DMD Parent Chat

Mama03And05 (Oct 2, 2008 7:56:46 PM)
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Mama03And05 (Oct 2, 2008 7:57:12 PM)
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twinglema (Oct 2, 2008 7:57:18 PM)
hi mama opps

twinglema (Oct 2, 2008 7:57:22 PM)
oops

twinglema (Oct 2, 2008 8:01:59 PM)
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twinglema (Oct 2, 2008 8:02:03 PM)
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twinglema (Oct 2, 2008 8:14:06 PM)
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momma (Oct 2, 2008 8:14:08 PM)
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twinglema (Oct 2, 2008 8:14:26 PM)
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twinglema (Oct 2, 2008 8:14:37 PM)
hi momma have you been on ling?

twinglema (Oct 2, 2008 8:14:43 PM)
long

momma (Oct 2, 2008 8:15:02 PM)
nope just got on

twinglema (Oct 2, 2008 8:15:27 PM)
how is your knee

momma (Oct 2, 2008 8:15:44 PM)
`not so hot

twinglema (Oct 2, 2008 8:15:58 PM)
i am having same problem

twinglema (Oct 2, 2008 8:16:09 PM)
getting mri monday

twinglema (Oct 2, 2008 8:16:40 PM)
you?

momma (Oct 2, 2008 8:16:49 PM)
im going tues

twinglema (Oct 2, 2008 8:17:06 PM)
gee wonder if we can get bogo discount?

momma (Oct 2, 2008 8:17:13 PM)
lol

twinglema (Oct 2, 2008 8:17:23 PM)
how did you hurt it

momma (Oct 2, 2008 8:17:42 PM)
we have a juzzi tub

momma (Oct 2, 2008 8:17:49 PM)
and when i go to get out

twinglema (Oct 2, 2008 8:18:01 PM)
jacuzzi?

momma (Oct 2, 2008 8:18:27 PM)
yea a bath tub like a hot tub kinda it has jets

twinglema (Oct 2, 2008 8:18:42 PM)
ah i c

momma (Oct 2, 2008 8:19:18 PM)
and when i went to stand i use my legs to get up insted of my arms

twinglema (Oct 2, 2008 8:19:31 PM)
and twisted your knee?

momma (Oct 2, 2008 8:19:42 PM)
and i felt something wierd in my knee then hurt every sence

twinglema (Oct 2, 2008 8:19:46 PM)
ouch

momma (Oct 2, 2008 8:19:48 PM)
right

momma (Oct 2, 2008 8:19:52 PM)
you r?

twinglema (Oct 2, 2008 8:19:56 PM)
mine happened during bladder surgery

momma (Oct 2, 2008 8:20:04 PM)
what ?

momma (Oct 2, 2008 8:20:23 PM)
how in the world?

twinglema (Oct 2, 2008 8:20:34 PM)
it didnt hurt before but did after and has ever since i did pt for awhile but is getting worse

twinglema (Oct 2, 2008 8:20:50 PM)
the "traction" they put me in wrenched my knee

momma (Oct 2, 2008 8:21:12 PM)
oh i see

momma (Oct 2, 2008 8:21:22 PM)
dr said pt would nt help me

twinglema (Oct 2, 2008 8:21:42 PM)
pt thought i may have had tron cartilage same as you

momma (Oct 2, 2008 8:21:53 PM)
ya know my bladder will probaby be next

twinglema (Oct 2, 2008 8:21:59 PM)
i guess the surgery to fix it isn't too bad

momma (Oct 2, 2008 8:22:11 PM)
mine i guess is a maniscus

twinglema (Oct 2, 2008 8:22:23 PM)
same difference

momma (Oct 2, 2008 8:22:56 PM)
yea he said cruches roe 2-3 days the he doesnt want me doing full load for 2- 3 weeks

momma (Oct 2, 2008 8:23:24 PM)
hopefully medicade will let me have nursing to atleast to get kent out of bed

twinglema (Oct 2, 2008 8:23:36 PM)
hope so can hubby help

momma (Oct 2, 2008 8:23:57 PM)
yea at night he helps any way every night

twinglema (Oct 2, 2008 8:24:51 PM)
good for him

momma (Oct 2, 2008 8:25:00 PM)
so anything else new hows school going so far?

