DMD Parent Chat

eg (Dec 28, 2006 7:57:35 PM)
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momma (Dec 28, 2006 7:57:56 PM)
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eg (Dec 28, 2006 7:58:11 PM)
(This user has entered DMD Parent Chat)

momma (Dec 28, 2006 7:58:20 PM)
hi eg

eg (Dec 28, 2006 7:58:25 PM)
Hi momma I thought I was logged in

eg (Dec 28, 2006 7:58:29 PM)
it showed I was

eg (Dec 28, 2006 7:58:47 PM)
I logged out then came back in and here you are

momma (Dec 28, 2006 7:59:01 PM)
problems again ?

eg (Dec 28, 2006 7:59:04 PM)
wonder why it does that

eg (Dec 28, 2006 7:59:12 PM)
happens sometimes

momma (Dec 28, 2006 7:59:16 PM)
i don't know

eg (Dec 28, 2006 7:59:23 PM)
last night I was using my sisters she has dialup

momma (Dec 28, 2006 7:59:35 PM)
oh ok

eg (Dec 28, 2006 7:59:51 PM)
I just connect to chat shows I am by myself

momma (Dec 28, 2006 7:59:59 PM)
how are your sisters boys?

momma (Dec 28, 2006 8:00:09 PM)
i'm invisable lol

eg (Dec 28, 2006 8:00:17 PM)
the middle one has a sharp pain in his heart

eg (Dec 28, 2006 8:00:18 PM)
LOL

momma (Dec 28, 2006 8:00:24 PM)
oh no

eg (Dec 28, 2006 8:00:27 PM)
dr thinks its his lungs he is sick right now

eg (Dec 28, 2006 8:00:40 PM)
said take ibuprofen to see if it helps inflamation

momma (Dec 28, 2006 8:00:52 PM)
kent has been having chest pain when he goes to bed at night

eg (Dec 28, 2006 8:00:57 PM)
and if not he needs to see cardio

eg (Dec 28, 2006 8:01:01 PM)
really

eg (Dec 28, 2006 8:01:30 PM)
just when he goes to bed?

momma (Dec 28, 2006 8:01:37 PM)
yea the other night he yelled out loud but went back to sleep

eg (Dec 28, 2006 8:01:43 PM)
strange

momma (Dec 28, 2006 8:01:55 PM)
yea most of the time

momma (Dec 28, 2006 8:02:18 PM)
does he take heart meds already

eg (Dec 28, 2006 8:02:29 PM)
I think just lisinopril

momma (Dec 28, 2006 8:02:40 PM)
kent takes that too

sunney (Dec 28, 2006 8:02:43 PM)
(This user has entered DMD Parent Chat)

eg (Dec 28, 2006 8:02:51 PM)
Michael does too

eg (Dec 28, 2006 8:02:53 PM)
Hi sunney

sunney (Dec 28, 2006 8:02:53 PM)
Hi eg and momma

momma (Dec 28, 2006 8:02:58 PM)
and toporol and digi

momma (Dec 28, 2006 8:03:02 PM)
hi sunney

eg (Dec 28, 2006 8:03:02 PM)
oh

momma (Dec 28, 2006 8:03:19 PM)
how old is the middle one eg?

eg (Dec 28, 2006 8:03:27 PM)
I went to dr today for my burning, tingling in my middle upper back

eg (Dec 28, 2006 8:03:33 PM)
21

momma (Dec 28, 2006 8:03:36 PM)
oh

sunney (Dec 28, 2006 8:03:38 PM)
what did you find out?

momma (Dec 28, 2006 8:03:50 PM)
so what did they tel ya about your back eg

eg (Dec 28, 2006 8:04:06 PM)
she asked me about other symptoms and touched my back and said wow your muscles feel tight

momma (Dec 28, 2006 8:04:23 PM)
lifting too much eg ?

eg (Dec 28, 2006 8:04:30 PM)
since it is not going to my shoulders she thinks stress and tight muscles

eg (Dec 28, 2006 8:04:38 PM)
we use hoyer for Michael

sunney (Dec 28, 2006 8:04:45 PM)
stress? who has stress???

eg (Dec 28, 2006 8:04:51 PM)
so she said massage

eg (Dec 28, 2006 8:04:57 PM)
try that first

eg (Dec 28, 2006 8:05:00 PM)
LOL sunney

sunney (Dec 28, 2006 8:05:19 PM)
sounds like a good reason to go get a good massage

momma (Dec 28, 2006 8:05:20 PM)
or moved just right ? i use mlift too but just moving the wrong way i get stiff back

eg (Dec 28, 2006 8:05:26 PM)
oh yeah already told hubby

momma (Dec 28, 2006 8:05:30 PM)
me too !

eg (Dec 28, 2006 8:05:57 PM)
so I am going to make appt for next week

eg (Dec 28, 2006 8:06:02 PM)
hopefully early in the week

sunney (Dec 28, 2006 8:06:06 PM)
maybe you should buy one of those massage chairs

eg (Dec 28, 2006 8:06:14 PM)
yeah good idea

momma (Dec 28, 2006 8:06:19 PM)
brb

eg (Dec 28, 2006 8:06:21 PM)
k

sunney (Dec 28, 2006 8:06:26 PM)
i've only had one massage and they feel great

eg (Dec 28, 2006 8:06:32 PM)
me too

sunney (Dec 28, 2006 8:06:52 PM)
you'll have to let us know if you feel better after it

eg (Dec 28, 2006 8:06:56 PM)
its been awhile

eg (Dec 28, 2006 8:07:00 PM)
ok I will

eg (Dec 28, 2006 8:07:22 PM)
guess I hold my stress in my upper back

sunney (Dec 28, 2006 8:07:38 PM)
jaw and back are prime places to show stress

eg (Dec 28, 2006 8:07:47 PM)
you know what

eg (Dec 28, 2006 8:07:53 PM)
when I open my mouth its is sore

sunney (Dec 28, 2006 8:08:06 PM)
probably grinding your teeth at night

eg (Dec 28, 2006 8:08:15 PM)
when I open wide

eg (Dec 28, 2006 8:08:24 PM)
just on left side

sunney (Dec 28, 2006 8:08:49 PM)
could all be related to stress

eg (Dec 28, 2006 8:08:50 PM)
well I'll see if it helps all of this

eg (Dec 28, 2006 8:08:58 PM)
yeah

sunney (Dec 28, 2006 8:09:05 PM)
how is michael feeling?

