DMD Parent Chat

momma (Oct 14, 2008 7:57:30 PM)
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anna (Oct 14, 2008 7:57:45 PM)
Here she is! Hi Momma

momma (Oct 14, 2008 7:58:05 PM)
how are you?

anna (Oct 14, 2008 7:58:17 PM)
we are ok, I still have a cough however

momma (Oct 14, 2008 7:58:36 PM)
yea people here have had bugs like that

anna (Oct 14, 2008 7:58:39 PM)
today R's legbag sprung a leak

anna (Oct 14, 2008 7:58:52 PM)
filled his shoe

momma (Oct 14, 2008 7:58:59 PM)
oh no

anna (Oct 14, 2008 7:59:11 PM)
and I don't have another one right now

momma (Oct 14, 2008 7:59:25 PM)
so now what

anna (Oct 14, 2008 7:59:35 PM)
I will try to repair it with duct tape

momma (Oct 14, 2008 7:59:49 PM)
thier ya go duck tape works for all

anna (Oct 14, 2008 7:59:51 PM)
and place it into a plastic bag too

momma (Oct 14, 2008 8:00:43 PM)
if ya lived closer kent just go 2 leg bags and 2 night bags

anna (Oct 14, 2008 8:00:43 PM)
we momks have to be resourceful lol

momma (Oct 14, 2008 8:00:49 PM)
lol

momma (Oct 14, 2008 8:01:06 PM)
he gets 2 of each ever month

anna (Oct 14, 2008 8:01:06 PM)
we only get 2 a month

anna (Oct 14, 2008 8:01:24 PM)
how much bigger is the night bag?

momma (Oct 14, 2008 8:01:50 PM)
its day 500 night 2000

anna (Oct 14, 2008 8:02:34 PM)
R had to explain to his aide about putting it into another plastic bag--aide thought it was open at top and had overflowed lol

momma (Oct 14, 2008 8:02:48 PM)
lol

anna (Oct 14, 2008 8:02:56 PM)
there is still quite a language barrior

anna (Oct 14, 2008 8:03:14 PM)
R got visual aides and used a translator

momma (Oct 14, 2008 8:03:43 PM)
dr office called yester day and he has a infection and a yeast infection in gj

anna (Oct 14, 2008 8:03:58 PM)
oh no--will those disks help?

momma (Oct 14, 2008 8:04:19 PM)
so after 2 rounds of antibiotic now takinga pill for yeats inf

anna (Oct 14, 2008 8:04:49 PM)
yeast infections can be hard to get rid of--is K eating yogurt?

momma (Oct 14, 2008 8:04:50 PM)
yea i thinkit has improved hopefully this med will take care of it

momma (Oct 14, 2008 8:05:20 PM)
he wont eat yogurt but..

anna (Oct 14, 2008 8:05:27 PM)
hope it improves fast

anna (Oct 14, 2008 8:05:34 PM)
but?

momma (Oct 14, 2008 8:05:39 PM)
the have cheese that has that same stuff in it

momma (Oct 14, 2008 8:05:48 PM)
i have to get some

anna (Oct 14, 2008 8:05:49 PM)
oh, didn't know that

momma (Oct 14, 2008 8:06:09 PM)
yea that ativeia(sp)

anna (Oct 14, 2008 8:06:14 PM)
R got a big game scale to weigh himself--attaches to Hoyer

anna (Oct 14, 2008 8:06:24 PM)
Activia?

momma (Oct 14, 2008 8:06:27 PM)
we need one of those

momma (Oct 14, 2008 8:06:30 PM)
yea

momma (Oct 14, 2008 8:06:57 PM)
it helps with digestion iand i thought it has probotics in it ?

anna (Oct 14, 2008 8:07:05 PM)
it is only accurate to within 2 pounds but will give us an idea of where we are going weight-wise

momma (Oct 14, 2008 8:07:21 PM)
how expensive is that?

anna (Oct 14, 2008 8:07:56 PM)
watch for sales or go to healthfood store to get pills(don't know how much they cost)

anna (Oct 14, 2008 8:08:07 PM)
oh--the scale

anna (Oct 14, 2008 8:08:12 PM)
let me ask R

momma (Oct 14, 2008 8:08:28 PM)
i actually think i may need to start to watch what kent is eating i think kent has gained

anna (Oct 14, 2008 8:08:30 PM)
$20

momma (Oct 14, 2008 8:08:45 PM)
oh that good

anna (Oct 14, 2008 8:08:51 PM)
plus shipping unless you have sports store availiable nearby

anna (Oct 14, 2008 8:09:14 PM)
I will weigh him tonight

momma (Oct 14, 2008 8:10:06 PM)
i was just looking at pictures of kent tonight 1 yr ago wow his head looks like its sitting ona stick

momma (Oct 14, 2008 8:10:14 PM)
buy not now

anna (Oct 14, 2008 8:10:34 PM)
yes, R's thinness snuck up on us

momma (Oct 14, 2008 8:11:01 PM)
how is R feeling

momma (Oct 14, 2008 8:11:18 PM)
can he tell the differance yet?

anna (Oct 14, 2008 8:11:41 PM)
he feels fine except for the usual morning "ughs" he always has(but doesn't let it stop him}

momma (Oct 14, 2008 8:12:00 PM)
he a tuff man

anna (Oct 14, 2008 8:12:08 PM)
difference?