twinglema (Oct 2, 2008 8:25:01 PM)
got 2 kids flu shots today-one was sick

momma (Oct 2, 2008 8:25:18 PM)
we get ours wed

twinglema (Oct 2, 2008 8:26:24 PM)
well teacher said hannah is perfectly capable of the work but has poopy attitude

momma (Oct 2, 2008 8:26:40 PM)
i met a new chatting friend its pretty interesting she lives in austrailia

twinglema (Oct 2, 2008 8:26:45 PM)
so she had a 4 and a 5

momma (Oct 2, 2008 8:26:48 PM)
oh no its a girl thing

twinglema (Oct 2, 2008 8:26:51 PM)
i read that

twinglema (Oct 2, 2008 8:27:04 PM)
yeah, she is too busy being boy crazy

momma (Oct 2, 2008 8:27:13 PM)
oh boy

twinglema (Oct 2, 2008 8:27:25 PM)
lol

momma (Oct 2, 2008 8:27:40 PM)
sounds like my daughter but she 24 lol

twinglema (Oct 2, 2008 8:27:46 PM)
i guess some brat tried to kiss her but she said she was saving it till it was special

momma (Oct 2, 2008 8:28:02 PM)
awe way to go girl!

twinglema (Oct 2, 2008 8:28:09 PM)
i am looking for good all girls school lol

momma (Oct 2, 2008 8:28:22 PM)
lol

twinglema (Oct 2, 2008 8:28:32 PM)
well, she of course did not tell me that but i have my ways of finding things out

momma (Oct 2, 2008 8:28:41 PM)
lol

twinglema (Oct 2, 2008 8:30:12 PM)
it is hilarious when she says she is gonna ask someone out-out where? she goes to school and church!

momma (Oct 2, 2008 8:30:38 PM)
got a new treatment for kent gj tube today he still battling an infection in it

momma (Oct 2, 2008 8:30:53 PM)
yea kids here say that too

twinglema (Oct 2, 2008 8:31:34 PM)
i hope this one works

momma (Oct 2, 2008 8:31:53 PM)
yea it called bio patch

twinglema (Oct 2, 2008 8:31:59 PM)
be careful about treating bladder infections with sp tube

twinglema (Oct 2, 2008 8:32:36 PM)
hubby always took meds and now alot do ot work

twinglema (Oct 2, 2008 8:32:39 PM)
not

momma (Oct 2, 2008 8:32:48 PM)
yea

momma (Oct 2, 2008 8:33:08 PM)
he hasnt had as manty problems with sp as the gj

momma (Oct 2, 2008 8:33:17 PM)
many

twinglema (Oct 2, 2008 8:33:29 PM)
we treat minor infections with fluids and cranberry

twinglema (Oct 2, 2008 8:33:33 PM)
good

anna (Oct 2, 2008 8:33:41 PM)
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twinglema (Oct 2, 2008 8:33:46 PM)
does he feel ill w/ infection?

twinglema (Oct 2, 2008 8:33:49 PM)
hi ann

twinglema (Oct 2, 2008 8:34:17 PM)
sam has been home sick last 2 days and no school tomorrow so not getting anything done

momma (Oct 2, 2008 8:34:28 PM)
his urine is usually strong when he has infection

twinglema (Oct 2, 2008 8:34:35 PM)
yep

anna (Oct 2, 2008 8:34:47 PM)
hi

momma (Oct 2, 2008 8:34:50 PM)
hi anna how are you today?

anna (Oct 2, 2008 8:35:10 PM)
better, but R acting ill now

momma (Oct 2, 2008 8:35:19 PM)
oh no

anna (Oct 2, 2008 8:35:29 PM)
hubby causes as much tension as he relieves

anna (Oct 2, 2008 8:35:55 PM)
just vented R's tube and he feels better

momma (Oct 2, 2008 8:36:07 PM)
good

anna (Oct 2, 2008 8:37:05 PM)
I would like hubby to empty dw, go to store, etc.

twinglema (Oct 2, 2008 8:37:08 PM)
oph man i did not want r to get it

momma (Oct 2, 2008 8:37:52 PM)
yea thats for sure

anna (Oct 2, 2008 8:37:55 PM)
he did fix a lot of electrical though lol

anna (Oct 2, 2008 8:38:09 PM)
what does your son have twingle?

twinglema (Oct 2, 2008 8:38:19 PM)
i could use that it would lower estimate on kitchen

twinglema (Oct 2, 2008 8:38:34 PM)
not strep

anna (Oct 2, 2008 8:38:40 PM)
good

twinglema (Oct 2, 2008 8:39:11 PM)
but has fever, no appetite

twinglema (Oct 2, 2008 8:39:22 PM)
nasau

anna (Oct 2, 2008 8:39:37 PM)
nausea perhaps lol

twinglema (Oct 2, 2008 8:39:44 PM)
that too lol

momma (Oct 2, 2008 8:39:49 PM)
lol

momma (Oct 2, 2008 8:40:07 PM)
twingle i think im contageous

anna (Oct 2, 2008 8:40:18 PM)
were your kitchen estimates awful?