eg (Dec 28, 2006 8:09:25 PM)
he is good just sometimes has a bit of conjestion

eg (Dec 28, 2006 8:09:28 PM)
gets rid of it

eg (Dec 28, 2006 8:09:35 PM)
how about Nick?

sunney (Dec 28, 2006 8:09:47 PM)
he's glad he's got two weeks off and can sleep in

eg (Dec 28, 2006 8:09:55 PM)
neat

sunney (Dec 28, 2006 8:10:11 PM)
eg, when michael started needing bipap did you notice he was pale?

eg (Dec 28, 2006 8:10:35 PM)
after spine surgery they extubated him to bipap

eg (Dec 28, 2006 8:10:42 PM)
then weaned to only night use

sunney (Dec 28, 2006 8:10:50 PM)
ic

eg (Dec 28, 2006 8:11:00 PM)
he had a sleep study and showed sleep apnea

sunney (Dec 28, 2006 8:11:11 PM)
nick has been really tired and i've noticed he's pale and has circles under his eyes

eg (Dec 28, 2006 8:11:12 PM)
so he has used it at night for one year now

momma (Dec 28, 2006 8:11:39 PM)
back

eg (Dec 28, 2006 8:11:42 PM)
wb

sunney (Dec 28, 2006 8:11:43 PM)
we see the pulmo in january

momma (Dec 28, 2006 8:11:46 PM)
ty

sunney (Dec 28, 2006 8:11:46 PM)
wb momma

sunney (Dec 28, 2006 8:12:15 PM)
maybe we need a sleep study - we've only ever done overnight pulse ox

eg (Dec 28, 2006 8:12:17 PM)
it may be time for some breathing assistance

momma (Dec 28, 2006 8:12:34 PM)
is nick still throwing up ?

eg (Dec 28, 2006 8:12:34 PM)
oh yeah a sleep study is more indepty

eg (Dec 28, 2006 8:12:39 PM)
indepth

sunney (Dec 28, 2006 8:12:49 PM)
yes he is momma

momma (Dec 28, 2006 8:12:55 PM)
oh no

sunney (Dec 28, 2006 8:13:12 PM)
i doubt they'll ever figure that one out

momma (Dec 28, 2006 8:13:18 PM)
nothing can be done for throwing up?

eg (Dec 28, 2006 8:13:27 PM)
michael had a few vomiting episodes but he was sick with a cold too

eg (Dec 28, 2006 8:13:36 PM)
thats hard

sunney (Dec 28, 2006 8:13:48 PM)
they've tried all the normal gastric drugs but nothing has helped

eg (Dec 28, 2006 8:13:56 PM)
he tried zelnorm

momma (Dec 28, 2006 8:13:57 PM)
kent never throws up he get dry heaves but never bring anything up

sunney (Dec 28, 2006 8:14:44 PM)
we've run the gammit of drugs

sunney (Dec 28, 2006 8:15:12 PM)
nick handles it amazingly well other than it really tires him out now

momma (Dec 28, 2006 8:15:22 PM)
doe she have an appitite sunney?

eg (Dec 28, 2006 8:15:49 PM)
he sees a cardio right?

momma (Dec 28, 2006 8:16:08 PM)
i have delayed reation i type and it shows up a couple of minutes later

eg (Dec 28, 2006 8:16:11 PM)
forgot

monie (Dec 28, 2006 8:16:22 PM)
(This user has entered DMD Parent Chat)

sunney (Dec 28, 2006 8:16:27 PM)
not often momma - he mainly sticks with j-tube feeding

eg (Dec 28, 2006 8:16:27 PM)
me too momma

eg (Dec 28, 2006 8:16:52 PM)
Hi monie

momma (Dec 28, 2006 8:16:56 PM)
oh yea i forgott he has j tube

sunney (Dec 28, 2006 8:17:05 PM)
he does see a cardio eg and i'm kinda thinking i should talk to him about the vomiting - cardiac issues can cause vomiting also

eg (Dec 28, 2006 8:17:13 PM)
yeah true

sunney (Dec 28, 2006 8:17:19 PM)
hi monie

monie (Dec 28, 2006 8:17:33 PM)
oh sorry i got on the wrong chat again....

eg (Dec 28, 2006 8:17:40 PM)
thats ok

sunney (Dec 28, 2006 8:17:42 PM)
lol

eg (Dec 28, 2006 8:17:46 PM)
which one are u looking for?

monie (Dec 28, 2006 8:17:48 PM)
hope things are going well for all of you

momma (Dec 28, 2006 8:17:48 PM)
sunney did they do a time study on nicks stomach

eg (Dec 28, 2006 8:17:53 PM)
ty u too monie

monie (Dec 28, 2006 8:17:55 PM)
the positive thinking one...

eg (Dec 28, 2006 8:18:02 PM)
its over now monie

monie (Dec 28, 2006 8:18:07 PM)
i always get the times messed up....

monie (Dec 28, 2006 8:18:16 PM)
oh well....happy new year

monie (Dec 28, 2006 8:18:21 PM)
(This user has left DigiChat)

eg (Dec 28, 2006 8:18:22 PM)
Happy New Year

sunney (Dec 28, 2006 8:18:42 PM)
yes and it was delayed

eg (Dec 28, 2006 8:18:57 PM)
that itself can cause vomiting

eg (Dec 28, 2006 8:19:03 PM)
but cardio can too

eg (Dec 28, 2006 8:19:08 PM)
guess have to check it all

sunney (Dec 28, 2006 8:19:31 PM)
well now with his being fed in the j tube he is only throwing up bile and phlem

eg (Dec 28, 2006 8:19:37 PM)
oh

eg (Dec 28, 2006 8:19:52 PM)
that is strange

eg (Dec 28, 2006 8:20:00 PM)
how long since he been to cardio?

