (Nov 10, 2009 8:10:59 PM)
one thing I have noticed is many are not pro-active and have to have trach on emergency basis

anna (Nov 10, 2009 8:11:24 PM)
wow--think of all he's been through!

anna (Nov 10, 2009 8:12:04 PM)
how was the 28 y/o?

momma (Nov 10, 2009 8:12:06 PM)
the nursing boss is a rn and he has like 5 lpn differant nurses 3 differant nurses were at gathering it was like a big family

momma (Nov 10, 2009 8:12:30 PM)
he seem pretty weak for another strong spirit

momma (Nov 10, 2009 8:12:47 PM)
he goes to kent old team of doctors

anna (Nov 10, 2009 8:12:59 PM)
is he trached?

momma (Nov 10, 2009 8:13:00 PM)
needless to say hes trached

anna (Nov 10, 2009 8:13:22 PM)
of course I should have known

momma (Nov 10, 2009 8:13:56 PM)
oh i wanted to ask you

momma (Nov 10, 2009 8:14:24 PM)
the 28 yr old dmder said mda told him not to get h1 n1 shot

anna (Nov 10, 2009 8:14:43 PM)
today my dad would have been 99--my mother didn't care, which is odd as she always knew his birthday and death day

anna (Nov 10, 2009 8:14:58 PM)
why not the shot?

momma (Nov 10, 2009 8:15:34 PM)
shot or mist that sounds crazy?

anna (Nov 10, 2009 8:16:06 PM)
our pulmonologist has all his MD patients on call to get theirs

momma (Nov 10, 2009 8:16:48 PM)
i thought about call mda here to see if thay tell us the same

anna (Nov 10, 2009 8:17:16 PM)
our clinic told us they wouldn't have it, but R should get one ASAP

momma (Nov 10, 2009 8:17:46 PM)
doesnt make sence you would think they would be first to get shots

anna (Nov 10, 2009 8:18:24 PM)
the methodology of who gets it is still in chaos

momma (Nov 10, 2009 8:18:45 PM)
a lot of people here havent even got the seasonal shot yet and thier saying they may not even be availible

anna (Nov 10, 2009 8:18:59 PM)
the right hand doesn't know what the left one is doing. if our guys were in prison they would have had it by now.

momma (Nov 10, 2009 8:19:01 PM)
yep your right

anna (Nov 10, 2009 8:20:08 PM)
well, I gotta go get dinner on--maybe talk to you tomorrow if we get thru traffic

anna (Nov 10, 2009 8:20:24 PM)
dark and rainy tonight

momma (Nov 10, 2009 8:20:24 PM)
ok anna hope tommrow is a btter day

momma (Nov 10, 2009 8:20:36 PM)
better *

anna (Nov 10, 2009 8:20:42 PM)
ty--I will count my blessings which are many

momma (Nov 10, 2009 8:20:42 PM)
dark cold here

anna (Nov 10, 2009 8:20:45 PM)
Goodnight

momma (Nov 10, 2009 8:20:48 PM)
night

anna (Nov 10, 2009 8:20:53 PM)
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momma (Nov 10, 2009 8:20:54 PM)
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