twinglema (Oct 2, 2008 8:40:19 PM)
i could not figure out how to spell it

twinglema (Oct 2, 2008 8:40:24 PM)
yes thay were

twinglema (Oct 2, 2008 8:40:42 PM)
30000

twinglema (Oct 2, 2008 8:40:46 PM)
not happening

anna (Oct 2, 2008 8:40:48 PM)
ours was $8000

momma (Oct 2, 2008 8:40:52 PM)
wow

anna (Oct 2, 2008 8:40:55 PM)
yikes

twinglema (Oct 2, 2008 8:41:04 PM)
i like 8

twinglema (Oct 2, 2008 8:41:12 PM)
we wnat to remove wall tear up floor etc

anna (Oct 2, 2008 8:41:13 PM)
can you scale down?

twinglema (Oct 2, 2008 8:41:18 PM)
we are

anna (Oct 2, 2008 8:42:10 PM)
we didn't get granite or top end appliances etc

twinglema (Oct 2, 2008 8:42:32 PM)
yeah granite was first to go

twinglema (Oct 2, 2008 8:42:45 PM)
we will also keep old fridge and just replace syove

twinglema (Oct 2, 2008 8:42:49 PM)
stove

momma (Oct 2, 2008 8:45:09 PM)
do you guys watch hgtv

anna (Oct 2, 2008 8:45:18 PM)
yes

momma (Oct 2, 2008 8:45:32 PM)
i dod too drive hubbie and kent nuts

anna (Oct 2, 2008 8:45:41 PM)
watching vp debate right now

momma (Oct 2, 2008 8:45:47 PM)
but have gotten good ideas

twinglema (Oct 2, 2008 8:46:11 PM)
i do and it drivesmine nuts too

anna (Oct 2, 2008 8:46:17 PM)
yes, as long as you don't love Hildi stapeling stuff to the walls

momma (Oct 2, 2008 8:46:23 PM)
not much debate i dont like anyone that much not sure who i gonna vote for

twinglema (Oct 2, 2008 8:46:27 PM)
that is waht drives my hubby nuts lol

twinglema (Oct 2, 2008 8:47:03 PM)
what anna you do not want staw or plastic flowers on your wall?

anna (Oct 2, 2008 8:47:20 PM)
not really......

twinglema (Oct 2, 2008 8:47:38 PM)
it would be different

momma (Oct 2, 2008 8:47:54 PM)
yea i never like any of her rooms

anna (Oct 2, 2008 8:48:06 PM)
R is making suspicious noises so bbl

twinglema (Oct 2, 2008 8:48:19 PM)
i hope he is ok

momma (Oct 2, 2008 8:48:41 PM)
ok

twinglema (Oct 2, 2008 8:50:40 PM)
think he is ok

momma (Oct 2, 2008 8:50:49 PM)
hope so

momma (Oct 2, 2008 8:51:18 PM)
i so panic when kents sick specailly if he says he warm

twinglema (Oct 2, 2008 8:51:29 PM)
i do and my kids are fine

momma (Oct 2, 2008 8:51:41 PM)
excatly

twinglema (Oct 2, 2008 8:52:15 PM)
sam got sick and did not tell me as he did not want to wake me up :(

momma (Oct 2, 2008 8:53:24 PM)
so other kids are not sick ?

twinglema (Oct 2, 2008 8:53:34 PM)
not so far

twinglema (Oct 2, 2008 8:54:06 PM)
knock on wood

momma (Oct 2, 2008 8:54:22 PM)
i hope predictions are wrong its suppose to be a cold winter and kent has had gloves on all week

momma (Oct 2, 2008 8:54:29 PM)
already

twinglema (Oct 2, 2008 8:55:09 PM)
it has finally cooled off her this week but still nice during day

twinglema (Oct 2, 2008 8:55:34 PM)
hubby gets cold easy too

momma (Oct 2, 2008 8:55:42 PM)
its only been 50's the furnace has run couple times today

twinglema (Oct 2, 2008 8:55:52 PM)
he says he will be warm again in spring

momma (Oct 2, 2008 8:56:01 PM)
yea his hands do

twinglema (Oct 2, 2008 8:57:06 PM)
brr been in 70s here still

momma (Oct 2, 2008 8:57:24 PM)
60 something to mmrow

twinglema (Oct 2, 2008 8:57:29 PM)
sorry

anna (Oct 2, 2008 8:57:50 PM)
well, R aspirated but feels he will throw up if we use cough assist--now what do I do?

momma (Oct 2, 2008 8:57:53 PM)
nah fall is ok but winter i dread

liisau (Oct 2, 2008 8:57:58 PM)
(This user has entered DMD Parent Chat)

twinglema (Oct 2, 2008 8:58:03 PM)
hi lisau

liisau (Oct 2, 2008 8:58:06 PM)
hi all

liisau (Oct 2, 2008 8:58:08 PM)
how are you

anna (Oct 2, 2008 8:58:14 PM)
Hi Liisa

liisau (Oct 2, 2008 8:58:15 PM)
anna, how's R?