momma (Dec 28, 2006 8:20:05 PM)
yea thats what i was gonna kent stomach troubles started that way then his gallbladder

sunney (Dec 28, 2006 8:20:44 PM)
4 months ago - we go again in january

eg (Dec 28, 2006 8:20:54 PM)
not too long ago and all was well

sunney (Dec 28, 2006 8:21:00 PM)
didn't kents gallbladder cause him pain?

sunney (Dec 28, 2006 8:21:40 PM)
how often does michael see the cardio?

eg (Dec 28, 2006 8:22:12 PM)
once a year he is due fed

eg (Dec 28, 2006 8:22:17 PM)
feb

sunney (Dec 28, 2006 8:22:41 PM)
how about kent - how often does he see the cardio?

sunney (Dec 28, 2006 8:23:30 PM)
did you get tired of getting the boot last night eg?

momma (Dec 28, 2006 8:24:03 PM)
yes alot of pain sunney

momma (Dec 28, 2006 8:24:24 PM)
kent see cadio about every 3 monthes

sunney (Dec 28, 2006 8:24:39 PM)
well i guess at least it isn't nick's gallbladder causing the vomiting - he has no pain

sunney (Dec 28, 2006 8:24:58 PM)
is his injection fraction reduced?

anna (Dec 28, 2006 8:25:08 PM)
(This user has entered DMD Parent Chat)

momma (Dec 28, 2006 8:25:10 PM)
thats good kent thought he was dieing with gallbladder pain

momma (Dec 28, 2006 8:25:18 PM)
hi anna

eg (Dec 28, 2006 8:25:18 PM)
I can

sunney (Dec 28, 2006 8:25:19 PM)
hi anna

eg (Dec 28, 2006 8:25:23 PM)
't find his appt

eg (Dec 28, 2006 8:25:27 PM)
Hi anna

anna (Dec 28, 2006 8:25:30 PM)
Hello

anna (Dec 28, 2006 8:25:55 PM)
What did I miss?

anna (Dec 28, 2006 8:26:06 PM)
In a nutshell....

sunney (Dec 28, 2006 8:26:12 PM)
eg gets to go get a massage to get rid of the stress in her back

eg (Dec 28, 2006 8:26:22 PM)
yep LOL

anna (Dec 28, 2006 8:26:28 PM)
Ummmm--I never had one

sunney (Dec 28, 2006 8:26:54 PM)
hey eg - maybe your insurance will pay for it since it's medically warranted

eg (Dec 28, 2006 8:27:02 PM)
oh thats true

sunney (Dec 28, 2006 8:27:25 PM)
i've only had one anna but they are great

anna (Dec 28, 2006 8:27:35 PM)
Who us, dmd moms have stress???

sunney (Dec 28, 2006 8:27:44 PM)
lol - that's what i said

momma (Dec 28, 2006 8:27:53 PM)
i have so many knots in my neck i'm afraid it would hurt

eg (Dec 28, 2006 8:28:29 PM)
yeah me too just one a while ago

anna (Dec 28, 2006 8:28:30 PM)
I have knots beyond the Scout's ability to fix

eg (Dec 28, 2006 8:28:34 PM)
LOL

sunney (Dec 28, 2006 8:29:00 PM)
it's amazing we can all function

anna (Dec 28, 2006 8:29:29 PM)
R has a sore throat today so I am trying to get liquids down him. At least he understands the importance of fluids and is taking all he can.

sunney (Dec 28, 2006 8:29:49 PM)
hopefully he's not coming down with something

eg (Dec 28, 2006 8:29:58 PM)
oh oh anna

eg (Dec 28, 2006 8:30:09 PM)
brb

sunney (Dec 28, 2006 8:30:14 PM)
k eg

anna (Dec 28, 2006 8:30:33 PM)
The baby that came for Christmas was just getting over something. These babies are germy. Cute, but germy.

anna (Dec 28, 2006 8:31:07 PM)
I think I didn't wash my hands enough and transferred from baby to R.

sunney (Dec 28, 2006 8:31:09 PM)
hopefully she didn't leave her cute germs for R

momma (Dec 28, 2006 8:31:15 PM)
kent had a stuff nose but been doing saline spray and occasional nasal decongest and flonase

sunney (Dec 28, 2006 8:31:58 PM)
do any of your boys use musonex to thin out secretions?

anna (Dec 28, 2006 8:32:08 PM)
We had fun feeding a squirrel a coconut today. That rodent thought his ship had come in lol.

momma (Dec 28, 2006 8:32:16 PM)
lol

sunney (Dec 28, 2006 8:32:29 PM)
christmas for the squirrel!

anna (Dec 28, 2006 8:32:55 PM)
Dr said to get Guaifenesin to thin secretions

momma (Dec 28, 2006 8:33:06 PM)
kent has use mucamist via a nebulizer

anna (Dec 28, 2006 8:33:16 PM)
I had to throw it off the second story to open it

momma (Dec 28, 2006 8:33:35 PM)
is that perscription anna

sunney (Dec 28, 2006 8:33:36 PM)
i was reading on the dmdpioneers group and it looked like a lot of those men used it

anna (Dec 28, 2006 8:33:52 PM)
which Sunney?

sunney (Dec 28, 2006 8:34:00 PM)
musonex

anna (Dec 28, 2006 8:34:25 PM)
over the counter Robitussin chest congestion formula with Guaifenesin

momma (Dec 28, 2006 8:34:35 PM)
oh ok

anna (Dec 28, 2006 8:35:08 PM)
I am not familiar with usage of nebulizer meds-yet

sunney (Dec 28, 2006 8:35:29 PM)
we use albuterol but that's it

momma (Dec 28, 2006 8:36:28 PM)
kent had broncoctist a few yrs ago and we used mucamist and zypinex

momma (Dec 28, 2006 8:36:45 PM)
but hasn't used for a long time

sunney (Dec 28, 2006 8:37:21 PM)
at least there are drugs that will help

momma (Dec 28, 2006 8:37:26 PM)
albuterol make kent heart race

sunney (Dec 28, 2006 8:38:10 PM)
i'll have to check nick's rate next time we have to use it

eg (Dec 28, 2006 8:38:11 PM)
back

anna (Dec 28, 2006 8:38:11 PM)
yes, but is easier to not have to use them becasue of side effects like K's racing heart

sunney (Dec 28, 2006 8:38:21 PM)
wb eg

eg (Dec 28, 2006 8:38:23 PM)
ty

eg (Dec 28, 2006 8:38:33 PM)
u think we should not use albuterol?