momma (Oct 14, 2008 8:12:58 PM)
like mabey a bit more energy with more nutrition

anna (Oct 14, 2008 8:13:15 PM)
we are up to 2 cans which is 950 calories

momma (Oct 14, 2008 8:13:23 PM)
great

anna (Oct 14, 2008 8:13:35 PM)
he always has energy

momma (Oct 14, 2008 8:13:44 PM)
kent only get 250 cal but that plenty for him

anna (Oct 14, 2008 8:13:56 PM)
I just don't think R can get up to 3 a night

momma (Oct 14, 2008 8:13:58 PM)
oh hes the energizer bunny

anna (Oct 14, 2008 8:14:12 PM)
yes, there are nevcer enough hours in the day for R

momma (Oct 14, 2008 8:14:14 PM)
2 sound pretty good for now

anna (Oct 14, 2008 8:14:38 PM)
he never has been bored in his life

momma (Oct 14, 2008 8:14:42 PM)
im jealous i wish i had some energy

anna (Oct 14, 2008 8:15:10 PM)
me too--I finally got enough energy to cook today. made chicken, lasagna, and apple muffins

momma (Oct 14, 2008 8:15:22 PM)
sounds yummy

anna (Oct 14, 2008 8:15:46 PM)
I like to cook about once a week and we eat off that all week

momma (Oct 14, 2008 8:15:54 PM)
we had pizza kent had pasta thats probably my problem to mant carbs

momma (Oct 14, 2008 8:16:07 PM)
many*

anna (Oct 14, 2008 8:16:14 PM)
just got a call about pre-paid cremation!

momma (Oct 14, 2008 8:16:23 PM)
oh no

momma (Oct 14, 2008 8:16:42 PM)
im on a dont call list so i dont gat many telamarketers

anna (Oct 14, 2008 8:16:50 PM)
$1400 all inclusive up to 75 miles of "travel"

momma (Oct 14, 2008 8:17:09 PM)
oh really

anna (Oct 14, 2008 8:17:14 PM)
well, I had actually wanted them to call me so I could find out

momma (Oct 14, 2008 8:17:22 PM)
oh

anna (Oct 14, 2008 8:17:43 PM)
now I need to call a few other places to find out how much they cost

anna (Oct 14, 2008 8:18:20 PM)
I want to make a few decisions in advance of any need

anna (Oct 14, 2008 8:18:36 PM)
my Mom is not getting any younger

momma (Oct 14, 2008 8:19:02 PM)
yea

anna (Oct 14, 2008 8:19:54 PM)
I have nothing to compare that price with

momma (Oct 14, 2008 8:20:13 PM)
my mil need someone to give her insulin she doesnt see well and i think sometimes she takes to much

anna (Oct 14, 2008 8:20:31 PM)
that would be a problem

anna (Oct 14, 2008 8:20:45 PM)
does she live close enough for you to do it?

momma (Oct 14, 2008 8:21:10 PM)
but the times she needs it would be hard

anna (Oct 14, 2008 8:21:22 PM)
before meals probably

momma (Oct 14, 2008 8:21:32 PM)
yea

anna (Oct 14, 2008 8:21:44 PM)
hard to since you cannot leave K alone

momma (Oct 14, 2008 8:22:01 PM)
right

anna (Oct 14, 2008 8:23:07 PM)
R is the last member of his test team at work

momma (Oct 14, 2008 8:23:36 PM)
when does he get a break soon isnt it?

anna (Oct 14, 2008 8:23:49 PM)
yes, after Veteren's Day

momma (Oct 14, 2008 8:24:02 PM)
ah i see

anna (Oct 14, 2008 8:24:22 PM)
I am tired if he isn't!

momma (Oct 14, 2008 8:24:33 PM)
yea i would be too

momma (Oct 14, 2008 8:24:59 PM)
kent is finally socia;izing with the mrdd adult group

momma (Oct 14, 2008 8:25:17 PM)
he really didnt want to at first

anna (Oct 14, 2008 8:25:32 PM)
mrdd is?

momma (Oct 14, 2008 8:25:41 PM)
he want to hang with his hs friends but that didnt happened

anna (Oct 14, 2008 8:25:58 PM)
I know--they disappear

anna (Oct 14, 2008 8:26:37 PM)
R still talks to some university friends, but has a wonderful church group for "Young Professionals"

momma (Oct 14, 2008 8:26:47 PM)
mental retardation & devolpmental diability

anna (Oct 14, 2008 8:28:22 PM)
R calls a lot of people regularly, but they don't call him as much

anna (Oct 14, 2008 8:28:33 PM)
usually our guys have to make the first moves

momma (Oct 14, 2008 8:28:53 PM)
yea kent at least talks to some classmates online a little

anna (Oct 14, 2008 8:29:39 PM)
R is usually talking online as he also does other things on the 2 monitors

anna (Oct 14, 2008 8:29:52 PM)
he withes he had 3 at work

momma (Oct 14, 2008 8:30:09 PM)
mister mutitasker wow

anna (Oct 14, 2008 8:31:13 PM)
he is clicking away usually--you would think he would get enough computers at work

momma (Oct 14, 2008 8:31:27 PM)
thats for sure

anna (Oct 14, 2008 8:32:01 PM)
well, I need to feed him now(IF I can get him away from that darn computer that is)

momma (Oct 14, 2008 8:32:15 PM)
ok anna

anna (Oct 14, 2008 8:32:38 PM)
night--hope the infection is gone soon and your knee feels better too

momma (Oct 14, 2008 8:32:53 PM)
yea i think we'll be ok night

anna (Oct 14, 2008 8:32:58 PM)
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momma (Oct 14, 2008 8:33:15 PM)
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kling (Oct 14, 2008 8:34:15 PM)
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kling (Oct 14, 2008 8:38:42 PM)
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momma (Oct 14, 2008 8:59:14 PM)
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momma (Oct 14, 2008 8:59:30 PM)
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