twinglema (Oct 2, 2008 8:58:35 PM)
i cant help anna

momma (Oct 2, 2008 8:58:42 PM)
oh man anna

anna (Oct 2, 2008 8:58:46 PM)
I just said he is feeling sick--has aspirated but afraid to use cough assist

liisau (Oct 2, 2008 8:58:55 PM)
oh boy

anna (Oct 2, 2008 8:59:01 PM)
thinks he will vomit

liisau (Oct 2, 2008 8:59:02 PM)
why is he afraid?

liisau (Oct 2, 2008 8:59:04 PM)
ah

liisau (Oct 2, 2008 8:59:12 PM)
vomitting is painful

momma (Oct 2, 2008 8:59:31 PM)
just got to becareful not to choke

anna (Oct 2, 2008 8:59:36 PM)
and difficult for our guys as easy to aspirate

liisau (Oct 2, 2008 8:59:45 PM)
=9

liisau (Oct 2, 2008 8:59:47 PM)
=(

liisau (Oct 2, 2008 8:59:58 PM)
is positioning a way to help?

momma (Oct 2, 2008 9:00:20 PM)
is his breathing ok

anna (Oct 2, 2008 9:00:28 PM)
yes, hubby sitting near him ready to flip on side and use suction

anna (Oct 2, 2008 9:00:46 PM)
he has the raspy breathing of one who has aspirated

anna (Oct 2, 2008 9:01:08 PM)
just put on v-pap

momma (Oct 2, 2008 9:01:13 PM)
is he in a panic?

anna (Oct 2, 2008 9:01:17 PM)
no

liisau (Oct 2, 2008 9:01:19 PM)
anna, I'm glad your husband is with you

momma (Oct 2, 2008 9:01:20 PM)
good

anna (Oct 2, 2008 9:01:41 PM)
well....Liisa, that is a mixed bag lol

liisau (Oct 2, 2008 9:01:49 PM)
lol

momma (Oct 2, 2008 9:02:19 PM)
kents never asperatred i wish i new what to do

liisau (Oct 2, 2008 9:02:57 PM)
if I understand things correctly it is critical to clear any aspiration

liisau (Oct 2, 2008 9:03:21 PM)
otherwise, pneumonia/infections are possible - further complication of course...

liisau (Oct 2, 2008 9:03:36 PM)
there is still the issue of vomitting again and aspirating further

twinglema (Oct 2, 2008 9:03:43 PM)
lets not scare anna any more

anna (Oct 2, 2008 9:03:46 PM)
yes--all that

liisau (Oct 2, 2008 9:03:58 PM)
sorry, don't mean to scare

twinglema (Oct 2, 2008 9:04:00 PM)
how is he doing now anna

anna (Oct 2, 2008 9:04:09 PM)
just going to check

momma (Oct 2, 2008 9:04:21 PM)
is thier a doc you can call?

momma (Oct 2, 2008 9:04:49 PM)
im small tonw america i can call doc at thier home

momma (Oct 2, 2008 9:04:58 PM)
if needed

liisau (Oct 2, 2008 9:05:29 PM)
it definitely freaks me out to hear this

twinglema (Oct 2, 2008 9:05:39 PM)
ic ould call our peiatricina if i had too

twinglema (Oct 2, 2008 9:05:48 PM)
ha decifer that one

liisau (Oct 2, 2008 9:06:33 PM)
how are your sons?

momma (Oct 2, 2008 9:06:39 PM)
good

twinglema (Oct 2, 2008 9:06:49 PM)
dmder is fine other one has some virus

liisau (Oct 2, 2008 9:07:07 PM)
ditto, twinglema

liisau (Oct 2, 2008 9:07:22 PM)
glad to hear momma

twinglema (Oct 2, 2008 9:07:29 PM)
so all but sicko got flu shot today

twinglema (Oct 2, 2008 9:07:40 PM)
well, one got the mist

twinglema (Oct 2, 2008 9:08:14 PM)
wish i could be there for anna

twinglema (Oct 2, 2008 9:08:21 PM)
though would not know what to do

liisau (Oct 2, 2008 9:09:01 PM)
what you want done for you?

twinglema (Oct 2, 2008 9:09:04 PM)
momma, why is it easier for dmders to aspirate when they get sick?

twinglema (Oct 2, 2008 9:09:13 PM)
moral support

liisau (Oct 2, 2008 9:09:28 PM)
that's nice

momma (Oct 2, 2008 9:09:41 PM)
well kent has never done it

momma (Oct 2, 2008 9:09:58 PM)
but they have a lot of acid refulx

momma (Oct 2, 2008 9:10:11 PM)
kent takes an antacid

twinglema (Oct 2, 2008 9:10:13 PM)
but if it gets into lungs how do you get that out?