momma (Dec 28, 2006 8:38:57 PM)
i didn't need to check he could feel it pounding

sunney (Dec 28, 2006 8:39:04 PM)
since nick has been on the ace inhibitor his rate is slower than it was before

anna (Dec 28, 2006 8:39:08 PM)
I think you use those meds when the good outweighs the bad affects

momma (Dec 28, 2006 8:39:12 PM)
no eg it may not be the same for all

eg (Dec 28, 2006 8:39:19 PM)
true

eg (Dec 28, 2006 8:39:37 PM)
we use when Michael's phelm is yellow

momma (Dec 28, 2006 8:39:41 PM)
kent can use zoypenex(sp)

eg (Dec 28, 2006 8:39:45 PM)
or when infect is present

anna (Dec 28, 2006 8:39:47 PM)
if you have a good pulmonologist you have to trust him/her\

eg (Dec 28, 2006 8:39:59 PM)
yeah

sunney (Dec 28, 2006 8:40:23 PM)
i see on some of the the boards all the suplements parents are giving their kids and i wonder how they keep it all straight

eg (Dec 28, 2006 8:40:41 PM)
me too

eg (Dec 28, 2006 8:41:47 PM)
I can barely keep up now

momma (Dec 28, 2006 8:41:54 PM)
anna how R mouth sore from mouth piece anglea took pictures of kent set up when they send i'll email it to ya

momma (Dec 28, 2006 8:42:31 PM)
she said she talked to louie a couple of weeks ago

anna (Dec 28, 2006 8:42:38 PM)
R has a lot of sores/cankar/cold sores and always has. His tongue is a bit swollen right now from a sore on it

momma (Dec 28, 2006 8:42:47 PM)
awe

eg (Dec 28, 2006 8:42:48 PM)
oh poor R

sunney (Dec 28, 2006 8:42:57 PM)
is it from the plastic?

Raybear (Dec 28, 2006 8:43:02 PM)
(This user has entered DMD Parent Chat)

eg (Dec 28, 2006 8:43:07 PM)
Hi Raybear

sunney (Dec 28, 2006 8:43:09 PM)
hi raybear

momma (Dec 28, 2006 8:43:11 PM)
did ya try using mouth wash it seems to help kent

Raybear (Dec 28, 2006 8:43:20 PM)
hi momma, anna, sunney and eg

momma (Dec 28, 2006 8:43:21 PM)
hi raybear

anna (Dec 28, 2006 8:43:28 PM)
Hi Raybear

momma (Dec 28, 2006 8:43:37 PM)
whats up raybear?

Raybear (Dec 28, 2006 8:43:50 PM)
not much i guess

anna (Dec 28, 2006 8:43:51 PM)
He had a lot of sores even before the LTV

Raybear (Dec 28, 2006 8:44:00 PM)
moutwash for sores?

sunney (Dec 28, 2006 8:44:02 PM)
there is a mouth rinse my dentist prescribed for me for canker sores - peradyn or something like that

eg (Dec 28, 2006 8:44:17 PM)
its not peridex sunney or something like that

Raybear (Dec 28, 2006 8:44:31 PM)
raymon gets sores in his mouth. has one on roof of mouth right now

momma (Dec 28, 2006 8:44:34 PM)
we use crest mouth wash and peroxcil mouth wash too

sunney (Dec 28, 2006 8:44:36 PM)
on sec - i'll go look at the bottle

eg (Dec 28, 2006 8:44:42 PM)
k

anna (Dec 28, 2006 8:44:46 PM)
R has Chloraseptic spray for mouth pain

Raybear (Dec 28, 2006 8:44:55 PM)
is this common then?!

eg (Dec 28, 2006 8:44:57 PM)
does it hurt him alot raybear

Raybear (Dec 28, 2006 8:45:27 PM)
they bug him quite a bit sometimes

sunney (Dec 28, 2006 8:45:41 PM)
its called chlorhexidine gluconate

Raybear (Dec 28, 2006 8:45:43 PM)
stress times he tends to get them more. is this what you guys are talking about?

eg (Dec 28, 2006 8:45:54 PM)
michael uses that for his gums

momma (Dec 28, 2006 8:45:56 PM)
i get a lot of canker sore myself and the peroxcil relives the pain pretty fast

Raybear (Dec 28, 2006 8:46:04 PM)
is it nasty and brown? the med?

sunney (Dec 28, 2006 8:46:05 PM)
tasts terrible but works

anna (Dec 28, 2006 8:46:05 PM)
I cannot correlate R's with stress

eg (Dec 28, 2006 8:46:23 PM)
well raybear doc says I need a massage

eg (Dec 28, 2006 8:46:26 PM)
saw her today

Raybear (Dec 28, 2006 8:46:27 PM)
Ray seems to get more when stressed but sometimes they just appear

anna (Dec 28, 2006 8:46:30 PM)
I will look for those products Sunney and Momma

Raybear (Dec 28, 2006 8:46:49 PM)
is this one of the duchenne things drs tell you aren't associated but many kids get em?????

anna (Dec 28, 2006 8:46:57 PM)
I wonder....