momma (Oct 2, 2008 9:10:17 PM)
everyday

momma (Oct 2, 2008 9:10:34 PM)
cough assit if tolerated

momma (Oct 2, 2008 9:10:40 PM)
suction

twinglema (Oct 2, 2008 9:11:06 PM)
brb gotta give sam meds

momma (Oct 2, 2008 9:11:13 PM)
kent has a hiheatal henia

momma (Oct 2, 2008 9:11:15 PM)
ok

liisau (Oct 2, 2008 9:11:20 PM)
ok

momma (Oct 2, 2008 9:11:42 PM)
that cause his acid refulx

liisau (Oct 2, 2008 9:12:03 PM)
C. had that a lot as a baby

liisau (Oct 2, 2008 9:12:08 PM)
he didn't like it at all

momma (Oct 2, 2008 9:12:15 PM)
yea

liisau (Oct 2, 2008 9:12:41 PM)
my non-dmder has a worst problem

liisau (Oct 2, 2008 9:12:45 PM)
with reflux

liisau (Oct 2, 2008 9:12:58 PM)
pH probe studies

momma (Oct 2, 2008 9:12:58 PM)
lisa i need to ask again how old is your son sorry i forgott

liisau (Oct 2, 2008 9:13:06 PM)
np, 3 years old

momma (Oct 2, 2008 9:13:10 PM)
ok ty

liisau (Oct 2, 2008 9:13:31 PM)
older one is 5

liisau (Oct 2, 2008 9:14:01 PM)
C. is now on daily miralax regimen

momma (Oct 2, 2008 9:14:25 PM)
kents uses that does it work well for your son?

liisau (Oct 2, 2008 9:14:35 PM)
so far

twinglema (Oct 2, 2008 9:14:48 PM)
back

liisau (Oct 2, 2008 9:14:53 PM)
he had a good GI cleaning

liisau (Oct 2, 2008 9:15:17 PM)
then has been on since, I was glad he responded because the alternative sounded no fun

momma (Oct 2, 2008 9:15:28 PM)
kent got too loose stools so do said to not give it that was the wrong thing he couldnt go at all then

momma (Oct 2, 2008 9:15:33 PM)
wb twingle

twinglema (Oct 2, 2008 9:15:51 PM)
ty

liisau (Oct 2, 2008 9:15:53 PM)
wb indeed

liisau (Oct 2, 2008 9:16:21 PM)
i feel really bad, was I really too straight forward

liisau (Oct 2, 2008 9:16:25 PM)
?

twinglema (Oct 2, 2008 9:16:30 PM)
ok so i am on chat and helping hannah with extra credit and giving sam meds and telling luke to go to bed while hubby helps by watching the debate

momma (Oct 2, 2008 9:16:40 PM)
lol

liisau (Oct 2, 2008 9:16:50 PM)
supermom

momma (Oct 2, 2008 9:16:54 PM)
geeze are you a mom or what

twinglema (Oct 2, 2008 9:17:19 PM)
he does not get why i was frustrated lol

momma (Oct 2, 2008 9:17:29 PM)
men !!

momma (Oct 2, 2008 9:18:05 PM)
i think my hubbies a bit miffed at me with my knee hurting i havent been doing as much around the house

twinglema (Oct 2, 2008 9:18:21 PM)
throw something at him :)

twinglema (Oct 2, 2008 9:18:33 PM)
i think you were fine lisau

twinglema (Oct 2, 2008 9:18:41 PM)
has ann come back?

momma (Oct 2, 2008 9:18:46 PM)
he has never had any sickness or surgeries he has no smpathy

momma (Oct 2, 2008 9:18:57 PM)
no twingle hope all is ok

twinglema (Oct 2, 2008 9:19:38 PM)
all we can do is pray-funny how we say "all"-like talking to the creator of the universe is a last resort

momma (Oct 2, 2008 9:20:08 PM)
yea

liisau (Oct 2, 2008 9:20:25 PM)
lol

twinglema (Oct 2, 2008 9:20:54 PM)
anna is a smart cookie she will figure out what to do

momma (Oct 2, 2008 9:21:03 PM)
im sure

liisau (Oct 2, 2008 9:21:54 PM)
did you all hear that MD Care Act is now passed the Senate and House?

momma (Oct 2, 2008 9:22:12 PM)
yea got a email about it

twinglema (Oct 2, 2008 9:22:32 PM)
cool how will it help us

twinglema (Oct 2, 2008 9:22:54 PM)
i always after the botton line

twinglema (Oct 2, 2008 9:22:59 PM)
bottom

liisau (Oct 2, 2008 9:23:05 PM)
it continues to ensure research funding is funnelled to MD research and treatment

liisau (Oct 2, 2008 9:23:16 PM)
it also sets up a requirement for a standards of care

twinglema (Oct 2, 2008 9:23:48 PM)
well good hope it helps

momma (Oct 2, 2008 9:23:49 PM)
standard of care for who dr here dont follow any standard:(

twinglema (Oct 2, 2008 9:23:59 PM)
here too momma

liisau (Oct 2, 2008 9:24:12 PM)
=(

liisau (Oct 2, 2008 9:24:51 PM)
the idea is to ensure that a standard of care will be developed to better help us ensure the insurance companies cover what our boys need

twinglema (Oct 2, 2008 9:25:34 PM)
wish ellie would come on-i read she was having trouble paying for md visits and i understand mda will pay-they do here anyway

momma (Oct 2, 2008 9:25:34 PM)
first they need to know what thier true needs are some dont have a clue

liisau (Oct 2, 2008 9:25:37 PM)
ensure that this SOC will help our IEP

momma (Oct 2, 2008 9:26:12 PM)
well twingle mda pays if ins doesnt

liisau (Oct 2, 2008 9:26:33 PM)
the intent is the commissions develop this information so that the docs do know

twinglema (Oct 2, 2008 9:26:35 PM)
ours pays whatever our insurance does not-our 20%

momma (Oct 2, 2008 9:27:16 PM)
yea but some have thier own standard and dont care about other

momma (Oct 2, 2008 9:27:35 PM)
i hope it helps

liisau (Oct 2, 2008 9:27:42 PM)
I'm going to have to switch doctors

twinglema (Oct 2, 2008 9:27:43 PM)
yep some docs know it all already

twinglema (Oct 2, 2008 9:28:08 PM)
but at least we can show them the standards and insist that mda have them follow it

momma (Oct 2, 2008 9:28:11 PM)
well i wish some would be just a little flex

twinglema (Oct 2, 2008 9:28:14 PM)
why lis?

liisau (Oct 2, 2008 9:28:15 PM)
pediatrics docs... she's really been helpful but just doesn't get that C's issues are not to be treated just like the rest

momma (Oct 2, 2008 9:28:42 PM)
yea youll find that along the way lisa

liisau (Oct 2, 2008 9:28:44 PM)
when I mentioned the diarrhea frequency

twinglema (Oct 2, 2008 9:28:58 PM)
i still see our reg pediatrician, in additon to heart, pulmo, bone and neuro specializing in dmd

liisau (Oct 2, 2008 9:29:10 PM)
she said he just may be one of those kids, the KUB x-ray revealled he was very full

twinglema (Oct 2, 2008 9:29:16 PM)
we go for routine stuff-virus etc

momma (Oct 2, 2008 9:29:23 PM)
kent is 22 and he still see peds carido

twinglema (Oct 2, 2008 9:29:37 PM)
hope we can as i love ours

liisau (Oct 2, 2008 9:29:40 PM)
yup, that's the basics we'll cover with a peds doc now

momma (Oct 2, 2008 9:29:43 PM)
he know dmd heart and kents

liisau (Oct 2, 2008 9:29:56 PM)
brb

momma (Oct 2, 2008 9:29:59 PM)
ok

anna (Oct 2, 2008 9:30:01 PM)
sorry, R did vomit and cough assist hasn't worked yet so have to go sit by him as hubby is deaf and playing video games--if he got this from me I know the night will be hard for all of us.

twinglema (Oct 2, 2008 9:30:20 PM)
how is aspiration

anna (Oct 2, 2008 9:30:54 PM)
still under influence of aspiration--will need to use CA once he recovers a bit from vomiting

twinglema (Oct 2, 2008 9:30:56 PM)
anything we can do

momma (Oct 2, 2008 9:30:59 PM)
anna do you have a dr you can touch base with?

anna (Oct 2, 2008 9:31:26 PM)
yes, if need to can take him into er where pulmonologist is

momma (Oct 2, 2008 9:31:35 PM)
i guess thats what i'd do mabey they would think of something else to try

twinglema (Oct 2, 2008 9:31:40 PM)
can you suction it out?

anna (Oct 2, 2008 9:32:19 PM)
suction is being used, but will not get aspirated fluid unless he can get fluid into mouth by CA

twinglema (Oct 2, 2008 9:32:36 PM)
if he is ok and recovering from vomiting i would see if ca works first

twinglema (Oct 2, 2008 9:32:43 PM)
o i c

anna (Oct 2, 2008 9:33:09 PM)
I really think he will be ok, but please pray for us tonight. gtg--say night to Liisa for me.

twinglema (Oct 2, 2008 9:33:22 PM)
k and i am already pratying

momma (Oct 2, 2008 9:33:23 PM)
ok anna prayers

anna (Oct 2, 2008 9:33:51 PM)
thank you all. goodnight.

momma (Oct 2, 2008 9:33:59 PM)
night

twinglema (Oct 2, 2008 9:33:59 PM)
night God Bless

anna (Oct 2, 2008 9:34:01 PM)
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twinglema (Oct 2, 2008 9:34:15 PM)
well, THAT is sobering

momma (Oct 2, 2008 9:34:19 PM)
yea

twinglema (Oct 2, 2008 9:34:42 PM)
but he can be ok if cough assist works right?