Raybear (Dec 28, 2006 8:47:00 PM)
we use salt water rinses

momma (Dec 28, 2006 8:47:09 PM)
brb

eg (Dec 28, 2006 8:47:12 PM)
k

sunney (Dec 28, 2006 8:47:14 PM)
k momma

momma (Dec 28, 2006 8:47:23 PM)
(This user has left DigiChat)

Raybear (Dec 28, 2006 8:47:24 PM)
dr says massage eg...well ya best go get one! LOL

eg (Dec 28, 2006 8:47:40 PM)
she says my muscles feel real tight

eg (Dec 28, 2006 8:47:47 PM)
so she thinks that and stress

eg (Dec 28, 2006 8:47:53 PM)
yep LOl

anna (Dec 28, 2006 8:47:58 PM)
we tried Abreva and I din't think it worked that well--it is very expensive

Raybear (Dec 28, 2006 8:47:59 PM)
how weird. I never would have mentioned mouth sores and weirder our kids get em

eg (Dec 28, 2006 8:48:08 PM)
it didn't anna

eg (Dec 28, 2006 8:48:18 PM)
oh michael does too

Raybear (Dec 28, 2006 8:48:28 PM)
our ped dentist recommends a natural rinse. says it is as good as the prescrip.

eg (Dec 28, 2006 8:48:31 PM)
he said to me I have one right now

Raybear (Dec 28, 2006 8:48:32 PM)
i'll get the bottle...hang on

eg (Dec 28, 2006 8:48:58 PM)
ok

Raybear (Dec 28, 2006 8:49:31 PM)
Well what a name! LOL "The Natural Dentist" Herbal Mouth and Gum Therapy antimicrobial rinse

anna (Dec 28, 2006 8:49:42 PM)
well, we should do our own study then harass our dmd docs

eg (Dec 28, 2006 8:49:49 PM)
yes

Raybear (Dec 28, 2006 8:49:53 PM)
i agree anna

anna (Dec 28, 2006 8:50:12 PM)
R gets them worse in winter I noticed

Raybear (Dec 28, 2006 8:50:35 PM)
hmmm, ray may too? he's been plagued the last two months

momma (Dec 28, 2006 8:50:45 PM)
(This user has entered DMD Parent Chat)

eg (Dec 28, 2006 8:50:47 PM)
they will say oh you are just stressed moms LOL

eg (Dec 28, 2006 8:50:49 PM)
wb momma

Raybear (Dec 28, 2006 8:50:52 PM)
but we've had a lot of dr appts too so I thought the extra stress maybe

Raybear (Dec 28, 2006 8:51:03 PM)
wb momma

anna (Dec 28, 2006 8:51:06 PM)
I sterilize his mouthpiece and masks frequently, but am interested in what Kent uses with his LTV

momma (Dec 28, 2006 8:51:38 PM)
anna the correct spell for the mouth wash is peroxyl by colgate

momma (Dec 28, 2006 8:51:53 PM)
kent uses a new mouth piece every day

eg (Dec 28, 2006 8:52:15 PM)
not to change subject but does anyone have new years plans

anna (Dec 28, 2006 8:52:22 PM)
Now I remember that a massage therapist used to come to the MDA support group and just do simple back/neck rubs during the meeting

eg (Dec 28, 2006 8:52:32 PM)
oh neat

Raybear (Dec 28, 2006 8:52:40 PM)
ohhhh anna, now that is something I must request for our group LOL

anna (Dec 28, 2006 8:52:40 PM)
ty Momma--will look for it

sunney (Dec 28, 2006 8:52:46 PM)
no plans here eg

Raybear (Dec 28, 2006 8:52:57 PM)
no plans eg. stay home, watch the ball drop on t.v. and go to bed

momma (Dec 28, 2006 8:52:58 PM)
mabey a early dinner out

eg (Dec 28, 2006 8:53:15 PM)
our church has a watch night service but not till 12

anna (Dec 28, 2006 8:53:21 PM)
a new one every day hmmm

eg (Dec 28, 2006 8:53:31 PM)
with Michael still coughing a bit not sure I want to take him out

momma (Dec 28, 2006 8:53:32 PM)
yea

Raybear (Dec 28, 2006 8:53:34 PM)
oh yeah, i think ours does too LOL potluck too I think. ty for reminding me

Raybear (Dec 28, 2006 8:53:46 PM)
he getting better eg?

sunney (Dec 28, 2006 8:53:49 PM)
it's been so chilly here i'm glad nick has been out of school

anna (Dec 28, 2006 8:53:54 PM)
We are going to friends that have stairs but guy says he will fix a way to get R in by Monday

eg (Dec 28, 2006 8:54:10 PM)
he is but gets some coughing and phelm

eg (Dec 28, 2006 8:54:25 PM)
its raining here and highs in 50's

momma (Dec 28, 2006 8:54:57 PM)
it's been mid 40 to 50 here in ohio too

eg (Dec 28, 2006 8:54:59 PM)
maybe even some snow too

anna (Dec 28, 2006 8:55:06 PM)
of course if R's sore throat is worse I will stay home with him

Raybear (Dec 28, 2006 8:55:09 PM)
snow for you eg?

momma (Dec 28, 2006 8:55:12 PM)
i almost miss snow

sunney (Dec 28, 2006 8:55:12 PM)
we had high winds today so santa is napping in my front yard at the moment

eg (Dec 28, 2006 8:55:16 PM)
the mountains have snow now

eg (Dec 28, 2006 8:55:17 PM)
yep

Raybear (Dec 28, 2006 8:55:21 PM)
wow

Raybear (Dec 28, 2006 8:55:31 PM)
we had flurries but today was cold and sunney

sunney (Dec 28, 2006 8:55:39 PM)
and half my lights are blowing in the wind

eg (Dec 28, 2006 8:55:51 PM)
yesterday we had rain with thunder LOL

eg (Dec 28, 2006 8:55:57 PM)
and then power went out for one hr

sunney (Dec 28, 2006 8:56:09 PM)
wow - sounds like you got our storm eg

eg (Dec 28, 2006 8:56:18 PM)
yeah I'll bet

Raybear (Dec 28, 2006 8:56:26 PM)
about time it wasn't anna LOL

anna (Dec 28, 2006 8:56:27 PM)
our horrible turn of weather is why I was helping the squirrel with a coconut, but I don't want him to get dependant on me

eg (Dec 28, 2006 8:56:45 PM)
true

sunney (Dec 28, 2006 8:56:51 PM)
he'll be visiting you every day to get more coconut

sunney (Dec 28, 2006 8:57:16 PM)
and why did you decide to feed him coconut in the first place?