momma (Oct 2, 2008 9:34:49 PM)
just when ya think things are going good dmd rasises it ugly head

twinglema (Oct 2, 2008 9:34:58 PM)
yep

momma (Oct 2, 2008 9:35:26 PM)
kent has choked on a bite of ham and he cough it right out with ca

twinglema (Oct 2, 2008 9:35:47 PM)
luke told me the other day he thinks he is good at lego building because the md has mede him not as strong so he doesn't break them

twinglema (Oct 2, 2008 9:36:13 PM)
so i guess he has settled back down and not so mad

momma (Oct 2, 2008 9:36:22 PM)
thats good

twinglema (Oct 2, 2008 9:36:55 PM)
and thank God he accepts his shortness

twinglema (Oct 2, 2008 9:37:07 PM)
he is such a cute little squirt

momma (Oct 2, 2008 9:37:11 PM)
well twingle im gonna get up or atleast try and help get kent to bed if your here in a bit ill be back

momma (Oct 2, 2008 9:37:14 PM)
aawe ill bet

twinglema (Oct 2, 2008 9:37:29 PM)
you be careful w/ your knee i know how bad it can hurt

twinglema (Oct 2, 2008 9:37:33 PM)
do you ice it?

twinglema (Oct 2, 2008 9:37:52 PM)
i will be here

twinglema (Oct 2, 2008 9:38:03 PM)
till ten at least

momma (Oct 2, 2008 9:38:23 PM)
ice heat propted it up you name it

twinglema (Oct 2, 2008 9:38:50 PM)
i use ice and naproxin

twinglema (Oct 2, 2008 9:39:04 PM)
well go help k and if i miss ya have a good weekend

liisau (Oct 2, 2008 9:45:30 PM)
back and caught up. boy, R is having such a tough nite

liisau (Oct 2, 2008 9:45:46 PM)
I've sent them a big virtual hug

twinglema (Oct 2, 2008 9:45:51 PM)
anna and momma said say nite to you

liisau (Oct 2, 2008 9:45:59 PM)
ah that's sweet

twinglema (Oct 2, 2008 9:46:01 PM)
cool

twinglema (Oct 2, 2008 9:46:32 PM)
so anything new w/ you

liisau (Oct 2, 2008 9:47:06 PM)
other then my own visit to the ER, my dmd world is fairly quiet.

liisau (Oct 2, 2008 9:47:26 PM)
We're trying to be moved to Colorado by next school year, but this economy is making it difficult

twinglema (Oct 2, 2008 9:47:30 PM)
why did u go

liisau (Oct 2, 2008 9:47:37 PM)
so that's been weighing on us.

twinglema (Oct 2, 2008 9:47:49 PM)
our worship pastor just took a job in littleton

liisau (Oct 2, 2008 9:47:50 PM)
I now have good aging stuff

liisau (Oct 2, 2008 9:47:58 PM)
diverticulitis

liisau (Oct 2, 2008 9:48:07 PM)
very nice!

twinglema (Oct 2, 2008 9:48:11 PM)
well, makes buying a house good but selling a nightmare

twinglema (Oct 2, 2008 9:48:23 PM)
what is that

liisau (Oct 2, 2008 9:48:24 PM)
the job market is easier here then there

liisau (Oct 2, 2008 9:48:46 PM)
it's weakening of colon wall, food gets trapped and infection occurs

twinglema (Oct 2, 2008 9:48:55 PM)
sounds painful

twinglema (Oct 2, 2008 9:49:06 PM)
momma and i both have torn miniscus in knee

liisau (Oct 2, 2008 9:49:17 PM)
it was.. morphine was good, but did not like the morphine hang over

twinglema (Oct 2, 2008 9:49:21 PM)
we are having mris on mon and tues

liisau (Oct 2, 2008 9:49:21 PM)
ouch!

twinglema (Oct 2, 2008 9:49:37 PM)
told her we should get bogo

twinglema (Oct 2, 2008 9:49:42 PM)
lol

liisau (Oct 2, 2008 9:49:45 PM)
lol

twinglema (Oct 2, 2008 9:50:18 PM)
mine is bearable until i change positioons or try stairs

liisau (Oct 2, 2008 9:50:29 PM)
knees are so critical to

liisau (Oct 2, 2008 9:50:46 PM)
I guess soccer is out?

twinglema (Oct 2, 2008 9:50:47 PM)
it would help if i took off the excess weight

liisau (Oct 2, 2008 9:50:48 PM)
lol

liisau (Oct 2, 2008 9:50:50 PM)
me too

twinglema (Oct 2, 2008 9:50:54 PM)
no soccar

liisau (Oct 2, 2008 9:50:58 PM)
=)

liisau (Oct 2, 2008 9:51:23 PM)
where are you again?