eg (Dec 28, 2006 8:57:32 PM)
thought they ate acorns

anna (Dec 28, 2006 8:57:43 PM)
it is a long story Sunney, but I did learn a LOT about coconuts this week

sunney (Dec 28, 2006 8:57:49 PM)
lol ok

sunney (Dec 28, 2006 8:58:06 PM)
our squirrels run across the wires and take walnuts out of my tree

eg (Dec 28, 2006 8:58:15 PM)
oh a couple of theives

momma (Dec 28, 2006 8:58:18 PM)
brb again

eg (Dec 28, 2006 8:58:20 PM)
k

Raybear (Dec 28, 2006 8:58:24 PM)
too bad MDA doesn't have a forum. then we could share those stories

eg (Dec 28, 2006 8:58:36 PM)
yep

anna (Dec 28, 2006 8:58:56 PM)
yes, in one community here in WA they put up rope "bridges" for the squirrels to use to cross the hiway

sunney (Dec 28, 2006 8:59:04 PM)
they can have all the walnuts they want - they keep them from become missels when my lawn mower hits them

eg (Dec 28, 2006 8:59:11 PM)
LOL

Raybear (Dec 28, 2006 8:59:18 PM)
did the squirells comply or jaywalk still?

anna (Dec 28, 2006 8:59:28 PM)
squirrels are just fancy rats

Raybear (Dec 28, 2006 8:59:47 PM)
ewwww rats are way worse!

eg (Dec 28, 2006 8:59:50 PM)
maybe they need a sign that says squirrls this way

anna (Dec 28, 2006 8:59:51 PM)
I think some used the bridge, but more became road kill

sunney (Dec 28, 2006 9:00:04 PM)
rats give my company lots of work - they like to eat tractor wires

eg (Dec 28, 2006 9:00:05 PM)
ewww

Raybear (Dec 28, 2006 9:00:21 PM)
pack rats are the worst!

eg (Dec 28, 2006 9:00:36 PM)
oh thats not good sunney

anna (Dec 28, 2006 9:00:39 PM)
uh oh, my hubby is a pack rat

sunney (Dec 28, 2006 9:01:04 PM)
it's good for us when we get paid for fixing the tractor but the farmers aren't too happy about it

eg (Dec 28, 2006 9:01:04 PM)
mine is just a rat

Raybear (Dec 28, 2006 9:01:08 PM)
so is mine

Raybear (Dec 28, 2006 9:01:17 PM)
mine is a packrat and sometimes just a rat LOL

sunney (Dec 28, 2006 9:01:40 PM)
mine has IMPORTANT stuff - yeah right

eg (Dec 28, 2006 9:02:04 PM)
everything to mine is important

eg (Dec 28, 2006 9:02:17 PM)
even a tiny nail

anna (Dec 28, 2006 9:02:18 PM)
mine likes everything out where he can see it--after 37 years we still are at odds about his stuff

Raybear (Dec 28, 2006 9:02:20 PM)
and notice when it's spring cleaning time their stuff has to stay but your stuff has to go?

eg (Dec 28, 2006 9:02:32 PM)
oh yeah

sunney (Dec 28, 2006 9:02:37 PM)
oh anna - i feel for you - i am forever getting in trouble for putting stuff away

Raybear (Dec 28, 2006 9:02:47 PM)
mine hides all his in boxes which he stacks in the yard. at least we don't have to worry about mowing the lawn now

eg (Dec 28, 2006 9:02:56 PM)
LOL

anna (Dec 28, 2006 9:03:26 PM)
mine has filled the garage, his "office", and is now working on an airplane hanger

Raybear (Dec 28, 2006 9:03:34 PM)
and when you actually need something he probably does have heaven knows where it is

eg (Dec 28, 2006 9:03:37 PM)
he filling a hanger?

Raybear (Dec 28, 2006 9:03:51 PM)
oh Lawdy if my hubby had an airplane hangar!!! LOL

anna (Dec 28, 2006 9:04:07 PM)
yes, but also keeps his plane and truck in it

eg (Dec 28, 2006 9:04:12 PM)
no room for the airplane

anna (Dec 28, 2006 9:04:38 PM)
it is a tiny airplane...

eg (Dec 28, 2006 9:04:55 PM)
and then mine likes to go to swapmeets and collect more junk

sunney (Dec 28, 2006 9:05:40 PM)
sounds like all are men are about the same

eg (Dec 28, 2006 9:05:49 PM)
yeah

anna (Dec 28, 2006 9:05:50 PM)
Mine doesn't shop, but attracts junk like Pigpen in "Peanuts" attracts dirt

Raybear (Dec 28, 2006 9:05:59 PM)
yeah, ya can't live with em and ya can't shoot em LOL

sunney (Dec 28, 2006 9:06:05 PM)
LOL anna

eg (Dec 28, 2006 9:06:06 PM)
why not

eg (Dec 28, 2006 9:06:07 PM)
LOL

anna (Dec 28, 2006 9:06:08 PM)
haha

Raybear (Dec 28, 2006 9:06:14 PM)
they are kinda like waffle makers, nice to have just in case

eg (Dec 28, 2006 9:06:43 PM)
true I have one and don't use often

sunney (Dec 28, 2006 9:06:44 PM)
isn't it funny though how when they do something like the dishes we are supposed to notice and make a big fuss?

eg (Dec 28, 2006 9:06:53 PM)
yes we are

anna (Dec 28, 2006 9:07:03 PM)
Yes, mine can be handy, but I am okay with him living 100 miles away and visiting

Raybear (Dec 28, 2006 9:07:05 PM)
LOL uh yeah

eg (Dec 28, 2006 9:07:10 PM)
LOL

Raybear (Dec 28, 2006 9:07:34 PM)
mine tried to help tonight fix the garbage disposal but drove me nuts so i made him mad and fixed it myself LOL

eg (Dec 28, 2006 9:07:41 PM)
mine notices when I don't do them

anna (Dec 28, 2006 9:07:47 PM)
it does make me unhappy that whatever I do is not noticed Sunney(unless I don't do it that is)

eg (Dec 28, 2006 9:07:48 PM)
LOL

anna (Dec 28, 2006 9:08:12 PM)
more plumbing for Raybear

Raybear (Dec 28, 2006 9:08:26 PM)
LOL I really hate my kitchen sink

anna (Dec 28, 2006 9:08:33 PM)
I always forget I have a garbage disposal here and forget to use it

momma (Dec 28, 2006 9:08:34 PM)
back

sunney (Dec 28, 2006 9:08:41 PM)
wb momma

Raybear (Dec 28, 2006 9:08:42 PM)
wb momma

eg (Dec 28, 2006 9:08:43 PM)
wb

momma (Dec 28, 2006 9:08:49 PM)
ty

anna (Dec 28, 2006 9:09:15 PM)
we didn't have a big plumbing crisis this Christmas for a change

Raybear (Dec 28, 2006 9:09:21 PM)
my hubby is NOT a handy man...or maybe just has me completely fooled

eg (Dec 28, 2006 9:09:37 PM)
he knows you know how to fix stuff

eg (Dec 28, 2006 9:10:02 PM)
I play dumb

eg (Dec 28, 2006 9:10:03 PM)
LOL

eg (Dec 28, 2006 9:10:14 PM)
so he has to do stuff

anna (Dec 28, 2006 9:10:38 PM)
well, I wish I could fix more stuff like you do Raybear. My hubby can do most things including electrical so I am spoiled, but I would like to be able to do more independantly.

Raybear (Dec 28, 2006 9:10:42 PM)
playing dumb would not work for me. my house would just fall apart

eg (Dec 28, 2006 9:10:51 PM)
Michael does think his dad does not know how to do anything

Raybear (Dec 28, 2006 9:11:01 PM)
electrical scares me though I did hang our dining room chandelier

eg (Dec 28, 2006 9:11:04 PM)
LOL raybear

sunney (Dec 28, 2006 9:11:13 PM)
lol eg - nick doesn't even think his dad is allowed to sign school papers

anna (Dec 28, 2006 9:11:15 PM)
If my hubby puts off doing something I start to do it. One look at my tools and methods and he fixes it himself

momma (Dec 28, 2006 9:11:33 PM)
my hubbie is a jack of all trades but master of none

eg (Dec 28, 2006 9:11:38 PM)
thats funny sunney

Raybear (Dec 28, 2006 9:11:45 PM)
i am threatening knocking out a wall to make our living room larger. hmmmm

Raybear (Dec 28, 2006 9:11:58 PM)
anyone see Fried Green Tomatoes? She is my heroine LOL

eg (Dec 28, 2006 9:12:00 PM)
oh oh

eg (Dec 28, 2006 9:12:05 PM)
nope

anna (Dec 28, 2006 9:12:28 PM)
but I don't want to eat anyone...that is a good movie

eg (Dec 28, 2006 9:12:38 PM)
what is that movie about?

Raybear (Dec 28, 2006 9:12:39 PM)
pretty sure it's a support wall though so I've behaved so far

anna (Dec 28, 2006 9:13:05 PM)
as long as no electrical wiring in it--that would be a shocking surprise

eg (Dec 28, 2006 9:13:17 PM)
yep

anna (Dec 28, 2006 9:13:31 PM)
ewveryone should see Fried Green Tomatoes--it is about women empowering themselves

eg (Dec 28, 2006 9:13:38 PM)
oh

anna (Dec 28, 2006 9:13:55 PM)
an old lady in a nursing home has quite a tale to tell in that movie

Raybear (Dec 28, 2006 9:13:57 PM)
it's a great story all around

Raybear (Dec 28, 2006 9:14:25 PM)
set in the old south during the KKK era....well back when it was real serious and almost legal.

momma (Dec 28, 2006 9:14:28 PM)
wonder if netflixs has that movie

momma (Dec 28, 2006 9:14:37 PM)
have to checkit out

Raybear (Dec 28, 2006 9:14:41 PM)
Jessica Tandy right?

anna (Dec 28, 2006 9:14:45 PM)
I'm sure they do Momma

Raybear (Dec 28, 2006 9:14:55 PM)
my brain just premenopaused on me LOL

eg (Dec 28, 2006 9:15:03 PM)
(This user has left DigiChat)

Raybear (Dec 28, 2006 9:15:12 PM)
anyway, it's a great movie. make ya cry and laugh and everything

anna (Dec 28, 2006 9:15:19 PM)
Yes, she plays the old lady. I forget who plays her as a young woman

sunney (Dec 28, 2006 9:15:50 PM)
good night everyone and have a wonderful and safe new years!

sunney (Dec 28, 2006 9:15:56 PM)
(This user has left DigiChat)

momma (Dec 28, 2006 9:15:59 PM)
night sunney

Raybear (Dec 28, 2006 9:15:59 PM)
you too sunney! see ya in 2007

anna (Dec 28, 2006 9:16:13 PM)
Chat is going to end, Happy New Years of All, and to All a Good Night

Raybear (Dec 28, 2006 9:16:25 PM)
Happy New Years anna and all :)

momma (Dec 28, 2006 9:16:34 PM)
you too annaand raybear

Raybear (Dec 28, 2006 9:16:39 PM)
May the next year be blessed for everyone

eg (Dec 28, 2006 9:16:45 PM)
(This user has entered DMD Parent Chat)

anna (Dec 28, 2006 9:16:47 PM)
God Bless us everyone

Raybear (Dec 28, 2006 9:16:51 PM)
wb eg

eg (Dec 28, 2006 9:16:52 PM)
don't know what happened

momma (Dec 28, 2006 9:16:55 PM)
same too you raybear

momma (Dec 28, 2006 9:17:00 PM)
wb eg

eg (Dec 28, 2006 9:17:06 PM)
thanks

eg (Dec 28, 2006 9:17:27 PM)
oh did sunney leave and I was not here

momma (Dec 28, 2006 9:17:33 PM)
yea

eg (Dec 28, 2006 9:17:39 PM)
chucks

eg (Dec 28, 2006 9:17:49 PM)
did it show me gone

Raybear (Dec 28, 2006 9:17:55 PM)
yes

momma (Dec 28, 2006 9:18:00 PM)
yea

eg (Dec 28, 2006 9:18:01 PM)
weird

Raybear (Dec 28, 2006 9:18:08 PM)
so K is doing well momma?