twinglema (Oct 2, 2008 9:51:28 PM)
nebraska

liisau (Oct 2, 2008 9:51:37 PM)
ah... you're not far from CO

liisau (Oct 2, 2008 9:52:04 PM)
I've visited some nice folks in Nebraska with my family from CO

twinglema (Oct 2, 2008 9:52:08 PM)
too far--i am good friends w/ pastor who is leaving and will really miss him

twinglema (Oct 2, 2008 9:52:21 PM)
you are on east coast?

liisau (Oct 2, 2008 9:52:26 PM)
Completely understand that

liisau (Oct 2, 2008 9:52:32 PM)
yes,

liisau (Oct 2, 2008 9:52:35 PM)
dc area

twinglema (Oct 2, 2008 9:52:38 PM)
i am in omaha so wrong side of state!

liisau (Oct 2, 2008 9:52:52 PM)
ah... it will be a hike to see him then

momma (Oct 2, 2008 9:52:52 PM)
back for a few

liisau (Oct 2, 2008 9:52:58 PM)
wb

momma (Oct 2, 2008 9:53:05 PM)
ty

twinglema (Oct 2, 2008 9:53:06 PM)
i cried so much his last sunday i looked like a high raccoon

twinglema (Oct 2, 2008 9:53:13 PM)
hey momma

liisau (Oct 2, 2008 9:53:14 PM)
awww

twinglema (Oct 2, 2008 9:53:20 PM)
how did the knee hold up?

momma (Oct 2, 2008 9:54:17 PM)
stiff and hurts when i went to sit down you know how it feels when ya turn you r neck to fast thats what it felt like

liisau (Oct 2, 2008 9:54:24 PM)
I'm yawning every other key stroke. nite you two! Take care of yourselves.

twinglema (Oct 2, 2008 9:54:31 PM)
nite lisau

liisau (Oct 2, 2008 9:54:42 PM)
nite

momma (Oct 2, 2008 9:54:43 PM)
nite lisa

liisau (Oct 2, 2008 9:54:47 PM)
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twinglema (Oct 2, 2008 9:55:05 PM)
mine gets real stiff if i dont move it for awhile

momma (Oct 2, 2008 9:55:10 PM)
yep

twinglema (Oct 2, 2008 9:55:28 PM)
which means when i get up from chat-yeoww!

momma (Oct 2, 2008 9:55:39 PM)
i know part of my aches and pain is probably due to my weight

twinglema (Oct 2, 2008 9:55:46 PM)
same here

twinglema (Oct 2, 2008 9:55:58 PM)
it just puts extra stress on the joints

momma (Oct 2, 2008 9:56:07 PM)
and i like to start walking but i cant no way

momma (Oct 2, 2008 9:56:10 PM)
yep

twinglema (Oct 2, 2008 9:56:33 PM)
i know i keep saying i should go to gym but i cant walk alot

twinglema (Oct 2, 2008 9:56:40 PM)
i could go swim though

momma (Oct 2, 2008 9:56:45 PM)
i have a mmembership

twinglema (Oct 2, 2008 9:56:50 PM)
excuses...excuses...

twinglema (Oct 2, 2008 9:57:00 PM)
me too-that i havent used for 3 years

twinglema (Oct 2, 2008 9:57:22 PM)
i did great and lost 40 pounds then thrown for a loop with md and stopped going

momma (Oct 2, 2008 9:57:34 PM)
yea isnt that aweful we even bought new bikes mine even still has a tag on it

twinglema (Oct 2, 2008 9:57:46 PM)
i am too big for a bike yet

momma (Oct 2, 2008 9:58:23 PM)
well it seems we go through stages with our weight here

twinglema (Oct 2, 2008 9:58:42 PM)
the rest of my family are sticks

twinglema (Oct 2, 2008 10:00:04 PM)
well i should go let dog out and spend some time w/ hubby

momma (Oct 2, 2008 10:00:10 PM)
of course i guess god must think we need that extra cushion

twinglema (Oct 2, 2008 10:00:17 PM)
yep

momma (Oct 2, 2008 10:00:20 PM)
ok twingle

twinglema (Oct 2, 2008 10:00:32 PM)
drat i think i am getting sams sore throat

momma (Oct 2, 2008 10:00:32 PM)
prayers for R and anna

twinglema (Oct 2, 2008 10:00:39 PM)
yes, i will

momma (Oct 2, 2008 10:00:44 PM)
and your family

momma (Oct 2, 2008 10:00:50 PM)
night

momma (Oct 2, 2008 10:00:57 PM)
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twinglema (Oct 2, 2008 10:00:58 PM)
yours too tkae care and nite

twinglema (Oct 2, 2008 10:01:01 PM)
(This user has left DigiChat)