momma (Dec 28, 2006 9:18:20 PM)
yes he is raybear

Raybear (Dec 28, 2006 9:18:30 PM)
good news :)

momma (Dec 28, 2006 9:18:40 PM)
doesn't go back until march to plumonary

Raybear (Dec 28, 2006 9:18:49 PM)
wow! that is sooooo super

eg (Dec 28, 2006 9:18:58 PM)
(This user has left DigiChat)

momma (Dec 28, 2006 9:18:59 PM)
goes to mda clinic in couple of weeks

Raybear (Dec 28, 2006 9:19:14 PM)
our pulmo got results back from cardio but the nurse said he hadn't seen them yet so she couldn't comment

Raybear (Dec 28, 2006 9:19:38 PM)
and our cardio in portland doesn't have anything yet. so i wait to hear

eg (Dec 28, 2006 9:20:07 PM)
(This user has entered DMD Parent Chat)

momma (Dec 28, 2006 9:20:09 PM)
not sure why clinic doesn't do much

Raybear (Dec 28, 2006 9:20:10 PM)
we have dentist next week. he's praying hard for good check up LOL

eg (Dec 28, 2006 9:20:11 PM)
grrr

momma (Dec 28, 2006 9:20:33 PM)
kent just went to dentist last week had a good check up

Raybear (Dec 28, 2006 9:20:41 PM)
would be nice if MDA would standardize clinics

momma (Dec 28, 2006 9:20:57 PM)
dental health is very important to our boys

Raybear (Dec 28, 2006 9:21:00 PM)
ours is pathetic (clinic)

Raybear (Dec 28, 2006 9:21:07 PM)
yes it is.

eg (Dec 28, 2006 9:21:12 PM)
thats good momma

momma (Dec 28, 2006 9:21:36 PM)
i found out you can get phenomia if teeth are not cared for

Raybear (Dec 28, 2006 9:21:37 PM)
went to a fund raiser and this poor kid must not have had his teeth brushed for a year! They were all coated with white soft junk and it was soooooo gross!

momma (Dec 28, 2006 9:21:50 PM)
awe

Raybear (Dec 28, 2006 9:21:53 PM)
as if our kids don't have enough to overcome they can have healthy smiles

eg (Dec 28, 2006 9:21:55 PM)
really

anna (Dec 28, 2006 9:22:01 PM)
sorry, walked away. I am proud that R has never had a cavity

Raybear (Dec 28, 2006 9:22:09 PM)
wow momma. didn't know that

momma (Dec 28, 2006 9:22:11 PM)
good job anna

eg (Dec 28, 2006 9:22:22 PM)
wb anna

anna (Dec 28, 2006 9:22:32 PM)
Braun electric toothbrush

momma (Dec 28, 2006 9:22:38 PM)
me either somethong about the plauq

eg (Dec 28, 2006 9:22:40 PM)
I think Micheal has had one or two at most

Raybear (Dec 28, 2006 9:22:43 PM)
ray had two fillings last visit. first two in long time

momma (Dec 28, 2006 9:22:44 PM)
same here anna

eg (Dec 28, 2006 9:22:58 PM)
michael has to have good cleanings every 4 months

Raybear (Dec 28, 2006 9:23:01 PM)
i love our electric toothbrush. tiny round head makes it easy

eg (Dec 28, 2006 9:23:07 PM)
doc says feeding tubes cause alot of plaque

momma (Dec 28, 2006 9:23:10 PM)
did you know about poor dental can cause phemonia anna

Raybear (Dec 28, 2006 9:23:31 PM)
really eg? is that cuz they aren't chewing as much?

anna (Dec 28, 2006 9:23:37 PM)
no I didn't, but heard something about heart disease

eg (Dec 28, 2006 9:23:42 PM)
they don't know why but noticed it

Raybear (Dec 28, 2006 9:23:50 PM)
interesting eg

eg (Dec 28, 2006 9:24:01 PM)
yeah

momma (Dec 28, 2006 9:24:13 PM)
one aide that used to come here also works in nursing home and i guess it's a real problem

anna (Dec 28, 2006 9:24:53 PM)
it does take time to tend to the teeth--probably not well-staffed in a nursing home

momma (Dec 28, 2006 9:25:01 PM)
yea

Raybear (Dec 28, 2006 9:25:10 PM)
two mintues isn't too long though

Raybear (Dec 28, 2006 9:25:33 PM)
sad little things like that can get so neglected

anna (Dec 28, 2006 9:25:35 PM)
my heart breaks when I think of people with dmd being in a nursing home

momma (Dec 28, 2006 9:25:43 PM)
yea

eg (Dec 28, 2006 9:26:02 PM)
mine too

Raybear (Dec 28, 2006 9:26:09 PM)
i get sad thinking of anyone in a nursing home! especially young people though

momma (Dec 28, 2006 9:26:18 PM)
i told kent over my dead body he would go to nursing home but some families just can't handle it i guess

momma (Dec 28, 2006 9:26:43 PM)
or some older parents can't physically do it

anna (Dec 28, 2006 9:26:53 PM)
not everyone has such caring parents or others to help if parents cannot

Raybear (Dec 28, 2006 9:27:25 PM)
or the kids get a trach and the system forces it

momma (Dec 28, 2006 9:27:42 PM)
yea

anna (Dec 28, 2006 9:28:00 PM)
ok, I am REALLY going.....really

Raybear (Dec 28, 2006 9:28:07 PM)
lol anna

momma (Dec 28, 2006 9:28:13 PM)
ok anna happy new year

Raybear (Dec 28, 2006 9:28:18 PM)
nighty night. have a good new years

eg (Dec 28, 2006 9:28:22 PM)
ok anna take care

anna (Dec 28, 2006 9:28:27 PM)
ttyl y'all happy NY

eg (Dec 28, 2006 9:28:29 PM)
Have a Happy New Year

anna (Dec 28, 2006 9:28:32 PM)
(This user has left DigiChat)

momma (Dec 28, 2006 9:29:31 PM)
well ladies i'm gonna go have a good evening :)

eg (Dec 28, 2006 9:29:48 PM)
ok momma

momma (Dec 28, 2006 9:29:53 PM)
night

eg (Dec 28, 2006 9:29:56 PM)
Happy New year too

eg (Dec 28, 2006 9:29:58 PM)
night

momma (Dec 28, 2006 9:30:06 PM)
you too

momma (Dec 28, 2006 9:30:11 PM)
(This user has left DigiChat)